Legacy perceptions and interventions for adults and children receiving palliative care: A systematic review.
CONCLUSIONS: Though future research with high-quality, experimental designs is needed, the positive outcomes associated with legacy interventions are documented in adult patient populations; additionally, the application of legacy interventions for children with serious illnesses receiving palliative care is reasonable based on the existing body of evidence. A consistent and operational concept of legacy is still needed for future research and practice. PMID: 33487090 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - January 25, 2021 Category: Palliative Care Authors: Boles JC, Jones MT Tags: Palliat Med Source Type: research

The COVID-19 pandemic and palliative care units: A cross-sectional survey of the informational needs of caregivers.
PMID: 33482701 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - January 22, 2021 Category: Palliative Care Authors: Kim GL, Berall A, Gardner S, Brookes J, Natadira M, Perri GA Tags: Palliat Med Source Type: research

The monetary valuation of informal care to cancer decedents at end-of-life: Evidence from a national census survey.
CONCLUSION: The monetary valuation we produce for carers' work is substantial, for example the weekly UK Carers' Allowance only amounts to 7% of our estimated value of £948.86 per week. Our research provides further information on subgroup variation, and a valid carer time instrument and method to inform economic evaluation and policy. PMID: 33478364 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - January 21, 2021 Category: Palliative Care Authors: Urwin S, Van den Berg B, Lau YS, Rowland C, Hanratty B, Grande G Tags: Palliat Med Source Type: research

Differences among institutions in the prevalence of and indications for urinary catheterization of advanced cancer patients at palliative care units: A multicenter prospective cohort study (EASED).
This study enrolled consecutive advanced cancer patients admitted to palliative care units between January and December 2017. The final study group comprised 1212 patients from 21 institutions throughout Japan. RESULTS: Out of the 1212 patients, 380 (31.4%; 95% confidence interval, 28.7%-34.0%) underwent urinary catheterization during their palliative care unit stay, and the prevalence of urinary catheterization in patients who died at palliative care units by institution ranged from 0.0% to 55.4%. When the 21 participating institutions were equally divided into three groups according to the institutional prevalence o...
Source: Palliative Medicine - January 21, 2021 Category: Palliative Care Authors: Higashibata T, Hisanaga T, Hagiwara S, Shimokawa M, Yabuki R, Odagiri T, Ito T, Kamura R, Maeda I, Kosugi K, Mori M, Morita T, Tsuneto S, Hamano J Tags: Palliat Med Source Type: research

Validation of the responding to urgency of need in palliative care (RUN-PC) triage tool.
CONCLUSION: The RUN-PC Triage Tool appears to be a reliable and valid tool for the prioritisation of patients referred to specialist inpatient, hospital consultation and community palliative care services. PMID: 33478366 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - January 21, 2021 Category: Palliative Care Authors: Russell B, Philip J, Wawryk O, Vogrin S, Burchell J, Collins A, Le B, Brand C, Hudson P, Sundararajan V Tags: Palliat Med Source Type: research

Video-based online interviews for palliative care research: A new normal in COVID-19?
PMID: 33475026 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - January 21, 2021 Category: Palliative Care Authors: Foley G Tags: Palliat Med Source Type: research

Reflective insights from developing a palliative care children and young people's advisory group.
CONCLUSION: This project has equipped researchers with skills and provided a structured template for future Young People's Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research. PMID: 33435853 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - January 12, 2021 Category: Palliative Care Authors: Roach A, Braybrook D, Marshall S Tags: Palliat Med Source Type: research

'Cold bedrooms' and other cooling facilities in UK children's hospices, how they are used and why they are offered: A mixed methods study.
Abstract BACKGROUND: The death of a child is acutely distressing. Evidence on the benefits and value to parents of spending time with their dead child have now been integrated into routine practice and is regarded as a bereavement support intervention. UK children's hospices have a tradition of using 'cooling facilities' (cold bedrooms, cooled blanket/mattress) to extend this period of time by slowing deterioration of the body. AIMS: To describe: (1) type and use of cooling facilities in UK children's hospices, policies and practices regarding their use, and any changes over time. (2) Director of care's views...
Source: Palliative Medicine - January 11, 2021 Category: Palliative Care Authors: Hackett J, Beresford B Tags: Palliat Med Source Type: research

