Exploring demoralization in end-of-life cancer patients: Prevalence, latent dimensions, and associations with other psychosocial variables.
Abstract OBJECTIVE: Demoralization is an existential distress syndrome that consists of an incapacity of coping, helplessness, hopelessness, loss of meaning and purpose, and impaired self-esteem. It can affect cancer patients, and the Demoralization Scale is a valid instrument to assess it. The present study aimed to investigate the prevalence of demoralization in end-of-life cancer patients and its associations with the medical and psychosocial variables. In addition, the latent dimensions of demoralization emerging in this distinctive population were explored. METHOD: The study is cross-sectional. The sampl...
Source: Palliative and Supportive Care - June 14, 2019 Category: Palliative Care Authors: Bovero A, Botto R, Adriano B, Opezzo M, Tesio V, Torta R Tags: Palliat Support Care Source Type: research

Cannabis treatment in hospitalized patients using the SYQE inhaler: Results of a pilot open-label study.
The objectives were to evaluate the, usability, feasibility of use, satisfaction, and safety of the Syqe Inhaler Exo (Syqe Inhaler), a metered dose, Pharmacokinetics-validated, cannabis inhaler device in a cohort of hospitalized patients that were using medical cannabis under license as a part of their ongoing medical treatment. METHOD: Before and after inhaling from the Syqe Inhaler, participants were asked to fill a questionnaire regarding pain reduction on a visual analog scale from 0 to 10 and, if relevant, reduction in chemotherapy-induced nausea and vomiting and/or spasticity. A patient satisfaction questionnair...
Source: Palliative and Supportive Care - June 14, 2019 Category: Palliative Care Authors: Vulfsons S, Ognitz M, Bar-Sela G, Raz-Pasteur A, Eisenberg E Tags: Palliat Support Care Source Type: research

"My Three Patients: a change in spiritual care approach and a personal search of faith".
"My Three Patients: a change in spiritual care approach and a personal search of faith". Palliat Support Care. 2019 Jun 13;:1-2 Authors: Rothstein HD PMID: 31190674 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - June 13, 2019 Category: Palliative Care Authors: Rothstein HD Tags: Palliat Support Care Source Type: research

Long-term medical cannabis use and risk factors for diversion: report on physician's guidance and patients' behaviour.
Abstract OBJECTIVES: Various jurisdictions have legalized cannabis for medical purposes. As with all psychoactive medications, medical cannabis carries a risk of diversion and accidental ingestion. These risks may be particularly high among long-term medical cannabis patients as safety practices may become less salient to patients once the treatment becomes part of everyday life. The current study examines whether patients who have used medical cannabis for longer periods differ from those who have used for shorter periods in terms of sociodemographic background and other key aspects of medical cannabis use. Furth...
Source: Palliative and Supportive Care - June 13, 2019 Category: Palliative Care Authors: Sznitman SR, Goldberg V, Sheinman-Yuffe H, Zolotov Y, Flechter E, Bar-Sela G Tags: Palliat Support Care Source Type: research

Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis.
CONCLUSION: Future research should focus on ways to involve people with dementia in decision-making through supported means. PMID: 31177997 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - June 10, 2019 Category: Palliative Care Authors: Kelly AJ, Luckett T, Clayton JM, Gabb L, Kochovska S, Agar M Tags: Palliat Support Care Source Type: research

Brief emotional screening in oncology: Specificity and sensitivity of the emotion thermometers in the Portuguese cancer population.
This study aimed to determine the cutoff and the specificity and sensitivity of the Emotion Thermometers (ET) in a Portuguese sample of cancer patients. METHOD: A total of 147 patients (mean age = 49.2; SD = 12.6) completed the ET, the Brief Symptom Inventory (BSI), and the Subjective Experiences of Illness Suffering Inventory. Data were collected in a cancer support institution and in a major hospital in the North of Portugal.ResultThe optimal cutoff for the Anxiety Thermometer was 5v6 (until 5 and 6 or more), which identified 74% of the BSI-anxiety cases and 70% of noncases. The Depression Thermometer cutoff was 4v5...
Source: Palliative and Supportive Care - June 5, 2019 Category: Palliative Care Authors: Teixeira RJ, Machado JC, Faria S, Remondes-Costa S, Brandão T, Branco M, Moreira S, Pereira MG Tags: Palliat Support Care Source Type: research

