How the body regulates scar tissue growth after heart attacks
New UCLA research conducted in mice could explain why some people suffer more extensive scarring than others after a heart attack. The study,published in the journal Cell, reveals that a protein known as type 5 collagen plays a critical role in regulating the size of scar tissue in the heart.Once formed, heart scar tissue remains for life, reducing the heart ’s ability to pump blood and adding strain to the remaining heart muscle. People who develop larger scars have a higher risk of heart rhythm problems, heart failure and sudden cardiac death. “Two individuals with the same degree of heart attack can end...
Source: UCLA Newsroom: Health Sciences - July 3, 2020 Category: Universities & Medical Training Source Type: news

Ehlers-Danlos Syndrome Life Expectancy
What Is the Life Expectancy of Someone With Ehlers-Danlos Syndrome? (Source: eMedicineHealth.com)
Source: eMedicineHealth.com - June 2, 2020 Category: General Medicine Source Type: news

Lena Dunham says she has Ehlers-Danlos syndrome. Here's what it is
Responding to a paparazzi photo that captured her walking with her cane, Lena Dunham explained she has Ehlers-Danlos syndrome -- a group of disorders affecting the joints and skin. (Source: CNN.com - Health)
Source: CNN.com - Health - November 4, 2019 Category: Consumer Health News Source Type: news

Singer Sia Has Chronic Pain and Genetic Disorder
Ehlers-Danlos syndrome affects connective tissues that support the skin, bones, blood vessels and other organs and tissues, according to the U.S. National Institutes of Health. (Source: WebMD Health)
Source: WebMD Health - October 7, 2019 Category: Consumer Health News Source Type: news

Sia Has Chronic Pain Due to Neurological Disease
Ehlers-Danlos syndrome affects connective tissues that support the skin, bones, blood vessels and other organs and tissues, according to the U.S. National Institutes of Health. (Source: WebMD Health)
Source: WebMD Health - October 7, 2019 Category: Consumer Health News Source Type: news

Sia Reveals That She Has Ehlers Danlos Syndrome, What Is That?
Lack of familiarity with this connective tissue syndrome can delay diagnosis. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - October 5, 2019 Category: Pharmaceuticals Authors: Bruce Y. Lee, Contributor Source Type: news

Ehlers Danlos patients should be warned of their greater risk of fracturing their penis 
The unidentified 41-year-old, thought to be from Baltimore in Maryland, had Ehler's Danlos syndrome. He sought help for the gruesome injury 10 days after it occurred during sex. (Source: the Mail online | Health)
Source: the Mail online | Health - September 27, 2019 Category: Consumer Health News Source Type: news

Medical News Today: Ehlers-Danlos syndrome: Everything you need to know
Ehlers-Danlos syndrome is a group of genetic disorders that affect the connective tissues and cause several symptoms, including stretchy skin and loose joints. Learn more here. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - July 17, 2019 Category: Consumer Health News Tags: Genetics Source Type: news

Acer Therapeutics stock plummets 80 percent on FDA rejection
Newton biotech Acer Therapeutics' stock fell off a cliff Tuesday after the FDA rejected what would have been its first commercial product. Acer (Nasdaq: ACER) has been developing a treatment for the severe tissue disorder Vascular Ehlers-Danlos Syndrome, which can cause arteries and organs to rupture. The disorder reduces life expectancy to around 48 years of age. But the FDA rejected the company's application this week, tasking Ace r with conducting new trials of the drug, called edsivo, before… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - June 25, 2019 Category: Pharmaceuticals Authors: Allison DeAngelis Source Type: news

The 20-year-old who has fought sepsis EIGHT times
Miss Donovan Smith, from Auckland in New Zealand, has Ehlers-Danlos syndrome, a genetic disorder that makes her more susceptible to infections. (Source: the Mail online | Health)
Source: the Mail online | Health - June 11, 2019 Category: Consumer Health News Source Type: news