Timely identification of patients in need of palliative care using the Double Surprise Question: A prospective study on outpatients with cancer.
Abstract BACKGROUND: The Surprise Question ("Would I be surprised if this patient were to die within the next 12 months?") is widely used to identify palliative patients, though with low predictive value. To improve timely identification of palliative care needs, we propose an additional Surprise Question ("Would I be surprised if this patient is still alive after 12 months?") if the original Surprise Question is answered with "no." The combination of the two questions is called the Double Surprise Question. AIM: To examine the prognostic accuracy of the Double Surp...
Source: Palliative Medicine - January 11, 2021 Category: Palliative Care Authors: Ermers DJ, Kuip EJ, Veldhoven C, Schers HJ, Perry M, Bronkhorst EM, Vissers KC, Engels Y Tags: Palliat Med Source Type: research

"Achieve the best while rushing against time": A grounded theory study on caring for low-income immigrant cancer patients at end of life.
CONCLUSIONS: The model reveals the activation of empathic and compassionate behavior by professionals. It evidences the need for empowering professionals with cultural competencies by employing interpreters and specific training programs. PMID: 33356971 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 25, 2020 Category: Palliative Care Authors: Sacchi S, Capone R, Ferrari F, Sforacchi F, Di Leo S, Ghirotto L Tags: Palliat Med Source Type: research

The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study.
CONCLUSIONS: The role of informal caregivers is multi-faceted, with participants reporting taking care of the majority of medical, physical, financial, and emotional needs of the care recipient, often in the face of sacrifices relating to employment, finances, and their own health and social life. Efforts to develop comprehensive cancer control plans in sub-Saharan Africa must take account of the increasing evidence of informal caregiver needs. PMID: 33353484 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 23, 2020 Category: Palliative Care Authors: Adejoh SO, Boele F, Akeju D, Dandadzi A, Nabirye E, Namisango E, Namukwaya E, Ebenso B, Nkhoma K, Allsop MJ Tags: Palliat Med Source Type: research

The impact of public health palliative care interventions on health system outcomes: A systematic review.
CONCLUSION: The impact of public health palliative care is an evolving area of empirical inquiry with currently only limited evidence that it improves healthcare utilisation outcomes at the end of life, and limited focus on measurement of these outcomes. Further empirical studies are needed to support the reorientation of health services, which remains an important component in realising 'whole of system change' to bring about quality end-of-life care for all. PMID: 33353507 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 23, 2020 Category: Palliative Care Authors: Collins A, Brown JEH, Mills J, Philip J Tags: Palliat Med Source Type: research

Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review.
CONCLUSION: Little high-quality evidence is yet available on the effectiveness and implementation of palliative care interventions for patients with COPD. There is a need for well-conducted effectiveness studies and adequate process evaluations using standardized methodologies to create higher-level evidence and inform successful implementation. PMID: 33339466 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 18, 2020 Category: Palliative Care Authors: Broese JM, de Heij AH, Janssen DJ, Skora JA, Kerstjens HA, Chavannes NH, Engels Y, van der Kleij RM Tags: Palliat Med Source Type: research

A meta-ethnographic study of fathers' experiences of caring for a child with a life-limiting illness.
CONCLUSION: The findings indicate the value of a family-oriented approach to develop psychosocial interventions and support channels for fathers, thus empowering them whilst reducing the care-giving burden on the family unit. PMID: 33339475 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 18, 2020 Category: Palliative Care Authors: Postavaru GI, Swaby H, Swaby R Tags: Palliat Med Source Type: research

Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis-A multicenter prospective study.
CONCLUSION: A validated outcome tool for severely neurologically impaired pediatric palliative care patients, the FACETS-OF-PPC, now exists. Due to its concise length and appropriate psychometric properties, it is well suited for clinical application. PMID: 33339481 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 18, 2020 Category: Palliative Care Authors: Pelke S, Wager J, Claus BB, Zernikow B, Reuther M Tags: Palliat Med Source Type: research

Preplanned participation of paramedics in end-of-life care at home: A retrospective cohort study.
ehto JT Abstract BACKGROUND: Paramedics commonly face acute crises of patients in palliative care, but their involvement in end-of-life care is not planned systematically. AIM: To evaluate a protocol for end-of-life care at home including pre-planned integration of paramedics and end-of-life care wards. DESIGN: Paramedic visits to patients in end-of-life care protocol were retrospectively studied. SETTING/PARTICIPANTS: All of the patients who had registered for the protocol between 1 March 2015 and 28 February 2017 in North Karelia, Finland, were included in this study. RESULTS: A total of 256 ...
Source: Palliative Medicine - December 18, 2020 Category: Palliative Care Authors: Surakka LK, Peake MM, Kiljunen MM, Mäntyselkä P, Lehto JT Tags: Palliat Med Source Type: research

The determinants of the intensity of home-based informal care among cancer patients in receipt of home-based palliative care.
CONCLUSIONS: The intensity of informal care was determined by predisposing, enabling, and needs-based factors. This study provides a reference for the planning and targeting of supports for the provision of informal care. PMID: 33334251 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 18, 2020 Category: Palliative Care Authors: Cai J, Zhang L, Guerriere D, Coyte PC Tags: Palliat Med Source Type: research

Estimating the current and future prevalence of life-limiting conditions in children in England.
CONCLUSIONS: The prevalence of children with a life-limiting or life-threatening condition in England has risen over the last 17 years and is predicted to increase. Future data collections must include the data required to assess the complex health and social care needs of these children. PMID: 33323043 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 15, 2020 Category: Palliative Care Authors: Fraser LK, Gibson-Smith D, Jarvis S, Norman P, Parslow RC Tags: Palliat Med Source Type: research

How to measure the effects and potential adverse events of palliative sedation? An integrative review.
CONCLUSIONS: There are palliative care validated instruments to assess the sedation effect but this review shows the need for a more standardized approach when assessing it. Instruments should be used within an experienced and trained expert, providing a holistic assessment. PMID: 33307989 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 14, 2020 Category: Palliative Care Authors: Belar A, Arantzamendi M, Payne S, Preston N, Lee-Rijpstra M, Hasselaar J, Radbruch L, Vanderelst M, Ling J, Centeno C Tags: Palliat Med Source Type: research

Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making.
CONCLUSION: Parents' decisions about place of end-of-life care and death are affected by personal, interpersonal, timing and disease-related factors. Parents are best supported in decision-making when information is presented clearly and honestly with recognition of what acting as 'good parents' means to them, and opportunities to enhance their caregiving competence to care for their child at home, if they choose so. PMID: 33307990 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 14, 2020 Category: Palliative Care Authors: Papadatou D, Kalliani V, Karakosta E, Liakopoulou P, Bluebond-Langner M Tags: Palliat Med Source Type: research

Perspectives of bereaved partners of lung cancer patients on the role of mindfulness in dying and grieving: A qualitative study.
CONCLUSION: The present study showed that MBSR can facilitate lung cancer patients and their partners in accepting the forthcoming death and openly communicating about this, which can support a peaceful death and healthy grieving process. PMID: 33308039 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 14, 2020 Category: Palliative Care Authors: Schellekens MP, van den Hurk DG, Jansen ET, van der Lee ML, Prins JB, van der Drift MA, Speckens AE Tags: Palliat Med Source Type: research

Real-world ethics in palliative care: A systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice.
CONCLUSION: Palliative care practitioners encounter a broad range of contextual ethical challenges, many of which are not represented in palliative care ethics training resources, for example, navigating institutional policies, resource allocation and inter-professional conflict. Findings have implications for supporting ethical practice and training practitioners. The lack of low- and middle- income country data needs addressing. PMID: 33302783 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 10, 2020 Category: Palliative Care Authors: Schofield G, Dittborn M, Huxtable R, Brangan E, Selman LE Tags: Palliat Med Source Type: research

