Effectiveness of a palliative care education program for caregivers of cancer patients receiving chemotherapy in Port Said City: A pre-post quasi-experimental study
Palliat Support Care. 2024 Jan 30:1-17. doi: 10.1017/S1478951523002067. Online ahead of print.ABSTRACTBACKGROUND: Emphasizing the pivotal role of caregivers in the cancer care continuum, a program designed to educate caregivers of cancer patients undergoing chemotherapy underscores their significance. The palliative care education initiative strives to cultivate a compassionate and effective care environment, benefiting both patients and caregivers. By imparting education, fostering positive attitudes, offering support, encouraging appropriate behaviors, and providing essential resources, the program aims to enhance the ov...
Source: Palliative and Supportive Care - January 30, 2024 Category: Palliative Care Authors: Ateya Megahed Ibrahim Sara Fawzy Elnaghy Gehad Mohamed Abo Elmatty Nglaa Ibrahim Mohamed Ghida Magda Ali Mohamed Source Type: research
Eternal light in the dark shadows of healthcare provider grief: An ode to hope
Palliat Support Care. 2024 Jan 25:1-2. doi: 10.1017/S1478951524000099. Online ahead of print.NO ABSTRACTPMID:38269443 | DOI:10.1017/S1478951524000099 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 25, 2024 Category: Palliative Care Authors: Megan R Schaefer Source Type: research
The gift of here and now at the end of life: Mindful living and dignified dying among Asian terminally ill patients
This study aims to investigate the mechanisms of mindful living among Asian terminally ill patients.METHODS: This interpretative phenomenological analysis comprised patients aged 50 and above with a prognosis of less than 12 months. Fifty interview transcripts from a larger Family Dignity Intervention study conducted in Singapore were used for the analysis.RESULTS: Findings revealed 12 themes that were organized into 3 axioms of mindful living for dignified dying: (a) purposive self-awareness, (b) family-centered attention, and (c) attitudes of mortality acceptance. Through purposive self-awareness, patients introspected t...
Source: Palliative and Supportive Care - January 25, 2024 Category: Palliative Care Authors: Ping Ying Choo Geraldine Tan-Ho Xinyi Casuarine Low Paul Victor Patinadan Andy Hau Yan Ho Source Type: research
One question
Palliat Support Care. 2024 Jan 25:1. doi: 10.1017/S1478951523002043. Online ahead of print.NO ABSTRACTPMID:38269446 | DOI:10.1017/S1478951523002043 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 25, 2024 Category: Palliative Care Authors: Tara Rajendran Source Type: research
Communicating with families of young people with hard-to-treat cancers: Healthcare professionals' perspectives on challenges, skills, and training
Palliat Support Care. 2024 Jan 24:1-7. doi: 10.1017/S1478951523001992. Online ahead of print.ABSTRACTOBJECTIVES: Hard-to-treat childhood cancers are those where standard treatment options do not exist and the prognosis is poor. Healthcare professionals (HCPs) are responsible for communicating with families about prognosis and complex experimental treatments. We aimed to identify HCPs' key challenges and skills required when communicating with families about hard-to-treat cancers and their perceptions of communication-related training.METHODS: We interviewed Australian HCPs who had direct responsibilities in managing childr...
Source: Palliative and Supportive Care - January 24, 2024 Category: Palliative Care Authors: Lauren Kelada Eden G Robertson Skye McKay Brittany C McGill Rebecca Daly Carolyn Mazariego Natalie Taylor Elijah Tyedmers Nicole Armitage Holly E Evans Claire E Wakefield David S Ziegler Source Type: research
COPD patients' accessibility to palliative care: Current challenges and opportunities for improvement
Palliat Support Care. 2024 Jan 24:1-3. doi: 10.1017/S1478951524000063. Online ahead of print.NO ABSTRACTPMID:38264901 | DOI:10.1017/S1478951524000063 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 24, 2024 Category: Palliative Care Authors: Barbara Gon çalves Eileen Harkess-Murphy Audrey Cund Caroline Sime Joanne Lusher Source Type: research
Housekeeping
Palliat Support Care. 2024 Jan 22:1. doi: 10.1017/S1478951523001967. Online ahead of print.NO ABSTRACTPMID:38251429 | DOI:10.1017/S1478951523001967 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 22, 2024 Category: Palliative Care Authors: Elane Kim Source Type: research
Precision medicine
Palliat Support Care. 2024 Jan 22:1. doi: 10.1017/S1478951524000075. Online ahead of print.NO ABSTRACTPMID:38251439 | DOI:10.1017/S1478951524000075 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 22, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Defining a balance by compromising with fear: A grounded theory study on returning to eating after a total gastrectomy
This study aimed to investigate the shaping of this process as influenced by the perspectives of patients, health-care professionals (HPs), and caregivers (CGs).METHODS: A constructivist grounded theory study, through semi-structured interviews and interpretative coding, was designed to answer the following research question: "what is the process of returning to eating and feeding after a gastrectomy?"RESULTS: The final sample included 18 participants. "Defining a balance by compromising with fear" is the core category explaining returning to eating as a process negotiated by all actors involved, with patients trying to fi...
