A commentary on "'What it is like to be human': The existential dimension of care as perceived by professionals caring for people approaching death" (B äckersten et al., 2023)
Palliat Support Care. 2024 Mar 14:1-2. doi: 10.1017/S1478951524000397. Online ahead of print.NO ABSTRACTPMID:38482845 | DOI:10.1017/S1478951524000397 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Ana Carolina da Rocha Monteiro Source Type: research
A pilot study to evaluate the feasibility and potential effectiveness of an early palliative care model: "Educate, Nurture, Advise, Before Life Ends for Singapore"
Palliat Support Care. 2024 Mar 14:1-7. doi: 10.1017/S1478951524000373. Online ahead of print.ABSTRACTOBJECTIVE: The main objective was to pilot the culturally adapted "Educate, Nurture, Advise, Before Life Ends" for Singapore (ENABLE-SG) model to evaluate its feasibility and potential effectiveness.METHODS: A single-arm pilot trial of ENABLE-SG among patients with advanced solid tumors and caregivers of these patients was conducted in the outpatient oncology clinic setting. Enrolled participants participated in individual ENABLE-SG psychoeducational sessions weekly. Patients had 6 sessions on the topics of maintaining posi...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Grace Meijuan Yang Dawn Koh Neela Natesan Jess Ng J Nicholas Odom Marie Bakitas Source Type: research
In-hospital psychoeducation for family caregivers of Nigerian children with cancer (The RESCUE Study)
This study aimed to determine the impact of a structured psychoeducation program on caregivers' outcomes relating to preparedness to provide care, burden of caregiving, and quality of life (QoL).METHODS: This quasi-experimental (pre-and-posttest) design, involved family caregivers of children on admission for cancer treatment in 4 Nigerian tertiary hospitals. Eligible participants received 2 structured, psychoeducational training sessions delivered by a multidisciplinary oncology team, focusing on the management of patients' condition, spiritual care, self-care, and support.RESULTS: Subjects were mainly female (79.5%) and ...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Tonia Chinyelu Onyeka Ifeoma Emodi Alhassan Datti Mohammed Akinyemi Olugbenga Ofakunrin Adewumi Alabi Justus Uchenna Onu Nneka Iloanusi Jude Ohaeri Agnes Anarado Musa Usman Umar Gbenro Olukiran Anthonia Sowunmi Adeseye Akinsete Bolanle Adegboyega Ijeoma N Source Type: research
From patient-reported outcomes (PROs) to family-reported outcomes (FROs): Acceptability and perceived usefulness of routine screening in cancer care
This study extends the concept of patient-reported outcome measures to caregivers, and findings can be used to guide the development of FRO screening programs.PMID:38482882 | DOI:10.1017/S147895152400035X (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Sylvie Lambert Katya Loban Anne-Sophie Gignac Mona Magalhaes Lydia Ould Brahim Sarah Chehayeb Sydney Wasserman Source Type: research
Development of the pediatric family-based dignity therapy protocol for terminally ill children (ages 7-18) and their families: A mixed-methods study
This study aims to develop a pediatric family-based dignity therapy (P-FBDT) protocol for terminally ill children and their families.METHODS: A parallel mixed-methods design was used. The P-FBDT protocol was developed based on the adult DT, and meanwhile by taking children-specific dignity characteristics and Chinese family-oriented culture into consideration. The protocol was then evaluated and modified based on the quantitative and qualitative feedback from 2-round surveys of 14 pediatric oncology or pediatric palliative care experts.RESULTS: The P-FBDT involves terminally ill children and their families in meaningful in...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Junyi Lin Qiaohong Guo Xuan Zhou Huijun Li Siyu Cai Source Type: research
A commentary on "'What it is like to be human': The existential dimension of care as perceived by professionals caring for people approaching death" (B äckersten et al., 2023)
Palliat Support Care. 2024 Mar 14:1-2. doi: 10.1017/S1478951524000397. Online ahead of print.NO ABSTRACTPMID:38482845 | DOI:10.1017/S1478951524000397 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Ana Carolina da Rocha Monteiro Source Type: research
A pilot study to evaluate the feasibility and potential effectiveness of an early palliative care model: "Educate, Nurture, Advise, Before Life Ends for Singapore"
Palliat Support Care. 2024 Mar 14:1-7. doi: 10.1017/S1478951524000373. Online ahead of print.ABSTRACTOBJECTIVE: The main objective was to pilot the culturally adapted "Educate, Nurture, Advise, Before Life Ends" for Singapore (ENABLE-SG) model to evaluate its feasibility and potential effectiveness.METHODS: A single-arm pilot trial of ENABLE-SG among patients with advanced solid tumors and caregivers of these patients was conducted in the outpatient oncology clinic setting. Enrolled participants participated in individual ENABLE-SG psychoeducational sessions weekly. Patients had 6 sessions on the topics of maintaining posi...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Grace Meijuan Yang Dawn Koh Neela Natesan Jess Ng J Nicholas Odom Marie Bakitas Source Type: research
In-hospital psychoeducation for family caregivers of Nigerian children with cancer (The RESCUE Study)
This study aimed to determine the impact of a structured psychoeducation program on caregivers' outcomes relating to preparedness to provide care, burden of caregiving, and quality of life (QoL).METHODS: This quasi-experimental (pre-and-posttest) design, involved family caregivers of children on admission for cancer treatment in 4 Nigerian tertiary hospitals. Eligible participants received 2 structured, psychoeducational training sessions delivered by a multidisciplinary oncology team, focusing on the management of patients' condition, spiritual care, self-care, and support.RESULTS: Subjects were mainly female (79.5%) and ...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Tonia Chinyelu Onyeka Ifeoma Emodi Alhassan Datti Mohammed Akinyemi Olugbenga Ofakunrin Adewumi Alabi Justus Uchenna Onu Nneka Iloanusi Jude Ohaeri Agnes Anarado Musa Usman Umar Gbenro Olukiran Anthonia Sowunmi Adeseye Akinsete Bolanle Adegboyega Ijeoma N Source Type: research