Caring, sharing, preparing and declaring: how do hospices support prisons to provide palliative and end of life care? A qualitative descriptive study using telephone interviews.
CONCLUSIONS: There are differences and similarities in the way countries provide palliative care to people in prison: many are similar to Scotland in that they do not operate prison-based hospices. Variations exist in the level of support hospices provide. Ensuring that all people in prison have equitable access to palliative care will require close collaboration between prisons and hospices on a national level. PMID: 33302784 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 10, 2020 Category: Palliative Care Authors: McParland C, Johnston B Tags: Palliat Med Source Type: research

Inclusion of palliative care in health care policy for older people: A directed documentary analysis in 13 of the most rapidly ageing countries worldwide.
CONCLUSIONS: Health care policies for older people need revising to include reference to end-of-life care and dying and ensure linkage to existing national or regional palliative care strategies. The strong policy focus on care coordination and continuity in policies for older people is an opportunity window for palliative care advocacy. PMID: 33295232 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 9, 2020 Category: Palliative Care Authors: Pivodic L, Smets T, Gott M, Sleeman KE, Arrue B, Cardenas Turanzas M, Pechova K, Kodba Čeh H, Lo TJ, Nakanishi M, Rhee Y, Ten Koppel M, Wilson DM, Van den Block L Tags: Palliat Med Source Type: research

Measures of financial burden for families dealing with serious illness: A systematic review and analysis.
CONCLUSION: To measure financial burden, we identified a need to develop and test multi-item measures, measures appropriate for patient populations and greater attention to the temporal aspects of self-report assessments. PMID: 33274681 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - December 4, 2020 Category: Palliative Care Authors: Lee J, Cagle JG Tags: Palliat Med Source Type: research

Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context.
CONCLUSIONS: Relationships influencing implementation resided at individual and organisational levels. Addressing these factors is key to driving the implementation of outcome measures into routine practice so that those using palliative care services can benefit from the systematic identification, management, and measurement of their symptoms and concerns. We provide key questions that are essential for those implementing and using outcome measures to consider in order to facilitate the integration of outcome measures into routine palliative care practice. PMID: 33249996 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 29, 2020 Category: Palliative Care Authors: Bradshaw A, Santarelli M, Mulderrig M, Khamis A, Sartain K, Boland JW, Bennett MI, Johnson M, Pearson M, Murtagh FEM Tags: Palliat Med Source Type: research

End of life care for long-term neurological conditions: A meta-ethnographic review of the experiences of informal carers.
CONCLUSIONS: Given the broad agreement on the challenges faced by carers of people living with long-term neurological conditions, future research should consider opportunities to improve information and support for this group, and the development and evaluation of practical models of service delivery. PMID: 33238811 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 25, 2020 Category: Palliative Care Authors: Toze M, Ray M, George T, Sisson K, Nelson D Tags: Palliat Med Source Type: research

The Me in We dyadic communication intervention is feasible and acceptable among advanced cancer patients and their family caregivers.
CONCLUSIONS: This intervention showed feasibility and acceptability using participant-generated goals as personalized points of communication for advanced cancer dyads. This model shows promise as a communication intervention for dyads in discussing and working towards individual and shared goals when facing life-limiting or end-of-life cancer. PMID: 33225821 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 21, 2020 Category: Palliative Care Authors: Ketcher D, Thompson C, Otto AK, Reblin M, Cloyes KG, Clayton MF, Baucom BRW, Ellington L Tags: Palliat Med Source Type: research

Evidence on the effectiveness and cost-effectiveness of out-of-hours palliative care.
PMID: 33225824 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 21, 2020 Category: Palliative Care Authors: Johnston BM, McCauley R, Rabbitte M, McQuillan R, Honohan C, Mockler D, Thomas S, May P Tags: Palliat Med Source Type: research

