Study protocol: retrospectively mining multisite clinical data to presymptomatically predict seizure onset for individual patients with Sturge-Weber

This study involves human participants and was approved by Boston Children’s Hospital Institutional Review Board: IRB-P00014482 and IRB-P00025916 Johns Hopkins School of Medicine Institutional Review Board: NA_00043846. Participants gave informed consent to participate in the study before taking part. The Institutional Review Boards at Kennedy Krieger Institute and Boston Children’s Hospital approval have been obtained at each site to retrospectively study this data. Results will be disseminated by presentations, publication and sharing of algorithms generated.

Source: BMJ Open - February 4, 2022 Category: General Medicine Authors: Vedmurthy, P., Pinto, A. L. R., Lin, D. D. M., Comi, A. M., Ou, Y., BCH-KKI SWS Pre-symptomatic Biomarker Working Group, Sahin, Ellen Grant, Boyer, Takeoka, Cohen, Ewen, Kossoff, Reidy, Suskauer, Zabel Tags: Open access, Neurology Source Type: research