Executive Committee Minutes, December 13, 2016
Participants: Nick Dawson, Peter Elias, Nancy Finn, John Grohol, Sarah Krug, Danny Sands, Joe Ternullo, John Wald
Minutes Approved
Retreat Follow Up
Discussed the retreat list of To Dos and agreed to develop a timeline. Danny and Jon will identify project leaders and ask for a timeline deadline for completion of their project.
Education
Discussed the opportunity for a partnership with The Education Center for Primary Care at Harvard Medical School to develop modules for physician education on patient engagement.
Joe and Danny also met recently with an executive from General Electric Healthcare Division to discuss developin...
Source: Society for Participatory Medicine - February 17, 2017 Category: General Medicine Authors: Nancy Finn Tags: Executive Minutes News Source Type: news
Patient and Family Engagement in Research: What Gets in the Way
Patient and family engagement in research is critical to truly realize the goals of cooperative health care supported by the Society for Participatory Medicine members and other industry leaders. However, barriers to engagement are evident and frustrating to patients, families, and professionals. For example, in our focus groups with patients around the world, patients repeatedly describe a sense of being on the periphery of the evidence base.
Key barriers exist in the way in which health care knowledge is created and shared in ways that prevent the realization of truly un-siloed, cooperative partnerships between patients,...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patient movement healthcare Patient Participation relationship centered care Source Type: news
Patient and Family Engagement in Research in Era 3
In a March 3, 2016, JAMA viewpoint, Donald M. Berwick, MD, MPP [1], argued for ushering in “Era 3” in medicine and health care by embracing a new belief system requiring nine fundamental changes. Among the changes proposed was learning from patients “what matters most.” We propose that asking patients what matters most, as Berwick suggested, must extend beyond the examination room to the halls of academic medicine, where research questions and priorities are decided. These upstream decisions ultimately shape new knowledge, practice, and the very options available to patients downstream. We therefore propose a 10th ...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patient movement healthcare Patient Participation relationship centered care Source Type: news
Social Media and the Patient Experience
As patients continue to turn to online resources for health care information to guide their care decisions, it is becoming increasingly important for radiologists to engage with patients online via social media platforms. There are many ways physicians can use social media to provide patients with valuable information and improve the overall patient experience. By optimizing online discoverability, curating radiology content, engaging with patient communities, and producing mineable social media content, radiologists can emerge as thought leaders in this new form of patient-centered communication and information exchange.
...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter hashtag ontology online content curation Patient Experience Social Media Source Type: news
Harnessing the Power of Informatics: an Asynchronous Online Collaboration Between Radiologists and Patients
If you were to design the ideal patient portal that also included diagnostic imaging, it would make sense to convene a group of stakeholders — patients, caregivers, and referring physicians and radiologists — to determine what features each group would value.
The American College of Radiology (ACR) Commission on Patient- and Family-Centered Care (CPFCC) has convened exactly such a group of individuals to collaborate to improve the delivery of care to patients and their families in radiology. In particular, the informatics committee has been able to use commonly available technology to facilitate collegial discu...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patient movement patient health records Patient Involvement patient portals radiologist relationship centered care Source Type: news
An Asynchronous Online Collaboration Between Radiologists and Patients: Harnessing the Power of Informatics to Design the Ideal Patient Portal
Patient portals (also known as patient health records) are now offered both by large health systems and by small private practices [1]. They enable patients to schedule appointments, e-mail providers, access test results, and even download their entire medical histories. However, few offer direct access to medical images or direct communication with radiologists. If you had to design the ideal patient portal that also included access to diagnostic imaging, how would you determine what features it would need to support? Would you (1) consult PACS engineers to identify relevant technical specifications and challenges, (2) co...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter e-patient movement patient health records Patient Involvement patient portals radiologist relationship centered care Source Type: news
How Behavioral Economics Can Improve Patient Decisions About Lung Cancer Screening
Lung cancer can be deadly, so early detection and treatment are important. When a patient is at risk for lung cancer due to her age and history of smoking, she and her physician have to make important decisions about how and when to screen for lung cancer.
Low-dose computed tomography (LDCT) is recommended for smokers, but a doctor and patient need to work together to decide if this type of lung cancer screening is right for the patient. Because the decision is complex and the stakes are high, some cognitive biases can interfere with a patient’s ability to make good choices.
Behavioral economics helps explain how human b...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Behavioral economics Source Type: news
Promising Approaches From Behavioral Economics to Improve Patient Lung Cancer Screening Decisions
This article discusses some of the most relevant biases, and suggests incorporating such knowledge into screening and treatment guidelines and shared decision making best practices to increase the likelihood that such efforts will produce their desired objectives to improve survival and quality of life.
