Quantifying gait impairment in individuals affected by Charcot-Marie-Tooth disease: the usefulness of gait profile score and gait variable score.
Abstract BACKGROUND: Gait analysis is a reliable tool to characterise ambulation in Charcot-Marie-Tooth, the obtained are complex data makes its use scarce in clinical practice. The use of synthetic measures may enable the clinician to easily interpret gait kinematics in Charcot-Marie-Tooth. AIMS: To test the usefulness of Gait Profile Score as a method to quantify and monitor kinematic gait alterations in Charcot-Marie-Tooth. METHODS: A group of patients with Charcot-Marie-Tooth and a control group underwent Gait Analysis. Neurological impairment was evaluated by means of the Charcot Marie Tooth neuropa...
Source: Disability and Rehabilitation - October 18, 2018 Category: Rehabilitation Authors: Coghe G, Pau M, Mamusa E, Pisano C, Corona F, Pilloni G, Porta M, Marrosu G, Vannelli A, Frau J, Lorefice L, Fenu G, Marrosu MG, Cocco E Tags: Disabil Rehabil Source Type: research

Content and psychometric evaluations of questionnaires for assessing physical function in people with low back disorders. A systematic review of the literature.
CONCLUSIONS: The extent of psychometric evaluations differed substantially, as did the items included. Focus of measurement was predominantly on activities in daily life. Implications for rehabilitation Valid and reliable instruments that measure relevant aspects of low back disorders are needed to provide early diagnostics and effective treatment. Most questionnaires need more psychometric evaluations to establish the quality. The Oswestry Disability Index and the Quebec Back Pain Disability Scale showed adequate psychometric properties in most evaluations. The results may be useful when making decisions about which measu...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Wiitavaara B, Heiden M Tags: Disabil Rehabil Source Type: research

Program conditions that foster quality physical activity participation experiences for people with a physical disability: a systematic review.
CONCLUSIONS: Although the qualitative findings highlight two program conditions which may foster QP elements, overall, evaluations of physical activity interventions involving people with disabilities rarely include experiential aspects of participation. Implications for rehabilitation Group-based programming and leadership are two program conditions that may foster elements of quality participation. Physical activity organizers need to consider group composition. Physical activity programs should consist of peers with a disability, as appropriate, in order to promote belongingness. Physical activity programs should provid...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Shirazipour CH, Evans MB, Leo J, Lithopoulos A, Martin Ginis KA, Latimer-Cheung AE Tags: Disabil Rehabil Source Type: research

The effect of low-level laser therapy and physical exercise on pain, stiffness, function, and spatiotemporal gait variables in subjects with bilateral knee osteoarthritis: a blind randomized clinical trial.
CONCLUSIONS: The group treated only with exercise showed improvement in WOMAC questionnaire scores. Regarding the gait variables, all groups undergoing the interventions showed increases in the gait speed compared to the CG. The laser and exercise combination therapy provided the best results for the other gait variables (cadence and duration of right limb support and duration of single right limb support). Implications for rehabilitation There are differences in gait patterns in patients with knee OA, including decreased gait speed, cadence, and step length. The results shown in the present study provide additional inform...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: de Matos Brunelli Braghin R, Libardi EC, Junqueira C, Rodrigues NC, Nogueira-Barbosa MH, Renno ACM, Carvalho de Abreu DC Tags: Disabil Rehabil Source Type: research

Guided graded Exercise Self-help for chronic fatigue syndrome: patient experiences and perceptions.
CONCLUSIONS: GES may be improved by targeting those most likely to improve, and teaching about the indeterminate phase. Implications for rehabilitation Using the Guided Exercise Self-help booklet alone is unlikely to be sufficient to support patients through Guided Exercise Self-help successfully. Additional guidance from skilled physiotherapists/health professionals who demonstrate an understanding of what it is like to cope with chronic fatigue syndrome/myalgic encephalomyelitis is also important. Those using Guided Exercise Self-help may need additional support through a commonly experienced "indeterminate phase&qu...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Cheshire A, Ridge D, Clark L, White P Tags: Disabil Rehabil Source Type: research

Persian adaptation of the Bad Sobernheim stress questionnaire for adolescent with idiopathic scoliosis.
Abstract PURPOSE: To examine the validity and reliability of the Persian versions of the Bad Sobernheim Stress Questionnaire-Deformity/Brace in adolescent idiopathic scoliosis. MATERIALS/METHODS: Persian forward/backward translation of the Bad Sobernheim Stress Questionnaire-Deformity/Brace was produced, and all stages for a cross-cultural adaptation process were carried out based on the International Quality of Life Assessment guidelines. The measurements of internal consistency and test-retest reliability were assessed by Cronbach's α and intraclass correlation coefficient (ICC), respectively. The Spe...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Rezaei Motlagh F, Pejam H, Babaee T, Saeedi H, Hedayati Z, Kamali M Tags: Disabil Rehabil Source Type: research

