Lights, Camera and, Yes, Music: Reporting From the Operating Room as Doctors Perform Fetal Surgery
Neil Young was singing, “ I want to see you dance again, ” as Lexi Royer ’ s son came into view. He seemed to be kneeling inside her womb. (Source: NYT Health)
Source: NYT Health - October 24, 2017 Category: Consumer Health News Authors: DENISE GRADY Tags: Surgery and Surgeons Pregnancy and Childbirth Uterus Spina Bifida Birth Defects Source Type: news
The Healing Edge: To Mend a Birth Defect, Surgeons Operate on the Patient Within the Patient
In a startling experimental procedure, doctors lift the uterus from a pregnant woman and operate on a fetus with miniature instruments. (Source: NYT Health)
Source: NYT Health - October 23, 2017 Category: Consumer Health News Authors: DENISE GRADY Tags: Pregnancy and Childbirth Birth Defects Spina Bifida Disabilities Surgery and Surgeons Baylor College of Medicine Texas Children's Hospital Source Type: news
Looking at the whole child: Coordinated care for spina bifida helps Jeffrey thrive
Jeffrey Marotz and his family may have driven to Boston Children’s Hospital from their home in New York, but it was really the boy’s feet that brought him here.
Born with severe spina bifida, a complex birth defect that affects the development of a child’s spinal cord, spine and brain, Jeffrey had also been diagnosed with clubfoot, a related orthopedic condition that causes the foot to twist unnaturally.
Previous surgeries hadn’t worked and the braces that had been custom made for then three-year-old Jeffrey didn’t fit correctly. “Nothing was working,” says his mom, Michelle.
A team approach to spina bifida
F...
Source: Thrive, Children's Hospital Boston - October 18, 2017 Category: Pediatrics Authors: Jenny Fernandez Tags: Diseases & Conditions Our Patients’ Stories clubfoot Dr. Benjamin Warf Dr. Carlos Estrada Dr. Lawrence Karlin Dr. Terry Buchmiller Rebecca Sherlock spina bifida Source Type: news
Research proves bioengineering as viable alternative to open fetal repair for spina bifida
(Children's Hospital Colorado) Researchers from Children's Hospital Colorado and the University of Colorado Anschutz Medical Campus recently discovered a promising alternative to open fetal surgery for spina bifida repair. The team, led by Ahmed Marwan, MD, has developed an alternative approach to current in utero treatment for spina bifida: a minimally-invasive repair using a bioengineered material -- a reverse thermal gel (RTG) -- to cover the neural tube defects (NTD) at an earlier gestational age than traditional treatment. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - October 4, 2017 Category: International Medicine & Public Health Source Type: news
Mayo Clinic Minute: Does folic acid prevent obesity in kids?
There's no question that women of childbearing age should take?folic acid?because it reduces a baby's risk of being born with spina bifida, a neural tube defect. New research shows there may be another good reason for expectant mothers to take the mineral: It may prevent?obesity in children.?Dr. Alva Roche Green, a Mayo Clinic family physician, [...] (Source: News from Mayo Clinic)
Source: News from Mayo Clinic - September 13, 2017 Category: Databases & Libraries Source Type: news
Pushing past the pain: Morgan ’s journey with spina bifida
“Be glad you can use your legs now. You might not always be able to.”
That’s what Morgan Gautreau was told by a neurosurgeon in Alabama six years ago, one of many doctors she had seen seeking a solution for her nearly constant back pain caused by a tethered spinal cord due to spina bifida occulta.
Luckily, she and her family didn’t take his words to heart, but kept looking for help.
Early surgeries
Morgan’s journey with back pain began when she was in fourth grade. “I was at a Louisiana State University game and I realized my back was hurting. It just came out of the blue,” Morgan explains. “It hurt for a ...
Source: Thrive, Children's Hospital Boston - August 8, 2017 Category: Pediatrics Authors: Nicole Nover Tags: Diseases & Conditions Our Patients’ Stories Dr. Bartley Cilento Dr. Benjamin Warf Dr. Carlos Estrada Dr. Michelle Baum neonatal and congenital anomaly neurosurgery spina bifida Spina Bifida Center Spina Bifida Clinic tethered cord Source Type: news
Honda giving $1M to Nationwide Children's Hospital for mobility research
Honda will give Nationwide Children ’s Hospital $1 million to kickstart a mobility analysis center, the organizations announced Tuesday.
The gift, which will be paid over four years, will help establish the “Honda Center for Gait Analysis and Mobility Enhancement,” which will focus on improving pediatric mobility for patients w ith conditions like cerebral palsy and spina bifida.
“We believe at Honda that our philanthropic gifts should benefit the communities where our associates live and… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - June 20, 2017 Category: Pharmaceuticals Authors: Jeremy Hill Source Type: news
Social workers and medical students: ‘the ideal team’
Matthew Hing is a first-year medical student at UCLA, but on this April morning he ’s a visitor in a nondescript building on Lincoln Boulevard in Venice — the St. Joseph Center, home of the Chronically Homeless Intervention Program.Hing enters through a back door, weaving through a crowd of homeless people who gather each morning to take advantage of St. Joseph ’s services. This isn’t your typical med school classroom, but Hing believes the experience will be a vital part of his training — adding more educational insight to his medical school curriculum.Thanks to a partnership between the UCLA Luskin School of ...