The Tulip - A Personal Reflection from a Hospice Doctor.
PMID: 31146795 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - May 31, 2019 Category: Palliative Care Authors: Adam E Tags: Palliat Support Care Source Type: research

Preferences around the disclosure of dying: a vision from Portuguese society.
io AP Abstract OBJECTIVE: This paper aims to explore the extent to which the "revivalist" discourse of a good death, which promotes an awareness of dying shapes the lived realities of palliative care patients and their families in Portugal. METHOD: An ethnographic approach was developed. Participant observation was carried out in 2 palliative care units, and this was complemented by in-depth interviews. Ten terminally ill patients, 20 family members, and 20 palliative care professionals were interviewed. RESULTS: The "revivalist" good death script might not be suitable for all dying p...
Source: Palliative and Supportive Care - May 29, 2019 Category: Palliative Care Authors: Hilário AP Tags: Palliat Support Care Source Type: research

Family caregiving for persons with advanced heart failure: An integrative review.
The objective is to identify the current state of the literature related to family caregivers of persons with advanced HF, ascertain gaps that require further exploration, and provide preliminary practice recommendations based on the results. METHOD: Systematic review of quantitative and qualitative literature. A search of CINAHL, Medline, EMBASE, and PubMed identified 24 articles that met inclusion criteria. Data were analyzed using the constant comparison method and coded. Thematic analysis was used to develop themes.ResultSixteen qualitative and seven quantitative studies met inclusion criteria. Analysis of these s...
Source: Palliative and Supportive Care - May 28, 2019 Category: Palliative Care Authors: Hodson AR, Peacock S, Holtslander L Tags: Palliat Support Care Source Type: research

Memento Mori, Amor Fati.
PMID: 31133079 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - May 28, 2019 Category: Palliative Care Authors: Breitbart W Tags: Palliat Support Care Source Type: research

Attitudes toward assisted suicide requests in the context of severe and persistent mental illness: A survey of psychiatrists in Switzerland.
The objective of the survey was to assess general attitudes among psychiatrists in Switzerland regarding AS requests from patients with SPMI. METHOD: In a cross-sectional survey of 1,311 German-speaking psychiatrists in Switzerland, participants were asked about their attitude to AS for patients with SPMI, based on three case vignettes of patients diagnosed with anorexia nervosa, treatment-refractory depression, or severe persistent schizophrenia.ResultFrom a final sample of 457 psychiatrists (a response rate of 34.9%) whose mean age was 57.8 years, 48.6% of respondents did not support access to AS for persons diagnos...
Source: Palliative and Supportive Care - May 27, 2019 Category: Palliative Care Authors: Hodel MA, Hoff P, Irwin SA, Biller-Andorno N, Riese F, Trachsel M Tags: Palliat Support Care Source Type: research

Attitudes and completion of advance care planning: Assessing the contribution of health beliefs about Alzheimer's disease among Israeli laypersons.
Abstract OBJECTIVES: The purpose of this study was to assess laypersons' attitudes and completion of advance care planning (ACP) and to examine associations with sociodemographic characteristics and health beliefs on Alzheimer's disease. METHODS: A cross-sectional telephone survey was conducted during April and May 2017, with a sample of 514 Israeli adults, aged 18 years and above. A structured, pretested questionnaire assessing participants' awareness, attitudes, and completion of ACP, as well as health beliefs on Alzheimer's disease (subjective knowledge, susceptibility, and worry), and sociodemographic fac...
Source: Palliative and Supportive Care - May 27, 2019 Category: Palliative Care Authors: Werner P, Schiffman IK Tags: Palliat Support Care Source Type: research