We need an operationalisation, not a definition of health.
CONCLUSIONS: The ICF provides both the frame of reference for an operationalisation of health that satisfies the intuitive understanding of what matters to people about their health and the technical tools for both health sciences and practice. Implications for rehabilitation An operationalisation of health is essential to describe the relative health status of individuals and populations as well as to measure the impact of rehabilitation interventions. An operationalisation of health focuses on the lived experience of health. The International Classification of Health, Functioning and Disability (ICF) is the ideal framewo...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Stucki G, Rubinelli S, Bickenbach J Tags: Disabil Rehabil Source Type: research

The key features and role of peer support within group self-management interventions for stroke? A systematic review.
CONCLUSION: Future self-management interventions should be designed to maximize peer support and incorporate techniques which facilitate, knowledge building, goal setting, access to resources, problem solving, and communication. Implications for rehabilitation Group self-management interventions offer a way to provide peer support to stroke survivors and should be utilized in practice. Peer support is seen by stroke survivors as valuable because it can facilitate the sharing of experiences, social comparison, vicarious learning, and increase motivation. Knowledge building, goal setting, problem solving, collaborative skill...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Clark E, MacCrosain A, Ward NS, Jones F Tags: Disabil Rehabil Source Type: research

Spectral analysis of centre of pressure identifies altered balance control in individuals with moderate-severe traumatic brain injury.
CONCLUSIONS: Increased amplitude of low and high-frequency power suggests that individuals with TBI included in this study have impaired anticipatory and reactive balance mechanisms, which may be driven by weight-bearing asymmetries and which recover over time. Implications for rehabilitation Anticipatory and reactive balance impairments after traumatic brain injury may place individuals at increased risk for falls. Analyses from postural sway in static balance tasks infer changes in anticipatory or reactive balance control after traumatic brain injury. Addressing weight-bearing asymmetries in rehabilitation interventions ...
Source: Disability and Rehabilitation - October 16, 2018 Category: Rehabilitation Authors: Habib Perez O, Green RE, Mochizuki G Tags: Disabil Rehabil Source Type: research

A retrospective study of 251 patients admitted to a multidisciplinary, neurorehabilitation unit with intensive care unit capabilities.
en JF Abstract INTRODUCTION: In Denmark, specialised neurorehabilitation is centralised in two centres; one is Hammel Neurocentre. The neurointensive stepdown unit at Silkeborg Regional Hospital offers intensive care in addition to specialised neurorehabilitation of patients transferring to Hammel. Knowledge on patient's characteristics and course of rehabilitation in this kind of setting is sparse. OBJECTIVE: To characterise the patients, their change in function and to identify variables associated with referral time to Hammel. METHODS: Functional scores and available covariates were extracted from hos...
Source: Disability and Rehabilitation - October 10, 2018 Category: Rehabilitation Authors: Kjeldsen SS, Søndergaard S, Mikkelsen LR, Nielsen JF Tags: Disabil Rehabil Source Type: research

Effects of exercise on the physical fitness level of adults with intellectual disability: a systematic review.
CONCLUSIONS: There is sufficient scientific evidence for the beneficial effects of exercise on the cardiovascular and muscular fitness of adults with mild/moderate ID. There is a need for more studies focused on the impact of physical exercise on the body composition of this population, and those that aim at identifying the impact of alternative interventions. IMPLICATIONS FOR REHABILITATION There is a need for basic guidelines that can help rehabilitation professionals to prescribe exercise for maintaining and improving physical fitness in the adults with intellectual disabilities. In adults with intellectual disabilities...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Bouzas S, Ayán C, Martínez-Lemos RI Tags: Disabil Rehabil Source Type: research

Engaging older adults in discharge planning: case studies illuminating approaches adopted by family members that promote relational autonomy.
CONCLUSION AND IMPLICATIONS FOR PRACTICE: The analysis suggests that older adults' participation in discharge decision-making processes could be better promoted through relational approaches. Implications for rehabilitation  • Adopting an approach guided by relational autonomy might better enable patients to participate in decision-making than would an approach guided by traditional conceptions of autonomy.  • Rehabilitation professionals could seek assistance from family members and guide them toward collaborative partnerships.  • A range of strategies may be employed to custom...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Durocher E, Kinsella EA, Gibson BE, Rappolt S, Ells C Tags: Disabil Rehabil Source Type: research

Working life trajectories with hearing impairment.
CONCLUSIONS: The results revealed a need for extended support at the workplaces, which includes the manager, colleagues, and professionals in the aim of preventing exhaustion and facilitate work participation among employees with hearing impairments. Joint action in facilitating communicative participation would share the responsibility for accommodation measures and broaden the room for manoeuver at the workplace. Implications for rehabilitation Fatigue prevention in employees with hearing loss needs to be addressed in occupational rehabilitation. Knowledge transfer on hearing loss implications needs to be included in aur...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Svinndal EV, Jensen C, Rise MB Tags: Disabil Rehabil Source Type: research