The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis.
CONCLUSIONS: The review has enabled the voices of children affected by parental life-limiting illness to be heard and will inform the development of guidance for parents and professionals. PMID: 33213277 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 19, 2020 Category: Palliative Care Authors: Marshall S, Fearnley R, Bristowe K, Harding R Tags: Palliat Med Source Type: research

A-qCPR risk score screening model for predicting 1-year mortality associated with hospice and palliative care in the emergency department.
CONCLUSIONS: A-qCPR risk scores provide a good screening tool for assessing patient prognosis. Routine screening for end-of-life using this tool plays an important role in early and efficient physician-patient communications regarding hospice and palliative needs in the emergency department. PMID: 33198575 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 16, 2020 Category: Palliative Care Authors: Wang RF, Lai CC, Fu PY, Huang YC, Huang SJ, Chu D, Lin SP, Chaou CH, Hsu CY, Chen HH Tags: Palliat Med Source Type: research

"Hanging in a balance": A qualitative study exploring clinicians' experiences of providing care at the end of life in the burn unit.
CONCLUSIONS: The end of life period in the burn unit is poorly defined coupled with prognostic uncertainty. Collaborative model of practice and further training are required to support the integration of palliative care in the burn unit. PMID: 33198576 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - November 16, 2020 Category: Palliative Care Authors: Bayuo J, Bristowe K, Harding R, Agbeko AE, Wong FKY, Agyei FB, Allotey G, Baffour PK, Agbenorku P, Hoyte-Williams PE, Agambire R Tags: Palliat Med Source Type: research

Do family meetings for hospitalised palliative care patients improve outcomes and reduce health care costs? A cluster randomised trial.
Abstract BACKGROUND: Family meetings facilitate the exploration of issues and goals of care however, there has been minimal research to determine the benefits and cost implications. AIMS: To determine: (1) if family caregivers of hospitalised patients referred to palliative care who receive a structured family meeting report lower psychological distress (primary outcome), fewer unmet needs, improved quality of life; feel more prepared for the caregiving role; and receive better quality of end-of-life care; (2) if outcomes vary dependant upon site of care and; (3) the cost-benefit of implementing meetings into...
Source: Palliative Medicine - October 31, 2020 Category: Palliative Care Authors: Hudson P, Girgis A, Thomas K, Philip J, Currow DC, Mitchell G, Parker D, Liew D, Brand C, Le B, Moran J Tags: Palliat Med Source Type: research

Healthcare professionals' experiences of inter-professional collaboration during patient's transfers between care settings in palliative care: A focus group study.
CONCLUSION: From the perspective of the integrated care framework, several areas of improvement on different levels of care and collaboration are identified. Support from policymakers and researchers is required to achieve integrated palliative care in regional networks. PMID: 33126837 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 30, 2020 Category: Palliative Care Authors: Mertens F, Debrulle Z, Lindskog E, Deliens L, Deveugele M, Pype P Tags: Palliat Med Source Type: research

The art and science of recruitment to a cancer rapid autopsy programme: A qualitative study exploring patient and clinician experiences.
CONCLUSION: Findings provide insight into how clinicians successfully select and recruit patients to a rapid autopsy programme and suggests that discussing such topics are acceptable to end-of-life patients. This research also raises thought-provoking questions about the 'gatekeeping' role of clinicians in recruitment. PMID: 33126839 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 30, 2020 Category: Palliative Care Authors: Tutty E, Horsley P, Forbes Shepherd R, Forrest LE Tags: Palliat Med Source Type: research

Impact of Medical Assistance in Dying on palliative care: A qualitative study.
CONCLUSION: Medical Assistance in Dying has had a profound impact on palliative care providers and their practice. Communication training with access to resources for ethical decision-making and a review of legislation may help address new challenges. Further research is needed to understand palliative care provider distress around Medical Assistance in Dying, and additional resources are necessary to support palliative care delivery. PMID: 33126842 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 30, 2020 Category: Palliative Care Authors: Mathews JJ, Hausner D, Avery J, Hannon B, Zimmermann C, Al-Awamer A Tags: Palliat Med Source Type: research

Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a conceptual framework.
CONCLUSIONS: Regulatory and socio-political actions unintentionally limit opioid access. International and national laws explicitly enabling opioid access are required, to assuage concerns, promote training and appropriate prescribing. PMID: 33118448 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 29, 2020 Category: Palliative Care Authors: Clark J, Gnanapragasam S, Greenley S, Pearce J, Johnson M Tags: Palliat Med Source Type: research

End-of-life care after the legal introduction of advance directives: A qualitative study involving healthcare professionals and family caregivers of patients with amyotrophic lateral sclerosis.
CONCLUSION: The introduction of advance directives by law has not been sufficient to improve end-of-life care. In order to make legal regulation effective, the organization of healthcare services needs to be improved and clearer procedures have to be implemented and shared with patients and families. PMID: 33112196 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 28, 2020 Category: Palliative Care Authors: Cipolletta S, Reggiani M Tags: Palliat Med Source Type: research

Caring precariously: An interpretive description of palliative care and welfare worker perspectives on end of life carers navigating social welfare.
CONCLUSIONS: Caring at end-of-life while navigating welfare needs was seen to be associated with precariousness by participants, particularly for carers positioned in vulnerable social locations. Findings highlighted experiences of burdensome system navigation, inconsistent processes and inequity. Further exploration of structural determinants of experience is needed, including aspects of palliative care and welfare practice and investment in inter-agency infrastructure for supporting carers at end-of-life. PMID: 33112209 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 28, 2020 Category: Palliative Care Authors: Bindley K, Lewis J, Travaglia J, DiGiacomo M Tags: Palliat Med Source Type: research

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review.
CONCLUSION: Support needs of parent caregivers of children with life limiting illnesses are substantial and heterogenous. While studies report evidence of burden and distress in parent caregivers, this rarely translates into improvements in practice through the development of interventions. A systematic and regular assessment of individual parent caregiver support needs is required by using instruments appropriate to use in clinical practice to move the focus to palliative care interventions and improved services for parents. PMID: 33103579 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 24, 2020 Category: Palliative Care Authors: Gill FJ, Hashem Z, Stegmann R, Aoun SM Tags: Palliat Med Source Type: research

Making the best of multidisciplinary care for patients with malignant fungating wounds: A qualitative study of clinicians' narratives.
CONCLUSION: Findings of the study present a timeline of clinical care for patients, with different specialties taking the lead at different points in clinical time. Recognizing when collaboration between specialties is essential, as well as when communication fails, or clinicians have differing perspectives is important to facilitate the best care possible for patients. PMID: 33094681 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 23, 2020 Category: Palliative Care Authors: Qiu JM, DelVecchio Good MJ Tags: Palliat Med Source Type: research

The palliative care needs and experiences of people with advanced head and neck cancer: A scoping review.
CONCLUSION: This scoping review demonstrates the complexity of care for people with advanced head and neck cancer and the issues related to the current healthcare systems. Focus on appropriate referral criteria, increased integration and coordination of care and robust evaluation of specific care components seems key. Linkage between research and service design delivery across teams, disciplines and care settings seems pertinent. PMID: 33084497 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 21, 2020 Category: Palliative Care Authors: Mayland CR, Ho QM, Doughty HC, Rogers SN, Peddinti P, Chada P, Mason S, Cooper M, Dey P Tags: Palliat Med Source Type: research

Physicians' predictions of long-term survival and functional outcomes do not influence the decision to admit patients with advanced disease to intensive care: A prospective study.
CONCLUSIONS: ICU admissions of patients with advanced disease were determined by short-term survival benefit, and not by long-term prognosis. Advance care planning and developing decision-aid tools for triage could help limit potentially inappropriate admissions to intensive care. PMID: 33063607 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 16, 2020 Category: Palliative Care Authors: Escher M, Nendaz M, Scherer F, Cullati S, Perneger T Tags: Palliat Med Source Type: research

