Adapted guided self-help booklets for supporting the well-being of people with intellectual disabilities during the COVID-19 pandemic: an evaluation of impact
Roseann Maguire, Carol Pert, Susannah Baines, Amanda Gillooly, Richard P. Hastings, Chris Hatton, Dave Dagnan, Andrew Jahoda Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- The COVID-19 pandemic meant that it became impossible for many individuals with intellectual disability to access specialist mental health support. The purpose of this study was to evaluate a set of guided self-help resources adapted for delivery on an outreach basis. The use and impact of the resources were evaluated through: data about downloads and requests for printed materials; inte...
Source: Tizard Learning Disability Review - January 20, 2022 Category: Disability Authors: Roseann Maguire Carol Pert Susannah Baines Amanda Gillooly Richard P. Hastings Chris Hatton Dave Dagnan Andrew Jahoda Source Type: research

Commentary on “Adapted guided self-help booklets for supporting the wellbeing of people with intellectual disabilities during the COVID-19 pandemic”
Lisa Richardson Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- The purpose of this paper is to provide a commentary on “Adapted guided self-help booklets for supporting the wellbeing of people with intellectual disabilities during the COVID-19 pandemic” (Jahoda et al.). This paper considers health and wellbeing for people with intellectual disabilities in the context of public health interventions and public health research. Consideration is given to the evidence base for self-management, self-help and behavioural change interventions and the need...
Source: Tizard Learning Disability Review - January 19, 2022 Category: Disability Authors: Lisa Richardson Source Type: research

Commentary on: “Lost in the literature”. People with intellectual disabilities who identify as trans: a narrative review
Tessa-May Zirnsak Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to discuss the barriers that people with intellectual disabilities face to come out as transgender in the context of a paucity of research with or about this group. The commentary and brief overview of trans participation in literature on people with intellectual disabilities presented in this paper is informed by a Queer Theory and Critical disabilities Studies approach. Researchers in this area are correct that there is insufficient literature that addressed the experie...
Source: Tizard Learning Disability Review - December 30, 2021 Category: Disability Authors: Tessa-May Zirnsak Source Type: research

The experiences of adults with learning disabilities in the UK during the COVID-19 pandemic: qualitative results from Wave 1 of the Coronavirus and people with learning disabilities study
Samantha Flynn, Sue Caton, Amanda Gillooly, Jill Bradshaw, Richard P. Hastings, Chris Hatton, Andrew Jahoda, Peter Mulhall, Stuart Todd, Stephen Beyer, Laurence Taggart Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- The purpose of this paper is to present data about the experiences of adults with learning disabilities during the COVID-19 pandemic across the UK. Interviews were conducted with 609 adults with learning disabilities. Family carers and support staff of another 351 adults with learning disabilities completed a proxy online survey. The data were ...
Source: Tizard Learning Disability Review - October 25, 2021 Category: Disability Authors: Samantha Flynn Sue Caton Amanda Gillooly Jill Bradshaw Richard P. Hastings Chris Hatton Andrew Jahoda Peter Mulhall Stuart Todd Stephen Beyer Laurence Taggart Source Type: research

Commentary on “Teaching playground expectations to secondary age students with intellectual disabilities attending a special school”
Kathryn Hewett Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to provide a commentary on the article “Teaching behavioural expectations to secondary age students with intellectual disabilities attending a special school”. The impact on teachers who deal with high levels of behaviours that challenge is explored. The article highlights the importance of proactive, preventative strategies for behaviour management and the need for staff training and support. Teachers working with pupils who engage in high levels of behaviours that...
Source: Tizard Learning Disability Review - October 19, 2021 Category: Disability Authors: Kathryn Hewett Source Type: research

Teaching playground behavioural expectations to secondary age students with intellectual disabilities attending a special school
This article aims to present a case example of teaching and reinforcing behavioural expectations in a special school. This case study reflects different steps and materials used before and during the intervention in a special education school with 61 secondary students with intellectual disabilities. An AB design (A – baseline; B – intervention) was used to collect and analyze data. Results suggest that teaching behavioural expectations as a universal measure may be feasible and positively impact school climate. Suggestions and recommendations for implementing SWPBS within a school are provided. This cas...
Source: Tizard Learning Disability Review - October 19, 2021 Category: Disability Authors: David Sim ó-Pinatella Marisa Carvalho Source Type: research

