Invisible Illnesses: Underlying Medical Problems
Invisible disability expert Dr. Diana Driscoll discusses Postural Orthostatic Tachycardia Syndrome (POTS), Chronic Fatigue Syndrome (ME/CFS), vagus nerve disorders, Ehlers-Danlos syndrome (EDS), and similar invisible illnesses (Source: Disabled World)
Source: Disabled World - February 23, 2021 Category: Disability Tags: Invisible Disability Source Type: news
Suicidal behaviors in women with the hypermobile Ehlers-Danlos syndrome - Baeza-Velasco C, Hamonet C, Montalescot L, Courtet P.
BACKGROUND: Hypermobile Ehlers-Danlos syndrome (hEDS) is the most frequent heritable disorder of the connective tissue. This is characterized by a generalized fragility of tissues leading to chronic pain, disability and high levels of psychological distres... (Source: SafetyLit)
Source: SafetyLit - February 19, 2021 Category: International Medicine & Public Health Tags: Risk Factor Prevalence, Injury Occurrence Source Type: news
Ehlers-Danlos Syndrome Associated With Various Complications Ehlers-Danlos Syndrome Associated With Various Complications
Hospitalized patients with Ehlers-Danlos syndrome (EDS) are more likely to have gastrointestinal, cardiovascular, autonomic, and allergic disorders than are hospitalized patients who do not have EDS.Medscape Medical News (Source: Medscape Rheumatology Headlines)
Source: Medscape Rheumatology Headlines - January 13, 2021 Category: Rheumatology Tags: Rheumatology News Source Type: news
What Causes Joint Pain?
DiscussionMusculoskeletal problems are common problems in pediatric practice with up to 15% of acute care visits being for this problem.
Joint pain is a common concern for families but the differential diagnosis is extensive and needs thoughtful consideration. History is a key to discerning the potential diagnosis but also in guiding the physical examination and laboratory examination. Family history especially for systemic diseases should be considered. On physical examination all joints should be examined include sacroiliac and temporomandibular joints.
Is this arthritis or arthralgia? Distinction between inflammatory...
Source: PediatricEducation.org - October 26, 2020 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news
How the body regulates scar tissue growth after heart attacks
New UCLA research conducted in mice could explain why some people suffer more extensive scarring than others after a heart attack. The study,published in the journal Cell, reveals that a protein known as type 5 collagen plays a critical role in regulating the size of scar tissue in the heart.Once formed, heart scar tissue remains for life, reducing the heart ’s ability to pump blood and adding strain to the remaining heart muscle. People who develop larger scars have a higher risk of heart rhythm problems, heart failure and sudden cardiac death. “Two individuals with the same degree of heart attack can end up with dif...
Source: UCLA Newsroom: Health Sciences - July 3, 2020 Category: Universities & Medical Training Source Type: news
Ehlers-Danlos Syndrome Life Expectancy
What Is the Life Expectancy of Someone With Ehlers-Danlos Syndrome? (Source: eMedicineHealth.com)
Source: eMedicineHealth.com - June 2, 2020 Category: General Medicine Source Type: news
Lena Dunham says she has Ehlers-Danlos syndrome. Here's what it is
Responding to a paparazzi photo that captured her walking with her cane, Lena Dunham explained she has Ehlers-Danlos syndrome -- a group of disorders affecting the joints and skin. (Source: CNN.com - Health)
Source: CNN.com - Health - November 4, 2019 Category: Consumer Health News Source Type: news
Singer Sia Has Chronic Pain and Genetic Disorder
Ehlers-Danlos syndrome affects connective tissues that support the skin, bones, blood vessels and other organs and tissues, according to the U.S. National Institutes of Health. (Source: WebMD Health)
Source: WebMD Health - October 7, 2019 Category: Consumer Health News Source Type: news
Sia Has Chronic Pain Due to Neurological Disease
Ehlers-Danlos syndrome affects connective tissues that support the skin, bones, blood vessels and other organs and tissues, according to the U.S. National Institutes of Health. (Source: WebMD Health)
Source: WebMD Health - October 7, 2019 Category: Consumer Health News Source Type: news
Sia Reveals That She Has Ehlers Danlos Syndrome, What Is That?
Lack of familiarity with this connective tissue syndrome can delay diagnosis. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - October 5, 2019 Category: Pharmaceuticals Authors: Bruce Y. Lee, Contributor Source Type: news
Ehlers Danlos patients should be warned of their greater risk of fracturing their penis
The unidentified 41-year-old, thought to be from Baltimore in Maryland, had Ehler's Danlos syndrome. He sought help for the gruesome injury 10 days after it occurred during sex. (Source: the Mail online | Health)
Source: the Mail online | Health - September 27, 2019 Category: Consumer Health News Source Type: news
Medical News Today: Ehlers-Danlos syndrome: Everything you need to know
Ehlers-Danlos syndrome is a group of genetic disorders that affect the connective tissues and cause several symptoms, including stretchy skin and loose joints. Learn more here. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - July 17, 2019 Category: Consumer Health News Tags: Genetics Source Type: news
Acer Therapeutics stock plummets 80 percent on FDA rejection
Newton biotech Acer Therapeutics' stock fell off a cliff Tuesday after the FDA rejected what would have been its first commercial product.
Acer (Nasdaq: ACER) has been developing a treatment for the severe tissue disorder Vascular Ehlers-Danlos Syndrome, which can cause arteries and organs to rupture. The disorder reduces life expectancy to around 48 years of age.
But the FDA rejected the company's application this week, tasking Ace r with conducting new trials of the drug, called edsivo, before… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - June 25, 2019 Category: Pharmaceuticals Authors: Allison DeAngelis Source Type: news
The 20-year-old who has fought sepsis EIGHT times
Miss Donovan Smith, from Auckland in New Zealand, has Ehlers-Danlos syndrome, a genetic disorder that makes her more susceptible to infections. (Source: the Mail online | Health)
Source: the Mail online | Health - June 11, 2019 Category: Consumer Health News Source Type: news
Heart-warming footage captures a grandmother walking by herself for the first time in three years
Karen Scott, 51, of East Sussex, was born with Ehlers-Danlos syndrome. But she wasn't diagnosed until June 2018. After £100K surgery in Spain, Mrs Scott can now walk unaided. (Source: the Mail online | Health)
Source: the Mail online | Health - May 15, 2019 Category: Consumer Health News Source Type: news