Weight management services for an underserved population: a rapid review of the literature.
CONCLUSION: The scarcity of programs designed to meet the unique needs of youth with disabilities is alarming. Although a robust evidence base is lacking, current research provides some directions into components that should be considered when designing future interventions. Implications for Rehabilitation    1.  Clinicians should be aware of the high prevalence of overweight and obesity and the resultant consequences in children with disabilities.    2.  The use of inter/multidisciplinary teams, technology, and family engagement all appear to be promising approaches to creating succ...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Walker M, McPherson AC Tags: Disabil Rehabil Source Type: research

Making it work: experience of living with a person who falls due to multiple sclerosis.
CONCLUSION: Next of kin who share residence and everyday life with a person with MS are affected by that person's occasional falls. They often take on the responsibility of preventing such falls and adapt their lives practically and emotionally. However, adaptation is neither always enough or always possible. In these cases, relatives often deprioritize their own needs and free time to make everyday life in the home work. Implications for rehabilitation By highlighting that next of kin also are affected by the falls of their cohabiting person with multiple sclerosis enhances the importance of fall prevention activities tha...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Carling A, Nilsagård Y, Forsberg A Tags: Disabil Rehabil Source Type: research

An exploration of the experiences and utility of functional electrical stimulation for foot drop in people with multiple sclerosis.
CONCLUSIONS: This study has contributed to our understanding of people with MS experiences of using the device and will help inform prescribing decisions and support the continued, appropriate use of FES over the longer term. Implications for Rehabilitation People with multiple sclerosis using functional electrical stimulation report benefits in many aspects of walking, improved psychological well-being and increased engagement in valued activities. A number of challenges impact on functional electrical stimulation use. Factors such as; a positive experience using the device, access to professional help, the influence of o...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Renfrew ML, Flowers P, Lord AC, Rafferty D, McFadyen AK, Bowers R, Mattison P, Paul L Tags: Disabil Rehabil Source Type: research

Evolution of depression during rehabilitation program in patients with cardiovascular diseases.
CONCLUSIONS: This study shows the importance of measuring depression and its severity to improve the care of patients. Our findings show that between 21.4% and 50% of patients have depressive symptoms which challenges the categorical approach of the self-report depression scales. Implications for rehabilitation Depression and cardiovascular diseases have an impact on the patients' physical fitness. The rehabilitation program, primarily based around exercise, reduces depressive symptoms. As soon as cardiovascular diseases patients enter in a rehabilitation program, the depression should be measured by a psychologist. Taking...
Source: Disability and Rehabilitation - October 9, 2018 Category: Rehabilitation Authors: Caru M, Curnier D, Bousquet M, Kern L Tags: Disabil Rehabil Source Type: research

Potential benefits of the cognitive orientation to daily occupational performance approach in young adults with spina bifida or cerebral palsy: a feasibility study.
CONCLUSIONS: The CO-OP Approach is feasible for adolescents and young adults with SB or CP in Sweden. Implications for rehabilitation The Cognitive Orientation to daily Occupational Performance • is a feasible approach for adolescents and young adults with spina bifida and with cerebral palsy. • is a promising approach when it comes to enabling the achievement of personal goals. • might have potential to enhance executive functioning through strategy use. • is in line with the fundamental core values of disability rights of inclusion, empowerment, and participation. PMID: 302968...
Source: Disability and Rehabilitation - October 8, 2018 Category: Rehabilitation Authors: Peny-Dahlstrand M, Bergqvist L, Hofgren C, Himmelmann K, Öhrvall AM Tags: Disabil Rehabil Source Type: research

The effects of vest type dynamic elastomeric fabric orthosis on sitting balance and gross manual dexterity in children with cerebral palsy: a single-blinded randomised controlled study.
CONCLUSIONS: Dynamic elastomeric fabric orthosis vest has an immediate effect on the sitting balance and gross manual dexterity. It also provides improvements in posture and balance during sitting. Wearing dynamic elastomeric fabric orthosis vest for 2 h during therapy is as much effective as wearing it for 6 h in children with CP in addition to therapy to improve sitting balance. Implications for rehabilitation Dynamic elastomeric fabric orthosis vest provides improvements in sitting balance when used in addition to conventional therapy in children with cerebral palsy. Wearing dynamic elastomeric fabric orth...
Source: Disability and Rehabilitation - October 7, 2018 Category: Rehabilitation Authors: Giray E, Karadag-Saygi E, Ozsoy T, Gungor S, Kayhan O Tags: Disabil Rehabil Source Type: research

