The Relationship Is What Drives Decisions
In my specific role in healthcare, there is no better example of relationship-centered care than in the decision-making that both physician and patient face in dissecting the incomprehensible dilemmas of prostate cancer screening and prostate cancer treatments. In very few others cancers do we agonize about the key issues related to this very important health problem. The relationship is what drives decisions — and ultimately it is the physician whose main responsibility is to provide information in a compassionate and objective fashion to the patient so the “relationship” can arrive at the most appropria...
Source: Society for Participatory Medicine - November 13, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter empowered patient learning exchange participatory medicine prostrate cancer screening relationship centered care Source Type: news
Relationship-Centered Care
In my specific role in healthcare, there is no better example of relationship-centered care than in the decision-making that both physician and patient face in dissecting the incomprehensible dilemmas of prostate cancer screening and prostate cancer treatments. In very few others cancers do we agonize about the key issues related to this very important health problem. The relationship is what drives decisions — and ultimately it is the physician whose main responsibility is to provide information in a compassionate and objective fashion to the patient so the “relationship” can arrive at the most appropria...
Source: Society for Participatory Medicine - November 13, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter empowered patient learning exchange participatory medicine prostrate cancer screening relationship centered care Source Type: news
Patients and Advocates Take Note: Empathy and Relationship-Centered Care are a Two-Way Street
I am both a patient with multiple chronic conditions and a patient advocate. What some members of my care team(s) often forget is that I also have a life outside of the little bubble in which they see me. I have had 3 kidney transplants, been on dialysis twice (both hemo and peritoneal), and was recently diagnosed with either Crohn’s or ulcerative colitis. (The docs do not seem to know yet which one. Given my eastern European background, I believe it is Crohn’s.) While I have two other chronic conditions, I will not discuss them in this newsletter.
The concepts of relationship-centered care (RCC) and empathy ...
Source: Society for Participatory Medicine - November 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter participatory medicine Patient Involvement Patient Participation relationship centered care SPM communications Source Type: news
Personalized Medical Care: The Carrier ’s Vision
For insurance carriers, relationships have historically focused on three key stakeholders: rate payers, brokers and clinicians. Commercial carriers have moved from being primarily fiduciary intermediaries to playing a more pivotal role in the health and lives of members. It is no longer sufficient to simply identify the best providers for the population, underwrite risk and pay for care.
We have taken on new, innovative roles, including:
Ensuring that evidence-based medicine is practiced.
Providing guidance for managing the delivery system.
Identifying gaps in care for members and their providers.
Providing incentives to ...
Source: Society for Participatory Medicine - November 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Book Review Source Type: news
Innovating Around the Patient and Clinician Encounter
Dr. Helene D. Clayton-Jeter, O.D., in her article in this newsletter, refers to relationship-centered care as “care in which all participants appreciate the importance of their relationships with one another.” That definition resonates with me. It resonates because making that concept a reality requires empathy. The definition I use for empathy from Merriam-Webster is the ability to share someone else’s feelings.
In the world of healthcare innovation I have observed the onslaught of solutions and designs that, in my opinion, negatively impact the personal relationships that doctors, patients, and caregivers see...
Source: Society for Participatory Medicine - November 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Clinician Deign for People Jobs to be done relationship centered care Source Type: news
Relationship Centered Care
Recently there has been a rebirth of the notion of relationship-centered care as a meaningful way of creating real and positive outcomes, utilizing all the tools available to the entire care team (including you, the patient). This November issue of our newsletter offers some insights, from a varied set of contributors, as to why this is so important right now. First, here is a take on how we got here.
Healthcare 1.0: Those of us who are a “certain age” know this well. Quite simply, your doctor was in charge. You did what he (most of the time it was a he) told you to do. When you got sick, you made a phone call ...
Source: Society for Participatory Medicine - November 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter healthcare healthcare 2.0 relationship centered care Source Type: news
Relationship-Centered Care and Nurse Practitioners
As a nurse practitioner (NP) who was responsible for the care of active duty and retired military members for more than a decade, the importance of relationship-centered care became exceptionally clear. NPs are educated and clinically trained to care for the whole person, to listen to our patients, and to use evidence and diagnostic tools to assess their health care needs and develop appropriate treatment plans. In the modern health care system, that often means working in concert with other members of health care teams and ensuring that each team member is empowered to utilize the full scope of clinical skills and experti...
Source: Society for Participatory Medicine - November 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter participatory medicine Patient engagement patient-provider relationships relationship centered care Source Type: news
Participatory Medicine Learning Exchange: How Are We Moving the Needle?
We are each individually advancing the participatory medicine movement in our day-to-day lives and interfaces with healthcare/and or our work. Understanding the work we are conducting within our individual silos can help us learn from one another, allow us to build upon ideas, forge collaborations, provide a forum for feedback and suggestions, and ideally avoid duplication of efforts. Helpful tips and best practices we’ve adopted as we navigate the healthcare system can also be beneficial to others.