Source: UCLA Newsroom: Health Sciences - June 19, 2017 Category: Universities & Medical Training Source Type: news
Fighting for Kennedy: Coping with moyamoya disease
If you happen to be waiting in line at the supermarket with Kennedy Grace Cheshire, you’ll likely leave the store with a whole new group of friends. This outgoing five-year-old can’t resist introducing herself to her fellow shoppers — and then introducing them to each other. “She’s never met a stranger,” says her mother, Amber.
Kennedy, who lives in Texas, brought that playful attitude to the East Coast last year when she and her family arrived at Boston Children’s Hospital for evaluation and treatment.
At age two, she had been diagnosed with neurofibromatosis 1 (NF1), a genetic condition that causes symptoms...
Source: Thrive, Children's Hospital Boston - March 21, 2017 Category: Pediatrics Authors: Jessica Cerretani Tags: Diseases & Conditions Our Patients’ Stories Dr. Edward Smith moyamoya Moyamoya Disease Program Source Type: news
Mom's Postpartum Body Serves As Painful Reminder Of Pregnancy Loss
Struggling with body image after pregnancy is not unusual. What makes Jessica McCoy’s story unique is that she is struggling with postpartum body image after a pregnancy loss, meaning that each stretch mark or extra pound is a reminder of the baby who isn’t there.
The 27-year-old mother posted about the painful experience on Instagram, along with a photo of herself wearing jeans and a bra. The emotional caption describes the feeling of looking at her uncovered body in the mirror since her loss.
“Every day I get clothes on and they’re tight,” she wrote. “And every day I&rs...
Source: Healthy Living - The Huffington Post - March 13, 2017 Category: Consumer Health News Source Type: news
Coming together from worlds apart for spina bifida care
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Molly Gotbeter giggles impishly as she accepts a sugar cookie and frosting from a nurse. She’s sitting patiently on an exam table waiting to see one of her favorite people in the world — Benjamin Warf, MD, director of Neonatal and Congenital Anomaly Neurosurgery at Boston Children’s Hospital.
For this visit to the spina bifida clinic, Molly has traveled from her home in Charleston, South Carolina. But her journey to Dr. Warf and Boston Children’s has been much longer.
Molly was born in a ...
Source: Thrive, Children's Hospital Boston - February 2, 2017 Category: Pediatrics Authors: Ellen Greenlaw Tags: Diseases & Conditions Our Patients’ Stories Dr. Benjamin Warf Dr. Terry Buchmiller neonatal and congenital anomaly neurosurgery spina bifida Spina Bifida Center Spina Bifida Clinic tethered cord Source Type: news
Evaluation of the effects of laser tissue welding for spina bifida repair
Spina Bifia is a birth defect where there is incomplete closure of the backbone and membranes around the spinal cord. It affects more than 4,000 children born each year in the U.S. and is associated with hydrocephalus (excessive accumulation of fluid on the brain), developmental delay, lifelong disability and death. This preliminary study hoped to determine the effects of laser tissue welding on underlying skin and spinal cord tissue. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - January 23, 2017 Category: Science Source Type: news
Evaluation of the use of human umbilical cord for in-utero spina bifida repair
Spina Bifida is a birth defect where there is an incomplete closure of the backbone and the coverings around the spinal cord. It affects more than 4,000 children born each year in the United States and is associated with hydrocephalus (fluid in the brain), developmental delay, lifelong disability and death. Spina Bifida is also associated with a need for shunt placement. In-utero surgery has been shown to reduce the need for shunting of hydrocephalus and to improve a child ' s ability to walk. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - January 23, 2017 Category: Science Source Type: news
Evaluation of the effects of laser tissue welding for spina bifida repair
(Society for Maternal-Fetal Medicine) In a study to be presented Saturday, Jan. 28, in the oral concurrent session at 8:45 a.m. PST, at the Society for Maternal-Fetal Medicine's annual meeting, The Pregnancy Meeting , researchers at Baylor College of Medicine, Houston, Texas; IBEX, Logan, Utah; and Laser Tissue Welding Inc., Houston, Texas, collaborated on a study titled, Evaluation of the effects of laser tissue welding on the spinal cord and skin in a 30-day study of simulated spina bifida repair in rabbits. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - January 23, 2017 Category: Global & Universal Source Type: news
Evaluation of the use of human umbilical cord for in-utero spina bifida repair
(Society for Maternal-Fetal Medicine) In a study to be presented Saturday, Jan. 28, in the oral concurrent session at 8:45 a.m. PST, at the Society for Maternal-Fetal Medicine's annual meeting, The Pregnancy Meeting , researchers evaluated a possible regenerative patch by using human umbilical cord in two studies. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - January 23, 2017 Category: Global & Universal Source Type: news
