Effects of robot-assisted gait training alongside conventional therapy on the development of walking in children with cerebral palsy.
Authors: Sucuoglu H Abstract PURPOSE: To investigate the effects of robot-assisted gait training (RAGT) alongside conventional therapy on the standing and walking abilities of children with cerebral palsy (CP). METHODS: The study sample consisted of children (aged 4-18 years) with CP whose gross motor function classification system (GMFCS) was at levels I-V. In total, 75 children with CP were evaluated and 38 patients completed the study. Patients were divided into two groups as GMFCS levels I-III (Group 1) and levels IV-V (Group 2). RAGT (30 min/session) and conventional physiotherapy (30 min/session) were app...
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Repeated episodes of pediatric constraint induced movement therapy with a gross motor training component: A prospective cohort study.
Authors: Grinde K, Myhre J, Finch MD Abstract PURPOSE: To examine the results of repeated episodes of 21-day pediatric constraint induced movement therapy (PCIMT) paired with gross motor training (GMT). METHODS: Nineteen children, age 14 months - 6 years with unilateral upper extremity impairment enrolled in this cohort study to receive repeated episodes of 21 day PCIMT-GMT. Outcome measures included the Peabody Developmental Motor Scales-2 (PDMS-2), the Assisting Hand Assessment (AHA) and the Canadian Occupational Performance Measure (COPM). RESULTS: All children demonstrated improvement in raw scores foll...
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Immediate effect of induced fatigue of the unaffected limb on standing balance, proprioception and vestibular symptoms in children with hemiplegia.
Authors: Abdin MMN, Abdelazeim F, Elshennawy S Abstract OBJECTIVES: To study the effect of induced fatigue of the unaffected limb on the sensory components of standing balance; proprioception and vestibular symptoms in children with hemiplegic cerebral palsy. METHODS: Setting: Outpatient Clinic of Faculty of Physical Therapy, Cairo University. PATIENTS: Twenty-nine children with hemiplegic cerebral palsy [(ages 8.9 ± 2.3 years), motor ability I/II according to the GMFCS and spasticity of I/I+ according to the Modified Ashworth Scale]. OUTCOME MEASURES: Before and after the induced fatigue of the ...
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Lessons learned from conducting a pragmatic, randomized, crossover trial on robot-assisted gait training in children with cerebral palsy (PeLoGAIT).
CONCLUSIONS: RAGT as a single intervention was not effective in improving walking abilities in the included children. It should be embedded in a holistic treatment approach, as it cannot cover all aspects relevant to gait. Furthermore, children's personalized rehabilitation goals should be carefully monitored with individualized measurement instruments. PMID: 32444573 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Effects of solid ankle-foot orthoses with individualized ankle angles on gait for children with cerebral palsy and equinus.
CONCLUSION: Individualized AFO prescription and iAA-AFOs can impact gait biomechanics for some children with equinus, compared to conventionally-prescribed AFOs. Optimizing dynamic alignment for walking may further improve outcomes. PMID: 32444574 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Focus on autonomy: Using 'skills for growing up' in pediatric rehabilitation care.
CONCLUSION: Youth with disabilities, their parents and rehabilitation professionals value the SGU-D as a practical tool for working on autonomy, and to identify important areas of development. PMID: 32444575 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

