Validity and reliability of the Turkish version of the Nurse Spiritual Care Therapeutics Scale.
This study was conducted to evaluate the validity and reliability of the "Nurse Spiritual Care Therapeutics Scale" in Turkish nurses. METHOD: This study was a psychometric design. A convenience sample of 249 nurses working at the Malatya Training Research Hospital completed a structured questionnaire including demographic characteristics and the Nurse Spiritual Care Therapeutics Scale (NSCTS) between August and October 2018. Principal components analysis, internal consistency reliability, and Cronbach's α were used to measure the psychometric properties of the items of the scale. RESULTS: In the e...
Source: Palliative and Supportive Care - May 11, 2020 Category: Palliative Care Authors: Aslan H, Aktürk Ü, Erci B Tags: Palliat Support Care Source Type: research

"Everybody in this community is at risk of dying": An ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settings.
"Everybody in this community is at risk of dying": An ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settings. Palliat Support Care. 2020 May 07;:1-6 Authors: Stajduhar KI, Giesbrecht M, Mollison A, d'Archangelo M Abstract OBJECTIVE: At the end of life, the need for care increases. Yet, for structurally vulnerable populations (i.e., people experiencing homelessness and poverty, racism, criminalization of illicit drug use, stigma associated with mental health), access to care remains highly inaccessible. Emerging research sug...
Source: Palliative and Supportive Care - May 7, 2020 Category: Palliative Care Authors: Stajduhar KI, Giesbrecht M, Mollison A, d'Archangelo M Tags: Palliat Support Care Source Type: research

QTc prolongation after haloperidol administration in critically ill patients post cardiovascular surgery: A cohort study and review of the literature.
Abstract OBJECTIVE: From case reports, haloperidol administration has been associated with QTc prolongation, torsades de pointes, and sudden cardiac death. In a vulnerable population of critically ill patients after cardiac surgery, however, it is unclear whether haloperidol administration affects the QTc interval. Thus, the aim of this study is to explore the effect of haloperidol in low doses on this interval. METHOD: This retrospective cohort study was performed on a cardio-surgical intensive care unit (ICU), screened 2,216 patients and eventually included 68 patients with delirium managed with oral and in...
Source: Palliative and Supportive Care - April 29, 2020 Category: Palliative Care Authors: Burbuqe I, Boettger S, Schubert M, Bettex D, Rudiger A Tags: Palliat Support Care Source Type: research

Addressing the quality of communication with older cancer patients with cognitive deficits: Development of a communication skills training module.
Abstract OBJECTIVE: Effective communication is an essential part of patient-centered care. The complexity of cancer care in older adults makes communication challenging, particularly when older patients have cognitive deficits and lose their autonomy. This paper describes the development, implementation, and evaluation of a communication skills training module for health care providers (HCPs) who work with older adults with cancer, with or at risk of developing cognitive deficits. METHOD: Using a pre-post single arm study design, 99 HCPs from a comprehensive cancer center in North-East USA, who worked primari...
Source: Palliative and Supportive Care - April 16, 2020 Category: Palliative Care Authors: Korc-Grodzicki B, Alici Y, Nelson C, Alexander K, Manna R, Gangai N, Shen MJ, Parker PA, Banerjee SC Tags: Palliat Support Care Source Type: research

Emotional and cognitive barriers of bereavement care among clinical staff in hospice palliative care.
Abstract OBJECTIVE: Bereavement care is one of the major components of hospice palliative care. Previous studies revealed the barriers to the success of the system, including lack of time or support from mental health professionals. Few studies have explored the intrapersonal barriers to bereavement care by clinical staff. The aims of the study were to explore (1) the emotional and cognitive barriers of bereavement care by hospice palliative care staff and (2) the demographic and work characteristics related to these emotional and cognitive barriers. METHOD: The participants were clinical staff (n = 301) who ...
Source: Palliative and Supportive Care - April 16, 2020 Category: Palliative Care Authors: Lin WC, Fan SY Tags: Palliat Support Care Source Type: research

365 Days of Notes.
PMID: 32297586 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - April 16, 2020 Category: Palliative Care Authors: Bair H Tags: Palliat Support Care Source Type: research

