Advancing research and evidence for compassion-based interventions: A matter of the head or heart?
PMID: 32721204 [PubMed - in process] (Source: Palliative Medicine)
Source: Palliative Medicine - July 31, 2020 Category: Palliative Care Authors: Mills J Tags: Palliat Med Source Type: research

End-of-life care for homeless people in shelter-based nursing care settings: A retrospective record study.
CONCLUSIONS: End-of-life care for homeless persons residing in shelter-based nursing care settings is characterised and challenged by comorbidities, uncertain prognoses, complicated social circumstances and many transitions to other settings. Multilevel end-of-life care improvements, including increased interdisciplinary collaboration, are needed to reduce transitions and suffering of this vulnerable population at the end of life. PMID: 32729794 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 30, 2020 Category: Palliative Care Authors: van Dongen SI, Klop HT, Onwuteaka-Philipsen BD, de Veer AJ, Slockers MT, van Laere IR, van der Heide A, Rietjens JA Tags: Palliat Med Source Type: research

The preferences of patients with chronic obstructive pulmonary disease are to discuss palliative care plans with familiar respiratory clinicians, but to delay conversations until their condition deteriorates: A study guided by interpretative phenomenological analysis.
CONCLUSION: Different perceptions, competing priorities and service rationing inhibit patients from initiating early discussions with clinicians, so palliative care conversations should be initiated by respiratory-expert clinicians who know the patient well. After a sudden deterioration in the patient's condition may be a suitable time. PMID: 32720555 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 28, 2020 Category: Palliative Care Authors: Tavares N, Hunt KJ, Jarrett N, Wilkinson TM Tags: Palliat Med Source Type: research

A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease.
CONCLUSION: Efforts should be made to ensure that access to Specialist Palliative Care is commensurate with chronic obstructive pulmonary disease's substantial and long-lasting burden. Future research should clarify whether managing burden in chronic obstructive pulmonary disease and lung cancer requires different approaches. PMID: 32720568 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 28, 2020 Category: Palliative Care Authors: Luckett T, San Martin A, Currow DC, Johnson MJ, Barnes-Harris MM, Phillips JL Tags: Palliat Med Source Type: research

Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications.
CONCLUSION: The COVID-19 pandemic has led to a surge in palliative care needs. Health and social care systems must ensure availability of palliative care to support people with severe COVID-19, particularly in care homes. PMID: 32706299 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 24, 2020 Category: Palliative Care Authors: Bone AE, Finucane AM, Leniz J, Higginson IJ, Sleeman KE Tags: Palliat Med Source Type: research

The Palliative Performance Scale predicts mortality in hospitalized patients with COVID-19.
CONCLUSIONS: Preadmission Palliative Performance Scale independently predicts mortality in patients hospitalized with COVID-19. Improved predictors of mortality can help clinicians caring for patients with COVID-19 to discuss prognosis and provide appropriate palliative care including decisions about life-sustaining therapy. PMID: 32677509 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 17, 2020 Category: Palliative Care Authors: Fiorentino M, Pentakota SR, Mosenthal AC, Glass NE Tags: Palliat Med Source Type: research

Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review.
CONCLUSION: Evidence suggests that carers of patients with chronic obstructive pulmonary disease would benefit from identification and response to their support needs by healthcare professionals but to enable this, the Carer Support Needs Assessment Tool requires an additional question. Future planned work will explore this with carers of patients with chronic obstructive pulmonary disease. PMID: 32669040 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 16, 2020 Category: Palliative Care Authors: Micklewright K, Farquhar M Tags: Palliat Med Source Type: research

Palliative care in the emergency department: A survey assessment of patient and provider perspectives.
CONCLUSIONS: Despite emergency department patients' self-identified need for resources and emergency medicine providers' recognition of patients who would benefit from palliative care, few patients receive palliative care consultation. PMID: 32666881 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 15, 2020 Category: Palliative Care Authors: Woods EJ, Ginsburg AD, Bellolio F, Walker LE Tags: Palliat Med Source Type: research