The association of hepatoblastoma, prematurity and cerebral palsy: Case reports.
CONCLUSIONS: Hepatoblastoma is the most common primary liver tumor in children and has an increased incidence in children with a history of prematurity and very low birth weight. Providers who frequently care for the very low birth weight and premature children with CP should be aware of this correlation and include hepatoblastoma in the differential when managing patients with suddenly worsening constipation or abdominal distension. Pediatric physiatrists and other providers for these patients could be a source of referrals and diagnosis leading to timely treatment. PMID: 32444576 [PubMed - as supplied by publisher] (...
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Cerebral Palsy.
Authors: Gaebler-Spira D, Green M PMID: 32444579 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Out of the spasticity box: Off-label uses of botulinum toxin in children.
Authors: Oleszek JL, Kanallakan AS, Powell AJ Abstract ??? PMID: 32444580 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - May 25, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Where have all the children gone? Reflections on a flowerless "COVID" spring.
Where have all the children gone? Reflections on a flowerless "COVID" spring. J Pediatr Rehabil Med. 2020;13(1):i-iv Authors: Sukhov R, Gold J, Asante A, Dizon L, Gold J PMID: 32333562 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - April 26, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Becoming anti-racist for the benefit of our patients.
Authors: Houtrow A PMID: 32333563 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - April 26, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Superimposed Guillain-Barr é Syndrome (GBS) in pediatric hypoxic brain injury.
Superimposed Guillain-Barré Syndrome (GBS) in pediatric hypoxic brain injury. J Pediatr Rehabil Med. 2020 Feb 26;: Authors: Leung E, Javaid S, Erlandson E, Pelshaw CB Abstract BACKGROUND: Hypoxic brain injury results in severe disabilities that require extensive acute inpatient and outpatient rehabilitation to promote maximal functional and cognitive recovery. Brain hypoxemia can result from a multitude of causes, including but not limited to cardiac arrest, drug overdose, and/or shock. While recovery from a hypoxic brain injury alone can be challenging, dealing with concurrent debilitative diag...
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Early detection of dysphagia and dysarthria in children with neuromuscular disorders: Diagnostic accuracy of a Screeninglist for Physicians.
CONCLUSION: The Screeninglist Physician of the DDD-pNMD is the first valid screening tool for physicians to identify children with NMD with possible dysphagia and/or dysarthria, thereby enabling timely referral to an SLT. PMID: 32176663 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Effects of a school-based sports program on psychosocial health and attention in youth with physical disabilities.
CONCLUSION: A school-based sports program seems to have no effect on psychosocial health and attention in youth with physical disabilities. Research into the important factors influencing these variables is needed before further resources can be given to improve sports participation for increasing psychosocial health and attention. PMID: 32176664 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Incidence and risk factors of communication, swallowing, and orofacial myofunctional disorders in children and adolescents with cancer and benign neoplasms.
CONCLUSION: An incidence of 22.8% for communication, swallowing, and orofacial myofunctional disorders was observed. The development of these disorders was greater in individuals with tumors in the CNS and in the HN region. PMID: 32176665 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Training, detraining, and retraining: Two 12-week respiratory muscle training regimens in a child with infantile-onset Pompe disease.
Authors: Crisp KD, Case LE, Kravitz RM, Kishnani PS, Jones HN Abstract BACKGROUND: Respiratory muscle weakness is a primary cause of morbidity and mortality in patients with Pompe disease. We previously described the effects of our 12-week respiratory muscle training (RMT) regimen in 8 adults with late-onset Pompe disease [1] and 2 children with infantile-onset Pompe disease [2]. CASE REPORT: Here we describe repeat enrollment by one of the pediatric participants who completed a second 12-week RMT regimen after 7 months of detraining. We investigated the effects of two 12-week RMT regimens (RMT #1, RM...
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Brachial plexus birth injuries and the association between pre-procedure and post-procedure pediatric outcomes data collection instrument scores and narakas classification.
CONCLUSION: Procedures increased the perceived quality of life for children with a BPBI and increased their overall PODCI scores for both UE and GFx. PMID: 32176667 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Pediatric intracranial arteriovenous malformations: Examining rehabilitation outcomes.
CONCLUSION: We found that all pediatric patients with intracranial AVMs, across all treatment modalities, demonstrated improved outcomes across all functional domains after an acute inpatient rehabilitation program. PMID: 32176668 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