From patient-reported outcomes (PROs) to family-reported outcomes (FROs): Acceptability and perceived usefulness of routine screening in cancer care
This study extends the concept of patient-reported outcome measures to caregivers, and findings can be used to guide the development of FRO screening programs.PMID:38482882 | DOI:10.1017/S147895152400035X (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Sylvie Lambert Katya Loban Anne-Sophie Gignac Mona Magalhaes Lydia Ould Brahim Sarah Chehayeb Sydney Wasserman Source Type: research
Development of the pediatric family-based dignity therapy protocol for terminally ill children (ages 7-18) and their families: A mixed-methods study
This study aims to develop a pediatric family-based dignity therapy (P-FBDT) protocol for terminally ill children and their families.METHODS: A parallel mixed-methods design was used. The P-FBDT protocol was developed based on the adult DT, and meanwhile by taking children-specific dignity characteristics and Chinese family-oriented culture into consideration. The protocol was then evaluated and modified based on the quantitative and qualitative feedback from 2-round surveys of 14 pediatric oncology or pediatric palliative care experts.RESULTS: The P-FBDT involves terminally ill children and their families in meaningful in...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Junyi Lin Qiaohong Guo Xuan Zhou Huijun Li Siyu Cai Source Type: research
A commentary on "'What it is like to be human': The existential dimension of care as perceived by professionals caring for people approaching death" (B äckersten et al., 2023)
Palliat Support Care. 2024 Mar 14:1-2. doi: 10.1017/S1478951524000397. Online ahead of print.NO ABSTRACTPMID:38482845 | DOI:10.1017/S1478951524000397 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Ana Carolina da Rocha Monteiro Source Type: research
A pilot study to evaluate the feasibility and potential effectiveness of an early palliative care model: "Educate, Nurture, Advise, Before Life Ends for Singapore"
Palliat Support Care. 2024 Mar 14:1-7. doi: 10.1017/S1478951524000373. Online ahead of print.ABSTRACTOBJECTIVE: The main objective was to pilot the culturally adapted "Educate, Nurture, Advise, Before Life Ends" for Singapore (ENABLE-SG) model to evaluate its feasibility and potential effectiveness.METHODS: A single-arm pilot trial of ENABLE-SG among patients with advanced solid tumors and caregivers of these patients was conducted in the outpatient oncology clinic setting. Enrolled participants participated in individual ENABLE-SG psychoeducational sessions weekly. Patients had 6 sessions on the topics of maintaining posi...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Grace Meijuan Yang Dawn Koh Neela Natesan Jess Ng J Nicholas Odom Marie Bakitas Source Type: research
In-hospital psychoeducation for family caregivers of Nigerian children with cancer (The RESCUE Study)
This study aimed to determine the impact of a structured psychoeducation program on caregivers' outcomes relating to preparedness to provide care, burden of caregiving, and quality of life (QoL).METHODS: This quasi-experimental (pre-and-posttest) design, involved family caregivers of children on admission for cancer treatment in 4 Nigerian tertiary hospitals. Eligible participants received 2 structured, psychoeducational training sessions delivered by a multidisciplinary oncology team, focusing on the management of patients' condition, spiritual care, self-care, and support.RESULTS: Subjects were mainly female (79.5%) and ...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Tonia Chinyelu Onyeka Ifeoma Emodi Alhassan Datti Mohammed Akinyemi Olugbenga Ofakunrin Adewumi Alabi Justus Uchenna Onu Nneka Iloanusi Jude Ohaeri Agnes Anarado Musa Usman Umar Gbenro Olukiran Anthonia Sowunmi Adeseye Akinsete Bolanle Adegboyega Ijeoma N Source Type: research
From patient-reported outcomes (PROs) to family-reported outcomes (FROs): Acceptability and perceived usefulness of routine screening in cancer care
This study extends the concept of patient-reported outcome measures to caregivers, and findings can be used to guide the development of FRO screening programs.PMID:38482882 | DOI:10.1017/S147895152400035X (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Sylvie Lambert Katya Loban Anne-Sophie Gignac Mona Magalhaes Lydia Ould Brahim Sarah Chehayeb Sydney Wasserman Source Type: research
Development of the pediatric family-based dignity therapy protocol for terminally ill children (ages 7-18) and their families: A mixed-methods study
This study aims to develop a pediatric family-based dignity therapy (P-FBDT) protocol for terminally ill children and their families.METHODS: A parallel mixed-methods design was used. The P-FBDT protocol was developed based on the adult DT, and meanwhile by taking children-specific dignity characteristics and Chinese family-oriented culture into consideration. The protocol was then evaluated and modified based on the quantitative and qualitative feedback from 2-round surveys of 14 pediatric oncology or pediatric palliative care experts.RESULTS: The P-FBDT involves terminally ill children and their families in meaningful in...
Source: Palliative and Supportive Care - March 14, 2024 Category: Palliative Care Authors: Junyi Lin Qiaohong Guo Xuan Zhou Huijun Li Siyu Cai Source Type: research