The right to live in peace … and to die in peace as well.
The right to live in peace … and to die in peace as well. Palliat Support Care. 2020 Mar 30;:1 Authors: Rojas V, Pasmiño A, Palma A PMID: 32223771 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 30, 2020 Category: Palliative Care Authors: Rojas V, Pasmiño A, Palma A Tags: Palliat Support Care Source Type: research

Palliative care for all: An international health education challenge.
PMID: 32209143 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 25, 2020 Category: Palliative Care Authors: Mason S, Paal P, Elsner F, Payne C, Ling J, Noguera A, Mosoiu D Tags: Palliat Support Care Source Type: research

Evaluation of measurement equivalence of the Family Satisfaction with the End-of-Life Care (FAMCARE): Tests of differential item functioning between Hispanic and non-Hispanic White caregivers.
Abstract OBJECTIVE: Although the psychometric properties of the Family Satisfaction with End-of-Life Care measure have been examined in diverse settings internationally; little evidence exists regarding measurement equivalence in Hispanic caregivers. The aim was to examine the psychometric properties of a short-form of the FAMCARE in Hispanics using latent variable models and place information on differential item functioning (DIF) in an existing family satisfaction item bank. METHOD: The graded form of the item response theory model was used for the analyses of DIF; sensitivity analyses were performed using ...
Source: Palliative and Supportive Care - March 19, 2020 Category: Palliative Care Authors: Teresi JA, Ocepek-Welikson K, Ramirez M, Kleinman M, Ornstein K, Siu A, Luchsinger J Tags: Palliat Support Care Source Type: research

In Memoriam: Marguerite S. Lederberg, M.D. (1937-2020).
PMID: 32172717 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 16, 2020 Category: Palliative Care Authors: Breitbart W Tags: Palliat Support Care Source Type: research

"I want to go home": How location at death influences caregiver well-being in bereavement.
CONCLUSIONS: Congruence between a dying person's preferred and actual locations at death has been considered good care. There has been little focus on the reciprocity between caregiver-patient wishes. Discussing preferences about the place of end-stage care may not make location congruence possible, but it can foster shared understanding and support for caregivers' sense of coherence and well-being in bereavement. PMID: 32172719 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 16, 2020 Category: Palliative Care Authors: Waldrop DP, McGinley JM Tags: Palliat Support Care Source Type: research

Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care.
ov HM Abstract INTRODUCTION: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. OBJECTIVE: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). METHOD: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. RESULTS: Twenty participants were i...
Source: Palliative and Supportive Care - March 10, 2020 Category: Palliative Care Authors: Lemos Caldas M, Julião M, Santos AJ, Chochinov HM Tags: Palliat Support Care Source Type: research

Upping my game as a parent: Attributed gains in participating in a cancer parenting program for child-rearing parents with advanced cancer.
CONCLUSIONS: Despite an extensive symptom burden, parents with incurable cancer attributed major gains from a brief, fully scripted, cancer parenting communication intervention. A manualized telephone-delivered educational counseling program for symptomatic parents with incurable cancer has the potential to augment competencies for parents as they assist their children manage the cancer experience. PMID: 32148212 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 9, 2020 Category: Palliative Care Authors: Zahlis EH, Shands ME, Lewis FM Tags: Palliat Support Care Source Type: research

Dignity-conserving care for persons with palliative care needs - identifying outcomes studied in research: An integrative review.
Blomberg K Abstract OBJECTIVES: With people living longer, palliative care may be required for lengthier periods of time. This puts demands on healthcare organizations to provide optimal palliative care. Maintaining dignity is central for any person's health and quality of life, but especially for a person with palliative care needs. Dignity-conserving care needs to be evaluated to increase knowledge about outcomes and how to assess these. The purpose of this integrative review was to identify outcomes studied within dignity-conserving care and how these have been operationalized. METHODS: An integrative rev...
Source: Palliative and Supportive Care - March 5, 2020 Category: Palliative Care Authors: Söderman A, Östlund U, Werkander Harstäde C, Blomberg K Tags: Palliat Support Care Source Type: research

