Dave Newell Talks About Privacy and Security
This article contains an abridged version of the interview. You can listen to the full audio version of the interview below and can download the full transcript.
http://participatorymedicine.org/wp-content/uploads/2016/10/S4PM-Dave_Newell_Interview-26-Sept-2016.mp3
Mattox: There is so much going on with security, Dave. What do you check regularly to keep up-to-date with security threats and other information on the security front?
Newell: Every morning I spend about half an hour reading through security news. And so what I’ve done is, along with the rest of my consulting team, we put together a ...
Source: Society for Participatory Medicine - October 11, 2016 Category: Journals (General) Authors: Society for Participatory Medicine Staff Tags: Interview Newsletter Dave Newell Interview Hipaa Keith Mattox privacy ransomware security Source Type: news
Toward Participatory Healthcare Cybersecurity
Ed Moyle
“Ed Moyle is currently Director of Thought Leadership and Research for ISACA (Information Systems Audit and Control Association). Prior to joining ISACA, Ed was Senior Security Strategist with Savvis and a founding partner of the analyst firm Security Curve. In his 15+ years in information security, Ed has held numerous positions including: Senior Manager with CTG’s global security practice, Vice President and Information Security Officer for Merrill Lynch Investment Managers, and Senior Security Analyst with Trintech. Ed is co-author of “Cryptographic Libraries for Developers” and a frequent...
Source: Society for Participatory Medicine - October 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter cyber security empowered patient Hipaa participatory medicine Patient Participation Source Type: news
Blockchains Power the Physician-Patient Relationship
Blockchains, a new mechanism for trust in the e-world, are a mathematical concept invented in 2008 that have broad applicability to any market that networks billions of people and demands high security—including healthcare. More than $1 billion of private investment in blockchains has already been made in the financial sector. Because of their demonstrated power, cost-effectiveness, and private-sector adoption success, in 2016 the question of blockchains in healthcare is no longer if, but how.
Blockchains use cryptography to replace institutional authority with a consensus of tens of thousands of networked computers call...
Source: Society for Participatory Medicine - October 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Source Type: news
October is National Cyber Security Awareness Month
HIPAA requires Covered Entities and Business Associates to provide “security reminders” to workforce members. The idea with these reminders is to increase security awareness — that is, to safeguard protected health information (PHI) by keeping information security “top of mind.” Your reminders should be frequent but the good news is that they don’t have to be boring.
In fact, if you provide reminders that your workforce will want to read, with attention-drawing graphics and a little humor, you can accomplish a lot with something very simple. Reminders should focus on key practices that you expect every workforc...
Source: Society for Participatory Medicine - October 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Covered Entities cyber security healthcare records HIPPA Source Type: news
Ensuring a Secure Environment for Participatory Medicine
Keith Mattox
Keith Mattox is Security and Privacy Program Manager at Citrix. Prior to joining Citrix, Keith was Senior Compliance Officer at Hewlett Packard Enterprise. He has 14+ years in compliance and information security. Previous positions include Senior Security Consultant at CTG and Information Security Manager at RBC Bank. Keith joined the Society for Participatory Medicine in 2016.
Unlike many members of Society for Participatory Medicine (S4PM) who have championed collaborative technology to improve patient outcomes and treatment for years, I am a relatively new proponent. Indeed, my experience in h...
Source: Society for Participatory Medicine - October 11, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter compliance EHRs Health Information Technology Himss Hipaa patients records privacy security Source Type: news
Education: a Key Tool for Engagement
Peter Elias
When I began my medical training almost a half century ago, medical culture, and the educational system that maintained it, were based on the concept that the physician was the expert who knows best, and that a “good” patient was a compliant patient. Perhaps because I was raised to think for myself, I was unhappy in the role of shepherd for a flock of obedient “sheeple.” By the end of my first decade in practice, I had come to see my job as educating patients about their conditions and options, helping them make the decisions they needed to make, and helping them achieve their health goals. Because this...
Source: Society for Participatory Medicine - September 10, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patient movement empowered patient medical traning member-to-member education participatory medicine patient-centered student clinicians Source Type: news
Thoughts on SPM Opportunities in Education
Ileana Balcu
I just met my new class. I am teaching the New Media and Health Communication at The College of New Jersey. I am excited for the possibilities ahead and I keep remembering my students in the spring semester. I loved their enthusiasm, the jokes, the hard work they put into the course, and how proud we all ended up being at the end of the course.
I remember the day when I was reading their mid-term exam thoughts and I realized that the course was a little too dark, a bit too much of patients’ needs not being met, burned out physicians not listening, bad pharma and bad insurance companies. We changed gears, I s...
Source: Society for Participatory Medicine - September 10, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Education Spm Source Type: news
Patient Education for the 21st Century
Joseph Ternullo
As a longtime health care professional, it is hard to imagine a more exciting time in health care. The innovation and pace of change is breathtaking. Before our eyes, our health care system is being deconstructed. As it is reconstructed, aided by technology, the focus of care is shifting from the provider to the person. We have seen this evolution in the financial services sector, the transportation sector, etc. Technology has finally come to health care. That phenomenon will accelerate and educate patients in new ways. With this transition will be new responsibilities placed on those seeking care, ne...
