Communicating visit information to family caregivers: How does method matter? A national survey
This study sought to determine whether mode of receiving clinic visit information (speaking with the patient, attending the visit, or using an after-visit summary [AVS]) was associated with changes in caregiver burden, caregiver preparedness, and the positive aspects of caregiving.METHODS: Cross-sectional web-based survey of a national sample of adult family caregivers. Multiple linear regression models determined associations between communication modes and caregivers' burden, preparedness, and positive aspects of caregiving, adjusting for sociodemographic covariates.RESULTS: Respondents (N = 340) were mostly male (58%), ...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Reed W R Bratches Noah Z Freundlich J Nicholas Odom A James O'Malley Paul J Barr Source Type: research
Meta-synthesis of ethnic minority families' experiences of children's palliative care across developed countries
Palliat Support Care. 2024 Apr 24:1-14. doi: 10.1017/S1478951524000609. Online ahead of print.ABSTRACTOBJECTIVES: Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers' ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children's palliative care (CPC) by answering the question, "What are the experiences of EM families of children's palliative care across developed countries?"METHODS: A systematic...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Adaobi C Iluno Michael J Tatterton Melanie Haith-Cooper Source Type: research
Oncology social workers' involvement in palliative care: Secondary data analysis from nationwide oncology social workers survey
This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States.METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers. The participants were social workers who were directly involved in providing care to cancer patients and delivering palliative care services. They completed an online survey in which they indicated the relevance of 91 tasks related to their practice. The survey also collected individual demographic and work-relate...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Ting Guan Karlynn BrintzenhofeSzoc Alyssa Middleton Shirley Otis-Green Tara Schapmire Makeeta Rayton Krista Nelson Michael L Grignon Brad Zebrack Source Type: research
Perception of Good Death and Level of Perceived Stress in Relatives of Palliative Care Patients
This study aimed to examine the perception of a good death and the level of perceived stress in relatives of palliative care patients. Relatives of 110 patients hospitalized in a palliative care center constituted the research sample. A personal information form, the "Good Death Scale," and the "Perceived Stress Scale" were used for data collection. The patients' relatives defined good death as being with family members and living this process without suffering. The mean total Good Death Scale score of the relatives of palliative care patients was 54.86 ± 7.78, and their mean total Perceived Stress Scale score was 31.11 Â...
Source: Omega - April 24, 2024 Category: Palliative Care Authors: Sevil Pamuk Cebeci Şebnem Bilgiç Source Type: research
'How long do you think?' Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study
CONCLUSION: This study provides valuable new knowledge to support clinicians' confidence when responding to the 'how long' question and can inform decision-making at end-of-life. Further research using the AKPS could provide greater certainty for answering 'how long' questions across the illness trajectory.PMID:38654605 | DOI:10.1177/02692163241238903 (Source: Palliative Medicine)
Source: Palliative Medicine - April 24, 2024 Category: Palliative Care Authors: Tricia O'Connor Wai-Man Liu Juliane Samara Joanne Lewis Catherine Paterson Source Type: research
Communicating visit information to family caregivers: How does method matter? A national survey
This study sought to determine whether mode of receiving clinic visit information (speaking with the patient, attending the visit, or using an after-visit summary [AVS]) was associated with changes in caregiver burden, caregiver preparedness, and the positive aspects of caregiving.METHODS: Cross-sectional web-based survey of a national sample of adult family caregivers. Multiple linear regression models determined associations between communication modes and caregivers' burden, preparedness, and positive aspects of caregiving, adjusting for sociodemographic covariates.RESULTS: Respondents (N = 340) were mostly male (58%), ...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Reed W R Bratches Noah Z Freundlich J Nicholas Odom A James O'Malley Paul J Barr Source Type: research
Meta-synthesis of ethnic minority families' experiences of children's palliative care across developed countries
Palliat Support Care. 2024 Apr 24:1-14. doi: 10.1017/S1478951524000609. Online ahead of print.ABSTRACTOBJECTIVES: Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers' ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children's palliative care (CPC) by answering the question, "What are the experiences of EM families of children's palliative care across developed countries?"METHODS: A systematic...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Adaobi C Iluno Michael J Tatterton Melanie Haith-Cooper Source Type: research
Oncology social workers' involvement in palliative care: Secondary data analysis from nationwide oncology social workers survey
This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States.METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers. The participants were social workers who were directly involved in providing care to cancer patients and delivering palliative care services. They completed an online survey in which they indicated the relevance of 91 tasks related to their practice. The survey also collected individual demographic and work-relate...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Ting Guan Karlynn BrintzenhofeSzoc Alyssa Middleton Shirley Otis-Green Tara Schapmire Makeeta Rayton Krista Nelson Michael L Grignon Brad Zebrack Source Type: research
Perception of Good Death and Level of Perceived Stress in Relatives of Palliative Care Patients
This study aimed to examine the perception of a good death and the level of perceived stress in relatives of palliative care patients. Relatives of 110 patients hospitalized in a palliative care center constituted the research sample. A personal information form, the "Good Death Scale," and the "Perceived Stress Scale" were used for data collection. The patients' relatives defined good death as being with family members and living this process without suffering. The mean total Good Death Scale score of the relatives of palliative care patients was 54.86 ± 7.78, and their mean total Perceived Stress Scale score was 31.11 Â...