Communication about the desire to die: Development and evaluation of a first needs-oriented training concept - A pilot study.
Abstract OBJECTIVE: Patients' desire to die (DD) is rarely discussed in palliative care (PC) due to health professionals' (HPs) feeling of uncertainty. The aim of the study was to develop and evaluate a training to increase HPs' self-confidence in responding professionally to patient's DD and to assess the feasibility of this approach. METHODS: The training course was developed via focus groups and relevant literature and refined with an advisory board. An evaluation design was developed to evaluate training outcomes and to examine feasibility. To assess self-confidence, knowledge, skills, and attitudes: (1) ...
Source: Palliative and Supportive Care - March 5, 2020 Category: Palliative Care Authors: Frerich G, Romotzky V, Galushko M, Hamacher S, Perrar KM, Doll A, Montag T, Golla H, Strupp J, Kremeike K, Voltz R Tags: Palliat Support Care Source Type: research

Patients' quality of life: Validation of the functional assessment of cancer therapy-bone marrow transplant (FACT-BMT) instrument for the Mexican population.
This study evaluated the psychometric properties of the Spanish language version of the FACT-BMT in Mexican patients. METHOD: First, the original version was piloted with 15 HSCT patients to obtain an adequate cultural version, resulting in the adaptation of one item. After that, the new version was completed by 139 HSCT patients. RESULTS: The results showed a FACT factor structure that explains 70.84% of the total variance, a factor structure similar to the original FACT structure, and with a high internal consistency (Cronbach's alpha = 0.867). For the BMT subscale, the best factor structure included 17 items w...
Source: Palliative and Supportive Care - March 4, 2020 Category: Palliative Care Authors: Rivera-Fong L, Benjet C, Robles García R, Traeger L, Aguilar Ponce JL, Valero Saldaña LM, Acosta Maldonado BL, Rivas Vera S, Galindo Vázquez O, Riveros Rosas A Tags: Palliat Support Care Source Type: research

Enhancing meaning in the face of advanced cancer and pain: Qualitative evaluation of a meaning-centered psychosocial pain management intervention.
The objectives of this study were to obtain patient evaluations of the content, structure, and delivery modality of Meaning-Centered Pain Coping Skills Training (MCPC), a novel psychosocial intervention for patients with advanced cancer and pain. MCPC aims to help patients connect with valued sources of meaning in their lives (e.g., family relationships), while providing training in evidence-based cognitive and behavioral skills (e.g., guided imagery) to reduce pain. METHODS: Semi-structured interviews were conducted with 12 patients with stage IV solid tumor cancers and persistent pain. Transcripts were analyzed usin...
Source: Palliative and Supportive Care - March 2, 2020 Category: Palliative Care Authors: Winger JG, Ramos K, Steinhauser KE, Somers TJ, Porter LS, Kamal AH, Breitbart WS, Keefe FJ Tags: Palliat Support Care Source Type: research

Adapting meaning-centered psychotherapy for World Trade Center responders.
We describe the adaptation of MCP-WTC and the application of this intervention to meet the unique needs of those exposed to the terrorist attacks of September 11, 2001 (9/11), participated in the rescue, recovery, and clean-up effort at Ground Zero, and were diagnosed with WTC-related cancer. We highlight the novel aspects of this intervention which have been designed to facilitate meaning-making in the context of the patient's response to 9/11 and subsequent diagnosis of cancer. SIGNIFICANCE OF RESULTS: This work provides a rationale for MCP-WTC and the potential for this intervention to improve the quality of life o...
Source: Palliative and Supportive Care - March 2, 2020 Category: Palliative Care Authors: Masterson-Duva M, Haugen P, Werth A, Foster A, Chassman E, Breitbart W Tags: Palliat Support Care Source Type: research

Support interventions for families of people with terminal cancer in palliative care.
as AP Abstract OBJECTIVE: The terminal phase of cancer represents a major crisis for the family system. Regardless of the caregiving role they undertake, family members are forced to address multiple impacts when facing the approaching death of their terminally ill loved one. International guidelines recognize the importance of integrating the family into a care plan. However, more needs to be known about how to deliver optimal family support. The purpose of this study is to review the current state of the art in family/caregiver-focused interventions of people with terminal cancer in palliative care. METHOD:...
Source: Palliative and Supportive Care - February 26, 2020 Category: Palliative Care Authors: Areia NP, Góngora JN, Major S, Oliveira VD, Relvas AP Tags: Palliat Support Care Source Type: research