Complementary therapy in palliative care: A synthesis of qualitative and quantitative systematic reviews.
CONCLUSIONS: By integrating qualitative and quantitative review data, we determined the reasons trials may be inconclusive. This methodological exemplar provides a framework for understanding complexity in outcomes across trials and a direction for future research. PMID: 32667259 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 15, 2020 Category: Palliative Care Authors: Armstrong M, Kupeli N, Flemming K, Stone P, Wilkinson S, Candy B Tags: Palliat Med Source Type: research

Process evaluation of the Cancer Home-Life Intervention: What can we learn from it for future intervention studies?
CONCLUSION: Future interventions can benefit from inclusion criteria closely related to the intervention focus and clear procedures for when to continue, follow-up and terminate intervention. Decisions about dose and timing may benefit from learning theory by taking into account the time and practice needed to acquire new skills. PMID: 32611224 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - July 2, 2020 Category: Palliative Care Authors: la Cour K, Gregersen Oestergaard L, Brandt Å, Offersen SMH, Lindahl-Jacobsen L, Cutchin M, Pilegaard MS Tags: Palliat Med Source Type: research

Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices.
CONCLUSIONS: Perceptions, experiences and practices of terminal withdrawal of mechanical ventilation vary significantly across the globe. Current knowledge highlights that the time to death after withdrawal of mechanical ventilation is very short. Predictors for shorter duration could be considered by clinicians and guide the choice of pharmacological interventions to address distressing symptoms that patients may experience. Clinicians ought to prepare patients, families and relatives for the withdrawal process and the expected progression and provide them with immediate and long-term support following withdrawal. Further...
Source: Palliative Medicine - June 27, 2020 Category: Palliative Care Authors: Efstathiou N, Vanderspank-Wright B, Vandyk A, Al-Janabi M, Daham Z, Sarti A, Delaney JW, Downar J Tags: Palliat Med Source Type: research

End-of-life care in COVID-19: An audit of pharmacological management in hospital inpatients.
CONCLUSION: Prescription of end-of-life symptom control drugs for COVID-19 fell within the existing guidance when supported by specialist palliative care advice. While some patients may require increased doses, routine prescription of higher starting opioid and benzodiazepine doses beyond existing local guidance was not observed. PMID: 32588748 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 26, 2020 Category: Palliative Care Authors: Jackson T, Hobson K, Clare H, Weegmann D, Moloughney C, McManus S Tags: Palliat Med Source Type: research

Unmet device reprogramming needs at the end of life among patients with implantable cardioverter defibrillator: A systematic review and meta-analysis.
CONCLUSIONS: The prevalence of implantable cardioverter defibrillator reprogramming and advance directives that explicitly mentioned the device was very low. Study data suggested reprogramming decisions were made very late, after the patient experienced multiple shocks. Patient suffering could be ameliorated if physicians and other healthcare professionals adhere to clinical guidelines for the good management of the device at the end of life and include deactivating the shock function in the discussion that leads to the advance directive. PMID: 32588755 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 26, 2020 Category: Palliative Care Authors: Gonzalez-Jaramillo V, Sobanski P, Calvache JA, Arenas-Ochoa LF, Franco OH, Hunziker L, Eychmüller S, Maessen M Tags: Palliat Med Source Type: research

Mouthpiece ventilation in the management of dyspnea: A single-arm pilot study.
CONCLUSION: Mouthpiece ventilation is feasible and may relieve dyspnea in some patients with an advanced disease. Further studies are needed, and these might concentrate on stable patients in early palliative care. Before initiation, this study was registered at clinicaltrials.gov (study no. NCT03012737). PMID: 32579086 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 24, 2020 Category: Palliative Care Authors: Lehto JT, Leivo-Korpela S, Korhonen T, Rantala HA, Raunio H, Lyly-Yrjänäinen T, Lehtimäki L Tags: Palliat Med Source Type: research

A randomised phase II trial testing the acceptability and feasibility of a narrative approach to public health communication to increase community engagement with palliative care.
CONCLUSIONS: This study provides preliminary data to inform a future, longitudinal trial evaluating effectiveness and ultimately other evidence-based, public health approaches to improve community engagement with palliative care. Further studies are required to confirm the generalisability of findings to a broader representative sample and other settings including internationally. PMID: 32552310 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 19, 2020 Category: Palliative Care Authors: Collins A, McLachlan SA, Hill M, Collins S, Philip J Tags: Palliat Med Source Type: research