An exercise program for people with severe peripheral neuropathy and diabetic foot ulcers - a case series on feasibility and safety.
CONCLUSIONS: A non-weightbearing exercise program for people with diabetes, severe peripheral neuropathy and foot ulcers seems feasible and safe. Further studies are needed to confirm these findings. Implications for rehabilitation An exercise program designed for people with severe peripheral neuropathy and diabetic foot ulcers can be safe by means of not compromising healing of foot ulcers. Feasible in terms of attendance and progression. An alternative to passive waiting for ulcer to heal in a population already deconditioned. PMID: 30293458 [PubMed - as supplied by publisher] (Source: Disability and Rehabilitation)
Source: Disability and Rehabilitation - October 7, 2018 Category: Rehabilitation Authors: Lindberg K, Møller BS, Kirketerp-Møller K, Kristensen MT Tags: Disabil Rehabil Source Type: research

The effectiveness of interventions targeting physical activity and/or sedentary behaviour in people with Multiple Sclerosis: a systematic review.
CONCLUSIONS: A discrepancy seems to exists between the effectiveness of physical activity interventions in people with Multiple Sclerosis depending on whether physical activity was assessed objectively or subjectively, with the latter indicating effects. Effects on sedentary behaviour remain to be elucidated. Implications for Rehabilitation Remaining physically active is important to maintain functional ability, independence, quality of life, and to reduce the incidence of co-morbidity. Exercise prescription, behaviour change interventions, combined exercise and behaviour change interventions, and health promotion educatio...
Source: Disability and Rehabilitation - October 5, 2018 Category: Rehabilitation Authors: Coulter EH, Bond S, Dalgas U, Paul L Tags: Disabil Rehabil Source Type: research

Speech pathology management of non-progressive dysarthria: a systematic review of the literature.
CONCLUSIONS: The evidence base to guide treatment for non-progressive dysarthria is increasing, with interventions showing promise in results, participant numbers, and positive participant feedback. Implications for rehabilitation The evidence base to guide treatment for non-progressive dysarthria is increasing, but remains limited. The majority of evidence is of moderate methodological quality. The emergence of new research indicates that health professionals need to be continuously aware and critically appraise new literature in the area. PMID: 30286661 [PubMed - as supplied by publisher] (Source: Disability and Rehabilitation)
Source: Disability and Rehabilitation - October 4, 2018 Category: Rehabilitation Authors: Finch E, Rumbach AF, Park S Tags: Disabil Rehabil Source Type: research

Nationwide implementation of a national policy for evidence-based rehabilitation with focus on facilitating return to work: a survey of perceived use, facilitators, and barriers.
CONCLUSIONS: The policy had been implemented or was to be implemented before the end of 2015. Lack of clearly stated goals, training, and guidelines were, however, barriers to implementation. Implications for rehabilitation Clinicians' positive attitudes and willingness to discuss workplace interventions with their patients were important facilitators related to the implementation of a nationwide policy for workplace interventions/rehabilitation. A lack of clearly stated goals, training, and guidelines were barriers related to the implementation. The development of evidence-based policies regarding rehabilitation and its i...
Source: Disability and Rehabilitation - October 4, 2018 Category: Rehabilitation Authors: Björk Brämberg E, Jensen I, Kwak L Tags: Disabil Rehabil Source Type: research

"Even the fowl has feelings": access to HIV information and services among persons with disabilities in Ghana, Uganda, and Zambia.
CONCLUSIONS: HIV service providers and rehabilitation professionals alike must recognise the two-way relationship between HIV and disability, and their multiple overlapping vulnerabilities and stigmas. Persons with disabilities demand recognition through practical steps to improve HIV service accessibility and utilisation in a manner that recognises their vulnerability and facilitates retention in care and adherence to treatment. In order to promote lasting change, interventions must look beyond the service delivery context and take into account the living circumstances of individuals and communities affected by HIV and di...
Source: Disability and Rehabilitation - October 3, 2018 Category: Rehabilitation Authors: Schenk KD, Tun W, Sheehy M, Okal J, Kuffour E, Moono G, Mutale F, Kyeremaa R, Ngirabakunzi E, Amanyeiwe U, Leclerc-Madlala S Tags: Disabil Rehabil Source Type: research

Cross-cultural adaptation and validation of the ABIS questionnaire for French speaking amputeesFrench validation of the ABIS questionnaire.
CONCLUSIONS: The French versions ABIS-F and ABIS-R-F share similar psychometric properties, both are as reliable, but ABIS-R-F has a better response structure and is more feasible. Implications for rehabilitation The quality of life of amputees is impacted by their satisfaction with body image The Amputee Body Image Scale questionnaire measures this perception and is available for French-speaking amputees The Standard Errors of Measurement proposed could be useful for clinical and research purposes Both ABIS and ABIS-R showed satisfactory construct validity, internal consistency, and reliability The shortened version has a...
Source: Disability and Rehabilitation - October 2, 2018 Category: Rehabilitation Authors: Vouilloz A, Favre C, Luthi F, Loiret I, Paysant J, Martinet N, Lacraz A, Suva D, Lambert J, Borens O, Vuistiner P Tags: Disabil Rehabil Source Type: research