Effect of instrumental support on distress among family caregivers: Findings from a nationally representative study.
We examined the potential of instrumental support (assistance with material and task performance) to mitigate distress among caregivers. METHOD: We analyzed data from the nationally representative Health Information National Trends Survey (HINTS V2, 2018). Informal/family caregivers were identified in HINTS V2 if they indicated they were caring for or making healthcare decisions for another adult with a health problem. We used the PROMIS® instrumental support four-item short-form T-scores and the Patient Health Questionnaire (PHQ-4) for distress. We examined multivariable linear regression models for associations ...
Source: Palliative and Supportive Care - February 24, 2020 Category: Palliative Care Authors: Kent EE, Mollica MA, Dionne-Odom JN, Ferrer RA, Jensen RE, Ornstein KA, Smith AW Tags: Palliat Support Care Source Type: research

Early integration of palliative care in a long-term care home: A telemedicine feasibility pilot study.
Abstract OBJECTIVE: Palliative care plays an essential role in enhancing the quality of life and quality of death for residents in long-term care homes (LTCHs). Access to palliative care specialists is one barrier to providing palliative care to LTCHs. This project focused on palliative telemedicine, specifically evaluating whether integration of early palliative care specialist consultation into an LTCH would be feasible through the implementation of videoconferencing during routine interdisciplinary care conferences. METHOD: This was a mixed-methods evaluation of a pilot program implementation over 6 months...
Source: Palliative and Supportive Care - February 18, 2020 Category: Palliative Care Authors: Perri GA, Abdel-Malek N, Bandali A, Grosbein H, Gardner S Tags: Palliat Support Care Source Type: research

Must antidepressants be avoided in patients with neuroendocrine tumors? Results of a systematic review.
CONCLUSIONS: We found no evidence for serious adverse outcomes related to SA usage in NET patients. Previous authors have recommended avoiding antidepressants in NET, but our findings do not support those recommendations. Oncologists should nonetheless monitor for symptom exacerbation when prescribing SA to patients with NET. PMID: 32036806 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 10, 2020 Category: Palliative Care Authors: Isenberg-Grzeda E, MacGregor M, Matsoukas K, Chow N, Reidy-Lagunes D, Alici Y Tags: Palliat Support Care Source Type: research

A screening method for sleep disturbances at the end-of-life.
Cruzado JA Abstract OBJECTIVE: To evaluate sleep disturbances and to verify the accuracy of three screening tests to detect them in patients at the end-of-life admitted in a hospital palliative care unit. METHOD: The level of sleep disturbances was evaluated through the Pittsburgh Sleep Quality Index (PSQI) in 150 palliative patients. This questionnaire was the criterion variable for testing the three screening tests used: Edmonton Symptom Assessment System (ESAS-Sleep subscale); the single question "How much do you worry about your sleep problems?" which is answered on a scale of 0-10 (Sleep-Worry...
Source: Palliative and Supportive Care - February 6, 2020 Category: Palliative Care Authors: Ibáñez Del Prado C, Cruzado JA Tags: Palliat Support Care Source Type: research

Mapping palliative and end of care research in Australia (2000-2018).
The objective of this study is to map the existent research undertaken in Australia into broad thematic areas and identify the characteristics of the studies and areas of future research in the literature. METHODS: A scoping review methodology was employed to map the current areas of research undertaken in Australia since January 2000 until the end of December 2018 according to years of publications, types of studies, populations studied, research themes, and areas of focus. RESULTS: Our review identified 1,405 Australian palliative care research publications between January 2000 and December 2018. Nearly 40% of ...
Source: Palliative and Supportive Care - January 20, 2020 Category: Palliative Care Authors: Khalil H, Downie A, Ristevski E Tags: Palliat Support Care Source Type: research

Process of therapeutic changes in Meaning-Centered Group Psychotherapy adapted to the Portuguese language: A narrative analysis.
Abstract OBJECTIVE: The aim was to understand the processes of therapeutic changes in Meaning-Centered Group Psychotherapy (MCGP) in a Portuguese sample. METHOD: Adult cancer patients with distress motivated to participate in MCGP were identified; descriptive and narrative analyses were performed on the session content. RESULTS: The sample had 24 participants (mean age: 63.43 years); the majority were females (75%), with a median academic degree (54%). Breast cancer was most frequent (67%) at the localized stage (71%). The narrative analysis defined seven categories according to the MCGP themes. In "...
Source: Palliative and Supportive Care - January 20, 2020 Category: Palliative Care Authors: da Ponte G, Ouakinin S, Santo JE, Amorim I, Gameiro Z, Fitz-Henley M, Breitbart W Tags: Palliat Support Care Source Type: research