The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review.
CONCLUSION: This review highlights the specific problems in providing equitable palliative care for adults with intellectual disabilities, but there is a lack of research into strategies to improve practice. This should be prioritised using methods that include people with intellectual disabilities and families. PMID: 32552409 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 17, 2020 Category: Palliative Care Authors: Adam E, Sleeman KE, Brearley S, Hunt K, Tuffrey-Wijne I Tags: Palliat Med Source Type: research

'This is your golden time. You enjoy it and you've plenty time for crying after': How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis - A qualitative study.
CONCLUSION: This study provides a unique contribution in advancing our understanding of the impact of dysphagia on the caregivers of people with amyotrophic lateral sclerosis. Professionals must explore and recognise the needs of the caregivers and provide them with appropriate support, especially how to manage choking. PMID: 32552499 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 17, 2020 Category: Palliative Care Authors: Lisiecka D, Kelly H, Jackson J Tags: Palliat Med Source Type: research

Similar levels of symptoms and problems were found among patients referred to specialized palliative care by general practitioners and hospital physicians: A nationwide register-based study of 31,139 cancer patients.
Abstract BACKGROUND: Previous studies suggest that the symptomatology threshold (i.e. the level and types of symptoms) for a referral to specialized palliative care might differ for doctors in different parts of the healthcare system; however, it has not yet been investigated. AIM: To investigate if the number and level of symptoms/problems differed for patients referred from the primary and secondary healthcare sectors (i.e. general practitioner versus hospital physician). SETTING/PARTICIPANTS: Adult cancer patients registered in the Danish Palliative Care Database who reported their symptoms/problems a...
Source: Palliative Medicine - June 15, 2020 Category: Palliative Care Authors: Hansen MB, Ross L, Petersen MA, Adsersen M, Rojas-Concha L, Groenvold M Tags: Palliat Med Source Type: research

The roles, responsibilities and practices of healthcare assistants in out-of-hours community palliative care: A systematic scoping review.
DISCUSSION: This review highlighted a dearth of evidence relating to the healthcare assistant role in out-of-hours palliative care. Limited evidence suggests they play a role, but that it is hidden and undervalued. Such invisibility will have a significant impact on the planning and delivery of out-of-hours palliative care. Future research is needed on role development for the benefit of patients and caregivers. PMID: 32538311 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 15, 2020 Category: Palliative Care Authors: Fee A, Muldrew D, Slater P, Payne S, McIlfatrick S, McConnell T, Finlay DA, Hasson F Tags: Palliat Med Source Type: research

Clinical uncertainty and Covid-19: Embrace the questions and find solutions.
PMID: 32517542 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 10, 2020 Category: Palliative Care Authors: Koffman J, Gross J, Etkind SN, Selman LE Tags: Palliat Med Source Type: research

Trends analysis of specialized palliative care services in 51 countries of the WHO European region in the last 14  years.
Trends analysis of specialized palliative care services in 51 countries of the WHO European region in the last 14 years. Palliat Med. 2020 Jun 10;:269216320931341 Authors: Arias-Casais N, López-Fidalgo J, Garralda E, Pons JJ, Rhee JY, Lukas R, de Lima L, Centeno C Abstract BACKGROUND: Service provision is a key domain to assess national-level palliative care development. Three editions of the European Association for Palliative Care (EAPC) Atlas of Palliative Care monitored the changes in service provision across Europe since 2005. AIM: To study European trends of specialized servic...
Source: Palliative Medicine - June 10, 2020 Category: Palliative Care Authors: Arias-Casais N, López-Fidalgo J, Garralda E, Pons JJ, Rhee JY, Lukas R, de Lima L, Centeno C Tags: Palliat Med Source Type: research