The relationship between Home-time, quality of life and costs after ischemic stroke: the impact of the need for mobility aids, home and car modifications on Home-time.
Abstract PURPOSE: Home-time (the number of days spent at home during the first 3 months after stroke) shows a strong association with the modified Rankin scale (mRS). We studied whether Home-time was also a determinant of quality-of-life and medical care costs after ischemic stroke, and assessed factors delaying discharge home. MATERIALS AND METHODS: Five hundred and sixty nine patients participated in a retrospective study when returning for an in-person visit after an ischemic stroke. Home-time, mRS, EQ-5D-3L, inpatient and outpatient resource utilization, use of mobility aids, changes to home and car,...
Source: Disability and Rehabilitation - October 2, 2018 Category: Rehabilitation Authors: Dewilde S, Annemans L, Lloyd A, Peeters A, Hemelsoet D, Vandermeeren Y, Desfontaines P, Brouns R, Vanhooren G, Cras P, Michielsens B, Redondo P, Thijs V Tags: Disabil Rehabil Source Type: research

Understanding rehabilitation in Ukraine from the perspective of key informants.
CONCLUSIONS: The input from these individuals, supported by evidence from the literature, provides a foundational understanding of the currently fragmented rehabilitation system in Ukraine and the factors that professionals prioritize as integral components of an infrastructure that supports rehabilitation in the twenty-first century. Implications for Rehabilitation While the recent conflict in Eastern Ukraine has served as a lightning rod to shed light on the lack of resources allocated toward disability and chronic care in the region, rehabilitation is also lacking in the general population, requiring a response that add...
Source: Disability and Rehabilitation - October 2, 2018 Category: Rehabilitation Authors: Archer A, Harper L, Cameron D Tags: Disabil Rehabil Source Type: research

Physical activity measurement in people with spinal cord injury: comparison of accelerometry and self-report (the Physical Activity Recall Assessment for People with Spinal Cord Injury).
CONCLUSION: Total and wheeled moderate-vigorous physical activity measured by an accelerometer and a self-report measure showed low agreement at the individual level. Additional research is needed to examine whether physical activity may be best measured using accelerometers and a self-report measure concurrently. Implications for Rehabilitation Accurate physical activity measurement has important implications for understanding the relationship between physical activity and health outcomes. Many limitations exist to accurately measuring physical activity in people with spinal cord injury. The most commonly used measures of...
Source: Disability and Rehabilitation - October 1, 2018 Category: Rehabilitation Authors: Ma JK, McCracken LA, Voss C, Chan FHN, West CR, Martin Ginis KA Tags: Disabil Rehabil Source Type: research

Lower limb extension is improved in fast walking condition in children who walk in crouch gait.
This study aimed to assess to what extent children who walk in crouch gait are able to increase their gait speed and to report the corresponding three-dimensional kinematic adaptations. METHODS: Eleven children and adolescents (aged between 7 and 17 years) with bilateral cerebral palsy, who walk in crouch gait, were asked to walk at their self-selected comfortable speed and then as fast as possible without running. The spatio-temporal and kinematic parameters, as well as the center of mass displacements were compared between walking conditions. RESULTS: Children were able to walk 30% faster than their comf...
Source: Disability and Rehabilitation - September 28, 2018 Category: Rehabilitation Authors: Cherni Y, Pouliot Laforte A, Parent A, Marois P, Begon M, Ballaz L Tags: Disabil Rehabil Source Type: research

Validation of the International Classification of Functioning, Disability and Health Core Set for obstructive pulmonary diseases in the perspective of adults with asthma.
CONCLUSIONS: The International Classification of Functioning, Disability and Health Core Sets for obstructive pulmonary diseases were supported by the perspective of adults with asthma. The Brief version seemed the best reference for rehabilitation, reflecting the typical disabilities and impairments of these patients. Unconfirmed and added categories have been reported, and their analysis may assist future document updates. Implications for rehabilitation The use of the International Classification of Functioning, Disability and Health Core Sets for Obstructive Pulmonary Diseases is relevant to guide patient assessment, t...
Source: Disability and Rehabilitation - September 28, 2018 Category: Rehabilitation Authors: Lage SM, Jácome C, Oliveira A, Araújo AG, Pereira DAG, Parreira VF Tags: Disabil Rehabil Source Type: research

The psychometric properties of a modified client-centred rehabilitation questionnaire in an Australian population.
This study was conducted in 2 phases. Phase 1 consisted of 5 focus groups to examine the face validity of the CCRQ, resulting in the development of a modified CCRQ. Phase 2 consisted of a multi-site cross sectional survey, involving 408 rehabilitation inpatients, to examine the internal consistency reliability and factorial validity of the modified CCRQ. Chronbach's coefficient alpha, composite reliability coefficients, and single factor congeneric models with maximum likelihood confirmatory factor analysis were used. RESULTS: Based on feedback from the focus groups the CCRQ was modified with the word 'rehabilitation'...
Source: Disability and Rehabilitation - September 28, 2018 Category: Rehabilitation Authors: Fisher M, Pryor J, Capell J, Alexander T, Simmonds F Tags: Disabil Rehabil Source Type: research