Exercise interventions for patients with advanced cancer: A systematic review of recruitment, attrition, and exercise adherence rates.
Abstract PurposePatients with advanced cancer can experience debilitating physical symptoms, making participation in exercise programs difficult. This systematic review investigated the recruitment, adherence, and attrition rates of patients with advanced cancer participating in exercise interventions and examined components of exercise programs that may affect these rates. METHODS: Relevant studies were identified in a systematic search of CINAHL, PubMed, PsycINFO, and EMBASE to December 2017. Two quality assessment tools were used, and levels of evidence were assigned according to the Oxford Centre for Evidence-...
Source: Palliative and Supportive Care - May 21, 2019 Category: Palliative Care Authors: Sheill G, Guinan E, Brady L, Hevey D, Hussey J Tags: Palliat Support Care Source Type: research

Soothing the heart with music: A feasibility study of a bedside music therapy intervention for critically ill patients in an urban hospital setting.
This study investigated the feasibility and effectiveness of introducing music therapy for patients on 4 inpatient units in a large urban medical center. Capacitated and incapacitated patients on palliative care, transplantation, medical intensive care, and general medicine units received a single bedside session led by a music therapist. METHODS: A mixed-methods, pre-post design was used to assess clinical indicators and the acceptability and feasibility of the intervention. Multiple regression modeling was used to evaluate the effect of music therapy on anxiety, pain, pulse, and respiratory rate. Process evaluation ...
Source: Palliative and Supportive Care - May 20, 2019 Category: Palliative Care Authors: Fallek R, Corey K, Qamar A, Vernisie SN, Hoberman A, Selwyn PA, Fausto JA, Marcus P, Kvetan V, Lounsbury DW Tags: Palliat Support Care Source Type: research

Unmet supportive care needs mediate the relationship between functional status and quality of life in patients with amyotrophic lateral sclerosis.
Abstract OBJECTIVE: The aims of this study were to identify the unmet care needs and to examine the mediating effect of unmet supportive care needs in the relationship between functional status and quality of life (QOL) in Korean patients with amyotrophic lateral sclerosis (ALS). METHOD: This was a cross-sectional study conducted among 186 patients with ALS recruited from a tertiary hospital in Seoul, South Korea. ALS patients' functional status, unmet supportive care needs, and QOL were assessed by Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, the Amyotrophic Lateral Sclerosis Supportive Car...
Source: Palliative and Supportive Care - May 20, 2019 Category: Palliative Care Authors: Oh J, Kim SH, Kim JA Tags: Palliat Support Care Source Type: research

Thiamine deficiency in the bereaved after cancer-related spousal loss.
Abstract OBJECTIVE: Thiamine deficiency (TD) is recognized in various kinds of disease with associated loss of appetite including cancer. However, it has not been recognized to date in bereaved partners after spousal loss from cancer. METHOD: From a series of bereaved partners who lost a spouse to cancer, we report on those who developed TD after bereavement.ResultCase 1 was a 57-year-old woman who sought consultation at our "bereavement clinic." Her husband had been diagnosed with pancreatic cancer one year earlier and had died one month previously. At the first visit, she was observed to suffer de...
Source: Palliative and Supportive Care - May 20, 2019 Category: Palliative Care Authors: Onishi H, Uchida N, Takahashi T, Furuya D, Ebihara Y, Sato I, Ito H, Ishida M Tags: Palliat Support Care Source Type: research

An empty landscape.
PMID: 31106717 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - May 20, 2019 Category: Palliative Care Authors: Rousseau P Tags: Palliat Support Care Source Type: research

Residents' and family members' perceptions of care quality and self-determination in palliative phase in residential care.
Abstract OBJECTIVE: Dependency on others can compromise self-determination for older persons in the palliative phase in residential care. Family members can support the residents' self-determination but may also jeopardize it. Quality of care (QoC) is linked to respecting the autonomy of the residents and providing opportunities to participate in decision-making. The aim of the study was to provide knowledge about residents' and family members' perceptions of QoC and self-determination and to detect possible differences between their experiences. METHOD: This cross-sectional study used an abbreviated version ...
Source: Palliative and Supportive Care - April 29, 2019 Category: Palliative Care Authors: Ramona Schenell RN, Anneli Ozanne RN, Susann Strang RN, Ingela Henoch RN Tags: Palliat Support Care Source Type: research

Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care.
Abstract OBJECTIVE: The majority of self-management interventions are designed with a narrow focus on patient skills and fail to consider their potential as "catalysts" for improving care delivery. A project was undertaken to develop a patient self-management resource to support evidence-based, person-centered care for cancer pain and overcome barriers at the levels of the patient, provider, and health system. METHOD: The project used a mixed-method design with concurrent triangulation, including the following: a national online survey of current practice; two systematic reviews of cancer pain needs...
Source: Palliative and Supportive Care - April 23, 2019 Category: Palliative Care Authors: Luckett T, Davidson PM, Green A, Marie N, Birch MR, Stubbs J, Phillips J, Agar M, Boyle F, Lovell M Tags: Palliat Support Care Source Type: research

An Unexpected Benefit of Palliative Transfusion.
;re E PMID: 30982479 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - April 15, 2019 Category: Palliative Care Authors: Rivière E Tags: Palliat Support Care Source Type: research

"In a secular society, there'd be no opposition …".
"In a secular society, there'd be no opposition…". Palliat Support Care. 2019 Apr 15;:1-2 Authors: Rousseau P PMID: 30982485 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - April 15, 2019 Category: Palliative Care Authors: Rousseau P Tags: Palliat Support Care Source Type: research

Collusion in palliative care: an exploratory study with the Collusion Classification Grid.
Abstract OBJECTIVE: Collusion is a largely unconscious, dynamic bond, which may occur between patients and clinicians, between patients and family members, or between different health professionals. It is widely prevalent in the palliative care setting and provokes intense emotions, unreflective behavior, and negative impact on care. However, research on collusion is limited due to a lack of conceptual clarity and robust instruments to investigate this complex phenomenon. We have therefore developed the Collusion Classification Grid (CCG), which we aimed to evaluate with regard to its potential utility to analyze ...
Source: Palliative and Supportive Care - April 10, 2019 Category: Palliative Care Authors: Stiefel F, Nakamura K, Ishitani K, Bourquin C, Saraga M Tags: Palliat Support Care Source Type: research

What do family caregivers know about palliative care? Results from a national survey.
Abstract OBJECTIVE: Despite their key role in caring for individuals with serious, chronic illness, there have been no national studies examining family caregiver awareness and perceptions of palliative care. Hence, our objectives were to ascertain level of knowledge of palliative care among U.S. family caregivers and describe demographic variation in awareness and perceptions of palliative care. METHOD: Using the 2018 National Cancer Institute Health Information National Trends Survey, we identified unpaid family caregivers caring or making healthcare decisions for someone with a medical, behavioral, disabil...
Source: Palliative and Supportive Care - April 8, 2019 Category: Palliative Care Authors: Dionne-Odom JN, Ornstein KA, Kent EE Tags: Palliat Support Care Source Type: research

In Memoriam: Richard Payne MD, Gavril Pasternak MD, Stan Applebaum; Pioneers in Supportive Care and Song.
PMID: 30905331 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 25, 2019 Category: Palliative Care Authors: Breitbart W Tags: Palliat Support Care Source Type: research

A scoping review of palliative care for persons with severe persistent mental illness.
Abstract OBJECTIVE: People with severe persistent mental illness (SPMI) experience a greater burden and severity of chronic disease, late diagnosis, and premature death compared with the general population. Those with SPMI also receive fewer medical treatments, poor quality of care, and are less likely to receive palliative care. A systematic scoping review was undertaken to determine the extent, range, and nature of research activity about people with SPMI requiring palliative care, and to identify gaps and opportunities for future research. METHOD: A systematic scoping review was undertaken in September 201...
Source: Palliative and Supportive Care - March 19, 2019 Category: Palliative Care Authors: Donald EE, Stajduhar KI Tags: Palliat Support Care Source Type: research