Instruments for pain assessment in patients with advanced dementia: A systematic review of the evidence for Latin America.
The objective of this study was to identify and analyze the different scales used for pain assessment in elderly persons diagnosed with dementia, in the literature available at the Latin American level. METHOD: A systematic review was performed on the existing scales for pain assessment in elderly people diagnosed with Alzheimer's disease, vascular dementia, and dementia with Lewy bodies. RESULTS: 226 articles were retrieved from the PUBMED, BIREME, and Scielo databases, of which a total of 10 articles entered the systematic review. The instruments identified in these publications were PAINAD, Abbey, McGill, and ...
Source: Palliative and Supportive Care - January 10, 2020 Category: Palliative Care Authors: Coca SM, Abeldaño Zuñiga RA Tags: Palliat Support Care Source Type: research

"Messenger" human beings.
"Messenger" human beings. Palliat Support Care. 2019 Dec;17(6):619-620 Authors: Breitbart W PMID: 31854291 [PubMed - in process] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - December 1, 2019 Category: Palliative Care Authors: Breitbart W Tags: Palliat Support Care Source Type: research

Aiding end-of-life medical decision-making: A Cardinal Issue Perspective.
PMID: 31775941 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - November 28, 2019 Category: Palliative Care Authors: Yan H, Kukora SK, Arslanian-Engoren C, Deldin PJ, Pituch K, Yates JF Tags: Palliat Support Care Source Type: research

Comparing the physical, psychological, social, and spiritual needs of patients with non-cancer and cancer diagnoses in a tertiary palliative care setting.
Abstract OBJECTIVE: The purpose was to describe the physical, psychological, social, and spiritual needs of patients with non-cancer serious illness diagnoses compared to those of patients with cancer. METHOD: We conducted a retrospective chart review of all patients with a non-cancer diagnosis admitted to a tertiary palliative care unit between January 2008 and December 2017 and compared their needs to those of a matched cohort of patients with cancer diagnoses. The prevalence of needs within the following four main concerns was recorded and the data analyzed using descriptive statistics and content analysis...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Bandeali S, des Ordons AR, Sinnarajah A Tags: Palliat Support Care Source Type: research

Factors related to advance care planning among older African American women: Age, medication, and acute care visits.
In this study, we sought to identify correlates of ACP among African American women with multiple chronic conditions for two reasons: (1) African American women with multiple chronic conditions have high risks for serious illnesses, more intensive treatments, and circumstances that may require substitutes' decision-making and (2) identifying correlates of ACP among African American women can help us identify important characteristics to inform ACP outreach and interventions for this group. METHODS: A cross-sectional survey was conducted with 116 African American women aged ≥50 years who were recruited from the cent...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Kwak J, Ellis JL Tags: Palliat Support Care Source Type: research

Association between palliative care and the rate of advanced care planning: A systematic review.
Abstract OBJECTIVE: Advanced care planning (ACP) is central to patients' dignity and autonomy; however, in many countries it is underutilized. Studies that tested the effects of palliative care (PC) often included the rate of documented ACP as a secondary end point. We aimed to assess the contribution of PC to the rate of ACP among terminally ill patients by systematically reviewing relevant clinical trials. METHOD: PUBMED and "Cochrane trials" databases were screened for clinical trials published until October 2017 that compared the addition of PC to standard treatment and that had ACP as a primary...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Koffler S, Mintzker Y, Shai A Tags: Palliat Support Care Source Type: research

The utility of nursing instruments for daily screening for delirium: Delirium causes substantial functional impairment.
oettger S Abstract OBJECTIVE: Nursing assessments have been recommended for the daily screening for delirium; however, the utility of individual items have not yet been tested. In a first step in establishing the potential of the electronic Patient Assessment-Acute Care (ePA-AC) as such, the impact of delirium on the functional domains was assessed. METHOD: In this prospective observational cohort study, 277 patients were assessed and 118 patients were delirious. The impact of delirium on functional domains of the ePA-AC related to self-initiated activity, nutrition, and elimination was determined with simple...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Bode L, Isler F, Fuchs S, Marquetand J, Petry H, Ernst J, Schubert M, Garcia Nuñez D, von Känel R, Boettger S Tags: Palliat Support Care Source Type: research

