Woman with Ehlers Danlos needs £130k to live to Christmas
Sarah Gearing, 40, from Rochford, Essex, suffers from Ehlers Danlos syndrome, which makes her body's connective tissues collapse and has left her in constant pain. (Source: the Mail online | Health)
Source: the Mail online | Health - October 23, 2017 Category: Consumer Health News Source Type: news
NHS patients having to crowdfund their own WHEELCHAIRS
Hannah Barham-Brown, 29, from London, was diagnosed with Ehlers Danlos-Syndrome , which means her joints dislocate very easily. She had to raise £2,000 to buy a wheelchair. (Source: the Mail online | Health)
Source: the Mail online | Health - June 26, 2017 Category: Consumer Health News Source Type: news
Minnesota woman with saggy skin wants to become a model
Sara Geurts, from Minneapolis, Minnesota, suffers from Dermatosparaxis Ehlers-Danlos syndrome, a genetic condition that affects 'every system in the body'. (Source: the Mail online | Health)
Source: the Mail online | Health - June 22, 2017 Category: Consumer Health News Source Type: news
Plymouth woman had 24 operations on her dislocating joints
Rebecca Hempsell, 40, from Plymouth, has Ehlers-Danlos syndrome, which affects the connective tissues that supports her skin, bones, blood vessels and other organs in her body. (Source: the Mail online | Health)
Source: the Mail online | Health - May 19, 2017 Category: Consumer Health News Source Type: news
Milton Keynes family at risk of dislocating their bones
EXCLUSIVE: Gemma Coles-Hassan, 34, from Milton Keynes, was diagnosed with Ehlers-Danlos syndrome age 11. She passed it onto her three children: Aydan, Theo and Maddison. (Source: the Mail online | Health)
Source: the Mail online | Health - April 19, 2017 Category: Consumer Health News Source Type: news
Beauty queen uses platform to bring attention to rare genetic disorder
Victoria Graham, 23, of Maryland, is using her platform as Miss Frostburg 2017, to bring attention to a rare genetic disorder she has called Ehlers-Danlos Syndrome. (Source: ABC News: Health)
Source: ABC News: Health - April 19, 2017 Category: Consumer Health News Tags: Health Source Type: news
Scars on stage
US beauty queen Victoria Graham has Ehlers-Danlos Syndrome (EDS) but isn't afraid to show her scars. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 27, 2017 Category: Consumer Health News Source Type: news
Angry Constituents Hammer Tom Cotton At Town Hall: 'Do Your Job'
Sen. Tom Cotton (R-Ark.) faced hundreds of angry constituents at a town hall Wednesday night who grilled him for two hours on the Affordable Care Act, immigration, President Donald Trump’s administration and other issues.
The town hall, held at a high school in Springdale, Arkansas, was raucous throughout. About 2,000 people packed the auditorium and frequently drowned Cotton out with cheers, boos and jeers. Some attendees waved red cards when the senator said something they didn’t agree with.
Look at this crowd at @SenTomCotton's town hall in Springdale tonight. #ARnews #ARpx pic.twi...
Source: Healthy Living - The Huffington Post - February 23, 2017 Category: Consumer Health News Source Type: news
Leah Boxall suffers from Ehlers-Danlos Syndrome and needs money for life-saving surgery
Leah Boxall, 34, from Southampton, cannot turn her head without dislocating her neck and is partially paralysed. She suffers from a condition that has left her spine and neck too weak to support her head and her brain is now slipping into her spinal column crushing her brain stem. (Source: the Mail online | Health)
Source: the Mail online | Health - December 14, 2016 Category: Consumer Health News Source Type: news
7 Ways To Show Real Support To Friends And Family Battling Health Issues
“Please let me know if you need anything … ”
We’ve all said the same thing to friends or loved ones when they were ill and in need of support. Blogger Judy Schwartz Haley, who was diagnosed with stage 3 breast cancer when her daughter was an infant, heard it a lot. “I received many well wishes and blanket invitations to ‘call me if you need anything,’” she recalled. “But that’s a hard offer to follow up on. It meant I still had to pick up the phone to call someone and ask for help. I’m still not very good at that.”
When someone you love is batt...
Source: Healthy Living - The Huffington Post - November 1, 2016 Category: Consumer Health News Source Type: news
Ehlers-Danlos Syndrome Linked to Small-Fiber Neuropathy Ehlers-Danlos Syndrome Linked to Small-Fiber Neuropathy
Dr Argoff highlights new evidence on the potential mechanisms underlying these painful inherited disorders.Medscape Neurology (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - September 29, 2016 Category: Neurology Tags: Neurology & Neurosurgery Commentary Source Type: news
Student with EDS needed EIGHT operations now hopes to be crowned Miss America
Victoria Graham, 22, from Maryland, has had several surgeries to try to stop her brain from crushing her spinal cord after being diagnosed with Ehlers-Danlos Syndrome (EDS). (Source: the Mail online | Health)
Source: the Mail online | Health - June 8, 2016 Category: Consumer Health News Source Type: news
Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT)
Source: NYT - March 4, 2016 Category: American Health Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news
Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT Health)
Source: NYT Health - March 4, 2016 Category: Consumer Health News Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news
Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT)
Source: NYT - March 4, 2016 Category: Nutrition Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news
