The final beeps of the final beats
Palliat Support Care. 2024 Jan 5:1. doi: 10.1017/S1478951523001955. Online ahead of print.NO ABSTRACTPMID:38178279 | DOI:10.1017/S1478951523001955 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Antonio Yaghy Source Type: research

Nursing students satisfaction and self-confidence with standardized patient palliative care simulation focusing on difficult conversations
The objective of this research was to assess 3rd year undergraduate nursing students' levels of satisfaction and self-confidence with palliative and end-of-life care simulations focusing on difficult conversations, as measured by the Student Satisfaction and Self-Confidence in Learning Scale (SSSCLS) and the Simulation Design Scale (SDS).METHODS: A descriptive post-intervention study. Four palliative care simulation days, consisting of 2 clinical scenarios, were conducted over 4 weeks. The first simulation was an outpatient palliative care clinic scenario, and the second was an inpatient hospital scenario. Nursing students...
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Pauline Catherine Gillan Sandra Johnston Source Type: research

Caregivers' concerns through health professionals' eyes
This study provided a broader awareness regarding the daily struggle experienced by family caregivers, particularly those who juggle between "roles." It is vital to understand the scope of the obstacles experienced by caregivers during the terminal phase of their loved one's illness, given how important it is to address the family's needs. Future studies and practitioners should consider these observations and topics when considering new approaches for this population, as they ought to be quite focused and short in time in order to meet people's needs.PMID:38178271 | DOI:10.1017/S1478951523001864 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Carolina Oliveira Daniela Louren ço Luciana Sotero Ana Paula Relvas Source Type: research

Silent melodies
Palliat Support Care. 2024 Jan 5:1. doi: 10.1017/S1478951523001979. Online ahead of print.NO ABSTRACTPMID:38178273 | DOI:10.1017/S1478951523001979 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Antonio Yaghy Source Type: research

Palliative care, COVID-19, and the suffering quotient
We report 3 cases of patients admitted to a palliative care unit during the COVID-19 pandemic and discuss the visiting restrictions placed on their families. In reviewing the cases, we coined a new concept, the "Suffering Quotient" (SQ), to help understand why clinical staff might be motivated to advocate for an exemption to the visiting restrictions in one situation and not another.RESULTS: This paper uses 3 cases to illustrate a new concept that we have coined the Suffering Quotient. The Suffering Quotient (SQ) = Perceived Individual (or small group) Suffering/Perceived Population Suffering. This paper also explores fact...
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Jana Pilkey Source Type: research

Effects of Dignity Therapy on individuals with amyotrophic lateral sclerosis: Case studies
This study allowed us to analyze the effects of DT on the physical, existential, and psychosocial symptoms of individuals with ALS, suggesting the potential benefits of this approach for this group of patients. Participants reported positive effects regarding pain and fatigue, could reflect on their life trajectories, and regained their value and meaning.PMID:38178278 | DOI:10.1017/S1478951523001888 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Mariana do Valle Meira Rudval Souza da Silva Harvey Max Chochinov Maria Olivia Sobral Fraga de Medeiros Marilaine Matos de Menezes Ferreira Marina de G óes Salvetti Source Type: research

The final beeps of the final beats
Palliat Support Care. 2024 Jan 5:1. doi: 10.1017/S1478951523001955. Online ahead of print.NO ABSTRACTPMID:38178279 | DOI:10.1017/S1478951523001955 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Antonio Yaghy Source Type: research

Nursing students satisfaction and self-confidence with standardized patient palliative care simulation focusing on difficult conversations
The objective of this research was to assess 3rd year undergraduate nursing students' levels of satisfaction and self-confidence with palliative and end-of-life care simulations focusing on difficult conversations, as measured by the Student Satisfaction and Self-Confidence in Learning Scale (SSSCLS) and the Simulation Design Scale (SDS).METHODS: A descriptive post-intervention study. Four palliative care simulation days, consisting of 2 clinical scenarios, were conducted over 4 weeks. The first simulation was an outpatient palliative care clinic scenario, and the second was an inpatient hospital scenario. Nursing students...
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Pauline Catherine Gillan Sandra Johnston Source Type: research