Translation, cultural adaptation, and validation of the Brazilian Portuguese version of the End-of-Life Professional Caregiver Survey.
Abstract OBJECTIVES: The aim of this study was to translate, culturally adapt, and psychometrically evaluate the Brazilian version of the "End-of-Life Professional Caregiver Survey" (BR-EPCS). METHOD: This is an observational cross-sectional study. The sample was composed of 285 Brazilian healthcare professionals who work or worked in the palliative care area. A minimum number of 280 participants were established, following the recommendation of 10 subjects for each instrument item. The European Organisation for Research and Treatment of Cancer - Quality of Life Group Translation Procedure protocol ...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Garcia ACM, Damasceno Spineli VMC, Eduardo AHA, Meireles E, Moreira de Barros GA, Lazenby M Tags: Palliat Support Care Source Type: research

Comprehension and Acceptance of the Meaning-Centered Psychotherapy with a Puerto Rican Patient Diagnosed With Advanced Cancer: A Case Study.
as-Muñiz R Abstract BACKGROUND: Meaning-centered psychotherapy (MCP) is a structured psychotherapeutic intervention that aims to improve existential and spiritual well-being in patients with advanced cancer. To validate it, several efficacy studies with predominantly non-Hispanic white patients have been done. Puerto Ricans residing on the island are a largely overlooked segment of the US Latinx population. They have a strong national identity and are embedded in a collectivist culture which shares the Spanish language, cultural traditions, and an emphasis on familism, a cultural factor that values the role...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Torres-Blasco N, Castro E, Crespo-Martín I, Gonzalez K, Ramirez EP, Garduño O, Costas-Muñiz R Tags: Palliat Support Care Source Type: research

First patient.
PMID: 31771695 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Petriceks AH Tags: Palliat Support Care Source Type: research

Experience of nurses who work with children with palliative care needs: A mixed-method systematic review.
Abstract OBJECTIVE: The importance of palliative care education for nurses has been recognized worldwide. The study aims to explore the experiences of nurses working with children with palliative care needs and to identify any related educational needs. METHODS: The electronic databases of CINAHL, Cochrane, PubMed, OVID, Social Care Online, Web of Science, Scopus, and ProQuest were searched for the period 2000-2015. RESULTS: Finding revealed that working with children with palliative care needs is an emotionally struggling job for nurses, especially when they try to manage the transition of pediatric pat...
Source: Palliative and Supportive Care - November 27, 2019 Category: Palliative Care Authors: Atout M Tags: Palliat Support Care Source Type: research

A systematic review of the integration of palliative care in dementia management.
Abstract OBJECTIVE: Dementia is a progressive illness with a complex biopsychosocial constellation of symptoms faced by millions of individuals and families worldwide. Palliative care teams have specialized in symptom management and end-of-life care for decades; however, the role of palliative care in dementia management is not yet well elucidated. The aim of this systematic review was to understand the impact of palliative care in dementia management. METHOD: This systematic review was conducted using a prospective study protocol. Medline and PubMed were searched from January 1, 1998 to October 2017. Eligibl...
Source: Palliative and Supportive Care - November 18, 2019 Category: Palliative Care Authors: Senderovich H, Retnasothie S Tags: Palliat Support Care Source Type: research

Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment.
Abstract OBJECTIVE: The present study examined the extent to which social support (SS) availability and satisfaction could predict the extent of caregiver burden (CB) among mothers of children with Acute Lymphocytic Leukemia (ALL). METHOD: The study was a cross-sectional, descriptive-correlative study. It was conducted on a sample of 117 mothers whose children were undergoing treatment in a public hospital in Bam, Iran. The Norbeck Social Support Scale and the Caregiver Burden Scale were used to measuring study variables. The data were analyzed using Pearson's correlations, t-tests, ANOVAs, and linear regress...
Source: Palliative and Supportive Care - November 15, 2019 Category: Palliative Care Authors: Arab M, Bernstein C, Haghshenas A, Ranjbar H Tags: Palliat Support Care Source Type: research