Patients' and caregivers' experiences of driving with chronic breathlessness before and after regular low-dose sustained-release morphine: A qualitative study.
CONCLUSION: Driving contributed to a sense of identity and independence. Being able to drive increased the physical and social space available to patients and caregivers, their social engagement and well-being. Patients reported breathlessness at rest may impair driving skills, while the introduction of sustained-release morphine seemed to have no self-reported impact on driving. Investigating this last perception objectively, especially in terms of safety, is the subject of ongoing work. PMID: 32519599 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 10, 2020 Category: Palliative Care Authors: Ferreira DH, Boland JW, Kochovska S, Honson A, Phillips JL, Currow DC Tags: Palliat Med Source Type: research

Building organizational compassion among teams delivering end-of-life care in the intensive care unit: The 3 Wishes Project.
CONCLUSIONS: Examining the 3 Wishes Project through the lens of organizational compassion reveals the potential of this program to cultivate the capacity for people to collectively notice, feel, and respond to suffering. Our data document multidirectional demonstrations of compassion between clinicians and family members, forging the type of human connections that may foster resilience. PMID: 32519615 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 10, 2020 Category: Palliative Care Authors: Vanstone M, Sadik M, Smith O, Neville TH, LeBlanc A, Boyle A, Clarke FJ, Swinton ME, Takaoka A, Toledo F, Baker AJ, Phung P, Cook DJ Tags: Palliat Med Source Type: research

The occurrence and timing of delirium in acute care hospitalizations in the last year of life: A population-based retrospective cohort study.
CONCLUSION: This study described the occurrence and timing of delirium in acute care hospitals in the last year of life and identified factors associated with delirium. These findings can be used to support delirium prevention and early detection in the hospital setting. PMID: 32515283 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 9, 2020 Category: Palliative Care Authors: Webber C, Watt CL, Bush SH, Lawlor PG, Talarico R, Tanuseputro P Tags: Palliat Med Source Type: research

Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care.
CONCLUSION: The ability of current screening tools to identify patients with advanced progressive diseases who are likely to have palliative care needs in primary care is limited. Further research is needed to identify standardised screening processes that are based not only on predicting mortality and deterioration but also on anticipating the palliative care needs and predicting the rate and course of functional decline. This would prompt a comprehensive assessment to identify and meet their needs on time. PMID: 32507025 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 7, 2020 Category: Palliative Care Authors: ElMokhallalati Y, Bradley SH, Chapman E, Ziegler L, Murtagh FE, Johnson MJ, Bennett MI Tags: Palliat Med Source Type: research

A drive for structure: A longitudinal qualitative study of the implementation of the Carer Support Needs Assessment Tool (CSNAT) intervention during hospital discharge at end of life.
CONCLUSIONS: Structure and focus may facilitate implementation, but the dominance of outcomes measurement and performance metrics in health systems may powerfully frame perceptions of the intervention and implementation decisions. There is uncertainty over who is best-placed or responsible for supporting carers around hospital discharge, and challenges in connecting with carers prior to discharge. PMID: 32491967 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - June 3, 2020 Category: Palliative Care Authors: Hall A, Ewing G, Rowland C, Grande G Tags: Palliat Med Source Type: research

Comparison of end-of-life care in people with chronic obstructive pulmonary disease or lung cancer: A systematic review.
Abstract BACKGROUND: Palliative care has been widely implemented in clinical practice for patients with cancer but is not routinely provided to people with chronic obstructive pulmonary disease. AIM: The study aims were to compare palliative care services, medications, life-sustaining interventions, place of death, symptom burden and health-related quality of life among chronic obstructive pulmonary disease and lung cancer populations. DESIGN: Systematic review with meta-analysis (PROSPERO: CRD42019139425). DATA SOURCES: MEDLINE, EMBASE, PubMed, CINAHL and PsycINFO were searched for studies comparin...
Source: Palliative Medicine - June 2, 2020 Category: Palliative Care Authors: Butler SJ, Ellerton L, Gershon AS, Goldstein RS, Brooks D Tags: Palliat Med Source Type: research

