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Minnesota woman with saggy skin wants to become a model
Sara Geurts, from Minneapolis, Minnesota, suffers from  Dermatosparaxis Ehlers-Danlos syndrome, a genetic condition that affects 'every system in the body'. (Source: the Mail online | Health)
Source: the Mail online | Health - June 22, 2017 Category: Consumer Health News Source Type: news

Plymouth woman had 24 operations on her dislocating joints
Rebecca Hempsell, 40, from Plymouth, has Ehlers-Danlos syndrome, which affects the connective tissues that supports her skin, bones, blood vessels and other organs in her body. (Source: the Mail online | Health)
Source: the Mail online | Health - May 19, 2017 Category: Consumer Health News Source Type: news

Milton Keynes family at risk of dislocating their bones
EXCLUSIVE: Gemma Coles-Hassan, 34, from Milton Keynes, was diagnosed with Ehlers-Danlos syndrome age 11. She passed it onto her three children: Aydan, Theo and Maddison. (Source: the Mail online | Health)
Source: the Mail online | Health - April 19, 2017 Category: Consumer Health News Source Type: news

Beauty queen uses platform to bring attention to rare genetic disorder
Victoria Graham, 23, of Maryland, is using her platform as Miss Frostburg 2017, to bring attention to a rare genetic disorder she has called Ehlers-Danlos Syndrome. (Source: ABC News: Health)
Source: ABC News: Health - April 19, 2017 Category: Consumer Health News Tags: Health Source Type: news

Scars on stage
US beauty queen Victoria Graham has Ehlers-Danlos Syndrome (EDS) but isn't afraid to show her scars. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 27, 2017 Category: Consumer Health News Source Type: news

Angry Constituents Hammer Tom Cotton At Town Hall: 'Do Your Job'
Sen. Tom Cotton (R-Ark.) faced hundreds of angry constituents at a town hall Wednesday night who grilled him for two hours on the Affordable Care Act, immigration, President Donald Trump’s administration and other issues.  The town hall, held at a high school in Springdale, Arkansas, was raucous throughout. About 2,000 people packed the auditorium and frequently drowned Cotton out with cheers, boos and jeers. Some attendees waved red cards when the senator said something they didn’t agree with.  Look at this crowd at @SenTomCotton's town hall in Springdale tonight. #ARnews #ARpx pic.twi...
Source: Healthy Living - The Huffington Post - February 23, 2017 Category: Consumer Health News Source Type: news

Leah Boxall suffers from Ehlers-Danlos Syndrome and needs money for life-saving surgery
Leah Boxall, 34, from Southampton, cannot turn her head without dislocating her neck and is partially paralysed. She suffers from a condition that has left her spine and neck too weak to support her head and her brain is now slipping into her spinal column crushing her brain stem. (Source: the Mail online | Health)
Source: the Mail online | Health - December 14, 2016 Category: Consumer Health News Source Type: news

7 Ways To Show Real Support To Friends And Family Battling Health Issues
“Please let me know if you need anything … ” We’ve all said the same thing to friends or loved ones when they were ill and in need of support. Blogger Judy Schwartz Haley, who was diagnosed with stage 3 breast cancer when her daughter was an infant, heard it a lot.  “I received many well wishes and blanket invitations to ‘call me if you need anything,’” she recalled. “But that’s a hard offer to follow up on. It meant I still had to pick up the phone to call someone and ask for help. I’m still not very good at that.” When someone you love is batt...
Source: Healthy Living - The Huffington Post - November 1, 2016 Category: Consumer Health News Source Type: news

Ehlers-Danlos Syndrome Linked to Small-Fiber Neuropathy Ehlers-Danlos Syndrome Linked to Small-Fiber Neuropathy
Dr Argoff highlights new evidence on the potential mechanisms underlying these painful inherited disorders.Medscape Neurology (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - September 29, 2016 Category: Neurology Tags: Neurology & Neurosurgery Commentary Source Type: news

Student with EDS needed EIGHT operations now hopes to be crowned Miss America
Victoria Graham, 22, from Maryland, has had several surgeries to try to stop her brain from crushing her spinal cord after being diagnosed with Ehlers-Danlos Syndrome (EDS). (Source: the Mail online | Health)
Source: the Mail online | Health - June 8, 2016 Category: Consumer Health News Source Type: news

Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT)
Source: NYT - March 4, 2016 Category: American Health Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news

Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT Health)
Source: NYT Health - March 4, 2016 Category: Consumer Health News Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news

Well: Think Like a Doctor: Hurting All Over Solved
Readers solve the case of a 36-year-old man with a 20 year history of migrating joint pains along with other strange symptoms. (Source: NYT)
Source: NYT - March 4, 2016 Category: Nutrition Authors: LISA SANDERS, M.D. Tags: Doctors Skin Ehlers-Danlos Syndrome Think Like a Doctor Joints (Body Part) Live Featured Source Type: news