In-clinic event related potentials after sports concussion: A 4-year study.
The objective of this study is to use a simple 2-tone auditory P300 ERP in routine clinical settings to measure changes from baseline after concussion and to determine if these changes persist at return to play when other standard measures have normalized. METHODS: Three-hundred sixty-four (364) student athletes, aged 17-23 years, participating in contact sports were tracked over consecutive years. In this blinded study P300, plus physical reaction times and Trail Making tests, were collected alongside standard clinical evaluations. Changes in these measures after concussion were compared to clinical outcomes over...
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Normal childhood development curriculum in a pediatric rehabilitation training program: An interactive, novel approach.
CONCLUSION: This study introduces a novel approach to developmental milestones education that is tailored to the adult learner and pediatric rehabilitation trainees. PMID: 32176670 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Hard hits of distress.
Authors: Dean W, Talbot SG PMID: 32176672 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 17, 2020 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Award Announcements.
Authors: PMID: 31796706 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - December 6, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Immigration and transition: Changing demographics forecast the emerging trends in spina bifida care.
Authors: Castillo J, Brei TJ Abstract Globally, the number of immigrants, refugees, and internally displaced persons is escalating. While immigration is often a result of social determinants, including political discrimination, poverty, education, and work-related prospects, immigration itself can also be conceptualized as a social determinant of health. Through the National Spina Bifida Patient Registry (NSBPR), investigators have begun to recognize existing disparities within growing minority populations affected by spina bifida. Concurrently these individuals are also living longer, therefore, these demographic ...
Source: Journal of Pediatric Rehabilitation Medicine - December 6, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Implementation of intimate partner violence education for adolescents with spina bifida.
CONCLUSIONS: The educational intervention increased provider comfort with addressing IPV within a specialty clinical setting. The frequency of IPV communication significantly increased as compared to baseline, patients reported the discussions were beneficial, and providers reported greater comfort discussing IPV and referring patients to resources. PMID: 31744027 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Differences in continence rates in individuals with spina bifida based on ethnicity.
Authors: Smith KA, Liu T, Freeman KA, Betz C, Clayton GH, Castillo H, Castillo J, Tu D, Speybroeck AV, Walker WO Abstract BACKGROUND: Ethnic disparities in continence rates in spina bifida (SB) have been studied regionally but not nationally. National SB Patient Registry (NSBPR) data were analyzed to explore differences in prevalence of bowel and bladder continence and interventions between Hispanics/Latinos and othersMETHODS: Participants 5 to 21 years were categorized into Hispanic/Latino and non-Hispanic/non-Latino. Bladder/bowel continence was defined as dry/no involuntary stool leakage during the day or n...
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Emergency department utilization among pediatric spina bifida patients.
CONCLUSION: Pediatric patients with spina bifida presenting to a single center emergency department were most likely to present with shunt and urinary concerns; these patients were most likely to be admitted. This potentially suggests that improving outpatient care for bladder management may decrease emergency department use among this population. PMID: 31744029 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

An exploratory study of adolescents and emerging adults with spina bifida knowledge of their individual education program: Implications for health care transition planning.
CONCLUSIONS: Findings of this study reveal the IEP knowledge gaps and lack of lifestyle self-management skills AEA with SB reported pertaining to IEPs. PMID: 31744030 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Language and latino immigrants living with spina bifida: Social determinants of health - the missing dimension in quality of life research.
CONCLUSIONS: QOL in individuals with SB is mediated by a wide-range of interrelated factors. In order to better serve this vulnerable population as they transition across the lifespan, multilingual condition-specific QOL measures need to be further developed and implemented among Hispanic/Latino individuals with SB, especially those who are recent immigrants. PMID: 31744031 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Transition readiness assessment questionnaire spina bifida (TRAQ-SB) specific module and its association with clinical outcomes among youth and young adults with spina bifida.
CONCLUSIONS: Higher TRAQ-SB scores are negatively associated with bladder incontinence in youth with spina bifida. While stool continence and skin breakdown were not associated with TRAQ-SB scores, this relation is complex and may be obfuscated by either reporting bias or outcome measurement bias. To further refine the questionnaire and understand this relationship we need to field it prospectively in the SB network with larger samples. The TRAQ-SB questionnaire, however, does have value in the clinical setting to help promote the acquisition of specific self-management skills among youth with spina bifida. PMID: 31744...
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

The reliability and validity of a newly developed spina bifida-specific transition readiness assessment questionnaire: Transition readiness assessment questionnaire-supplement (TRAQ-SB).
Authors: Johnson K, Rocque B, Hopson B, Barnes K, Omoike OE, Wood D Abstract PURPOSE: The purpose of this study is to report preliminary evidence to support a new condition-specific measure of transition readiness that is theoretically grounded in the Stages of Changes framework. The Transition Readiness Assessment Questionnaire-Spina Bifida (TRAQ-SB) supplement is a newly developed tool used to measure independence and skill acquisition related to spina bifida. Similar to the Transition Readiness Assessment Questionnaire (TRAQ), the TRAQ-SB uses a 5-point Likert response set. METHODS: Working with a multi-disc...
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Needs assessment survey for children and adults with spina bifida in Georgia.
CONCLUSIONS: Our survey findings highlighted that SBAGA services are valued overall. The survey findings will be used to guide quality improvement of current programs, and develop programs addressing emerging needs and challenges. PMID: 31744034 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Environmental buttocks burns in children and adolescents with spina bifida in the Southwestern United States.
CONCLUSIONS: Children and adolescents with MM who are community ambulators, of an emerging independent age, and live in hot climates are at risk of environmental buttocks burns. Enhanced education in environmental thermal burn prevention is important. This education should be particularly focused on the child as they spend more time in settings without their parents. In addition, this enhanced education should extend to those who support the child or teen such as teachers, coaches, family and friends. PMID: 31744035 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Spina bifida transition to adult healthcare guidelines.
Authors: Fremion EJ, Dosa NP Abstract With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-specific transition to adult healthcare guidelines are warranted to address the diverse and complex medical, adaptive, and social needs particular to this condition. This commentary discusses the SB Transition Healthcare Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, reviews current transition care models in which such guidelines can be implemented, and explores further research topics in SB transition care. ...
Source: Journal of Pediatric Rehabilitation Medicine - November 21, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Gaps in the delivery of rehabilitation medical equipment in the digital age.
Authors: Lunsford C, Rosen L, Biffl S, Ramsey J, Edinger J, Pierce W, Houtrow A PMID: 31609713 [PubMed - in process] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - October 15, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Traumatic spinal cord injuries: A retrospective cohort study of children seen in Western Australia between 1996 and 2016.
CONCLUSIONS: Children with medical complexity are responsive to rehabilitation but have a high burden of care, requiring multiple-specialty care and hospital re-admissions. AROC has set a minimum data set recommendation for the collection and examination of patient data. PMH meets the AROC guidelines for patient data collection and descriptive analyses. PMID: 31476174 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Acute flaccid myelitis: Rehabilitation challenges and outcomes in a pediatric cohort.
CONCLUSIONS: Children with flaccid paralysis due to AFM undergoing structured, comprehensive rehabilitation interventions, even when these are initiated long after paralysis onset, can make significant neurologic and functional gains. Recovery of function and prevention of comorbidities are the main therapeutic targets for interventions in this population. PMID: 31476175 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