Predisposing and precipitating risk factors for delirium in palliative care patients.
r S Abstract OBJECTIVE: Delirium is a common complication in palliative care patients, especially in the terminal phase of the illness. To date, evidence regarding risk factors and prognostic outcomes of delirium in this vulnerable population remains sparse. METHOD: In this prospective observational cohort study at a tertiary care center, 410 palliative care patients were included. Simple and multiple logistic regression models were used to identify associations between predisposing and precipitating factors and delirium in palliative care patients. RESULTS: The prevalence of delirium in this palliative ...
Source: Palliative and Supportive Care - November 14, 2019 Category: Palliative Care Authors: Seiler A, Schubert M, Hertler C, Schettle M, Blum D, Guckenberger M, Weller M, Ernst J, von Känel R, Boettger S Tags: Palliat Support Care Source Type: research

Demoralization and chronic illness in rural Australia: A cross-sectional survey.
This study aimed to examine demoralization amongst the chronically ill in Lithgow, a town in rural New South Wales, Australia, and identify any correlated demographic, physical, and psychosocial factors in this population. METHOD: A cross-sectional survey of 73 participants drawn from Lithgow Hospital, the adjoining retirement village and nursing home, assessing correlating demographic, physical, psychiatric, and psychosocial factors. RESULTS: The total mean score of the DS-II was 7.8 (SD 26.4), and high demoralization scores were associated with the level of education (p = 0.01), comorbid condition (p = 0.04), s...
Source: Palliative and Supportive Care - November 12, 2019 Category: Palliative Care Authors: Bailey C, Doyle Z, Dearin J, Michael N, Kissane D Tags: Palliat Support Care Source Type: research

A cup of tea.
PMID: 31709967 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - November 11, 2019 Category: Palliative Care Authors: Lim M Tags: Palliat Support Care Source Type: research

Patient autonomy and participation in end-of-life decision-making: An interpretive-systemic focus group study on perspectives of Asian healthcare professionals.
Abstract OBJECTIVES: Asia's first national advance care planning (ACP) program was established in Singapore in 2011 to enhance patient autonomy and self-determination in end-of-life (EoL) care decision-making. However, no known study has examined the extent to which ACP in Singapore successfully met its aims. The purpose of the current study was to examine the attitudes of local healthcare professionals on patients' autonomy in decision-making at the EoL since they strongly influence the extent to which patient and family wishes are fulfilled. METHODS: Guided by the Interpretive-Systemic Framework and Proctor...
Source: Palliative and Supportive Care - November 8, 2019 Category: Palliative Care Authors: Dutta O, Lall P, Patinadan PV, Car J, Low CK, Tan WS, Ho AHY Tags: Palliat Support Care Source Type: research

Reliability and validity of the Arabic translation of the palliative performance scale.
Abstract OBJECTIVE: The aim of this study was to translate the Palliative Performance Scale (PPSv2) into Arabic and to test the reliability and validity of the PPS Arabic translation (PPS-Arabic). METHOD: The PPSv2 was translated into Modern Standard Arabic using a forward-backward method. Inter-rater and intra-rater reliabilities were tested in a pilot study that included 20 patients. The validation study included 150 cancer patients. Patients were divided according to their treatment plan into three groups (in-remission, palliative chemotherapy, and best supportive care) to perform hypothesis-testing constr...
Source: Palliative and Supportive Care - November 8, 2019 Category: Palliative Care Authors: Abdelhafeez AAM, Makady NF, Hafez O, Atallah CN, Alsirafy SA Tags: Palliat Support Care Source Type: research

An examination of Latino-advanced cancer patients' and their informal caregivers' preferences for communication about advance care planning: A qualitative study.
Abstract OBJECTIVES: Latino-advanced cancer patients engage in advance care planning (ACP) at lower rates than non-Latino patients. The goal of the present study was to understand patients' and caregivers' preferred methods of communicating about ACP. METHODS: Patients and caregivers were interviewed about cultural, religious, and familial beliefs that influence engagement in ACP and preferences for ACP communication. RESULTS: Findings highlighted that Latino patients respect doctors' medical advice, prefer the involvement of family members in ACP discussions with doctors, hold optimistic religious belie...
Source: Palliative and Supportive Care - November 8, 2019 Category: Palliative Care Authors: Shen MJ, Gonzalez C, Leach B, Maciejewski PK, Kozlov E, Prigerson HG Tags: Palliat Support Care Source Type: research