Darcey Kelly 'can't have sex without dislocating hip' due to condition
Darcey Kelly from London, has Ehlers-Danlos Syndrome, an agonising condition which causes her joints to pop out. It means she can't open a bottle of water without dislocating her wrist. (Source: the Mail online | Health)
Source: the Mail online | Health - February 25, 2016 Category: Consumer Health News Source Type: news

Mother-of-two who can't EAT because of Ehlers-Danlos Syndrome (EDS)
Saffron Taylor, 22, from Birmingham, has Ehlers-Danlos Syndrome (EDS). The condition makes her joints dislocate at the slightest touch and meant she needed screws inserting into her knee. (Source: the Mail online | Health)
Source: the Mail online | Health - February 9, 2016 Category: Consumer Health News Source Type: news

Headaches, bloating and fatigue? You may have Ehlers-Danlos syndrome (EDS)
For 20 years, GP Kate Barnes now 52, from Buckinghamshire, has lived with chronic headaches and pain. Two years ago she found out she has Ehlers-Danlos syndrome (EDS). (Source: the Mail online | Health)
Source: the Mail online | Health - January 12, 2016 Category: Consumer Health News Source Type: news

Teenager with curved spine fulfills her dream of performing on a trapeze
Louise Stewart-Scott, 14, of Jersey, has Ehlers-Danlos syndrome, causing hypermobility and her joints to dislocate. She also suffers from scoliosis, an abnormal curvature in her spine. (Source: the Mail online | Health)
Source: the Mail online | Health - November 23, 2015 Category: Consumer Health News Source Type: news

Ehlers-Danlos syndrome(s) mimicking child abuse: is there an impact on clinical practice? - Castori M.
Ehlers-Danlos syndrome is a heterogeneous group of heritable connective tissue disorders characterized by increased fragility of various non-ossified tissues. It is usually ascertained due to abnormal skin texture, scarring complications, vascular fragilit... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - October 14, 2015 Category: Global & Universal Tags: Age: Infants and Children Source Type: news

Teenage girl had to be wired together before she fell apart
Emily James, 17, from Salford, has Ehlers-Danlos syndrome which causes her joints to dislocate several times a day, leaving her in constant pain. (Source: the Mail online | Health)
Source: the Mail online | Health - June 23, 2015 Category: Consumer Health News Source Type: news

How Do You Diagnose Hypermobility?
Discussion Hypermobility can be seen in several different clinical entities. These include generalized joint hypermobility, joint hypermobility syndrome, Marfan syndrome, Ehlers-Danlos syndrome and Osteogenesis Imperfecta. For adults, a Beighton score of at least 4 or 5 is used as a definition of hypermobility. For children a score of 5 or 6 is used as a definition. (see scoring system below). Generalized joint hypermobility is hypermobility with few or no symptoms. If they occur, knee symptoms are the most common. Joint hypermobility syndrome has hypermobility along with other symptoms such as pain, reduced muscle stren...
Source: PediatricEducation.org - February 23, 2015 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Unexplained facial scar: child abuse or ehlers-danlos syndrome? - Abtahi-Naeini B, Shapouri J, Masjedi M, Saffaei A, Pourazizi M.
CONTEXT: Child abuse is a serious problem, and its physical manifestations can be mimicked by certain diseases and conditions. These conditions can include genetic, congenital and other disorders that may result in poor weight gain, bone fractures or skin ... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - December 27, 2014 Category: Global & Universal Tags: Age: Infants and Children Source Type: news

Mother of five has dislocated every bone in her body and even yawning isn't safe for herĀ 
Jojo Meadows, 38, from Hereford, suffers from Ehlers-Danlos Syndrome a rare condition which causes her bones to dislocate up to a whopping ten times a day. (Source: the Mail online | Health)
Source: the Mail online | Health - December 27, 2014 Category: Consumer Health News Source Type: news

Mother and daughter share disorder, help others
Brandy Gibson and her 5-year-old daughter, Amelia, share the same connective tissue disorder called Ehlers-Danlos Syndrome, which affects the joints and organs. They have started a new project that helps raise awareness for the syndrome. (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - September 25, 2014 Category: Consumer Health News Source Type: news

Ehlers-Danlos syndrome (EDS): Signs, Symptoms, Prevention and Coping
Ehlers-Danlos syndrome (EDS) is a group of inherited disorders that affect a person’s connective tissues, mainly their joints, skin and the walls of their blood vessels. Connective tissue is a complex mixture of proteins and other substances that provides elasticity and strength to the underlying structures of a person’s body. People who experience Ehlers-Danlos syndrome (EDS) usually have overly flexible joints and skin that is fragile and stretchy. The skin issue may become a real problem if a person with EDS has a wound that requires stitches for example because their skin is often times not strong enough to...
Source: Disabled World - August 30, 2014 Category: Disability Tags: Bones & Joint Conditions Source Type: news

