Darcey Kelly 'can't have sex without dislocating hip' due to condition
Darcey Kelly from London, has Ehlers-Danlos Syndrome, an agonising condition which causes her joints to pop out. It means she can't open a bottle of water without dislocating her wrist. (Source: the Mail online | Health)
Source: the Mail online | Health - February 25, 2016 Category: Consumer Health News Source Type: news
Mother-of-two who can't EAT because of Ehlers-Danlos Syndrome (EDS)
Saffron Taylor, 22, from Birmingham, has Ehlers-Danlos Syndrome (EDS). The condition makes her joints dislocate at the slightest touch and meant she needed screws inserting into her knee. (Source: the Mail online | Health)
Source: the Mail online | Health - February 9, 2016 Category: Consumer Health News Source Type: news
Headaches, bloating and fatigue? You may have Ehlers-Danlos syndrome (EDS)
For 20 years, GP Kate Barnes now 52, from Buckinghamshire, has lived with chronic headaches and pain. Two years ago she found out she has Ehlers-Danlos syndrome (EDS). (Source: the Mail online | Health)
Source: the Mail online | Health - January 12, 2016 Category: Consumer Health News Source Type: news
Teenager with curved spine fulfills her dream of performing on a trapeze
Louise Stewart-Scott, 14, of Jersey, has Ehlers-Danlos syndrome, causing hypermobility and her joints to dislocate. She also suffers from scoliosis, an abnormal curvature in her spine. (Source: the Mail online | Health)
Source: the Mail online | Health - November 23, 2015 Category: Consumer Health News Source Type: news
Ehlers-Danlos syndrome(s) mimicking child abuse: is there an impact on clinical practice? - Castori M.
Ehlers-Danlos syndrome is a heterogeneous group of heritable connective tissue disorders characterized by increased fragility of various non-ossified tissues. It is usually ascertained due to abnormal skin texture, scarring complications, vascular fragilit... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - October 14, 2015 Category: Global & Universal Tags: Age: Infants and Children Source Type: news
Teenage girl had to be wired together before she fell apart
Emily James, 17, from Salford, has Ehlers-Danlos syndrome which causes her joints to dislocate several times a day, leaving her in constant pain. (Source: the Mail online | Health)
Source: the Mail online | Health - June 23, 2015 Category: Consumer Health News Source Type: news
How Do You Diagnose Hypermobility?
Discussion
Hypermobility can be seen in several different clinical entities. These include generalized joint hypermobility, joint hypermobility syndrome, Marfan syndrome, Ehlers-Danlos syndrome and Osteogenesis Imperfecta. For adults, a Beighton score of at least 4 or 5 is used as a definition of hypermobility. For children a score of 5 or 6 is used as a definition. (see scoring system below).
Generalized joint hypermobility is hypermobility with few or no symptoms. If they occur, knee symptoms are the most common.
Joint hypermobility syndrome has hypermobility along with other symptoms such as pain, reduced muscle stren...
Source: PediatricEducation.org - February 23, 2015 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news
Unexplained facial scar: child abuse or ehlers-danlos syndrome? - Abtahi-Naeini B, Shapouri J, Masjedi M, Saffaei A, Pourazizi M.
CONTEXT: Child abuse is a serious problem, and its physical manifestations can be mimicked by certain diseases and conditions. These conditions can include genetic, congenital and other disorders that may result in poor weight gain, bone fractures or skin ... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - December 27, 2014 Category: Global & Universal Tags: Age: Infants and Children Source Type: news
Mother of five has dislocated every bone in her body and even yawning isn't safe for her
Jojo Meadows, 38, from Hereford, suffers from Ehlers-Danlos Syndrome a rare condition which causes her bones to dislocate up to a whopping ten times a day. (Source: the Mail online | Health)
Source: the Mail online | Health - December 27, 2014 Category: Consumer Health News Source Type: news
Mother and daughter share disorder, help others
Brandy Gibson and her 5-year-old daughter, Amelia, share the same connective tissue disorder called Ehlers-Danlos Syndrome, which affects the joints and organs. They have started a new project that helps raise awareness for the syndrome. (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - September 25, 2014 Category: Consumer Health News Source Type: news
Ehlers-Danlos syndrome (EDS): Signs, Symptoms, Prevention and Coping
Ehlers-Danlos syndrome (EDS) is a group of inherited disorders that affect a person’s connective tissues, mainly their joints, skin and the walls of their blood vessels. Connective tissue is a complex mixture of proteins and other substances that provides elasticity and strength to the underlying structures of a person’s body. People who experience Ehlers-Danlos syndrome (EDS) usually have overly flexible joints and skin that is fragile and stretchy. The skin issue may become a real problem if a person with EDS has a wound that requires stitches for example because their skin is often times not strong enough to hold th...
Source: Disabled World - August 30, 2014 Category: Disability Tags: Bones & Joint Conditions Source Type: news
Teenager diagnosed with rare condition that causes her to collapse 'like JENGA'
Shannon Blastland, 15, from Grimsby, suffers from the rare condition Ehlers-Danlos Syndrome, which affects the collagen in her body. (Source: the Mail online | Health)
Source: the Mail online | Health - August 12, 2014 Category: Consumer Health News Source Type: news
Make-up artist, 30, has shrunk 1.5 inches in a year due to Ehlers-Danlos syndrome
Nina Parsons, from Staffordshire, has Ehlers-Danlos Syndrome, which weakens the collagen in her body. Her neck is also not strong enough to hold up her head, causing her brain stem to become crushed. (Source: the Mail online | Health)
Source: the Mail online | Health - March 13, 2014 Category: Consumer Health News Source Type: news
Generation jitters: are we addicted to caffeine?
Caffeine is the drug many of us can't live without – but do you have any idea how much is in your daily hit?Propped up on my desk before me, there is a vacuum-sealed bag of white powder. Chemists would recognise this substance as a methylated xanthine, composed of tiny crystalline structures. It is a drug, and I have been under its influence nearly every day for the past 25 years. It is caffeine, and in moderation it makes us feel good. But it is a drug whose strength is consistently underestimated. You'd need to down about 50 cups of coffee at once, or 200 cups of tea, to approach a lethal level of caffeinatio...
Source: Guardian Unlimited Science - March 7, 2014 Category: Science Tags: The Guardian Coffee Soft drinks Health & wellbeing Food Society Drugs Extracts Features Life and style Science Source Type: news