Heart-warming footage captures a grandmother walking by herself for the first time in three years
Karen Scott, 51, of East Sussex, was born with Ehlers-Danlos syndrome. But she wasn't diagnosed until June 2018. After £100K surgery in Spain, Mrs Scott can now walk unaided. (Source: the Mail online | Health)
Source: the Mail online | Health - May 15, 2019 Category: Consumer Health News Source Type: news

Rites of Passage: Call Me Cozy
As I struggle with chronic pain, cozy for me is less hygge and more my ex-boyfriend ’ s mother, nurses with juice and weird, sandy doughnuts. (Source: NYT Health)
Source: NYT Health - March 14, 2019 Category: Consumer Health News Authors: LENA DUNHAM Tags: Books and Literature Lyme Disease Dunham, Lena your-feed-selfcare Ehlers-Danlos Syndrome Endometriosis Source Type: news

Fracture incidence in Ehlers-Danlos syndrome - a population-based case-control study - Rolfes MC, Deyle DR, King KS, Hand JL, Graff AH, Derauf C.
BACKGROUND: The differential diagnosis of non-accidental injury during childhood includes medical conditions that predispose to skeletal fragility. Ehlers-Danlos syndrome (EDS) has been proposed as one such condition despite little objective evidence in th... (Source: SafetyLit)
Source: SafetyLit - March 13, 2019 Category: International Medicine & Public Health Tags: Age: Infants and Children Source Type: news

Small dog 'saved her owner's life' after fetching a phone when she collapsed
Ruth Spurr, 24, from Amersham in Buckinghamshire, suffers from Ehlers-Danlos syndrome which has left her significantly weakened and reliant on a wheelchair to get around. (Source: the Mail online | Health)
Source: the Mail online | Health - January 24, 2019 Category: Consumer Health News Source Type: news

Acer Therapeutics Submits NDA for Edsivo (celiprolol) for the Treatment of Vascular Ehlers-Danlos syndrome (vEDS)
NEWTON, MA– October 29, 2018– Acer Therapeutics Inc. (Nasdaq: ACER), a pharmaceutical company focused on the acquisition, development and commercialization of therapies for serious rare and ultra-rare diseases with critical unmet... (Source: Drugs.com - New Drug Applications)
Source: Drugs.com - New Drug Applications - October 29, 2018 Category: Drugs & Pharmacology Source Type: news

Medic, 21, has joints which dislocate every day and has to be fed through a tube
Amy Fisher, from Manchester but living in Perth, Australia, has the rare genetic disorder Ehlers-Danlos syndrome as well as various problems with her digestive system. (Source: the Mail online | Health)
Source: the Mail online | Health - September 26, 2018 Category: Consumer Health News Source Type: news

Puppy runs to the fridge and fetching his ill owner a drink
Mel Lucas, 25, from Tampa, Florida, suffers from the mobility disorder Ehlers Danlos Syndrome and hypoglycemia, which can leave her at risk of seizures and even death. (Source: the Mail online | Health)
Source: the Mail online | Health - September 18, 2018 Category: Consumer Health News Source Type: news

Puppy runs to the fridge and fetching his ill owner a drink
Mel Lucas, 25, from Tampa, Florida, suffers from  the mobility disorder Ehlers Danlos Syndrome and hypoglycemia, which can leave her at risk of seizures and even death. (Source: the Mail online | Health)
Source: the Mail online | Health - September 18, 2018 Category: Consumer Health News Source Type: news

Heartwarming footage shows a puppy running to the fridge and fetching his ill owner a drink
Mel Lucas, 25, from Tampa, Florida, suffers from  the mobility disorder Ehlers Danlos Syndrome and hypoglycemia, which can leave her at risk of seizures and even death. (Source: the Mail online | Health)
Source: the Mail online | Health - September 18, 2018 Category: Consumer Health News Source Type: news