Improving the Medical Assistance in Dying (MAID) process: A qualitative study of family caregiver perspectives.
This study seeks to understand what improvement opportunities exist in the delivery of the MAID process from the family caregiver perspective. METHOD: This multi-methods study design used structured surveys, focus groups, and unstructured e-mail/phone conversations to gather experiential feedback from family caregivers of patients who underwent MAID between July 2016 and June 2017 at a large academic hospital in Toronto, Canada. Data were combined and a qualitative, descriptive approach used to derive themes within family perspectives.ResultImprovement themes identified through the narrative data (48% response rate) w...
Source: Palliative and Supportive Care - March 19, 2019 Category: Palliative Care Authors: Hales BM, Bean S, Isenberg-Grzeda E, Ford B, Selby D Tags: Palliat Support Care Source Type: research

Use of the brief Confusion Assessment Method in a veteran palliative care population: A pilot validation study.
Abstract OBJECTIVE: Many patients with advanced serious illness or at the end of life experience delirium, a potentially reversible form of acute brain dysfunction, which may impair ability to participate in medical decision-making and to engage with their loved ones. Screening for delirium provides an opportunity to address modifiable causes. Unfortunately, delirium remains underrecognized. The main objective of this pilot was to validate the brief Confusion Assessment Method (bCAM), a two-minute delirium-screening tool, in a veteran palliative care sample. METHOD: This was a pilot prospective, observational...
Source: Palliative and Supportive Care - March 19, 2019 Category: Palliative Care Authors: Wilson JE, Boehm L, Samuels LR, Unger D, Leonard M, Roumie C, Ely EW, Dittus RS, Misra S, Han JH Tags: Palliat Support Care Source Type: research

Quality of life improves after palliative placement of percutaneous tunneled drainage catheter for refractory ascites in prospective study of patients with end-stage cancer.
This study supports the use of a PTDC for palliation of refractory ascites in cancer patients. PMID: 30880658 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 18, 2019 Category: Palliative Care Authors: Robson PC, Gonen M, Ni A, Brody L, Brown KT, Getrajdman G, Thom B, Kline N, Covey A Tags: Palliat Support Care Source Type: research

Spirituality in the continuing education of healthcare professionals: An approach to palliative care.
This study aimed to evaluate the effectiveness of a continuing education activity for healthcare professionals addressing spirituality and spiritual care provision to patients and families within palliative care. METHOD: We conducted an intervention study using a quantitative pre- and posttest design in a convenience sample of 52 healthcare professionals. Participants completed the Brazilian version of the Spiritual Care Competence Scale before and after attending a four-hour continuing education activity.ResultSignificant differences were observed between pre- and postintervention scores in the following dimensions: ...
Source: Palliative and Supportive Care - March 13, 2019 Category: Palliative Care Authors: Dezorzi LW, Raymundo MM, Goldim JR, de Oliveira CAV Tags: Palliat Support Care Source Type: research

Meaning of work and personal protective factors among palliative care professionals.
art W Abstract OBJECTIVE: Healthcare professionals who work in palliative care units face stressful life events on a daily basis, most notably death. For this reason, these professionals must be equipped with the necessary protective resources to help them cope with professional and personal burnout. Despite the well-recognized importance of the construct "meaning of work," the role of this construct and its relationship with other variables is not well-understood. Our objective is to develop and evaluate a model that examines the mediating role of the meaning of work in a multidisciplinary group of pall...
Source: Palliative and Supportive Care - March 7, 2019 Category: Palliative Care Authors: Moreno-Milan B, Cano-Vindel A, Lopez-Dóriga P, Medrano LA, Breitbart W Tags: Palliat Support Care Source Type: research

Exploring the perception of survivors on the bidirectional impact between cancer and their social contexts: A mixed-methods approach.
Abstract OBJECTIVE: The purpose of the current study was to use a mixed-methods approach to assess the perspective of cancer survivors on the bidirectional impact between cancer and their social contexts. METHOD: A fixed concurrent triangulation mixed-methods survey design was used with open- and closed-ended questions that were predetermined and administered to participants. Quantitative items included demographic questions and the Life Impact Checklist. Qualitative questions were designed to explore the bidirectional impact between the patient and specific contexts including spirituality/faith, the spousal/...
Source: Palliative and Supportive Care - March 7, 2019 Category: Palliative Care Authors: Palmer Kelly E, Agne JL, Pawlik TM Tags: Palliat Support Care Source Type: research

