The silk road
Palliat Support Care. 2024 Feb 16:1. doi: 10.1017/S1478951524000312. Online ahead of print.NO ABSTRACTPMID:38362715 | DOI:10.1017/S1478951524000312 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease
This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).METHODS: An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Dani ël C M Huijten Laura Hofstede Sami O Simons Stephanie C M Ament Nicolette Gunnink-Boonstra Marieke H J van den Beuken-van Everdingen Daisy J A Janssen Source Type: research
Are specialist-provided end-of-life scenarios key to initiation of advance care planning in primary care? A mixed-methods study
Palliat Support Care. 2024 Feb 16:1-9. doi: 10.1017/S1478951523002055. Online ahead of print.ABSTRACTOBJECTIVES: Specialist-provided end-of-life scenarios (SP-EOLS) may improve advance care planning (ACP) implementation in primary care by helping overcome barriers such as uncertain prognosis and poor interprofessional collaboration. We aimed to explore the current use and potential impact of SP-EOLS on ACP in Dutch primary care.METHODS: We performed a mixed-methods study. From patients discussed in a hospital-based academic palliative care multidisciplinary team meeting between 2016 and 2019 and died, we collected primary ...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Sophie W Poelman Daisy J M Ermers Henk J Schers Kris C P Vissers Carel M M Veldhoven Evelien J M Kuip Marieke Perry Source Type: research
Existential distress and associated factors in advanced cancer patients: A cross-sectional study
This study investigated the current state of ED and identified the associated factors in Chinese patients with advanced cancer.METHODS: A cross-sectional study was conducted among 352 advanced cancer patients from 3 tertiary hospitals in Fujian, China. Participants were invited to complete the Existential Distress Scale, Number Rating Scale, Self-Perceived Burden Scale, Quality of Life Concerns in the End-of-Life Questionnaire, and Hospital Anxiety and Depression Scale.OBJECTIVES: This study aimed to investigate the level of existential distress among advanced cancer patients in China and identify the associated factors.RE...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Guiru Xu Jianwei Zheng Xiaodan Lin Hong Wu Shangwang Yang Huimin Xiao Xiaoyan Lin Source Type: research
The silk road
Palliat Support Care. 2024 Feb 16:1. doi: 10.1017/S1478951524000312. Online ahead of print.NO ABSTRACTPMID:38362715 | DOI:10.1017/S1478951524000312 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease
This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).METHODS: An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Dani ël C M Huijten Laura Hofstede Sami O Simons Stephanie C M Ament Nicolette Gunnink-Boonstra Marieke H J van den Beuken-van Everdingen Daisy J A Janssen Source Type: research
Are specialist-provided end-of-life scenarios key to initiation of advance care planning in primary care? A mixed-methods study
Palliat Support Care. 2024 Feb 16:1-9. doi: 10.1017/S1478951523002055. Online ahead of print.ABSTRACTOBJECTIVES: Specialist-provided end-of-life scenarios (SP-EOLS) may improve advance care planning (ACP) implementation in primary care by helping overcome barriers such as uncertain prognosis and poor interprofessional collaboration. We aimed to explore the current use and potential impact of SP-EOLS on ACP in Dutch primary care.METHODS: We performed a mixed-methods study. From patients discussed in a hospital-based academic palliative care multidisciplinary team meeting between 2016 and 2019 and died, we collected primary ...
Source: Palliative and Supportive Care - February 16, 2024 Category: Palliative Care Authors: Sophie W Poelman Daisy J M Ermers Henk J Schers Kris C P Vissers Carel M M Veldhoven Evelien J M Kuip Marieke Perry Source Type: research
Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer
Palliat Support Care. 2024 Feb 14:1-8. doi: 10.1017/S1478951524000026. Online ahead of print.ABSTRACTOBJECTIVES: Adolescents with cancer often experience significant symptom burden and aggressive treatment near end-of-life. Increased adolescent involvement in care and decision-making may benefit health outcomes. Limited research has examined factors associated with adolescents' involvement in care in the context of advanced disease. Thus, we examined the impact of background factors and decision-making perceptions on both adolescents' involvement in care and their desired change in involvement.METHODS: Adolescents with adv...
Source: Palliative and Supportive Care - February 14, 2024 Category: Palliative Care Authors: Malcolm Sutherland-Foggio Anna L Olsavsky Micah A Skeens Leena Nahata Kylie Hill Megan Schaefer Alexandra Himelhoch Ansley E Kenney Lisa Humphrey Randal Olshefski Cynthia A Gerhardt Source Type: research
Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer
Palliat Support Care. 2024 Feb 14:1-8. doi: 10.1017/S1478951524000026. Online ahead of print.ABSTRACTOBJECTIVES: Adolescents with cancer often experience significant symptom burden and aggressive treatment near end-of-life. Increased adolescent involvement in care and decision-making may benefit health outcomes. Limited research has examined factors associated with adolescents' involvement in care in the context of advanced disease. Thus, we examined the impact of background factors and decision-making perceptions on both adolescents' involvement in care and their desired change in involvement.METHODS: Adolescents with adv...