Ehlers-Danlos Syndrome
Title: Ehlers-Danlos SyndromeCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 8/30/2018 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - August 30, 2018 Category: Rheumatology Source Type: news

Illinois woman dismissed by doctors diagnosed with rare Ehlers-Danlos
Megan King, 28, from Lake Zurich, Illinois, has had to undergo 34 operations after being diagnosed with Ehlers-Danlos syndrome, a rare genetic disorder which affects connective tissues. (Source: the Mail online | Health)
Source: the Mail online | Health - June 5, 2018 Category: Consumer Health News Source Type: news

His Tooth is Funny Looking. What is It?
Discussion Teeth are specialized anatomic parts of the human body that are developed between the ectoderm and ecomesenchyme in a complex process called odontogenesis. More than 300 genes have been identified that influence odontogenesis. Dental abnormalities can have significance for cosmesis, malocclusion, dental caries and periodontal diseases. It is not uncommon for more than 1 area to be affected. For example, Hutchinson teeth which are caused by congenital syphilis are smaller with wider spacing between the teeth within the arch, and also have a characteristic notching. Learning Point Some common dental problems that...
Source: PediatricEducation.org - May 14, 2018 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Suspicious scars: physical child abuse vs Ehlers-Danlos syndrome - Vadysinghe AN, Wickramashinghe CU, Nanayakkara DN, Kaluarachchi CI.
Child abuse is a sensitive topic among many medical practitioners and the diagnosis of this entity requires awareness about conditions which can mimic physical child abuse. Here, the authors present a case of a 13-year-old school non-attendee who was refer... (Source: SafetyLit)
Source: SafetyLit - March 12, 2018 Category: International Medicine & Public Health Tags: Age: Infants and Children Source Type: news

Ehlers-Danlos syndrome not stopping Natalie Wilson's 5,000 mile ride
Natalie Wilson is starting a 5,000 mile challenge to cycle the coastline of Great Britain on a recumbent trike. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - February 27, 2018 Category: Consumer Health News Source Type: news

What is Ehlers-Danlos Syndrome?
Dr Larry Nassar allegedly told one of his victims that he knew she had EDS, a connective tissue disorder, based on the elasticity of her vagina. We explain the condition he claimed to be diagnosing. (Source: the Mail online | Health)
Source: the Mail online | Health - January 19, 2018 Category: Consumer Health News Source Type: news

Ehlers-Danlos Syndrome: Woman starts hospital navigation website
A woman starts a website to help disabled people navigate hospitals and flag up their facilities. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 27, 2017 Category: Consumer Health News Source Type: news

Woman with Ehlers Danlos needs £130k to live to Christmas
Sarah Gearing, 40, from Rochford, Essex, suffers from Ehlers Danlos syndrome, which makes her body's connective tissues collapse and has left her in constant pain. (Source: the Mail online | Health)
Source: the Mail online | Health - October 23, 2017 Category: Consumer Health News Source Type: news

NHS patients having to crowdfund their own WHEELCHAIRS
Hannah Barham-Brown, 29, from London, was diagnosed with Ehlers Danlos-Syndrome , which means her joints dislocate very easily. She had to raise £2,000 to buy a wheelchair. (Source: the Mail online | Health)
Source: the Mail online | Health - June 26, 2017 Category: Consumer Health News Source Type: news

Minnesota woman with saggy skin wants to become a model
Sara Geurts, from Minneapolis, Minnesota, suffers from  Dermatosparaxis Ehlers-Danlos syndrome, a genetic condition that affects 'every system in the body'. (Source: the Mail online | Health)
Source: the Mail online | Health - June 22, 2017 Category: Consumer Health News Source Type: news

Plymouth woman had 24 operations on her dislocating joints
Rebecca Hempsell, 40, from Plymouth, has Ehlers-Danlos syndrome, which affects the connective tissues that supports her skin, bones, blood vessels and other organs in her body. (Source: the Mail online | Health)
Source: the Mail online | Health - May 19, 2017 Category: Consumer Health News Source Type: news