A psychometric evaluation of the Family Decision-Making Self-Efficacy Scale among surrogate decision-makers of the critically ill.
Abstract OBJECTIVES: The purpose of this study was to report the psychometric properties, in terms of validity and reliability, of the Unconscious Version of the Family Decision-Making Self-Efficacy Scale (FDMSE). METHODS: A convenience sample of 215 surrogate decision-makers for critically ill patients undergoing mechanical ventilation was recruited from four intensive care units at a tertiary hospital. Cross-sectional data were collected from participants between days 3 and 7 of a decisionally impaired patient's exposure to acute mechanical ventilation. Participants completed a self-report demographic form ...
Source: Palliative and Supportive Care - November 8, 2019 Category: Palliative Care Authors: Pignatiello GA, Irani E, Tahir S, Tsivitse E, Hickman RL Tags: Palliat Support Care Source Type: research

Impact of enucleation on adult retinoblastoma survivors' quality of life: A qualitative study of survivors' perspectives.
This study suggests that adult retinoblastoma survivors treated with enucleation continue to struggle with a unique set of psychosocial problems. Future interventions can be designed to teach survivors more active coping skills (e.g., for appearance-related issues, vision-related issues, and teasing/bullying) to optimize survivors' long-term quality of life. PMID: 31699178 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - November 8, 2019 Category: Palliative Care Authors: Banerjee SC, Pottenger E, Petriccione M, Chou JF, Ford JS, Sklar CA, Robison LL, Kleinerman RA, Oeffinger KC, Francis JH, Abramson DH, Dunkel IJ, Friedman DN Tags: Palliat Support Care Source Type: research

Multidisciplinary staff perspectives on the integration of spiritual care in a new setting: Israel.
CONCLUSION: Despite its relative newness in Israel, spiritual care is well received by a wide variety of professionals at those sites where it has been integrated. Steps to improve collaboration should include improving multidisciplinary communication to broaden the range of situations in which spiritual caregivers and other professionals work together to provide the best possible holistic care. PMID: 31699183 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - November 8, 2019 Category: Palliative Care Authors: Schultz M, Czamanski-Cohen J, Bentur N, Mohsen-Byadsi S, Artsieli Y, Bar-Sela G Tags: Palliat Support Care Source Type: research

Effects of a multidisciplinary quality of life intervention on sleep quality in patients with advanced cancer receiving radiation therapy - CORRIGENDUM.
PMID: 31640838 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - October 23, 2019 Category: Palliative Care Authors: Gentry MT, Atherton PJ, Lapid M, Rosen PS, Kung S, Richardson J, Niazi SK, Bobo WV, Clark MM, Rummans TA Tags: Palliat Support Care Source Type: research

Social support and psychosocial functioning in women after mastectomy.
The objective of this study was to verify whether levels of perceived social support are associated with psychosocial functioning in women who have had a mastectomy and whether specific types of social support are linked to specific indices of functioning. METHOD: Seventy women with a history of mastectomy completed questionnaires measuring their psychosocial functioning as related to their health status: Disease-Related Appraisal Scale, Acceptance of Life with the Disease Scale and Beck Depression Inventory. All participants also completed a measure of perceived social support (Disease-Related Social Support Scale). ...
Source: Palliative and Supportive Care - October 22, 2019 Category: Palliative Care Authors: Janowski K, Tatala M, Jedynak T, Wałachowska K Tags: Palliat Support Care Source Type: research

A feasibility and acceptability study of an adaptation of the Mindful Self-Compassion program for adult cancer patients.
Abstract OBJECTIVES: Psychosocial interventions that mitigate psychosocial distress in cancer patients are important. The primary aim of this study was to examine the feasibility and acceptability of an adaptation of the Mindful Self-Compassion (MSC) program among adult cancer patients. A secondary aim was to examine pre-post-program changes in psychosocial wellbeing. METHOD: The research design was a feasibility and acceptability study, with an examination of pre- to post-intervention changes in psychosocial measures. A study information pack was posted to 173 adult cancer patients 6 months-5 years post-diag...
Source: Palliative and Supportive Care - October 9, 2019 Category: Palliative Care Authors: Brooker J, Julian J, Millar J, Prince HM, Kenealy M, Herbert K, Graham A, Smith R, Kissane D, Taylor K, Frydenberg M, Porter I, Fletcher J, Haines I, Burney S Tags: Palliat Support Care Source Type: research