Profiling guide dog handlers to support guide dog matching decisions.
CONCLUSIONS: The results confirm the importance of the Orientation and Mobility Outcomes tool as a sensitive, person-centred measure of the impact of Orientation and Mobility and guide dog training. In particular, the four mobility clusters provide a new perspective on matching guide dogs with clients, also suggesting the need for a more personalised look at the guide dog training process. Implications for Rehabilitation Orientation and Mobility Outcomes data seem precise enough to support and inform the process of matching guide dogs to handlers. Uniform results cannot be expected from guide dog mobility in handlers - age...
Source: Disability and Rehabilitation - September 28, 2018 Category: Rehabilitation Authors: Meyer D, Bhowmik J, Islam FMA, Deverell L Tags: Disabil Rehabil Source Type: research

Psychosocial aspects of the lived experience of multiple sclerosis: personal perspectives.
CONCLUSIONS: Personal perspectives on living with MS following inpatient rehabilitation focussed on: the negative impacts of physical and mental fatigue; the desire to maximise independence in activities of daily living and to minimise reliance on others; and perceptions of loss. These findings shed new light on psychosocial aspects of the lived experience of MS and, as such, have potential applications in rehabilitation for those with MS. Implications for Rehabilitation Physical and mental fatigue is central to the lived experience of multiple sclerosis, as it has an all pervading negative influence on most aspects of lif...
Source: Disability and Rehabilitation - September 27, 2018 Category: Rehabilitation Authors: Cowan CK, Pierson JM, Leggat SG Tags: Disabil Rehabil Source Type: research

Factors influencing participation in physical activity after dysvascular amputation: a qualitative meta-synthesis.
CONCLUSIONS: Physical activity after LLA is influenced by relationships among health understanding, motivation, support, and self-efficacy in the presence of disability. Themes from this meta-synthesis can be used to develop and test behavior-based interventions to improve physical activity after LLA. Implications for rehabilitation Physical activity participation after dysvascular lower limb amputation is complicated by the presence of chronic conditions, severe disability, and unaddressed psychosocial factors. Addressing a patient's self-efficacy, social support, motivation, and understanding during physically focused re...
Source: Disability and Rehabilitation - September 27, 2018 Category: Rehabilitation Authors: Miller MJ, Jones J, Anderson CB, Christiansen CL Tags: Disabil Rehabil Source Type: research

"Living in a foreign country": experiences of staff-patient communication in inpatient stroke settings for people with post-stroke aphasia and those supporting them.
CONCLUSIONS: Communication was viewed as important but challenging by all three groups. To maximise staff-patient interactions in the future, attention needs to be paid to: the psychosocial needs of stroke survivors and their carers, ongoing staff training and support for the healthcare professionals supporting them, and the provision of an aphasia-friendly and a communicatively stimulating ward environment. Implications for Rehabilitation Effective staff-patient communication is viewed as fundamental to stroke rehabilitation but challenging by patients with aphasia, their carers and the healthcare professionals supporting...
Source: Disability and Rehabilitation - September 27, 2018 Category: Rehabilitation Authors: Clancy L, Povey R, Rodham K Tags: Disabil Rehabil Source Type: research

Caregiver burden after stroke: changes over time?
This study aims to describe the course of burden in individual caregivers in the first year after stroke. METHODS: This study is part of the Stroke Cohort Outcomes of REhabilitation study, a multicentre, longitudinal cohort study including consecutive stroke patients admitted to two rehabilitation facilities. Caregivers were asked to complete the Caregiver Strain Index and questions on their sociodemographic characteristics 6 and 12 months post admission. Patients' sociodemographic and clinical characteristics were extracted from medical records. RESULTS: A total of 129 caregivers were included, 72 complet...
Source: Disability and Rehabilitation - September 20, 2018 Category: Rehabilitation Authors: Pont W, Groeneveld I, Arwert H, Meesters J, Mishre RR, Vliet Vlieland T, Goossens P, SCORE-study group Tags: Disabil Rehabil Source Type: research

A service evaluation of parent adherence with dysphagia management therapy guidelines: reports from family carers supporting children with complex needs in Greece.
CONCLUSIONS: Adherence with use of strategies to support mealtimes was over 50% in all but one case. Findings suggest that support is essential to promote safe mealtimes, reduce family carers' stress and increase knowledge, confidence, and adherence in implementing dysphagia guidelines in the family home. Implications for rehabilitation Difficulties with eating, drinking and swallowing (dysphagia) can impact on the parent-child mealtime experience. Mealtime strategies as recommended by a speech-language pathologist can support children who have difficulties eating, drinking, and swallowing. Some strategies to support eatin...
Source: Disability and Rehabilitation - September 17, 2018 Category: Rehabilitation Authors: Charpentier A, Morgan S, Harding C Tags: Disabil Rehabil Source Type: research

