Quality of life in patients with Tuberous Sclerosis Complex (TSC).

Quality of life in patients with Tuberous Sclerosis Complex (TSC). Eur J Paediatr Neurol. 2019 Sep 13;: Authors: Amin S, Mallick AA, Lux A, O'Callaghan F Abstract BACKGROUND: The quality of life (QoL) of patients with Tuberous Sclerosis Complex (TSC) has not been studied before. We aimed to investigate the impact of the disease on QoL. We studied the QoL of 91 TSC patients who have attended the Bath TSC clinic, UK over 6 months. QoL was evaluated using the PedsQL for children, and SF-36 for adults. RESULTS: Impaired QoL is found in all patients with TSC regardless of the presence of epilepsy and learning disabilities (LD). Total mean self-reported score for children was 71 out of 100, compared to a UK norm of 84, p 
Source: European Journal of Paediatric Neurology - Category: Neurology Authors: Tags: Eur J Paediatr Neurol Source Type: research

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