A single-center retrospective review of factors influencing surgical success in patients with cerebral palsy undergoing corrective hip surgery.
Authors: Cottrill EJ, Johnson DC, Silberstein CE Abstract PURPOSE: To identify factors associated with success of corrective bony hip surgery among patients with cerebral palsy (CP). METHODS: A retrospective review was conducted of medical records of patients diagnosed with CP and hip displacement who underwent surgery from 2004 to 2016 at the authors' institution and who had one-year minimum follow-up. Patient age, sex, Gross Motor Function Classification System (GMFCS) level, surgical procedure(s), type and extent of CP, presence of preoperative and postoperative hip pain, and hip migration percentages (MPs) ...
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Neonatal therapy: A survey of current practice.
CONCLUSIONS: Advanced training and skills of neonatal therapists are vital to ensure safe, effective and evidence-based practice. Insufficient standardization in training and variable adherence to education and training guidelines provided credibility for the creation of a neonatal therapy national certification process, which has now been implemented. PMID: 31476177 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

A new frontier of pediatric oncology rehabilitation: Establishment of a dedicated working-group within the Italian association of pediatric hematology and oncology.
CONCLUSIONS: Some results of the survey were chosen as basic criteria of clinical best practice on which to build the first rehabilitation working-group at the national level to be proposed to the AIEOP commission. PMID: 31476178 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