Read More
Reprinted by permission of the Journal of the American College of Radiology (Source: Society for Participatory Medicine)
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Behavioral economics cancer screening lung cancer smoking Source Type: news
Difficult Doctors, Difficult Patients: a Comic for Empathy-Building
People usually don’t have courses in school on empathy: how to be compassionate towards each other. There are some professions, however, where empathy is part of the formal learning process — with health care professionals leading the way, learning how to listen and how to consider the patient’s perspective. This is critical for any context in which doctors and patients need to communicate, but even more so when they seek to collaborate.
But don’t doctors and nurses deserve empathy, too? At the University of Michigan, this was the question we faced: How could we help patients and clinicians find a way towards e...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter bibliotherapy clinician education comics in education consumer health information doctor-patient relations communication Graphic medicine informed consent Patient Communication pictorial work Source Type: news
Difficult Doctors, Difficult Patients: Building Empathy
Effective doctor-patient communication facilitates the therapeutic relationship, promotes patient physical and mental health, and improves physician satisfaction. Methods of teaching effective communication use a range of techniques, typically combining didactic instruction with simulated communication encounters and reflective discussion. Rarely are patients and physicians exposed to these instructions as colearners. The evidence for the utility of graphic stories, comics, and cartoons to improve patient comprehension and self-regulation is small but encouraging. The authors describe the use of graphic medicine as a teach...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter bibliotherapy clinician education comics in education consumer health information doctor-patient relations communication Graphic medicine informed consent Patient Communication pictorial work Source Type: news
JACR Redefines Radiology Health Care Delivery in Tandem With Patients
In a first, a special issue of the Journal of the American College of Radiology (JACR®) explores radiology patient engagement from the patient perspective. Original articles provide valuable insights to help radiologists make the care they provide more patient-centered.
“This issue is a first for the Journal of the American College of Radiology: Patients, caregivers and advocates serve as co-authors or reviewers, in other words, co-producers of meaningful content,” said James V. Rawson, MD, FACR, chair of the American College of Radiology (ACR) Commission on Patient- and Family-Centered Care. “Radiologists ar...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Source Type: news
Radiology and Participatory Medicine
Before I got involved with the American College of Radiology (ACR), the only radiologist I knew well became a radiologist so he didn’t have to speak with patients. In my own considerable imaging experiences as a patient, I don’t think I ever talked with a radiologist. So, my first reaction to patient- and family-centered care (PFCC) for radiologists was to assume it was some sort of oxymoron. Then came my second thought: that if radiologists can engage in effective participatory medicine, anyone can.
As an interested observer of advances in Artificial Intelligence (AI), I also assumed it was only a matter of time befor...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Source Type: news
Message from the SPM President
Joseph Ternullo
Friends,
On January 14th in keeping with its by-laws, the Society for Participatory Medicine installed 2017 leadership.
We:
thank Peggy Zuckerman and Mark Reifsteck, who have left the board,
welcome Judy Danielson and Bruno Nardone to the board,
acknowledge Mandi Bishop and Ken Yale whose board service commenced last fall, and
announce Susan Woods as president-elect.
All are extraordinary professionals who have dedicated their careers to helping others. We are grateful for their service and friendship.
Jonathan Wald, our immediate past president, has strengthened the Society during his tenure as preside...
Source: Society for Participatory Medicine - February 14, 2017 Category: Journals (General) Authors: Nanette Mattox Tags: Newsletter Source Type: news
Board Meeting Minutes, January 10, 2017
Participants: Mandy Bishop, Kyra Bobinet, Judy Danielson, Peter Elias, Nancy Finn, John Grohol, Sarah Krug, Bruno Nardone, Danny Sands, Charlie Smith, Joe Ternullo, Jon Wald, Susan Woods, Ken Yale, Tracy Zervakis, Peggy Zuckerman
Minutes Approved
Introduction of new members (see bios on our website http://participatorymedicine.org/about/board-of-directors/)
Judy Danielson, Marketing and Strategy Executive
Bruno Nardone, MHSA, FACHE senior healthcare strategy, operations and business development executive with Next Gen Healthcare
Susan Woods, President Elect, MD, MPH General Internal medicine and Health Informatics,
Tracy...
Source: Society for Participatory Medicine - February 1, 2017 Category: Journals (General) Authors: Nancy Finn Tags: Board Minutes News Source Type: news
by w4l3XzY3
(Source: Society for Participatory Medicine)
Source: Society for Participatory Medicine - January 25, 2017 Category: Journals (General) Authors: Society for Participatory Medicine Staff Tags: Newsletter e-patients Education empowered patient Help Me Health Source Type: news