Teenager diagnosed with rare condition that causes her to collapse 'like JENGA'
Shannon Blastland, 15, from Grimsby, suffers from the rare condition Ehlers-Danlos Syndrome, which affects the collagen in her body. (Source: the Mail online | Health)
Source: the Mail online | Health - August 12, 2014 Category: Consumer Health News Source Type: news

Make-up artist, 30, has shrunk 1.5 inches in a year due to Ehlers-Danlos syndrome
Nina Parsons, from Staffordshire, has Ehlers-Danlos Syndrome, which weakens the collagen in her body. Her neck is also not strong enough to hold up her head, causing her brain stem to become crushed. (Source: the Mail online | Health)
Source: the Mail online | Health - March 13, 2014 Category: Consumer Health News Source Type: news

Generation jitters: are we addicted to caffeine?
Caffeine is the drug many of us can't live without – but do you have any idea how much is in your daily hit?Propped up on my desk before me, there is a vacuum-sealed bag of white powder. Chemists would recognise this substance as a methylated xanthine, composed of tiny crystalline structures. It is a drug, and I have been under its influence nearly every day for the past 25 years. It is caffeine, and in moderation it makes us feel good. But it is a drug whose strength is consistently underestimated. You'd need to down about 50 cups of coffee at once, or 200 cups of tea, to approach a lethal level of caffein...
Source: Guardian Unlimited Science - March 7, 2014 Category: Science Tags: The Guardian Coffee Soft drinks Health & wellbeing Food Society Drugs Extracts Features Life and style Science Source Type: news

Website Helps Patients Solve Medical Mysteries
NEWBURYPORT (CBS) – Only a few years ago dancing, art, and music came easy to Diana Cleaveland. Now the 51-year-old Newburyport mom struggles to sit up. “It’s really, really horrific,” says Diana as she describes the excruciating pain in her neck and back. Diana has been diagnosed with Ehlers-Danlos Syndrome. It’s a complicated genetic condition that weakens connective tissue leaving the patient in constant pain. But, Diana is convinced something else is wrong. “I’ve been diagnosed with contradictory things depending on which doctor you talk to.” Desperate for answers, Diana ...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - February 7, 2014 Category: Consumer Health News Authors: deanreddington Tags: Health Local News Seen On WBZ-TV Syndicated Local Watch Listen Beth Israel Deaconess Medical Center CrowdMed.com Doctor Ehlers-Danlos Kate Merrill Medicine Patients Source Type: news

Ehlers-Danlos Syndrome
Title: Ehlers-Danlos SyndromeCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 12/20/2013 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - December 20, 2013 Category: Rheumatology Source Type: news

Mother with rare Ehlers-Danlos syndrome struggles to cuddle her children because her joints 'pop out'
Emily Comber (pictured with husband, James), 31, from Cornwall, has Ehlers-Danlos syndrome - a genetic condition which means the collagen in her body is too weak. (Source: the Mail online | Health)
Source: the Mail online | Health - November 26, 2013 Category: Consumer Health News Source Type: news

Joanne Teague lives for decade after 2 year prognosis
Joanne Teague, 50, from South Wales, has Vascular Ehlers-Danlos syndrome which means her blood vessels and organs are in danger of tearing. (Source: the Mail online | Health)
Source: the Mail online | Health - October 7, 2013 Category: Consumer Health News Source Type: news

$1 million gift to fund Ehlers Danlos syndrome research at BCM
Baylor College of Medicine geneticist Dr. Brendan Lee plans to use a new $1 million gift to gain understanding of Ehlers Danos syndrome, an incurable tissue disorder. (Source: Baylor College of Medicine News)
Source: Baylor College of Medicine News - August 14, 2013 Category: Universities & Medical Training Source Type: news

What Causes Constipation?
Discussion Constipation generally is defined as infrequent or painful defecation. Constipation can be very disturbing to the patient and family who believe the stools are too infrequent, too hard or too difficult to pass. Most children develop constipation after the child begins to associate pain (e.g. a hard bowel movement) with defecation. The child then begins to withhold the stools trying to decrease the defecation discomfort. As stool withholding continues, the rectum dilates and gradually accommodates with the normal defecation urge disappearing. Passing large hard stools infrequently reinforces the defecation pain. ...
Source: PediatricEducation.org - February 25, 2013 Category: Pediatrics Authors: Donna M. D'Alessandro, M.D. Tags: Uncategorized Source Type: news

Father who lived with rare disease for 40 years finally diagnosed after doctor see him tie his shoelaces
Butcher Ian Redfern was with his daughter Evie at The Children’s Hospital in Sheffield, for treatment for her condition Ehlers Danlos Syndrome, when he was diagnosed. (Source: the Mail online | Health)
Source: the Mail online | Health - January 23, 2013 Category: Consumer Health News Source Type: news