Behind the doors of home hospice patients: A secondary qualitative analysis of hospice nurse communication with patients and families.
In this study, researchers sought to examine hospice nurses' use of validation communication techniques, which have been shown in prior research to be effective in supporting individuals experiencing emotional distress. METHOD: Researchers performed a directed content analysis of audiorecordings of 65 hospice nurses' home visits by identifying instances when nurses used validation communication techniques and rating the level of complexity of those techniques.ResultAll nurses used validation communication techniques at least once during their home visits. Use of lower level (i.e., more basic) techniques was more commo...
Source: Palliative and Supportive Care - March 7, 2019 Category: Palliative Care Authors: Oliver DP, Tappana J, Washington KT, Rolbiecki A, Craig K, Demiris G, Schafer C, Winjobi M, Clayton MF, Reblin M, Ellington L Tags: Palliat Support Care Source Type: research

The integrated palliative care outcome scale for patients with palliative care needs: Factors related to and experiences of the use in acute care settings.
k I Abstract OBJECTIVE: Implementation of patient-reported outcome measures for patients with palliative care needs is characterized by both enablers and barriers. The ways in which healthcare professionals experience the use of assessment tools is important. Our aims were to explore factors contributing to or hindering patients with palliative care needs in assessing their symptoms with the Integrated Palliative Care Outcome Scale (IPOS) and to explore healthcare professionals' experiences of the use of IPOS in acute care settings. METHOD: Data were collected as a part of the evaluation of the feasibility of...
Source: Palliative and Supportive Care - March 7, 2019 Category: Palliative Care Authors: Lind S, Wallin L, Fürst CJ, Beck I Tags: Palliat Support Care Source Type: research

"Time to come around": A lesson from a dying HIV-infected patient.
"Time to come around": A lesson from a dying HIV-infected patient. Palliat Support Care. 2019 Mar 06;:1-2 Authors: Sangarlangkarn A PMID: 30837015 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 6, 2019 Category: Palliative Care Authors: Sangarlangkarn A Tags: Palliat Support Care Source Type: research

The deteriorating patient representative on a palliative care quality committee: Ethical and practical considerations.
Abstract This case study describes the involvement of a patient representative on a palliative care committee and outlines some of the issues that arose as her health deteriorated. A summary of the increasing involvement of patient representation within health care governance is provided, and some of the challenges raised by the case, many of which may be relatively unique to palliative care, are discussed. It is hoped that presentation of this fairly novel scenario provides other palliative care providers with the opportunity to consider their own processes and practices around managing a similar situation should...
Source: Palliative and Supportive Care - March 6, 2019 Category: Palliative Care Authors: Eastman P, Le B Tags: Palliat Support Care Source Type: research

A Letter to Robert.
PMID: 30837020 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 6, 2019 Category: Palliative Care Authors: Rousseau P Tags: Palliat Support Care Source Type: research

End-of-life communication: Personal sketches beyond protocols.
e;o M PMID: 30827287 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 4, 2019 Category: Palliative Care Authors: Julião M Tags: Palliat Support Care Source Type: research

Long-term prevalence and predictors of prolonged grief disorder amongst bereaved cancer caregivers: A cohort study.
CONCLUSION: For almost 20% of caregivers, the symptoms of PGD appear to persist at least three years post bereavement. These findings support the importance of screening caregivers upon the patient's admission to palliative care and at six months after bereavement to ascertain their current mental health. Ideally, caregivers at risk of developing PGD can be identified and treated before PGD becomes entrenched. PMID: 30767818 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 15, 2019 Category: Palliative Care Authors: Zordan RD, Bell ML, Price M, Remedios C, Lobb E, Hall C, Hudson P Tags: Palliat Support Care Source Type: research

