Increasing Sanfilippo Syndrome Awareness through Children's Literature and Music
Endocr Metab Immune Disord Drug Targets. 2023 Dec 18. doi: 10.2174/0118715303272345231211094632. Online ahead of print.ABSTRACTThere is an ongoing effort to increase rare disease awareness amongst healthcare providers. This front is important and can help to address several challenges faced by rare disease patients, such as lengthy diagnosis times, difficulty in finding adequate providers of medical services and experts, and adequate treatment if one exists. On another front, there is the need for awareness among citizens and their support in the advocacy for public policies towards rare disease patients and families. Awar...
Source: Endocrine, Metabolic and Immune Disorders Drug Targets - December 19, 2023 Category: Endocrinology Authors: Raquel Marques Rodrigo Carlson Guilhain Higonnet Source Type: research
Disgraced surgeon Paolo Macchiarini, whose crimes inspired an opera, headed to prison
Paolo Macchiarini, the former stem cell surgeon who was sentenced to 2.5 years in prison by a Swedish court for aggravated assault against patients he treated, is expected to begin his sentence sometime in the coming weeks. But he is likely to serve his sentence in Spain, where he currently lives, not in Sweden.
The saga surrounding Macchiarini, who was once considered a pioneer of regenerative medicine for implanting patients with synthetic windpipes seeded with their own stem cells, has been the topic of multiple documentaries and podcasts, and has even
inspired an opera
. In recent weeks he has gained ne...
Source: Science of Aging Knowledge Environment - December 18, 2023 Category: Geriatrics Source Type: research
Inside the secretive cannabis lab that makes futuristic weed
In the final episode of our three-part podcast series, Christie Taylor peers into efforts to grow cannabis compounds in labs and explores the problems with pot ’s environmental footprint (Source: New Scientist - Health)
Source: New Scientist - Health - December 18, 2023 Category: Consumer Health News Source Type: research
It is time for healthcare professionals to engage with social media
Commentary on: Chee RM, Capper TS, Muurlink OT. The impact of social media influencers on pregnancy, birth, and early parenting experiences: A systematic review. Midwifery. 2023 May;120:103623. doi: 10.1016/j.midw.2023.103623. Epub 2023 Feb 19. Implications for practice and research Social media is one of the fastest growing commercial determinants of health. Healthcare professionals need a better understanding of social media and its impact. Context Social media has rapidly become a key source of advice and support for women during childbirth. The growth of influencers, popular users credited with knowledge and expertise,...
Source: Evidence-Based Nursing - December 15, 2023 Category: Nursing Authors: Hundley, V., Marsh, A. Tags: Women's Health and Midwifery Source Type: research
Assessment of owner perceptions of caregiver burden, veterinarian-client relationship and satisfaction with the provider in canine pruritus: An experimental vignette study
CONCLUSIONS AND CLINICAL RELEVANCE: Owners preferred a Completely Effective outcome and were prepared to select the Injection regimen or Multimodal therapy to achieve this; Injection was preferred when effectiveness was assured.PMID:38082471 | DOI:10.1111/vde.13225 (Source: Veterinary Dermatology)
Source: Veterinary Dermatology - December 12, 2023 Category: Veterinary Research Authors: Mary Beth Spitznagel John Martin John Updegraff Andrew Hillier Margaret Gober Source Type: research
Assessment of owner perceptions of caregiver burden, veterinarian-client relationship and satisfaction with the provider in canine pruritus: An experimental vignette study
CONCLUSIONS AND CLINICAL RELEVANCE: Owners preferred a Completely Effective outcome and were prepared to select the Injection regimen or Multimodal therapy to achieve this; Injection was preferred when effectiveness was assured.PMID:38082471 | DOI:10.1111/vde.13225 (Source: Veterinary Dermatology)
Source: Veterinary Dermatology - December 12, 2023 Category: Veterinary Research Authors: Mary Beth Spitznagel John Martin John Updegraff Andrew Hillier Margaret Gober Source Type: research
What cannabis does to your body and brain
In the second episode of our three-part podcast series, Christie Taylor explores what happens to memory, creativity and the mind when getting high from cannabis (Source: New Scientist - Health)
Source: New Scientist - Health - December 11, 2023 Category: Consumer Health News Source Type: research
Correction to: EGFR Tyrosine Kinase Inhibitors for the Treatment of Metastatic Non ‑Small Cell Lung Cancer Harboring Uncommon EGFR Mutations: A Podcast
(Source: Targeted Oncology)
Source: Targeted Oncology - December 9, 2023 Category: Cancer & Oncology Source Type: research
