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Measuring communication as a core outcome in aphasia trials: Results of the ROMA-2 international core outcome set development meeting
CONCLUSIONS & IMPLICATIONS: Consensus was achieved that TST was the preferred communication OMI for inclusion in the ROMA COS. It is currently available in the original Dutch version and has been adapted into English, German and Greek. Further consideration must be given to the best way to measure communication in people with mild aphasia. Development of a patient-reported measure for satisfaction with/impact of treatment and multilingual versions of all OMIs of the COS is still required. Implementation of the ROMA COS would improve research outcome measurement and the quality, relevance, transparency, replicability and ef...
Source: International Journal of Language and Communication Disorders - December 30, 2022 Category: Speech-Language Pathology Authors: Sarah J Wallace Linda Worrall Tanya A Rose Reem S W Alyahya Edna Babbitt Suzanne Beeke Carola de Beer Arpita Bose Audrey Bowen Marian C Brady Caterina Breitenstein Stefanie Bruehl Lucy Bryant Bonnie B Y Cheng Leora R Cherney Paul Conroy David A Copland Cl Source Type: research

How do healthcare professionals experience communication with people with aphasia and what content should communication partner training entail?
CONCLUSIONS: According to HCP, communication difficulties challenge the provision of healthcare activities and lead to negative feelings in HCP. HCP suggest that communication can be improved by providing more time in the healthcare pathway of people with aphasia, adapting healthcare information to the needs of people with aphasia, commitment of physicians and managers, changing the roles of SLTs and improving knowledge and skills of HCP. Implications for rehabilitation Communication between healthcare professionals (HCP) and people with aphasia can be improved by training HCP to use supportive conversation techniques and ...
Source: Disability and Rehabilitation - February 2, 2021 Category: Rehabilitation Authors: van Rijssen MN, Veldkamp M, Bryon E, Remijn L, Visser-Meily JMA, Gerrits E, van Ewijk L Tags: Disabil Rehabil Source Type: research

Speech language therapists' experiences with subjective well-being in people with aphasia.
CONCLUSIONS & IMPLICATIONS: The results showed that SLTs feel responsible for addressing SWB in the management of people with aphasia. Their perception of the concept of SWB is similar to the definition used in the literature and is multifaceted. They feel responsible for the part of SWB that is related to communicative functioning, but less so for the more heuristic aspects of SWB. This is related to their experienced limitation of influence on SWB, which for some leaves them feeling out of depth and uncertain about boundaries between professionals. Addressing SWB in a multidisciplinary team is therefore considered im...
Source: International Journal of Language and Communication Disorders - January 18, 2021 Category: Speech-Language Pathology Authors: van Ewijk L, Bootsma TMC, van Rijssen M, Ter Wal N Tags: Int J Lang Commun Disord Source Type: research

Systematic review of subjective memory measures to inform assessing memory limitations after stroke and stroke-related aphasia.
Conclusions: This literature domain currently provides an unclear picture as to how memory limitations affect participation in stroke and stroke-related aphasia. IMPLICATIONS FOR REHABILITATION A broad range of subjective memory measures have been used to determine stroke survivors' perceptions of their everyday memory issues. Because of psychometric weaknesses such as inadequate reliability and cross-cultural validity among subjective memory measures, there remains a need to carefully review a given measure's properties to determine if it is appropriate for use with a given stroke survivor. Stroke survivors with aphasia h...
Source: Disability and Rehabilitation - September 26, 2019 Category: Rehabilitation Authors: Salis C, Murray L, Vonk JMJ Tags: Disabil Rehabil Source Type: research

Anxiety in Patients With Acute Ischemic Stroke: Risk Factors and Effects on Functional Status
Conclusion: Depressive symptoms are the major correlates of PSA while more severe PSA is associated with poorer ADL and health-related QOL. Acute lesions involving CHWM may correlate with PSA in ischemic stroke patients with mild-to-moderate neurologic deficits, supporting a lesion-location hypothesis in PSA.IntroductionAnxiety is prevalent after stroke and occurs in about one-quarter of stroke survivors (1, 2). Poststroke anxiety (PSA) may have a negative impact on quality of life (QOL) of stroke survivors, affecting their rehabilitation (3). Furthermore, one prospective study found that severe anxiety symptoms were assoc...
Source: Frontiers in Psychiatry - April 16, 2019 Category: Psychiatry Source Type: research

Measuring Pain in Aphasia: The Reliability and Validity of the PACSLAC-D Observational Scale
Self-report pain scales are the most common way to assess pain in stroke patients with aphasia. The use of self-report pain scales in patients with aphasia is challenging due to communication or cognitive problems. A feasible, reliable and valid instrument to assess pain in patients with aphasia is yet not available. The aim of this study is to examine the reliability and validity of the Pain Assessment Checklist for Seniors with Severe Dementia-Dutch version (PACSLAC-D) in stroke patients with and without aphasia.
Source: Journal of the American Medical Directors Association - February 27, 2019 Category: Health Management Authors: Hanneke Smaling, N. de Vries, H. Smaling, J. van der Steen, W. Achterberg Tags: Research Source Type: research

Psychometric properties of the Dutch SAQOL-39NL in a generic stroke population.
CONCLUSIONS: These data provide further evidence for the acceptability, internal consistency, and initial promising data on validity of the SAQOL-39NLg. Further research on structural validity and responsiveness to change is needed. PMID: 30380373 [PubMed - as supplied by publisher]
Source: Topics in Stroke Rehabilitation - October 31, 2018 Category: Neurology Authors: Van Ewijk L, Ter Wal N, Okx G, Goossens P, Groeneveld I Tags: Top Stroke Rehabil Source Type: research

Haemorrhagic stroke related to the use of 4-fluoroamphetamine
We report on two patients who presented with headache and mild hypertension after 4-FA use. Patient A developed one-sided weakness and decreased consciousness after a few hours. A computed tomography scan showed a left-sided intracerebral haemorrhage. Because of life-threatening cerebral herniation, haematoma evacuation was performed. Postoperatively, she suffered from a right-sided hemiparalysis and severe aphasia, requiring clinical rehabilitation. Patient B had a subarachnoid haemorrhage without neurological deficits. In total, 939 4-FA-intoxicated patients were registered. These patients used 4-FA alone (44%) or in com...
Source: Journal of Neurology - May 8, 2018 Category: Neurology Source Type: research

Cultural adaptation and psychometric testing of The Scenario Test UK for people with aphasia.
CONCLUSIONS & IMPLICATIONS: The data support the reliability and validity of the Scenario Test UK as an assessment of functional, daily-life communication for persons with aphasia. Further testing is needed in independent samples on the measure's psychometric properties, including its sensitivity to change. Pending this testing, The test can be used as an assessment tool to evaluate communication skills with people with aphasia, to guide goal setting for therapy and to measure outcomes in response to therapy. PMID: 29500847 [PubMed - as supplied by publisher]
Source: International Journal of Language and Communication Disorders - March 3, 2018 Category: Speech-Language Pathology Authors: Hilari K, Galante L, Huck A, Pritchard M, Allen L, Dipper L Tags: Int J Lang Commun Disord Source Type: research