The head control scale: Development, inter-rater reliability, and utility.
CONCLUSIONS: The HCS has high interrater reliability and users report it to be a needed tool, applicable to clinical practice, and easy to use. IMPLICATIONS: The results of this study indicate that the HCS has great potential for clinical use. PMID: 31476179 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Grip and pinch strength: Reference values for children and adolescents from India.
Authors: Shetty M, Balasundaran S, Mullerpatan R Abstract PURPOSE: The purpose of the study was to provide reference values for grip and pinch strength for healthy children and adolescents in India. METHODS: Grip and pinch strength were recorded for 900 participants stratified into 5 chronological age groups (5-6, 6-9, 9-12, 12-15, and 15-18 years). Grip strength was measured using a Jamar Dynamometer and pinch strength using a Martin vigorimeter. RESULTS: The difference in grip and pinch strength between age groups was significant (p
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Primary care provider adherence to reproductive healthcare guidelines in adolescents and young adults with disabilities: A retrospective matched cohort study1.
Authors: Roden RC, Oholendt K, Lange H, Noritz G, Bonny AE Abstract PURPOSE: Assessing provider adherence to preventative sexual and reproductive healthcare guidelines in adolescents and young adults (AYA) patients with physical and intellectual disabilities (PWD). METHODS: Records of PWD (N= 42) age 12-26 receiving health maintenance between 01/01/11-12/31/16 were reviewed for: (1) initiation and completion of human papilloma virus (HPV) vaccination series, (2) initiation and completion of meningococcal vaccination, (3) screening for human immunodeficiency virus (HIV), and documentation of (4) sexual, (5) mens...
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Intrathecal baclofen toxicity in a patient with acute kidney injury.
Authors: Bowman A, Ayyangar R, Gonzales I, Hornyak J Abstract A 9-year old male patient with a past medical history of congenital cytomegalovirus (CMV) infection and spastic quadriplegic cerebral palsy with an intrathecal baclofen pump was admitted to a tertiary care hospital with respiratory depression and unresponsiveness for approximately two days. He had a recent two-week hospital stay for respiratory failure due to pneumonia. After being prescribed antibiotics and being sent home, he had developed copious diarrhea. On readmission, he was found to be dehydrated and in acute renal failure. A physical exam reveal...
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Design of an adjustable stance-control knee-ankle-foot orthosis for pediatric population.
Authors: Gerez LF, Vieira AFC Abstract Conventional knee-ankle-foot orthoses (KAFOs) are generally prescribed for children with lower limb muscle weakness and joint instabilities. The main function of KAFOs is to provide stability during gait by locking the knee in full extension. However, walking with the knee joint in a fully extended position requires excessive energy consumption, leading to early fatigue and inducing non-physiological gait patterns. A new generation of KAFOs was developed to allow free knee flexion during the swing phase and to lock the knee joint during the stance phase to provide the required...
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Compassion and connectedness as motivational drivers in the care of children with medical complexity.
Authors: Plews-Ogan J, Babbar A, Keim-Malpass J Abstract Employing a cross-sectional qualitative descriptive design, using individual, semi-structured interviews collected from primary care and specialty clinicians who routinely care for children with medical complexity (CMC) in a largely rural area in central Virginia, this study aimed to better understand the current state of care, the motivations, and barriers for expansion of care for CMC in a semi-rural academic hospital center. Five themes emerged describing the current practice of the participants: (1) complexities of care, (2) compassion and empathy for fam...
Source: Journal of Pediatric Rehabilitation Medicine - September 4, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

It all started with a clubfoot: Beliefs surrounding cerebral palsy throughout history.
Authors: Stang KM, King NE, Gaebler-Spira D Abstract Cerebral palsy (CP) has afflicted children and puzzled medical practitioners since antiquity. The study of the disorder required the interplay of orthopedics, obstetrics, and neurology as it became apparent that its etiology is related to perinatal events resulting in nervous system damage. William Little was first to seriously study CP and asserted that CP is related to hypoxic brain injury during delivery. William Osler coined the term "cerebral palsy" and further examined the link between neurological damage at birth and clinical manifestations. The ...
Source: Journal of Pediatric Rehabilitation Medicine - July 10, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Cerebral Palsy.
Authors: Green MM, Gaebler-Spira D PMID: 31282438 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - July 10, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Perioperative management of patients with cerebral palsy undergoing scoliosis surgery: Survey of surgeon practices.
CONCLUSION: There is significant variability in the current practices of perioperative management of patients with CP undergoing scoliosis surgery. This data can be used in future studies to create a standardized integrated care pathway. PMID: 31227661 [PubMed - as supplied by publisher] (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - June 23, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Efficacy of prefabricated carbon-composite ankle foot orthoses for children with unilateral spastic cerebral palsy exhibiting a drop foot pattern.
This study aims to evaluate the effectiveness of a prefabricated carbon-composite ankle foot orthoses (c-AFOs) on gait parameters in children with unilateral spastic cerebral palsy (USCP) exhibiting a drop foot pattern. METHODS: Sixteen ambulatory children with USCP and a drop foot pattern were included (mean age: 9 years; gross motor function classification system: I = 14, II = 2) and three-dimensional gait analysis was applied under randomly assigned conditions (barefoot; shoe; c-AFO). Kinematics, kinetics, time-distance parameters and gait indices were investigated. RESULTS: Effects on the drop foot pattern were...
Source: Journal of Pediatric Rehabilitation Medicine - June 23, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research

Nutritional care: The 'poor child' of clinical care in children with cerebral palsy.
Authors: Snik DAC, Jongerius PH, Roos NM, Verschuren O Abstract There is a considerable risk of malnutrition for children with CP due to insufficient nutritional intake. The most important causes of insufficient intake are feeding problems which are highly prevalent in children with CP (depending on definition, age and heterogeneity of the researched population). Considering these facts, nutritional status should have the full attention of healthcare professionals but this is not yet the case. Evidence from research in clinical practice suggests that: 1) there is no consensus regarding who should perform the measur...
Source: Journal of Pediatric Rehabilitation Medicine - June 23, 2019 Category: Rehabilitation Tags: J Pediatr Rehabil Med Source Type: research