Insights into the nature of female sexuality from the perspective of female stroke survivors.
CONCLUSIONS: The findings of this study underline the importance of addressing sexuality as part of rehabilitation and provide some guidance about what might be important to address. Implications for Rehabilitation Sexuality should be addressed by clinicians as part of person-centred rehabilitation. Understanding "the being" and "the doing" of female sexuality is a pre-requisite for understanding female sexuality post-stroke. Idealised constructions of being female formulated pre-stroke may continue to be points of reference for self-assessment post-stroke, hence need to be understood when seeking to su...
Source: Disability and Rehabilitation - September 6, 2018 Category: Rehabilitation Authors: Pryor J, Lever S Tags: Disabil Rehabil Source Type: research

The Turkish version of the MedRisk instrument for measuring patient satisfaction: measurement properties in physical therapy care among inpatients.
CONCLUSIONS: Our results suggested that the Turkish version of the MedRisk instrument for measuring patient satisfaction is a quite reliable and valid measurement to evaluate patient satisfaction with physical therapy care in Turkish-speaking inpatients. We determined that Turkish inpatients are highly satisfied with their physical therapy care, and they consider the patient-physical therapist relationship important. Implications for rehabilitation The Turkish version of the MedRisk instrument for measuring patient satisfaction is a reliable and valid translation of the original MedRisk instrument for measuring patient sat...
Source: Disability and Rehabilitation - September 6, 2018 Category: Rehabilitation Authors: Yeşilyaprak SS, Özyürek S, Tomruk M, İlçin N, Karadibak D, Keskinoğlu P, Savcı S Tags: Disabil Rehabil Source Type: research

Stakeholder perspectives for possible residual limb monitoring system for persons with lower-limb amputation.
CONCLUSIONS: Seven individuals participated in each focus group. Prosthetists came from a mix of practice settings, while prosthesis users were diverse in level of amputation, aetiology, and years of experience using lower-limb prostheses. Residual limb problems reported by participants were consistent with those in the literature. Participants suggested better managing residual limb problems through improved education, better detection of residual limb problems, and using sensor-based information to improve prosthetic technology. Participants favoured short-term use of a possible residual limb monitoring systems to troubl...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Tran L, Caldwell R, Quigley M, Fatone S Tags: Disabil Rehabil Source Type: research

Are people with lower limb amputation changing? A seven-year analysis of patient characteristics at admission to inpatient rehabilitation and at discharge.
Abstract PURPOSE: What are the characteristics of people with lower limb amputation at admission to, and discharge from, subacute rehabilitation? Have these characteristics changed over time? METHODS: A total of 425 lower limb amputation inpatient rehabilitation admissions (335 individuals) from 2005 to 2011 were examined. Admission characteristics, including aetiology, gender, age, amputation level, cognition (Mini-Mental State Examination (MMSE)), indoor mobility aid, motor function (Functional Independence Measure motor subscale) and number and type of comorbidities, and discharge characteristics, includin...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Batten H, Kuys S, McPhail S, Varghese P, Mandrusiak A Tags: Disabil Rehabil Source Type: research

Posttraumatic stress disorder symptom clusters and substance use among patients with upper limb amputations due to traumatic injury.
CONCLUSIONS: These findings demonstrate the importance of assessing psychological well-being and a variety of substance use behaviours following amputation from traumatic injury. These findings may also provide clinically-relevant targets for prevention and intervention regarding prescription medication and illicit substance use, such as incorporating evidence-based treatment for posttraumatic stress disorder hyperarousal symptoms (e.g., prolonged exposure) and/or integrated treatment for posttraumatic stress-substance misuse (e.g., Seeking Safety) into patients' long-term inpatient/outpatient rehabilitation plans. Implica...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Kearns NT, Powers MB, Jackson WT, Elliott TR, Ryan T Tags: Disabil Rehabil Source Type: research

Managing limb pain using virtual reality: a systematic review of clinical and experimental studies.
CONCLUSIONS: The use of virtual representations of body parts to reduce pain is promising. However, due to the poor methodological quality and limitations of primary studies, we could not find conclusive evidence. Implications for rehabilitation Virtual reality has been increasingly used in the rehabilitation of painful and dysfunctional limbs. Virtual reality can be used to distract attention away from acute pain and may also provide corrective psychological and physiological environments. Virtual representation of body parts has been used to provide a corrective re-embodiment of painful dysmorphic body parts, and primary...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Wittkopf PG, Lloyd DM, Johnson MI Tags: Disabil Rehabil Source Type: research