Including people with intellectual disabilities in the development of their own positive behaviour support plans
James Breeze Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- People with intellectual disabilities are not routinely involved in the assessment of their behaviours that challenge, as this is often completed by a proxy respondent and the health-care professional. This is contrary to guidance stating that everyone should be involved in the planning of their care. This paper aims to show how health-care professionals can support people with intellectual disabilities to engage in the assessment of their behaviours that challenge and the subsequent development of the...
Source: Tizard Learning Disability Review - October 12, 2021 Category: Disability Authors: James Breeze Source Type: research

Commentary on “Including people with intellectual disabilities in the development of their own positive behaviour support plans”
Steven Lee, Kitty Stewart Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- The purpose of this paper is to broaden the discussion on some of the barriers and solutions for co-production in positive behaviour support (PBS) planning as identified in the paper “Including people with intellectual disabilities in the development of their own Positive Behaviour Support Plans”. Drawing on the literature associated with co-production in PBS planning, this commentary will reflect on the wider systems and culture needed to enable successful implementation of this ...
Source: Tizard Learning Disability Review - October 12, 2021 Category: Disability Authors: Steven Lee Kitty Stewart Source Type: research

A logic model of the implementation of a regional workforce strategy in positive behavioural support
Steve Noone, Alison Branch, Melissa Sherring Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- Positive behavioural support (PBS) as a framework for delivering quality services is recognised in important policy documents (CQC, 2020; NICE, 2018), yet there is an absence in the literature on how this could be implemented on a large scale. The purpose of this paper is to describe a recent implementation of a workforce strategy to develop PBS across social care and health staff and family carers, within the footprint of a large integrated care system. A logic mod...
Source: Tizard Learning Disability Review - September 30, 2021 Category: Disability Authors: Steve Noone Alison Branch Melissa Sherring Source Type: research

Commentary on “a logic model for the implementation of a regional workforce strategy in positive behavioural support”
Serena Rose Louisa Tomlinson Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- The purpose of this paper is to provide a commentary on “A logic model for the implementation of a regional workforce strategy in Positive Behavioural Support”. This commentary provides a discussion of the importance of evaluating positive behaviour support (PBS) training and key issues relating to this. This provides a springboard from which researchers/practitioners may consider these issues when designing and evaluating PBS training courses. Three main issues are explor...
Source: Tizard Learning Disability Review - September 27, 2021 Category: Disability Authors: Serena Rose Louisa Tomlinson Source Type: research

Book review
Athanasios Vostanis Tizard Learning Disability Review, Vol. 26, No. 3, pp.180-182 (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - September 21, 2021 Category: Disability Authors: Athanasios Vostanis Source Type: research

Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020
Samantha Flynn, Chris Hatton Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales. Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021 and concerned the use of...
Source: Tizard Learning Disability Review - August 31, 2021 Category: Disability Authors: Samantha Flynn Chris Hatton Source Type: research

A comparison of dementia assessment services for people with intellectual disabilities
Emile Gardner, Sean Slater Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to describe three dementia assessment services for people with intellectual disabilities to provide professionals with insight into planning this type of service. Three services in England were contacted via email and telephone to collect data on their service provision. They were asked about the average age of individuals when receiving a baseline assessment, frequency of follow-up assessment, assessment instruments used and descriptive aspects of their services. ...
Source: Tizard Learning Disability Review - August 25, 2021 Category: Disability Authors: Emile Gardner Sean Slater Source Type: research

The informal culture of a direct care staff team supporting people with intellectual disabilities who present with behaviours that challenge
Faye Banks, Amy Fielden, David O'Sullivan, Barry Ingham Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- Research into culture within intellectual disability services, has predominantly focussed on small group homes in Australia. The current investigation aimed to explore the transferability of the dimensions of culture identified in the literature, to a residential Intellectual Disability service in the UK. The purpose of this study was to better understand the impact of informal culture upon the behaviour of direct care staff, particularly around managing behav...
Source: Tizard Learning Disability Review - August 23, 2021 Category: Disability Authors: Faye Banks Amy Fielden David O'Sullivan Barry Ingham Source Type: research

Commentary on: the informal culture of a direct care staff team supporting people with intellectual disabilities who present with behaviours that challenge
Julie Beadle-Brown Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.- The purpose of this paper is to provide a commentary on Banks et al., and sets the wider context. It provides a brief narrative review of the literature on the factors that determine the quality of life of people with intellectual disabilities, including the impact of culture. Key to ensuring good quality of life outcomes is support that is facilitative, enabling and empowering which can compensate for severity of disability and improve people’s experiences. This approach is called Ac...
Source: Tizard Learning Disability Review - August 20, 2021 Category: Disability Authors: Julie Beadle-Brown Source Type: research