Source: Omega - April 24, 2024 Category: Palliative Care Authors: Sevil Pamuk Cebeci Şebnem Bilgiç Source Type: research
'How long do you think?' Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study
CONCLUSION: This study provides valuable new knowledge to support clinicians' confidence when responding to the 'how long' question and can inform decision-making at end-of-life. Further research using the AKPS could provide greater certainty for answering 'how long' questions across the illness trajectory.PMID:38654605 | DOI:10.1177/02692163241238903 (Source: Palliative Medicine)
Source: Palliative Medicine - April 24, 2024 Category: Palliative Care Authors: Tricia O'Connor Wai-Man Liu Juliane Samara Joanne Lewis Catherine Paterson Source Type: research
Communicating visit information to family caregivers: How does method matter? A national survey
This study sought to determine whether mode of receiving clinic visit information (speaking with the patient, attending the visit, or using an after-visit summary [AVS]) was associated with changes in caregiver burden, caregiver preparedness, and the positive aspects of caregiving.METHODS: Cross-sectional web-based survey of a national sample of adult family caregivers. Multiple linear regression models determined associations between communication modes and caregivers' burden, preparedness, and positive aspects of caregiving, adjusting for sociodemographic covariates.RESULTS: Respondents (N = 340) were mostly male (58%), ...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Reed W R Bratches Noah Z Freundlich J Nicholas Odom A James O'Malley Paul J Barr Source Type: research
Meta-synthesis of ethnic minority families' experiences of children's palliative care across developed countries
Palliat Support Care. 2024 Apr 24:1-14. doi: 10.1017/S1478951524000609. Online ahead of print.ABSTRACTOBJECTIVES: Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers' ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children's palliative care (CPC) by answering the question, "What are the experiences of EM families of children's palliative care across developed countries?"METHODS: A systematic...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Adaobi C Iluno Michael J Tatterton Melanie Haith-Cooper Source Type: research
Oncology social workers' involvement in palliative care: Secondary data analysis from nationwide oncology social workers survey
This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States.METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers. The participants were social workers who were directly involved in providing care to cancer patients and delivering palliative care services. They completed an online survey in which they indicated the relevance of 91 tasks related to their practice. The survey also collected individual demographic and work-relate...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Ting Guan Karlynn BrintzenhofeSzoc Alyssa Middleton Shirley Otis-Green Tara Schapmire Makeeta Rayton Krista Nelson Michael L Grignon Brad Zebrack Source Type: research
'How long do you think?' Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study
CONCLUSION: This study provides valuable new knowledge to support clinicians' confidence when responding to the 'how long' question and can inform decision-making at end-of-life. Further research using the AKPS could provide greater certainty for answering 'how long' questions across the illness trajectory.PMID:38654605 | DOI:10.1177/02692163241238903 (Source: Palliative Medicine)
Source: Palliative Medicine - April 24, 2024 Category: Palliative Care Authors: Tricia O'Connor Wai-Man Liu Juliane Samara Joanne Lewis Catherine Paterson Source Type: research
Can We Adopt Pediatric Palliative Care that is Indivisible with Equity for all?
In this volume of The Journal, two retrospective cohort studies, both based in Ohio, provide insightful data about the deployment of dedicated pediatric palliative care teams. While home-based visits have been a longtime core principle of pediatric hospice care, their value has not been well defined or justified. Thus, Smith et al analyzed healthcare utilization outcomes in a sample of children who received home visits across two well-established pediatric home-based palliative care and hospice programs over 6 years among 195 children, half of whom had neurologic impairment. (Source: The Journal of Pediatrics)
Source: The Journal of Pediatrics - April 24, 2024 Category: Pediatrics Authors: Paul Graham Fisher Tags: The Editors' Perspectives Source Type: research
