Unmet needs in phenylketonuria: an exploratory Italian survey among patients and caregivers
CONCLUSIONS: Our data showed that patients with PKU and their caregivers reported difficulties in adherence to diet therapy and indicated interest in new therapeutic approaches. Apparent differences between patient and caregiver perspectives were identified. More informational resources on PKU are needed.PMID:38646665 | DOI:10.1080/03007995.2024.2337662 (Source: Epilepsy Curr)
Source: Epilepsy Curr - April 22, 2024 Category: Neurology Authors: Valentina Rovelli Annamaria Dicintio Chiara Cazzorla Source Type: research
"The blinding disease". The history of trachoma in Italians between the 19th and 20th centuries: colonial or national blindness?
Pathog Glob Health. 2024 Apr 21:1-6. doi: 10.1080/20477724.2024.2342623. Online ahead of print.ABSTRACTTrachoma is one of the oldest known causes of blindness in humans and it is caused by the intracellular Gram-negative bacterium Chlamydia trachomatis serovars A, B, Ba and C. Its transmission has historically been related to poorness, overcrowded housing and scarce hygiene. We have traced the history of trachoma in Italy in the 19th and 20th centuries, among people living in Italy, those who immigrated to America and the population in the colonies, with a focus on Libya (1912-1943). Trachoma knowledge and perception in It...
Source: Pathogens and Global Health - April 22, 2024 Category: International Medicine & Public Health Authors: Mariano Martini Niccol ò Riccardi Omar Simonetti Davide Orsini Francesco Samassa Alessandra Parodi Source Type: research
Gender Difference in sidE eFfects of ImmuNotherapy: a possible clue to optimize cancEr tReatment (G-DEFINER): study protocol of an observational prospective multicenter study
Acta Oncol. 2024 Apr 21;63:213-219. doi: 10.2340/1651-226X.2024.24179.ABSTRACTBACKGROUND: Immune checkpoint inhibitors (ICIs) have significantly improved outcomes in various cancers. ICI treatment is associated with the incidence of immune-related adverse events (irAEs) which can affect any organ. Data on irAEs occurrence in relation to sex- differentiation and their association with gender-specific factors are limited.AIMS: The primary objective of the G-DEFINER study is to compare the irAEs incidence in female and male patients who undergo ICI treatment. Secondary objectives are: to compare the irAEs incidence in pre- an...
Source: Acta Oncologica - April 22, 2024 Category: Cancer & Oncology Authors: Rosalba Miceli Hanna Eriksson Giuseppe Lo Russo Salvatore Alfieri Maria Moksnes Bjaan æs Filippo Pietrantonio Loris De Cecco Arsela Prelaj Claudia Proto Johan Franz én Deirdre McDonnell Jos é Javier Berenguer Pina Teresa Beninato Laura Mazzeo Patrizia Source Type: research
Access in all areas? a round up of developments in market access and health technology assessment: part 4
J Comp Eff Res. 2024 Apr 22:e240060. doi: 10.57264/cer-2024-0060. Online ahead of print.ABSTRACTIn this latest update, we look at recent developments in market access including the pricing agreement of Libmeldy® by the Beneluxa Initiative, the financial impact of managed entry agreements in Italy and the restructuring of Agenzia Italiana del Farmaco (AIFA). We also highlight the collaboration between FINOSE and the New Expensive Drug (NED) section of the Nordic Pharmaceutical Forum.PMID:38647164 | DOI:10.57264/cer-2024-0060 (Source: Journal of Comparative Effectiveness Research)
Source: Journal of Comparative Effectiveness Research - April 22, 2024 Category: General Medicine Authors: Alice Beattie Catrin Treharne Sreeram V Ramagopalan Source Type: research
Unmet needs in phenylketonuria: an exploratory Italian survey among patients and caregivers
CONCLUSIONS: Our data showed that patients with PKU and their caregivers reported difficulties in adherence to diet therapy and indicated interest in new therapeutic approaches. Apparent differences between patient and caregiver perspectives were identified. More informational resources on PKU are needed.PMID:38646665 | DOI:10.1080/03007995.2024.2337662 (Source: Epilepsy Curr)
Source: Epilepsy Curr - April 22, 2024 Category: Neurology Authors: Valentina Rovelli Annamaria Dicintio Chiara Cazzorla Source Type: research