Prevalence of burnout in healthcare professionals providing palliative care and the effect of interventions to reduce symptoms: A systematic literature review.
CONCLUSION: The range of burnout among healthcare professionals providing palliative care varies widely. Interventions based on meditation, communication training, peer-coaching and art-therapy based supervision have positive effects but long-term outcomes are not known yet. PMID: 33063609 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 16, 2020 Category: Palliative Care Authors: Dijxhoorn AQ, Brom L, van der Linden YM, Leget C, Raijmakers NJ Tags: Palliat Med Source Type: research

Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review.
CONCLUSION: Seven tools were identified which showed different and limited levels of validity in the context of palliative care and chronic heart failure. PMID: 33054670 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - October 15, 2020 Category: Palliative Care Authors: Ament SM, Couwenberg IM, Boyne JJ, Kleijnen J, Stoffers HE, van den Beuken MH, Engels Y, Bellersen L, Janssen DJ Tags: Palliat Med Source Type: research

Exploring the meaning of dignity at end of life for Chinese Canadians caregivers: A qualitative cross-cultural study.
CONCLUSION: To the author's knowledge this is the first study on the Dignity Model done in a Chinese Canadian population. The conceptualization of dignity for first generation Chinese Canadians is influenced by both Western and Asian culture. This study highlights the unique constructs of dignity for Chinese Canadians and areas to enhance dignity preserving care in a cross-cultural context. PMID: 32998628 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - September 29, 2020 Category: Palliative Care Authors: Lou C, Lou K, Ridley J Tags: Palliat Med Source Type: research

The burden of serious health-related suffering among cancer decedents: Global projections study to 2060.
CONCLUSIONS: Many people with cancer will die with unnecessary suffering unless there is expansion of palliative care integration into cancer programmes. Failure to do this will be damaging for the individuals affected and the health systems within which they are treated. PMID: 32945226 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - September 17, 2020 Category: Palliative Care Authors: Sleeman KE, Gomes B, de Brito M, Shamieh O, Harding R Tags: Palliat Med Source Type: research

'My wife is my doctor at home': A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting.
CONCLUSION: Home-based care is promoted as an ideal and cost-effective model of care, particularly in Westernised palliative care models. However, in resource-poor contexts, there are significant challenges associated with the implementation of this model. This study revealed the scale of challenges family caregivers, who lack basic training on aspects of caring, face in providing home care unsupported by healthcare professionals. PMID: 32945248 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - September 17, 2020 Category: Palliative Care Authors: Salifu Y, Almack K, Caswell G Tags: Palliat Med Source Type: research

Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers.
CONCLUSIONS: This qualitative study about the experiences and perceptions of family carers of people with a chronic life-limiting illness living at home regarding the collaboration with different healthcare providers in the last phase life, showed that family carers experience a lot of possibilities, but perceive missed opportunities as well, for healthcare professionals to effectively collaborate with them for palliative care. PMID: 32928056 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - September 14, 2020 Category: Palliative Care Authors: Vermorgen M, Vandenbogaerde I, Van Audenhove C, Hudson P, Deliens L, Cohen J, De Vleminck A Tags: Palliat Med Source Type: research

Education needed to improve antimicrobial use during end-of-life care of older adults with advanced cancer: A cross-sectional survey.
CONCLUSIONS: Although the initiation of additional intravenous antimicrobials was viewed as escalation of care, antimicrobials were not routinely discussed during advance care planning. Educational interventions that promote recognition of antimicrobial-associated adverse events, incorporate antimicrobial use into advance care plans, and offer communication simulation training around the role of antimicrobials during end-of-life care are warranted. PMID: 32928066 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - September 14, 2020 Category: Palliative Care Authors: Datta R, Topal J, McManus D, Sanft T, Dembry LM, Morrison LJ, Quagliarello V, Juthani-Mehta M Tags: Palliat Med Source Type: research