Nurse Practitioner Care Compared with Primary Care or Nephrologist Care in Early CKD
CONCLUSIONS: Nurse practitioner care for patients with CKD was associated with better guideline-concordant care than primary care alone or nephrologist care, with clinical outcomes that were better than or equivalent to primary care alone and similar to those with care by nephrologists.PODCAST: This article contains a podcast at https://dts.podtrac.com/redirect.mp3/www.asn-online.org/media/podcast/CJASN/2023_12_08_CJN0000000000000305.mp3.PMID:38064305 | DOI:10.2215/CJN.0000000000000305 (Source: Clinical Journal of the American Society of Nephrology : CJASN)
Source: Clinical Journal of the American Society of Nephrology : CJASN - December 8, 2023 Category: Urology & Nephrology Authors: Matthew T James Tayler D Scory Ellen Novak Braden J Manns Brenda R Hemmelgarn Aminu K Bello Pietro Ravani Bhavneet Kahlon Jennifer M MacRae Paul E Ronksley Source Type: research
Nurse Practitioner Care Compared with Primary Care or Nephrologist Care in Early CKD
CONCLUSIONS: Nurse practitioner care for patients with CKD was associated with better guideline-concordant care than primary care alone or nephrologist care, with clinical outcomes that were better than or equivalent to primary care alone and similar to those with care by nephrologists.PODCAST: This article contains a podcast at https://dts.podtrac.com/redirect.mp3/www.asn-online.org/media/podcast/CJASN/2023_12_08_CJN0000000000000305.mp3.PMID:38064305 | DOI:10.2215/CJN.0000000000000305 (Source: Clinical Journal of the American Society of Nephrology : CJASN)
Source: Clinical Journal of the American Society of Nephrology : CJASN - December 8, 2023 Category: Urology & Nephrology Authors: Matthew T James Tayler D Scory Ellen Novak Braden J Manns Brenda R Hemmelgarn Aminu K Bello Pietro Ravani Bhavneet Kahlon Jennifer M MacRae Paul E Ronksley Source Type: research
Nurse Practitioner Care Compared with Primary Care or Nephrologist Care in Early CKD
CONCLUSIONS: Nurse practitioner care for patients with CKD was associated with better guideline-concordant care than primary care alone or nephrologist care, with clinical outcomes that were better than or equivalent to primary care alone and similar to those with care by nephrologists.PODCAST: This article contains a podcast at https://dts.podtrac.com/redirect.mp3/www.asn-online.org/media/podcast/CJASN/2023_12_08_CJN0000000000000305.mp3.PMID:38064305 | DOI:10.2215/CJN.0000000000000305 (Source: Clinical Journal of the American Society of Nephrology : CJASN)
Source: Clinical Journal of the American Society of Nephrology : CJASN - December 8, 2023 Category: Urology & Nephrology Authors: Matthew T James Tayler D Scory Ellen Novak Braden J Manns Brenda R Hemmelgarn Aminu K Bello Pietro Ravani Bhavneet Kahlon Jennifer M MacRae Paul E Ronksley Source Type: research
OP18 Are We Ready for a Digital Transformation in HEOR and Market Access?
Everything we see and read implies that we are well into a digital era, with the “pad and pen era” a distant memory. The growth of webinars, blogs, podcasts and chat boxes gives us opportunities to train, learn and communicate at any time, wherever we are. HEOR/market access has traditionally been slow to adopt, as templates and methodologies appear to give less opportunity for digital experimentation. As we look to communicate effectively with internal teams and more widely with international payer audiences, we need to consider the impact of digital adoption and degree of transformation. (Source: Value in Health)
Source: Value in Health - December 1, 2023 Category: International Medicine & Public Health Authors: S. O'Leary, C. Silva, R. Kershaw, R. Massey, T. Areteou Source Type: research
Over the Rainbow: 21st Century Security & Privacy Podcast
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Source: Computing in Science and Engineering - November 30, 2023 Category: Information Technology Source Type: research
Exploring the Quality-of-Life Impact, Disease Burden, and Management Challenges of GPP: The Provider and Patient Perspective [Podcast]
Clin Cosmet Investig Dermatol. 2023 Nov 17;16:3333-3339. doi: 10.2147/CCID.S444238. eCollection 2023.ABSTRACTGeneralized pustular psoriasis (GPP) is a rare, chronic, and debilitating disease characterized by flares of widespread erythema, desquamation, and pustule formation. GPP flares can be accompanied by systemic symptoms including fever, fatigue, malaise, and skin pain; severe cases may be fatal if untreated. Although GPP may occur concurrently with plaque psoriasis, they represent two distinct inflammatory conditions. Patients with GPP experience a substantial burden of disease, and the impact of GPP on an individual'...
Source: Clinical, Cosmetic and Investigational Dermatology - November 29, 2023 Category: Dermatology Authors: Jason E Hawkes Dale V Reisner Tina Bhutani Source Type: research