Distress and self-care among chaplains working in palliative care.
This study explored the distress, self-care, and debriefing practices of chaplains working in palliative care. METHOD: Exploratory, cross-sectional survey of professional chaplains. Electronic surveys were sent to members of four professional chaplaincy organizations between February and April 2015. Primary measures of interest included Professional Distress, Distress from Theodicy, Informal Self-care, Formal Self-care, and debriefing practices.ResultMore than 60% of chaplains working in palliative care reported feeling worn out in the past 3 months because of their work as a helper; at least 33% practice Informal Sel...
Source: Palliative and Supportive Care - February 11, 2019 Category: Palliative Care Authors: White KB, Murphy PE, Jeuland J, Fitchett G Tags: Palliat Support Care Source Type: research

Actigraphy as an assessment of performance status in patients with advanced lung cancer.
Abstract OBJECTIVE: Wearable devices such as a wrist actigraph may have a potential to objectively estimate patients' functioning and may supplement performance status (PS). This proof-of-concept study aimed to evaluate whether actigraphy data are significantly associated with patients' functioning and are predictive of their survival in patients with metastatic non-small cell lung cancer. METHOD: We collected actigraphy data for a three-day period in ambulatory patients with stage IV non-small cell lung cancer. We computed correlations between actigraphy data (specifically, proportion of time spent immobile ...
Source: Palliative and Supportive Care - February 11, 2019 Category: Palliative Care Authors: Fujisawa D, Temel JS, Greer JA, El-Jawahri A, Traeger L, Jacobs JM, Cutrono S, Pirl WF Tags: Palliat Support Care Source Type: research

What are social work students being taught about palliative care?
This study sought to determine the type and extent of content areas included in MSW courses dedicated to palliative care or with content related to palliative care practice. METHOD: A cross-sectional study using an online questionnaire was conducted. All 248 accredited MSW programs in the United States and 32 programs in Canada were invited to participate. Participants were asked to name the courses in their MSW program that were dedicated to, or included content on, palliative care, and submit the syllabi for these courses. Data comprised course content for each class session and required readings. A grounded theory ...
Source: Palliative and Supportive Care - February 4, 2019 Category: Palliative Care Authors: Stein GL, Berkman C, Pollak B Tags: Palliat Support Care Source Type: research

A systematic approach to family engagement: Feasibility pilot of a pediatric delirium management and prevention toolkit.
Abstract OBJECTIVE: Delirium is a frequent and severe complication of serious pediatric illness. Development of a nonpharmacologic approach to prevent pediatric delirium may improve short- and long-term outcomes in children and their families. In this brief report, we describe the development of a quality improvement project designed to methodically promote the family member's engagement, comforting, and orienting activities with their critically ill child to decrease delirium rates. METHOD: We created a developmentally specific Delirium Prevention Toolkit for families. In a feasibility pilot, March through J...
Source: Palliative and Supportive Care - January 31, 2019 Category: Palliative Care Authors: Silver G, Traube C Tags: Palliat Support Care Source Type: research

Frequency and characteristics of drowsiness, somnolence, or daytime sleepiness in patients with advanced cancer - CORRIGENDUM.
PMID: 30700337 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 31, 2019 Category: Palliative Care Authors: Yennurajalingam S, Barla SR, Arthur J, Chisholm GB, Bruera E Tags: Palliat Support Care Source Type: research

The Evening of a Life.
PMID: 30702054 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 31, 2019 Category: Palliative Care Authors: Petriceks AH Tags: Palliat Support Care Source Type: research

Identifying critical psychotherapy targets in serious cardiac conditions: The importance of addressing coping with symptoms, healthcare navigation, and social support.
Abstract OBJECTIVE: In seriously ill cardiac patients, several psychotherapy efficacy studies demonstrate little to no reduction in depression or improvement in quality of life, and little is known about how to improve psychotherapies to best address the range of patient needs. An interpersonal and behavioral activation psychotherapy was a key component of the Collaborative Care to Alleviate Symptoms and Adjust to Illness (CASA) multisite randomized clinical trial. Although depressive symptoms did improve in the CASA trial, questions remain about how best to tailor psychotherapies to the needs of seriously ill pat...
Source: Palliative and Supportive Care - January 31, 2019 Category: Palliative Care Authors: Bekelman DB, Knoepke CE, Turvey C Tags: Palliat Support Care Source Type: research