Caregivers' concerns through health professionals' eyes
This study provided a broader awareness regarding the daily struggle experienced by family caregivers, particularly those who juggle between "roles." It is vital to understand the scope of the obstacles experienced by caregivers during the terminal phase of their loved one's illness, given how important it is to address the family's needs. Future studies and practitioners should consider these observations and topics when considering new approaches for this population, as they ought to be quite focused and short in time in order to meet people's needs.PMID:38178271 | DOI:10.1017/S1478951523001864 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Carolina Oliveira Daniela Louren ço Luciana Sotero Ana Paula Relvas Source Type: research

Silent melodies
Palliat Support Care. 2024 Jan 5:1. doi: 10.1017/S1478951523001979. Online ahead of print.NO ABSTRACTPMID:38178273 | DOI:10.1017/S1478951523001979 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Antonio Yaghy Source Type: research

Palliative care, COVID-19, and the suffering quotient
We report 3 cases of patients admitted to a palliative care unit during the COVID-19 pandemic and discuss the visiting restrictions placed on their families. In reviewing the cases, we coined a new concept, the "Suffering Quotient" (SQ), to help understand why clinical staff might be motivated to advocate for an exemption to the visiting restrictions in one situation and not another.RESULTS: This paper uses 3 cases to illustrate a new concept that we have coined the Suffering Quotient. The Suffering Quotient (SQ) = Perceived Individual (or small group) Suffering/Perceived Population Suffering. This paper also explores fact...
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Jana Pilkey Source Type: research

Effects of Dignity Therapy on individuals with amyotrophic lateral sclerosis: Case studies
This study allowed us to analyze the effects of DT on the physical, existential, and psychosocial symptoms of individuals with ALS, suggesting the potential benefits of this approach for this group of patients. Participants reported positive effects regarding pain and fatigue, could reflect on their life trajectories, and regained their value and meaning.PMID:38178278 | DOI:10.1017/S1478951523001888 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Mariana do Valle Meira Rudval Souza da Silva Harvey Max Chochinov Maria Olivia Sobral Fraga de Medeiros Marilaine Matos de Menezes Ferreira Marina de G óes Salvetti Source Type: research

The final beeps of the final beats
Palliat Support Care. 2024 Jan 5:1. doi: 10.1017/S1478951523001955. Online ahead of print.NO ABSTRACTPMID:38178279 | DOI:10.1017/S1478951523001955 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Antonio Yaghy Source Type: research

Nursing students satisfaction and self-confidence with standardized patient palliative care simulation focusing on difficult conversations
The objective of this research was to assess 3rd year undergraduate nursing students' levels of satisfaction and self-confidence with palliative and end-of-life care simulations focusing on difficult conversations, as measured by the Student Satisfaction and Self-Confidence in Learning Scale (SSSCLS) and the Simulation Design Scale (SDS).METHODS: A descriptive post-intervention study. Four palliative care simulation days, consisting of 2 clinical scenarios, were conducted over 4 weeks. The first simulation was an outpatient palliative care clinic scenario, and the second was an inpatient hospital scenario. Nursing students...
Source: Palliative and Supportive Care - January 4, 2024 Category: Palliative Care Authors: Pauline Catherine Gillan Sandra Johnston Source Type: research

Adjustment to "new normal" after cancer among non-small cell lung cancer survivors: A qualitative study
Palliat Support Care. 2023 Dec 22:1-6. doi: 10.1017/S1478951523001815. Online ahead of print.ABSTRACTOBJECTIVES: Cancer is a life-changing experience, and side effects from treatment can make it difficult for survivors to return to their pre-cancer "normal life." We explored the "new normal" and barriers to achieving it among lung cancer survivors who underwent surgery.METHODS: Semi-structured interviews were conducted with 32 recurrence-free non-small cell lung cancer survivors. We asked survivors how life had changed; how they defined the "new normal"; barriers that prevent them from achieving a "normal" life; and unmet ...
Source: Palliative and Supportive Care - December 22, 2023 Category: Palliative Care Authors: Genehee Lee Soo Yeon Kim Alice Ahn Sunga Kong Heesu Nam Danbee Kang Hong Kwan Kim Young Mog Shim Ansuk Jeong Dong Wook Shin Juhee Cho Source Type: research