Source: Palliative and Supportive Care - February 14, 2024 Category: Palliative Care Authors: Malcolm Sutherland-Foggio Anna L Olsavsky Micah A Skeens Leena Nahata Kylie Hill Megan Schaefer Alexandra Himelhoch Ansley E Kenney Lisa Humphrey Randal Olshefski Cynthia A Gerhardt Source Type: research
Translation and linguistic validation of the Sheffield Profile for Assessment and Referral for Care (SPARC) to Colombian Spanish
Palliat Support Care. 2024 Feb 8:1-10. doi: 10.1017/S1478951524000038. Online ahead of print.ABSTRACTOBJECTIVES: We aimed to translate and linguistically and cross-culturally validate Sheffield Profile for Assessment and Referral for Care (SPARC) in Spanish for Colombia (SPARC-Sp).METHODS: The linguistic validation of SPARC followed a standard methodology. We conducted focus groups to assess the comprehensibility and feasibility. The acceptability was assessed using a survey study with potential users.RESULTS: The comprehensibility assessment showed that additional adjustments to those made during the translation-back-tran...
Source: Palliative and Supportive Care - February 8, 2024 Category: Palliative Care Authors: Socorro Moreno Cindy V Mendieta Esther de Vries Sam H Ahmedzai Karen Rivera Camilo Cortes-Mora Jose A Calvache Source Type: research
Hemichorea-hemiballismus associated with a case of cerebral toxoplasmosis in a hematopoietic stem cell transplant recipient
We present the case of a 54-year-old Caucasian male with a history of hypertension and JAK-2-negative primary myelofibrosis who underwent an allogeneic peripheral blood stem cell transplant from a related donor. After the development of acute changes in mental status, left-sided weakness, and left-sided hemichorea-hemiballismus post-transplant, the patient was readmitted to the hospital. Subsequent testing included an magnetic resonance imaging (MRI) of the brain, which revealed multiple ring-enhancing lesions around the thalami and basal ganglia, as well as a cerebrospinal fluid tap that tested positive for toxoplasmosis....
Source: Palliative and Supportive Care - February 5, 2024 Category: Palliative Care Authors: Xiomara Rocha-Cadman Amanda R Revilla Karla Cadman James C Root Source Type: research
Your AV Fistula
Palliat Support Care. 2024 Feb 1:1. doi: 10.1017/S1478951524000142. Online ahead of print.NO ABSTRACTPMID:38299360 | DOI:10.1017/S1478951524000142 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 1, 2024 Category: Palliative Care Authors: Ellen Zhang Source Type: research
Comparing situational influences on differential healthcare utilization trajectories in patients on home palliative care: A qualitative study
Palliat Support Care. 2024 Feb 1:1-8. doi: 10.1017/S1478951524000014. Online ahead of print.ABSTRACTOBJECTIVES: Patients with terminal cancer receiving home palliative care present differential healthcare utilization trajectories before death. It remains unclear which situational elements influence these trajectories among disparate patient groups. The aim of this study was to compare situational influences on "persistently high" and "low stable" trajectories of healthcare utilization in patients who received palliative care support at home.METHODS: Bereaved family caregivers were recruited from our prior quantitative stud...
Source: Palliative and Supportive Care - February 1, 2024 Category: Palliative Care Authors: Sungwon Yoon Hendra Goh Zhi Zheng Yeo Grace Meijuan Yang Poh Heng Chong Qingyuan Zhuang Source Type: research
The value of time
Palliat Support Care. 2024 Feb 1:1. doi: 10.1017/S1478951524000087. Online ahead of print.NO ABSTRACTPMID:38299425 | DOI:10.1017/S1478951524000087 (Source: Palliative and Supportive Care)
Source: Palliative and Supportive Care - February 1, 2024 Category: Palliative Care Authors: Tarek Zieneldien Source Type: research
Complexity of needs in amyotrophic lateral sclerosis (ALS) patients using the ENP-E scale in the north-eastern region of Spain
This study aimed to explore the clinical characteristics of amyotrophic lateral sclerosis (ALS) patients in Spain's north-eastern region, their inclusion in chronic care programmes, and their psychosocial and spiritual needs (PSNs).METHODS: A longitudinal descriptive study in adult patients with ALS. We analyzed clinical variables and participation in chronicity and PSNs assessment using the tool Psychosocial and Spiritual Needs Evaluation scale in end-of-life patients (ENP-E scale).RESULTS: 81 patients (average age 65.6 ± 11.7) were studied. At the study's outset, 29.7% employed non-invasive ventilation (NIV), increasing...
Source: Palliative and Supportive Care - January 31, 2024 Category: Palliative Care Authors: Emilia Castro-Rodriguez Rafael Azagra-Ledesma Xavier G ómez-Batiste Amada Aguy é-Batista Carlos Clemente-Azagra Miguel Angel D íaz-Herrera Source Type: research