Caregiver burden and bereavement among family caregivers who lost terminally ill cancer patients.
Abstract OBJECTIVE: Family caregivers (FCs) in China provide hospice care to terminally ill cancer patients; however, few studies have been conducted in China on caregiver burden and bereavement experiences as a process that continues over time. The purpose of this study was to identify the main elements of caring and bereavement experiences for FCs caring for patients diagnosed with terminal cancer. METHOD: Twenty in-depth qualitative semistructured interviews were conducted with FCs providing care in a hospice unit in Shenzhen, Southern China. Interview transcripts were analyzed via thematic content analysi...
Source: Palliative and Supportive Care - January 31, 2019 Category: Palliative Care Authors: Tang Y Tags: Palliat Support Care Source Type: research

Thiamine deficiency observed in a cancer patient's caregiver.
This report demonstrates that there is a possibility that care providers could develop TD from the burdens associated with caregiving. TD should be considered whenever there is a loss of appetite lasting for more than 2 weeks, and medical staff should pay careful attention to the physical condition of care providers to prevent complications resulting from TD. PMID: 30696506 [PubMed - as supplied by publisher] (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 30, 2019 Category: Palliative Care Authors: Onishi H, Ishida M, Uchida N, Takahashi T, Furuya D, Ebihara Y, Sato I, Akechi T Tags: Palliat Support Care Source Type: research

Postgraduate palliative care education for all healthcare providers in Europe: Results from an EAPC survey.
r F Abstract OBJECTIVE: Palliative care training at basic, intermediate, and specialist levels, recommended by the World Health Organization (WHO), is challenging to access in resource-poor countries and regions. Providing support in this regard would seem a moral imperative for all countries with established palliative care education systems and a strong resource base. In collaboration with WHO European Office and European Association for Palliative Care, this paper looks into the educational requirements in palliative care at postgraduate level within Europe. METHOD: A survey was specifically designed to ga...
Source: Palliative and Supportive Care - January 26, 2019 Category: Palliative Care Authors: Paal P, Brandstötter C, Lorenzl S, Larkin P, Elsner F Tags: Palliat Support Care Source Type: research

An open trial of meaning-centered grief therapy: Rationale and preliminary evaluation.
Abstract OBJECTIVE: To determine the preliminary feasibility, acceptability, and effects of Meaning-Centered Grief Therapy (MCGT) for parents who lost a child to cancer. METHOD: Parents who lost a child to cancer and who were between six months and six years after loss and reporting elevated levels of prolonged grief were enrolled in open trials of MCGT, a manualized, one-on-one cognitive-behavioral-existential intervention that used psychoeducation, experiential exercises, and structured discussion to explore themes related to meaning, identity, purpose, and legacy. Parents completed 16 weekly sessions, 60-9...
Source: Palliative and Supportive Care - January 26, 2019 Category: Palliative Care Authors: Lichtenthal WG, Catarozoli C, Masterson M, Slivjak E, Schofield E, Roberts KE, Neimeyer RA, Wiener L, Prigerson HG, Kissane DW, Li Y, Breitbart W Tags: Palliat Support Care Source Type: research

Effectiveness of spiritual care using spiritual pain assessment sheet for advanced cancer patients: A pilot non-randomized controlled trial.
Abstract OBJECTIVE: To obtain preliminary knowledge to design a randomized controlled trial to clarify the effects of spiritual care using the Spiritual Pain Assessment Sheet (SpiPas). METHOD: The study was designed as a nonrandomized controlled trial. The study took place between January 2015 and July 2015 in a hematology and oncology ward and two palliative care units in Japan. Among 54 eligible patients with advanced cancer, 46 were recruited (24 in the control group vs. 22 in the intervention group). The intervention group received spiritual care using SpiPas and usual care; the control group received usu...
Source: Palliative and Supportive Care - January 26, 2019 Category: Palliative Care Authors: Ichihara K, Ouchi S, Okayama S, Kinoshita F, Miyashita M, Morita T, Tamura K Tags: Palliat Support Care Source Type: research