Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease
This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).METHODS: An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Dani ël C M Huijten Laura Hofstede Sami O Simons Stephanie C M Ament Nicolette Gunnink-Boonstra Marieke H J van den Beuken-van Everdingen Daisy J A Janssen Source Type: research
Are specialist-provided end-of-life scenarios key to initiation of advance care planning in primary care? A mixed-methods study
Palliat Support Care. 2024 Feb 16:1-9. doi: 10.1017/S1478951523002055. Online ahead of print.ABSTRACTOBJECTIVES: Specialist-provided end-of-life scenarios (SP-EOLS) may improve advance care planning (ACP) implementation in primary care by helping overcome barriers such as uncertain prognosis and poor interprofessional collaboration. We aimed to explore the current use and potential impact of SP-EOLS on ACP in Dutch primary care.METHODS: We performed a mixed-methods study. From patients discussed in a hospital-based academic palliative care multidisciplinary team meeting between 2016 and 2019 and died, we collected primary ...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Sophie W Poelman Daisy J M Ermers Henk J Schers Kris C P Vissers Carel M M Veldhoven Evelien J M Kuip Marieke Perry Source Type: research
Existential distress and associated factors in advanced cancer patients: A cross-sectional study
This study investigated the current state of ED and identified the associated factors in Chinese patients with advanced cancer.METHODS: A cross-sectional study was conducted among 352 advanced cancer patients from 3 tertiary hospitals in Fujian, China. Participants were invited to complete the Existential Distress Scale, Number Rating Scale, Self-Perceived Burden Scale, Quality of Life Concerns in the End-of-Life Questionnaire, and Hospital Anxiety and Depression Scale.OBJECTIVES: This study aimed to investigate the level of existential distress among advanced cancer patients in China and identify the associated factors.RE...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Guiru Xu Jianwei Zheng Xiaodan Lin Hong Wu Shangwang Yang Huimin Xiao Xiaoyan Lin Source Type: research
The silk road
Palliat Support Care. 2024 Feb 16:1. doi: 10.1017/S1478951524000312. Online ahead of print.NO ABSTRACTPMID:38362715 | DOI:10.1017/S1478951524000312 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease
This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).METHODS: An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Dani ël C M Huijten Laura Hofstede Sami O Simons Stephanie C M Ament Nicolette Gunnink-Boonstra Marieke H J van den Beuken-van Everdingen Daisy J A Janssen Source Type: research
Are specialist-provided end-of-life scenarios key to initiation of advance care planning in primary care? A mixed-methods study
Palliat Support Care. 2024 Feb 16:1-9. doi: 10.1017/S1478951523002055. Online ahead of print.ABSTRACTOBJECTIVES: Specialist-provided end-of-life scenarios (SP-EOLS) may improve advance care planning (ACP) implementation in primary care by helping overcome barriers such as uncertain prognosis and poor interprofessional collaboration. We aimed to explore the current use and potential impact of SP-EOLS on ACP in Dutch primary care.METHODS: We performed a mixed-methods study. From patients discussed in a hospital-based academic palliative care multidisciplinary team meeting between 2016 and 2019 and died, we collected primary ...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Sophie W Poelman Daisy J M Ermers Henk J Schers Kris C P Vissers Carel M M Veldhoven Evelien J M Kuip Marieke Perry Source Type: research
Existential distress and associated factors in advanced cancer patients: A cross-sectional study
This study investigated the current state of ED and identified the associated factors in Chinese patients with advanced cancer.METHODS: A cross-sectional study was conducted among 352 advanced cancer patients from 3 tertiary hospitals in Fujian, China. Participants were invited to complete the Existential Distress Scale, Number Rating Scale, Self-Perceived Burden Scale, Quality of Life Concerns in the End-of-Life Questionnaire, and Hospital Anxiety and Depression Scale.OBJECTIVES: This study aimed to investigate the level of existential distress among advanced cancer patients in China and identify the associated factors.RE...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Guiru Xu Jianwei Zheng Xiaodan Lin Hong Wu Shangwang Yang Huimin Xiao Xiaoyan Lin Source Type: research
The silk road
Palliat Support Care. 2024 Feb 16:1. doi: 10.1017/S1478951524000312. Online ahead of print.NO ABSTRACTPMID:38362715 | DOI:10.1017/S1478951524000312 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease
This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).METHODS: An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Dani ël C M Huijten Laura Hofstede Sami O Simons Stephanie C M Ament Nicolette Gunnink-Boonstra Marieke H J van den Beuken-van Everdingen Daisy J A Janssen Source Type: research
Are specialist-provided end-of-life scenarios key to initiation of advance care planning in primary care? A mixed-methods study
Palliat Support Care. 2024 Feb 16:1-9. doi: 10.1017/S1478951523002055. Online ahead of print.ABSTRACTOBJECTIVES: Specialist-provided end-of-life scenarios (SP-EOLS) may improve advance care planning (ACP) implementation in primary care by helping overcome barriers such as uncertain prognosis and poor interprofessional collaboration. We aimed to explore the current use and potential impact of SP-EOLS on ACP in Dutch primary care.METHODS: We performed a mixed-methods study. From patients discussed in a hospital-based academic palliative care multidisciplinary team meeting between 2016 and 2019 and died, we collected primary ...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Sophie W Poelman Daisy J M Ermers Henk J Schers Kris C P Vissers Carel M M Veldhoven Evelien J M Kuip Marieke Perry Source Type: research
Existential distress and associated factors in advanced cancer patients: A cross-sectional study
This study investigated the current state of ED and identified the associated factors in Chinese patients with advanced cancer.METHODS: A cross-sectional study was conducted among 352 advanced cancer patients from 3 tertiary hospitals in Fujian, China. Participants were invited to complete the Existential Distress Scale, Number Rating Scale, Self-Perceived Burden Scale, Quality of Life Concerns in the End-of-Life Questionnaire, and Hospital Anxiety and Depression Scale.OBJECTIVES: This study aimed to investigate the level of existential distress among advanced cancer patients in China and identify the associated factors.RE...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Guiru Xu Jianwei Zheng Xiaodan Lin Hong Wu Shangwang Yang Huimin Xiao Xiaoyan Lin Source Type: research
The silk road
Palliat Support Care. 2024 Feb 16:1. doi: 10.1017/S1478951524000312. Online ahead of print.NO ABSTRACTPMID:38362715 | DOI:10.1017/S1478951524000312 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease
This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).METHODS: An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Dani ël C M Huijten Laura Hofstede Sami O Simons Stephanie C M Ament Nicolette Gunnink-Boonstra Marieke H J van den Beuken-van Everdingen Daisy J A Janssen Source Type: research
Are specialist-provided end-of-life scenarios key to initiation of advance care planning in primary care? A mixed-methods study
Palliat Support Care. 2024 Feb 16:1-9. doi: 10.1017/S1478951523002055. Online ahead of print.ABSTRACTOBJECTIVES: Specialist-provided end-of-life scenarios (SP-EOLS) may improve advance care planning (ACP) implementation in primary care by helping overcome barriers such as uncertain prognosis and poor interprofessional collaboration. We aimed to explore the current use and potential impact of SP-EOLS on ACP in Dutch primary care.METHODS: We performed a mixed-methods study. From patients discussed in a hospital-based academic palliative care multidisciplinary team meeting between 2016 and 2019 and died, we collected primary ...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Sophie W Poelman Daisy J M Ermers Henk J Schers Kris C P Vissers Carel M M Veldhoven Evelien J M Kuip Marieke Perry Source Type: research
Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer
Palliat Support Care. 2024 Feb 14:1-8. doi: 10.1017/S1478951524000026. Online ahead of print.ABSTRACTOBJECTIVES: Adolescents with cancer often experience significant symptom burden and aggressive treatment near end-of-life. Increased adolescent involvement in care and decision-making may benefit health outcomes. Limited research has examined factors associated with adolescents' involvement in care in the context of advanced disease. Thus, we examined the impact of background factors and decision-making perceptions on both adolescents' involvement in care and their desired change in involvement.METHODS: Adolescents with adv...
Source: Palliative and Supportive Care - February 14, 2024 Category: Palliative Care Authors: Malcolm Sutherland-Foggio Anna L Olsavsky Micah A Skeens Leena Nahata Kylie Hill Megan Schaefer Alexandra Himelhoch Ansley E Kenney Lisa Humphrey Randal Olshefski Cynthia A Gerhardt Source Type: research