Source: Palliative and Supportive Care - January 22, 2024 Category: Palliative Care Authors: Licia Baldi Marco D'Inc à J ürgen Wildner Francesca Tecce Romina De Pasca Stefano Finotto Mat ías Eduardo Díaz Crescitelli Silvia Di Leo Luca Ghirotto Source Type: research
End-of-life conversations about death and dying from volunteer perspectives: A qualitative study
Palliat Support Care. 2024 Jan 22:1-9. doi: 10.1017/S147895152300189X. Online ahead of print.ABSTRACTOBJECTIVES: Although often unrecognized, volunteers fulfill many essential roles in hospices and other end-of-life care settings. Volunteers complement the actions of professionals in fulfilling many extra care needs, such as delivering newspapers and tidying bedsides. We explored end-of-life conversations about death and dying between hospice volunteers and terminally ill people, with a particular emphasis on any expressed desire to die. Our 2 research questions were as follows: (1) What is the nature of end-of-life conver...
Source: Palliative and Supportive Care - January 22, 2024 Category: Palliative Care Authors: Andrea Rodr íguez-Prat Donna M Wilson Source Type: research
Giant
Palliat Support Care. 2024 Jan 22:1-2. doi: 10.1017/S1478951523001980. Online ahead of print.NO ABSTRACTPMID:38251456 | DOI:10.1017/S1478951523001980 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 22, 2024 Category: Palliative Care Authors: Ruby E Reed Source Type: research
Caregivers' concerns through health professionals' eyes
This study provided a broader awareness regarding the daily struggle experienced by family caregivers, particularly those who juggle between "roles." It is vital to understand the scope of the obstacles experienced by caregivers during the terminal phase of their loved one's illness, given how important it is to address the family's needs. Future studies and practitioners should consider these observations and topics when considering new approaches for this population, as they ought to be quite focused and short in time in order to meet people's needs.PMID:38178271 | DOI:10.1017/S1478951523001864 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Carolina Oliveira Daniela Louren ço Luciana Sotero Ana Paula Relvas Source Type: research
Silent melodies
Palliat Support Care. 2024 Jan 5:1. doi: 10.1017/S1478951523001979. Online ahead of print.NO ABSTRACTPMID:38178273 | DOI:10.1017/S1478951523001979 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Antonio Yaghy Source Type: research
Palliative care, COVID-19, and the suffering quotient
We report 3 cases of patients admitted to a palliative care unit during the COVID-19 pandemic and discuss the visiting restrictions placed on their families. In reviewing the cases, we coined a new concept, the "Suffering Quotient" (SQ), to help understand why clinical staff might be motivated to advocate for an exemption to the visiting restrictions in one situation and not another.RESULTS: This paper uses 3 cases to illustrate a new concept that we have coined the Suffering Quotient. The Suffering Quotient (SQ) = Perceived Individual (or small group) Suffering/Perceived Population Suffering. This paper also explores fact...
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Jana Pilkey Source Type: research
Effects of Dignity Therapy on individuals with amyotrophic lateral sclerosis: Case studies
This study allowed us to analyze the effects of DT on the physical, existential, and psychosocial symptoms of individuals with ALS, suggesting the potential benefits of this approach for this group of patients. Participants reported positive effects regarding pain and fatigue, could reflect on their life trajectories, and regained their value and meaning.PMID:38178278 | DOI:10.1017/S1478951523001888 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Mariana do Valle Meira Rudval Souza da Silva Harvey Max Chochinov Maria Olivia Sobral Fraga de Medeiros Marilaine Matos de Menezes Ferreira Marina de G óes Salvetti Source Type: research