Relationship between wheelchair skills scores and peak aerobic exercise capacity of manual wheelchair users with spinal cord injury: a cross-sectional study.
The objective of this study was to test the hypothesis that there are significant relationships between wheelchair skills scores and the peak exercise capacity of community-dwelling manual wheelchair users with spinal cord injury. MATERIALS AND METHODS: We studied 26 participants, recording Wheelchair Skills Test Questionnaire scores and peak power output from graded aerobic wheelchair exercise testing on a motorized treadmill. RESULTS: The median Wheelchair Skills Test Questionnaire capacity, confidence, and performance scores were 83.3%, 81.5%, and 76.7% and the median peak power output was 58.2 W. On regressio...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Kirby RL, de Groot S, Cowan RE Tags: Disabil Rehabil Source Type: research

Identifying psychosocial difficulties of inpatients with substance use disorders: evaluation of the usefulness of the PARADISE24 for clinical practise.
CONCLUSION: The PARADISE24 provides a wide range of useful information on psychosocial difficulties for clinical work and it can be used as a self-administered questionnaire in the evaluation and treatment of substance use disorders. Implications for rehabilitation Individuals undergoing inpatient treatment for substance use disorders experience various and severe psychosocial difficulties. The PARADISE24 is an evidence-based instrument for assessing the scope and severity of 24 common psychosocial difficulties among neurological and psychiatric disorders. The PARADISE24 also offers a time-efficient method which can be use...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Pitkänen T, Levola JM, de la Fuente J, Cabello M Tags: Disabil Rehabil Source Type: research

Documenting the impact of stroke in a middle-income country: a Malaysian case study.
CONCLUSION: In LMIC, recovery can be shaped by the family unit and through active coping strategies especially those in relation to spirituality. Implications for rehabilitation The impact of stroke on survivors and lack of specialized stroke care compromise the recovery process and quality of life for stroke survivors in low and middle-income countries. Support from the family and reinforcement of religious coping were judged to successfully aid recovery. Physical and emotional impairments as well as psychosocial wellbeing of survivors in the context of environmental factors need to be addressed. PMID: 30183424 [PubM...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Mairami FF, Warren N, Allotey PA, Mak JS, Reidpath DD Tags: Disabil Rehabil Source Type: research

Health professionals' perceptions of the allied health role in the acute setting following hip and knee joint replacement surgery: a qualitative study.
CONCLUSION: Prioritising allied health intervention to low functioning and complex patients could be a more efficient use of allied health expertise in patients following lower limb replacement surgery than current practice in this setting that prioritises discharge. Implications for Rehabilitation Allied health service delivery in the acute phase following hip and knee joint replacement needs to balance the needs of the health service with those of the patients. Prioritising allied health intervention to low functioning and complex patients could be a more efficient use of allied health expertise in this population than c...
Source: Disability and Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: Haas R, O'Brien L, Bowles KA, Haines T Tags: Disabil Rehabil Source Type: research

The meaning of exercise and physical activity in community dwelling people with multiple sclerosis.
CONCLUSION: The meanings people with multiple sclerosis ascribe to exercise and physical activity extended beyond movement, reflecting how they lived with a variable neurological condition. Personal and contextual factors were dominant influences. Implications for Rehabilitation Health professionals should consider the impact personal and contextual factors have on influencing decisions around exercise and physical activity in community dwelling people with multiple sclerosis. Understanding the multidimensional and complex views people with multiple sclerosis ascribe to exercise and physical activity might help health prof...
Source: Disability and Rehabilitation - August 20, 2018 Category: Rehabilitation Authors: Stennett A, De Souza L, Norris M Tags: Disabil Rehabil Source Type: research

Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study.
ittee Abstract PURPOSE: Our study aimed to identify caregiver characteristics (gender, age, occupational status, educational attainment, relation to care recipient), care recipient characteristics (age, disease subtype), and caregiving factors (hours of care, perceived caregiving burden) associated with symptoms of depression among informal caregivers of persons with systemic sclerosis (also known scleroderma). as Materials and methods: A questionnaire was developed and administered online from December 2016 to June 2017 to informal caregivers of people with scleroderma, including the Patient Health Questionnaire-...
Source: Disability and Rehabilitation - August 19, 2018 Category: Rehabilitation Authors: Cañedo-Ayala M, Rice DB, Levis B, Carrier ME, Cumin J, Malcarne VL, Hagedoorn M, Thombs BD, Scleroderma Caregiver Advisory Committee Tags: Disabil Rehabil Source Type: research

Examining the impact of a city-wide intensive interaction staff training program for adults with profound and multiple learning disability: a mixed methods evaluation.
CONCLUSIONS: Training in intensive interaction at a city-wide level enables staff to develop their knowledge of the approach and to engage in intensive interaction to promote the social inclusion of adults with profound and multiple learning disability. The barriers preventing staff from engaging in Intensive Interaction with adults with profound and multiple learning disability should be addressed. Implications for Rehabilitation Training care staff in intensive interaction promotes social inclusion for adults with profound and multiple learning disability. Care staff are able to identify changes in the interactive and co...
Source: Disability and Rehabilitation - August 17, 2018 Category: Rehabilitation Authors: Clegg J, Black R, Smith A, Brumfitt S Tags: Disabil Rehabil Source Type: research