A case series of suprascapular nerve block (with an historical comparator) for shoulder pain in motor neurone disease.
This study aimed to assess the efficacy of suprascapular nerve block for the management of shoulder pain in patients with motor neurone disease. METHODS: A total of 27 patients with motor neurone disease and shoulder pain were offered a suprascapular nerve block. Ten of these patients had bilateral shoulder pain and both were injected, making a total of 37 shoulders. The patients were followed up for a total of 3 months, or until death. Shoulder pain was measured using the pain scale (out of 100) of the shoulder pain and disability index and compared with baseline scores and a placebo control group from an earl...
Source: Palliative Medicine - May 29, 2020 Category: Palliative Care Authors: Shanahan EM, Glaezter K, Gill T, Hill C, Graf S, Allcroft P Tags: Palliat Med Source Type: research

Nursing competencies across different levels of palliative care provision: A systematic integrative review with thematic synthesis.
CONCLUSION: Nurses need a wide range of competencies to provide quality palliative care. Few studies focused on which competencies are relevant to a specific level of palliative care. Further research is needed to systematize the nursing competencies and define which nursing competencies are central for different levels of palliative care to enhance palliative care development, education and practice. PMID: 32452294 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 26, 2020 Category: Palliative Care Authors: Hökkä M, Martins Pereira S, Pölkki T, Kyngäs H, Hernández-Marrero P Tags: Palliat Med Source Type: research

The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis.
Conclusions on effectiveness are limited by small sample sizes and heterogeneity in study populations, models of care and outcomes. The qualitative evidence suggests several cross-cutting benefits and helps explain the impact mechanisms and contextual factors that are integral to the support. PMID: 32419630 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 18, 2020 Category: Palliative Care Authors: Harrop E, Morgan F, Longo M, Semedo L, Fitzgibbon J, Pickett S, Scott H, Seddon K, Sivell S, Nelson A, Byrne A Tags: Palliat Med Source Type: research

Corrigendum: Comparing routine inpatient data and death records as a means of identifying children and young people with life-limiting conditions.
Authors: PMID: 32383389 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 8, 2020 Category: Palliative Care Tags: Palliat Med Source Type: research

Corrigendum: Pressure ulcers in patients receiving palliative care: a systematic review.
Authors: PMID: 32383390 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 8, 2020 Category: Palliative Care Tags: Palliat Med Source Type: research

A mixed-methods pilot study of 'LIFEView' audiovisual technology: Virtual travel to support well-being and quality of life in palliative and end-of-life care patients.
CONCLUSION: A future adequately powered study to investigate the impacts of 'LIFEView' on patient well-being and quality of life appears to be feasible. PMID: 32383629 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 8, 2020 Category: Palliative Care Authors: Kabir M, Rice JL, Bush SH, Lawlor PG, Webber C, Grassau PA, Ghaedi B, Dhuper M, Hackbusch R Tags: Palliat Med Source Type: research

Nurses' self-efficacy, rather than their knowledge, is associated with their engagement in advance care planning in nursing homes: A survey study.
CONCLUSIONS: Nurses' engagement in advance care planning practices is mainly associated with their self-efficacy rather than their knowledge. Further research is necessary to improve the evidence regarding the causal relationship between constructs. However, these results suggest that educational programmes that focus solely on knowledge might not lead to increasing uptake of advance care planning in nurses. PMID: 32383636 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 8, 2020 Category: Palliative Care Authors: Gilissen J, Pivodic L, Wendrich-van Dael A, Cools W, Vander Stichele R, Van den Block L, Deliens L, Gastmans C Tags: Palliat Med Source Type: research

Building trust and facilitating goals of care conversations: A qualitative study in people with heart failure receiving home hospice care.
CONCLUSION: Findings from this study suggest that interventions designed to improve goals of care conversations in the home hospice setting should focus on promoting understanding and acceptance of hospice, family support and engagement, and building trusting relationships with interprofessional healthcare teams. PMID: 32374659 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 6, 2020 Category: Palliative Care Authors: Baik D, Russell D, Jordan L, Matlock DD, Dooley F, Masterson Creber R Tags: Palliat Med Source Type: research

Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review.
CONCLUSION: Current evidence suggests that children and young people with cancer receiving specialist palliative care are cared for differently. However, little is understood about children's views, and research is needed to determine whether specialist input improves quality of life. PMID: 32362212 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - May 2, 2020 Category: Palliative Care Authors: Taylor J, Booth A, Beresford B, Phillips B, Wright K, Fraser L Tags: Palliat Med Source Type: research

Patients' preferences and factors influencing initial advance care planning discussions' timing: A cross-cultural mixed-methods study.
Abstract BACKGROUND: Although advance care planning discussions are increasingly accepted worldwide, their ideal timing is uncertain and cultural factors may pertain. AIM: To evaluate timing and factors affecting initiation of advance care planning discussions for adult patients in Japan and Taiwan. DESIGN: Mixed-methods questionnaire survey to quantitatively determine percentages of patients willing to initiate advance care planning discussions at four stages of illness trajectory ranging from healthy to undeniably ill, and to identify qualitative perceptions underlying preferred timing. SETTING/PA...
Source: Palliative Medicine - May 1, 2020 Category: Palliative Care Authors: Miyashita J, Kohno A, Cheng SY, Hsu SH, Yamamoto Y, Shimizu S, Huang WS, Kashiwazaki M, Kamihiro N, Okawa K, Fujisaki M, Tsai JS, Fukuhara S Tags: Palliat Med Source Type: research

COVID-19: A personal perspective.
PMID: 32349615 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 29, 2020 Category: Palliative Care Authors: Walshe C Tags: Palliat Med Source Type: research

How short is too short? A randomised controlled trial evaluating short-term existential behavioural therapy for informal caregivers of palliative patients.
CONCLUSION: Inclusion rate was tripled compared with a previously evaluated longer EBT group intervention. By shortening the intervention, inclusion rate was traded for effectiveness and the intervention could not impact caregivers' psychological state. Early integration of sEBT and combination of individual and group setting and further study of the optimal length for caregiver interventions are suggested. PMID: 32348699 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 29, 2020 Category: Palliative Care Authors: Kühnel MB, Marchioro L, Deffner V, Bausewein C, Seidl H, Siebert S, Fegg M Tags: Palliat Med Source Type: research

Economic evaluation of a combined screening and stepped-care treatment program targeting psychological distress in patients with metastatic colorectal cancer: A cluster randomized controlled trial.
CONCLUSION: The intervention is dominant over usual care, primarily due to lower costs in the intervention group. However, there were no statistically significant differences in clinical effects and the uptake of the intervention was quite low. Therefore, widespread implementation cannot be recommended. PMID: 32348700 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 29, 2020 Category: Palliative Care Authors: El Alili M, Schuurhuizen CSEW, Braamse AMJ, Beekman ATF, van der Linden MH, Konings IR, Dekker J, Bosmans JE Tags: Palliat Med Source Type: research

Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy.
Abstract BACKGROUND: Palliative care is an important component of health care in pandemics, contributing to symptom control, psychological support, and supporting triage and complex decision making. AIM: To examine preparedness for, and impact of, the COVID-19 pandemic on hospices in Italy to inform the response in other countries. DESIGN: Cross-sectional telephone survey, in March 2020. SETTING: Italian hospices, purposively sampled according to COVID-19 regional prevalence categorised as high (>25), medium (15-25) and low prevalence (
Source: Palliative Medicine - April 29, 2020 Category: Palliative Care Authors: Costantini M, Sleeman KE, Peruselli C, Higginson IJ Tags: Palliat Med Source Type: research

Palliative care in the context of immune and targeted therapies: A qualitative study of bereaved carers' experiences in metastatic melanoma.
CONCLUSION: Immune and targeted therapies have resulted in increased prognostic challenges. There is a need to engage, educate and support patients and carers to prepare and plan amid these challenges. Educational initiatives must focus on improving communication between patients, carers and clinicians; the differences between palliative and end-of-life care; and increased competency of clinicians in having goals-of-care discussions. Clinicians must recognise and communicate the benefit of collaborative palliative care to meet patient and family needs holistically and comprehensively. PMID: 32338133 [PubMed - as suppl...
Source: Palliative Medicine - April 27, 2020 Category: Palliative Care Authors: Fox JA, Rosenberg J, Ekberg S, Langbecker D Tags: Palliat Med Source Type: research

Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life.
CONCLUSION: Findings offer novel insight into the experiences of family caregiving in the context of structural vulnerability. Engaging with family caregivers emerged as a missing and necessary palliative care practice, confirming the need to re-evaluate palliative care models and acknowledge issues of trust to create culturally relevant approaches for successful interventions. More research examining how 'family' is defined in this context is needed. PMID: 32340556 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 27, 2020 Category: Palliative Care Authors: Stajduhar KI, Giesbrecht M, Mollison A, Dosani N, McNeil R Tags: Palliat Med Source Type: research

Opioid underuse in terminal care of long-term care facility residents with pain and/or dyspnoea: A cross-sectional PACE-survey in six European countries.
Abstract BACKGROUND/OBJECTIVES: Opioids relieve symptoms in terminal care. We studied opioid underuse in long-term care facilities, defined as residents without opioid prescription despite pain and/or dyspnoea, 3 days prior to death. DESIGN AND SETTING: In a proportionally stratified randomly selected sample of long-term care facilities in six European Union countries, nurses and long-term care facility management completed structured after-death questionnaires within 3 months of residents' death. MEASUREMENTS: Nurses assessed pain/dyspnoea with Comfort Assessment in Dying with Dementia sca...
Source: Palliative Medicine - April 14, 2020 Category: Palliative Care Authors: Tanghe M, Van Den Noortgate N, Deliens L, Smets T, Onwuteaka-Philipsen B, Szczerbińska K, Finne-Soveri H, Payne S, Gambassi G, Van den Block L, Piers R Tags: Palliat Med Source Type: research

The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review.
CONCLUSION: The review identified a considerable literature exploring the care needs of people with motor neurone disease and their carers; however, descriptions of palliative care were associated with the last days of life. Across the disease trajectory, clear points were identified where palliative care input could enhance patient and carer experience of the disease, particularly at times of significant physical change. PMID: 32286157 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 14, 2020 Category: Palliative Care Authors: Flemming K, Turner V, Bolsher S, Hulme B, McHugh E, Watt I Tags: Palliat Med Source Type: research

Medication use in aged care residents in the last year of life: A scoping review.
CONCLUSION: Number of prescriptions or blunt categorisations of medications to assess their appropriateness are unlikely to be sufficient to promote well-being and medication safety for older people in residential aged care in the final stages of life. PMID: 32286162 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 14, 2020 Category: Palliative Care Authors: Aitken C, Boyd M, Nielsen L, Collier A Tags: Palliat Med Source Type: research

Current issues with implementing a palliative approach in long-term care: Where do we go from here?
PMID: 32274973 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 10, 2020 Category: Palliative Care Authors: Kaasalainen S Tags: Palliat Med Source Type: research

National dementia plans to address escalating global palliative care needs.
PMID: 32267806 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 8, 2020 Category: Palliative Care Authors: Nakanishi M, van der Steen JT Tags: Palliat Med Source Type: research

Digitisation and the patient-professional relationship in palliative care.
PMID: 32253996 [PubMed - in process] (Source: Palliative Medicine)
Source: Palliative Medicine - April 1, 2020 Category: Palliative Care Authors: Payne S, Tanner M, Hughes S Tags: Palliat Med Source Type: research

Managing uncertainty and references to time in prognostic conversations with family members at the end of life: A conversation analytic study.
CONCLUSION: Prognostic uncertainty was managed collaboratively by clinicians and families. Clinicians were able to provide prognostic estimates while being honest about the related uncertainty, in part because relatives displayed their awareness of uncertainty within their requests. The conversation analytic method identified contributions of both clinicians and families, and identified strategies based on real interactions, which could inform communication training. PMID: 32233831 [PubMed - as supplied by publisher] (Source: Palliative Medicine)
Source: Palliative Medicine - April 1, 2020 Category: Palliative Care Authors: Anderson RJ, Stone PC, Low JTS, Bloch S Tags: Palliat Med Source Type: research