Source: Society for Participatory Medicine - September 10, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter AI assistive products assistive technology empowered patient Patient Centered Outcomes Personal Health Project-Based Learning technology innovations Source Type: news
From Passive Bystander to Empowered Partner
Cynthia Chmielewski
It was a sunny July day eight years ago. The first thing my hematologist asked me should have tipped me off: “Did you come alone?” The next four words he said will forever be etched into my memory: “You have multiple myeloma.”
Prior to my diagnosis, I’d been suffering from excruciating back pain, fatigue, and often felt myself forgetting things. This was beginning to impact my ability to effectively teach my fifth graders. I scheduled an appointment with an orthopedic doctor upon a colleague’s insistence. (In the past I just toughed things out without seeking medical help. I had never de...
Source: Society for Participatory Medicine - September 10, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patient movement e-patients Education learning exchange Multiple Myeloma Open Notes Source Type: news
Everything You Need to Know About Health Literacy, You Learned in Kindergarten
Casey Quinlan
I admit that this headline is fiction, not fact. However, I strongly believe that health literacy must be part of the K-12 curriculum in all schools, in the US and globally. Here’s why I hold that belief, and an outline for how we can make it happen.
The current mental map of the health care system that the average person has is that health care is something that happens “over there, to sick people, but not to me, because I’m not sick.” Then, when they do get sick, they’re flung against the health care delivery system—what I call the medical-industrial complex—while sick and/or in pain, which is...
Source: Society for Participatory Medicine - September 10, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patients empowered patient K-12 Health Literacy learning exchange Medical Education Curriculum participatory medicine Patient engagement Patient Involvement Source Type: news
Executive Committee Meeting July 26, 2016
Participants: Nick Dawson, Peter Elias, Nancy Finn, Danny Sands, Sarah Krug, Joe Ternullo, Peggy Zuckerman
Minutes Approved
Research Library Danny Sands
Weill Cornell Medical School and the Society for Participatory Medicine have signed a Memorandum of Understanding to establish a research library in Participatory Medicine. Planning will begin in the coming weeks.
SPM Member Communication Platform, Danny Sands
Communication is the core of what we do and how we function. A small group from the Executive Committee along with a few members are reviewing the possibilities for establishing a more up to date option for mem...
Source: Society for Participatory Medicine - September 6, 2016 Category: Journals (General) Authors: Nancy Finn Tags: News Source Type: news
Board Meeting, July 12, 2016
Participants: Kyra Bobinet, Donna Cryer, Nick Dawson, Dave DeBronkart, Nancy Finn, John Grohol, John Hoben, Sarah Krug, Danny Sands, Peggy Zuckerman
Progress to Date: Assessing Board performance, general discussion: Danny Sands
Consensus that there is a high level of energy among our Board and among our members.
Discussed the logistics of hiring a paid professional who can help us organize and implement our strategy.
Agreed that expanding the concept of participatory medicine through education initiatives is key.
Internal Communication, John Hoben
We have editors for all the monthly newsletters through much of 2017 t...
Source: Society for Participatory Medicine - August 3, 2016 Category: Journals (General) Authors: Nancy Finn Tags: Board Minutes News Source Type: news
Bio Intelligence: 5 Ways the Age of Information Will Democratize Modern Medicine
On July 13th 2013 at 7:15 pm I was sitting in a Wegman’s café eating dinner with two startup founders I was mentoring when I received a phone call from a dermatologist. He had removed a mole from my 10-year-old daughter’s arm a week earlier. My daughter and my six-year-old son sat at the table next to us chatting, eating, and playing games on their tablets. With just three words –“This is bad”—our entire world changed. We never saw it coming, we had no information, we were immediately at the mercy of strangers, and the normal we had known was irrevocably shattered in an instant, never to return.
Within two wee...
Source: Society for Participatory Medicine - July 31, 2016 Category: Journals (General) Authors: Nanette Mattox Tags: Book Review Source Type: news
What Society Thinks of as ‘ Rare ’
The past two weeks I conducted an unscientific survey. I asked random strangers what they first thought of when they heard the word “Rare.” I got the following answers:
Automobiles
Gemstones
Jewelry
Books
Mummies found in peat
Animals
Manuscripts
Records
Rugs
Furniture
Mirror twins
Meteorites
Aurora Borealis
Sheet lightning
Pyura chilensis
Musical instruments
Art
Coins
Sports memorabilia
Great restaurants
Intelligent people
People that smile
Good manners
Yes, some of the answers made me smile too. Notice their answers all equate value.
They also left me considering how many people actually think about rare diseases i...
Source: Society for Participatory Medicine - July 29, 2016 Category: Journals (General) Authors: Society for Participatory Medicine Staff Tags: Editorial Newsletter conflicting information diagnosis Health Costs rare disease statistics Rare Diseases what is a rare disease Source Type: news
Rare Disease Resources for Patients, Caregivers & Medical Professionals
Rare diseases often get the short end of the stick when it comes to accessible information and resources. That’s why we’re pleased to offer this index of rare disease resources for patients, caregivers, and health care professionals.
National Organization for Rare Diseases (NORD)
NORD is a non-profit organization established in 1983 to improve the lives of individuals and families affected by rare diseases. It provides programs of advocacy, education (for patients and medical professionals), and referrals to resources.
NORD provides Patient Assistance Programs to help patients gain access to needed treatments. ...
Source: Society for Participatory Medicine - July 28, 2016 Category: Journals (General) Authors: Society for Participatory Medicine Staff Tags: Newsletter Recommended help with rare diseases NIH genetic NORD rare disease advocacy rare disease information rare disease resources rare disease support Source Type: news