Join us for our Inaugural Learning Exchange on Thursday, November 10th, 3:00 – 4:00 pm EST.
Pre-registr...
Source: Society for Participatory Medicine - November 7, 2016 Category: Journals (General) Authors: John Grohol Tags: Announcements Events Webinar Source Type: news
Executive Committee Minutes, October 18, 2016
Participants: Peter Elias, Nancy Finn, John Grohol, Danny Sands, Joe Ternullo, Jon Wald, Peggy Zuckerman.
Minutes Approved
Conference Receptions
We held a successful reception at Health 2.0 and gained three new members and one corporate sponsor at the event. We are reaching out to individuals who attended who are not currently members.
We have a reception planned for Thursday, October 20, at Connected Health in Boston. We will also have a booth in the exhibits at Connected Health, and Danny Sands will be the Emcee on Friday,
Elections/Board Nominations
We are still seeking nominations for President Elect and Members-...
Source: Society for Participatory Medicine - November 2, 2016 Category: Journals (General) Authors: Nancy Finn Tags: Executive Minutes News Source Type: news
Executive Committee Minutes, October 4, 2016
Conclusions from the results should help us recruit new members
High Logic Communication Platform, Dave DeBronkart
We will be sending a briefing memo out to the Board on the salient points of this contract and then put the issue to a vote.
Board Retreat, Danny Sands
We are planning a board retreat either on Saturday, November 19 or Saturday, December 10. (Source: Society for Participatory Medicine)
Source: Society for Participatory Medicine - October 26, 2016 Category: Journals (General) Authors: Nancy Finn Tags: General Source Type: news
Executive Committee, August 13, 2016
Participants: Nancy Finn, John Grohol, John Hoben, Sarah Krug, Mark Reifsteck, Danny Sands, Joe Ternullo, Jon Wald
Minutes Approved
Initiatives, Danny Sands
A blueprint outlining how to approach a corporate prospect is now available in Google Docs
Danny, Jon and Joe will be holding one-on-one meetings with everyone on the Board seeking individuals who wish to run for President Elect.
We need sponsors for our fall receptions. Health 2.0 has been generous in helping with our reception at that conference. We are looking for someone who will organize a reception at Connected Health in Boston end of October.
Danny updated u...
Source: Society for Participatory Medicine - October 15, 2016 Category: Journals (General) Authors: Nancy Finn Tags: Executive Minutes News Source Type: news
Executive Committee, September 20, 2016
Participants: Peter Elias, Nancy Finn, John Grohol, Sarah Krug, Danny Sands, Jon Wald, Peggy Zuckerman
Minutes approved.
Elections/Nominations, Danny Sands
Nominations are now open for President Elect. This is an interesting and worthwhile opportunity to give back and take a leadership role in the Society. Anyone who is interested, please contact Danny Sands. We also have one candidate for Member at Large. We will be sending a letter to the membership soliciting additional nominations.
Journal update, Danny Sands
We are in discussion with the Journal editors to address their concerns that they are under- resourced ...
Source: Society for Participatory Medicine - October 15, 2016 Category: Journals (General) Authors: Nancy Finn Tags: Executive Minutes News Source Type: news
Board Meeting September 6, 2016
Participants: Nick Dawson, Dave DeBronkart, Peter Elias, Nancy Finn, John Grohol, John Hoben, Sarah Krug, Mark Reifsteck, Danny Sands, Joe Ternullo, Jon Wald, Peggy Zuckerman
Minutes Approved
Upcoming Conferences/ Events
At Health 2.0, September 27 at 7 pm in Santa Clara, CA at the Hyatt Regency Hotel, SPM will hold a member/guest get together. We will also hold a similar event at the Connected Health, Oct 20, 21, at the Seaport Hotel in Boston MA. We are seeking sponsors for both events. All of our members are invited to attend the social events, whether or not they are registered for the conference. A maili...
Source: Society for Participatory Medicine - October 15, 2016 Category: Journals (General) Authors: Nancy Finn Tags: Board Minutes General News Source Type: news
Participatory Healthcare: a new text for our movement
Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation, edited by Jan Oldenburg with Associate Editor Mary Griskewicz, could become the defining textbook of our field – the new cornerstone of our movement.
Ten years ago “Doc Tom” Ferguson was working on our founding document, the “e-Patient White Paper” e-Patients: How they can help heal healthcare, when he died unexpectedly. His followers finished and published it in 2007, then formed our Society and Journal in 2009. For years since then I, for one, have felt the White Paper needed to be updated with a broader body of anecdotes and...
Source: Society for Participatory Medicine - October 11, 2016 Category: Journals (General) Authors: Dave deBronkart Tags: Newsletter book review e-patient movement e-patients Health Costs Source Type: news
