Rites of Passage: Call Me Cozy
As I struggle with chronic pain, cozy for me is less hygge and more my ex-boyfriend ’ s mother, nurses with juice and weird, sandy doughnuts. (Source: NYT Health)
Source: NYT Health - March 14, 2019 Category: Consumer Health News Authors: LENA DUNHAM Tags: Books and Literature Lyme Disease Dunham, Lena your-feed-selfcare Ehlers-Danlos Syndrome Endometriosis Source Type: news

Fracture incidence in Ehlers-Danlos syndrome - a population-based case-control study - Rolfes MC, Deyle DR, King KS, Hand JL, Graff AH, Derauf C.
BACKGROUND: The differential diagnosis of non-accidental injury during childhood includes medical conditions that predispose to skeletal fragility. Ehlers-Danlos syndrome (EDS) has been proposed as one such condition despite little objective evidence in th... (Source: SafetyLit)
Source: SafetyLit - March 13, 2019 Category: International Medicine & Public Health Tags: Age: Infants and Children Source Type: news

Small dog 'saved her owner's life' after fetching a phone when she collapsed
Ruth Spurr, 24, from Amersham in Buckinghamshire, suffers from Ehlers-Danlos syndrome which has left her significantly weakened and reliant on a wheelchair to get around. (Source: the Mail online | Health)
Source: the Mail online | Health - January 24, 2019 Category: Consumer Health News Source Type: news

Acer Therapeutics Submits NDA for Edsivo (celiprolol) for the Treatment of Vascular Ehlers-Danlos syndrome (vEDS)
NEWTON, MA– October 29, 2018– Acer Therapeutics Inc. (Nasdaq: ACER), a pharmaceutical company focused on the acquisition, development and commercialization of therapies for serious rare and ultra-rare diseases with critical unmet... (Source: Drugs.com - New Drug Applications)
Source: Drugs.com - New Drug Applications - October 29, 2018 Category: Drugs & Pharmacology Source Type: news

Medic, 21, has joints which dislocate every day and has to be fed through a tube
Amy Fisher, from Manchester but living in Perth, Australia, has the rare genetic disorder Ehlers-Danlos syndrome as well as various problems with her digestive system. (Source: the Mail online | Health)
Source: the Mail online | Health - September 26, 2018 Category: Consumer Health News Source Type: news

Puppy runs to the fridge and fetching his ill owner a drink
Mel Lucas, 25, from Tampa, Florida, suffers from the mobility disorder Ehlers Danlos Syndrome and hypoglycemia, which can leave her at risk of seizures and even death. (Source: the Mail online | Health)
Source: the Mail online | Health - September 18, 2018 Category: Consumer Health News Source Type: news

Puppy runs to the fridge and fetching his ill owner a drink
Mel Lucas, 25, from Tampa, Florida, suffers from  the mobility disorder Ehlers Danlos Syndrome and hypoglycemia, which can leave her at risk of seizures and even death. (Source: the Mail online | Health)
Source: the Mail online | Health - September 18, 2018 Category: Consumer Health News Source Type: news

Heartwarming footage shows a puppy running to the fridge and fetching his ill owner a drink
Mel Lucas, 25, from Tampa, Florida, suffers from  the mobility disorder Ehlers Danlos Syndrome and hypoglycemia, which can leave her at risk of seizures and even death. (Source: the Mail online | Health)
Source: the Mail online | Health - September 18, 2018 Category: Consumer Health News Source Type: news

Ehlers-Danlos Syndrome
Title: Ehlers-Danlos SyndromeCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 8/30/2018 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - August 30, 2018 Category: Rheumatology Source Type: news

Illinois woman dismissed by doctors diagnosed with rare Ehlers-Danlos
Megan King, 28, from Lake Zurich, Illinois, has had to undergo 34 operations after being diagnosed with Ehlers-Danlos syndrome, a rare genetic disorder which affects connective tissues. (Source: the Mail online | Health)
Source: the Mail online | Health - June 5, 2018 Category: Consumer Health News Source Type: news

His Tooth is Funny Looking. What is It?
Discussion Teeth are specialized anatomic parts of the human body that are developed between the ectoderm and ecomesenchyme in a complex process called odontogenesis. More than 300 genes have been identified that influence odontogenesis. Dental abnormalities can have significance for cosmesis, malocclusion, dental caries and periodontal diseases. It is not uncommon for more than 1 area to be affected. For example, Hutchinson teeth which are caused by congenital syphilis are smaller with wider spacing between the teeth within the arch, and also have a characteristic notching. Learning Point Some common dental problems that...
Source: PediatricEducation.org - May 14, 2018 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Suspicious scars: physical child abuse vs Ehlers-Danlos syndrome - Vadysinghe AN, Wickramashinghe CU, Nanayakkara DN, Kaluarachchi CI.
Child abuse is a sensitive topic among many medical practitioners and the diagnosis of this entity requires awareness about conditions which can mimic physical child abuse. Here, the authors present a case of a 13-year-old school non-attendee who was refer... (Source: SafetyLit)
Source: SafetyLit - March 12, 2018 Category: International Medicine & Public Health Tags: Age: Infants and Children Source Type: news

Ehlers-Danlos syndrome not stopping Natalie Wilson's 5,000 mile ride
Natalie Wilson is starting a 5,000 mile challenge to cycle the coastline of Great Britain on a recumbent trike. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - February 27, 2018 Category: Consumer Health News Source Type: news

What is Ehlers-Danlos Syndrome?
Dr Larry Nassar allegedly told one of his victims that he knew she had EDS, a connective tissue disorder, based on the elasticity of her vagina. We explain the condition he claimed to be diagnosing. (Source: the Mail online | Health)
Source: the Mail online | Health - January 19, 2018 Category: Consumer Health News Source Type: news

Ehlers-Danlos Syndrome: Woman starts hospital navigation website
A woman starts a website to help disabled people navigate hospitals and flag up their facilities. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 27, 2017 Category: Consumer Health News Source Type: news