Milton Keynes family at risk of dislocating their bones
EXCLUSIVE: Gemma Coles-Hassan, 34, from Milton Keynes, was diagnosed with Ehlers-Danlos syndrome age 11. She passed it onto her three children: Aydan, Theo and Maddison. (Source: the Mail online | Health)
Source: the Mail online | Health - April 19, 2017 Category: Consumer Health News Source Type: news

Beauty queen uses platform to bring attention to rare genetic disorder
Victoria Graham, 23, of Maryland, is using her platform as Miss Frostburg 2017, to bring attention to a rare genetic disorder she has called Ehlers-Danlos Syndrome. (Source: ABC News: Health)
Source: ABC News: Health - April 19, 2017 Category: Consumer Health News Tags: Health Source Type: news

Scars on stage
US beauty queen Victoria Graham has Ehlers-Danlos Syndrome (EDS) but isn't afraid to show her scars. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 28, 2017 Category: Consumer Health News Source Type: news

Angry Constituents Hammer Tom Cotton At Town Hall: 'Do Your Job'
Sen. Tom Cotton (R-Ark.) faced hundreds of angry constituents at a town hall Wednesday night who grilled him for two hours on the Affordable Care Act, immigration, President Donald Trump’s administration and other issues.  The town hall, held at a high school in Springdale, Arkansas, was raucous throughout. About 2,000 people packed the auditorium and frequently drowned Cotton out with cheers, boos and jeers. Some attendees waved red cards when the senator said something they didn’t agree with.  Look at this crowd at @SenTomCotton's town hall in Springdale tonight. #ARnews #ARpx pic.twi...
Source: Healthy Living - The Huffington Post - February 23, 2017 Category: Consumer Health News Source Type: news

Leah Boxall suffers from Ehlers-Danlos Syndrome and needs money for life-saving surgery
Leah Boxall, 34, from Southampton, cannot turn her head without dislocating her neck and is partially paralysed. She suffers from a condition that has left her spine and neck too weak to support her head and her brain is now slipping into her spinal column crushing her brain stem. (Source: the Mail online | Health)
Source: the Mail online | Health - December 14, 2016 Category: Consumer Health News Source Type: news

7 Ways To Show Real Support To Friends And Family Battling Health Issues
“Please let me know if you need anything … ” We’ve all said the same thing to friends or loved ones when they were ill and in need of support. Blogger Judy Schwartz Haley, who was diagnosed with stage 3 breast cancer when her daughter was an infant, heard it a lot.  “I received many well wishes and blanket invitations to ‘call me if you need anything,’” she recalled. “But that’s a hard offer to follow up on. It meant I still had to pick up the phone to call someone and ask for help. I’m still not very good at that.” When someone you love is batt...
Source: Healthy Living - The Huffington Post - November 1, 2016 Category: Consumer Health News Source Type: news

Ehlers-Danlos Syndrome Linked to Small-Fiber Neuropathy Ehlers-Danlos Syndrome Linked to Small-Fiber Neuropathy
Dr Argoff highlights new evidence on the potential mechanisms underlying these painful inherited disorders.Medscape Neurology (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - September 29, 2016 Category: Neurology Tags: Neurology & Neurosurgery Commentary Source Type: news

Student with EDS needed EIGHT operations now hopes to be crowned Miss America
Victoria Graham, 22, from Maryland, has had several surgeries to try to stop her brain from crushing her spinal cord after being diagnosed with Ehlers-Danlos Syndrome (EDS). (Source: the Mail online | Health)
Source: the Mail online | Health - June 8, 2016 Category: Consumer Health News Source Type: news

Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT)
Source: NYT - March 4, 2016 Category: American Health Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news

Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT Health)
Source: NYT Health - March 4, 2016 Category: Consumer Health News Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news

Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT)
Source: NYT - March 4, 2016 Category: Nutrition Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news

Darcey Kelly 'can't have sex without dislocating hip' due to condition
Darcey Kelly from London, has Ehlers-Danlos Syndrome, an agonising condition which causes her joints to pop out. It means she can't open a bottle of water without dislocating her wrist. (Source: the Mail online | Health)
Source: the Mail online | Health - February 25, 2016 Category: Consumer Health News Source Type: news

Mother-of-two who can't EAT because of Ehlers-Danlos Syndrome (EDS)
Saffron Taylor, 22, from Birmingham, has Ehlers-Danlos Syndrome (EDS). The condition makes her joints dislocate at the slightest touch and meant she needed screws inserting into her knee. (Source: the Mail online | Health)
Source: the Mail online | Health - February 9, 2016 Category: Consumer Health News Source Type: news

Headaches, bloating and fatigue? You may have Ehlers-Danlos syndrome (EDS)
For 20 years, GP Kate Barnes now 52, from Buckinghamshire, has lived with chronic headaches and pain. Two years ago she found out she has Ehlers-Danlos syndrome (EDS). (Source: the Mail online | Health)
Source: the Mail online | Health - January 12, 2016 Category: Consumer Health News Source Type: news

Teenager with curved spine fulfills her dream of performing on a trapeze
Louise Stewart-Scott, 14, of Jersey, has Ehlers-Danlos syndrome, causing hypermobility and her joints to dislocate. She also suffers from scoliosis, an abnormal curvature in her spine. (Source: the Mail online | Health)
Source: the Mail online | Health - November 23, 2015 Category: Consumer Health News Source Type: news

Ehlers-Danlos syndrome(s) mimicking child abuse: is there an impact on clinical practice? - Castori M.
Ehlers-Danlos syndrome is a heterogeneous group of heritable connective tissue disorders characterized by increased fragility of various non-ossified tissues. It is usually ascertained due to abnormal skin texture, scarring complications, vascular fragilit... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - October 14, 2015 Category: Global & Universal Tags: Age: Infants and Children Source Type: news

Teenage girl had to be wired together before she fell apart
Emily James, 17, from Salford, has Ehlers-Danlos syndrome which causes her joints to dislocate several times a day, leaving her in constant pain. (Source: the Mail online | Health)
Source: the Mail online | Health - June 23, 2015 Category: Consumer Health News Source Type: news

How Do You Diagnose Hypermobility?
Discussion Hypermobility can be seen in several different clinical entities. These include generalized joint hypermobility, joint hypermobility syndrome, Marfan syndrome, Ehlers-Danlos syndrome and Osteogenesis Imperfecta. For adults, a Beighton score of at least 4 or 5 is used as a definition of hypermobility. For children a score of 5 or 6 is used as a definition. (see scoring system below). Generalized joint hypermobility is hypermobility with few or no symptoms. If they occur, knee symptoms are the most common. Joint hypermobility syndrome has hypermobility along with other symptoms such as pain, reduced muscle stren...
Source: PediatricEducation.org - February 23, 2015 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Unexplained facial scar: child abuse or ehlers-danlos syndrome? - Abtahi-Naeini B, Shapouri J, Masjedi M, Saffaei A, Pourazizi M.
CONTEXT: Child abuse is a serious problem, and its physical manifestations can be mimicked by certain diseases and conditions. These conditions can include genetic, congenital and other disorders that may result in poor weight gain, bone fractures or skin ... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - December 27, 2014 Category: Global & Universal Tags: Age: Infants and Children Source Type: news

Mother of five has dislocated every bone in her body and even yawning isn't safe for her 
Jojo Meadows, 38, from Hereford, suffers from Ehlers-Danlos Syndrome a rare condition which causes her bones to dislocate up to a whopping ten times a day. (Source: the Mail online | Health)
Source: the Mail online | Health - December 27, 2014 Category: Consumer Health News Source Type: news