Commentary on "A family's battle to understand 'challenging behaviour'"
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose This paper will provide a commentary on issues raised in the paper ‘A family’s battle to understand ‘challenging behaviour’. Design/methodology/approach Drawing on literature associated with issues identified in the paper this commentary will reflect on the evidence associated with providing specialist support to people with intellectual disabilities an d challenging behaviour. Findings Families, individuals and services are unable to access timely and appropriate specialist support for individuals with intellectual disabilities and chall...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
A family ’s battle to understand ‘challenging behaviour’
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose This is about our son James ’ life. It is a story of misfortune and a battle to find answers in which the greatest enemy was ignorance. Such experiences are not uncommon. It is our hope that sharing this will make some small contribution to bringing about change. Design/methodology/approach We discuss our experiences of ca re placements, and our battle to understand "challenging behaviour". Findings Reflecting upon James’ experiences of the care system it is clear that the system is fragmented and operates in silos that do not work together. D...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
Understanding disability in Nigeria: a commentary on "Country profile: intellectual and developmental disability in Nigeria"
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose The purpose of this paper is to respond to the country report from Nigeria by highlighting the important points that it raises and suggesting further areas for exploration. Design/methodology/approach The authors identify the main themes of the paper and situate these within an African context, recognizing the diversity of African countries while at the same time arguing that it is imperative for African countries to look to research from each other in addition to that emanating from the global North. Findings The issues of terminology and lack of...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
Country profile: intellectual and developmental disability in Nigeria
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose The purpose of this paper is to provide a contextual and general overview of intellectual and developmental disability (IDD) in Nigeria.
Design/methodology/approach The paper uses a chronological approach, providing an assessment of the understanding and treatment of people with IDD from the pre-colonial era to the present. Findings Nigeria has experienced a different historical path in terms of treatment and service provision for people with IDD compared to industrialised and developing countries such as the UK and Brazil. Originality/...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
Commentary on the NICE guidelines and quality standards on learning disabilities and behaviour that challenges: these are children too
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose This paper provides a commentary, from a parent carer perspective, on Murphy ’s overview of the NICE guidelines and quality standards on learning disabilities and behaviour that challenges. Design/methodology/approach The paper discusses the NICE approach, the content of these specific guidelines and quality standards and considers their practical relevance, with a parti cular focus on families of children and young people with learning disabilities and behaviour that challenges. Findings Gaps in research affect recommendations in some key areas...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
The NICE guidelines and quality standards on learning disabilities and behaviour that challenges
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose In 2014, NICE announced it was going to develop its first set of guidelines on learning disabilities. The topic was ‘behaviour that challenges’ and in May 2015 NICE published a full set of guidance (371 pages) covering service user and carer experiences, assessment, risk factors, and interventions for behaviour that challenges. The linked quality standards were published later in 2015. Design/methodology/a pproach This paper summarises the process and the outcomes contained in the Guidance. Findings This paper summarises the process and the ou...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
More than pictures: who sets the agenda for sexuality education for people with learning disabilities?
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose This paper comments on some things raised by ‘More than Pictures’ (Cameron and Matthews (2017). In particular how much people with learning disabilities are involved in research and resource development and how the attitudes of caregivers impacts on how people learn about sexuality.
Design/methodology/approach A commentary based on a brief literature review. Findings • Most published research is written by people who do not have learning disabilities but people with learning disabilities are taking part in research and th...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
More than pictures : developing an accessible resource
Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose This paper describes the process of developing an accessible communication resource which enables people with a learning disability to reflect on their lives and raise issues of concern. Design/methodology/approach The process of making the resource and the facets that contribute to making it accessible are explored, e.g. design specification, the relationship between pictures and meaning, the order in which concepts are presented.
The paper goes on to describe how the resource is put into practice using the format of a 'Talking Mat'. Talking ...
Source: Tizard Learning Disability Review - February 19, 2017 Category: Disability Source Type: research
Learning Disability and Inclusion Phobia: Past, Present and Future
Tizard Learning Disability Review,Volume 22, Issue 1, Page 52-54, January 2017. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
Peaceful, Pain Free and Dignified: Palliative and End of Life Care for People on the Autism Spectrum. A Guide for Social Care Practitioners
Tizard Learning Disability Review,Volume 22, Issue 1, Page 51-51, January 2017. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
Editorial
Tizard Learning Disability Review,Volume 22, Issue 1, Page 1-1, January 2017. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
Living arrangements of adults with learning disabilities across the UK
Tizard Learning Disability Review,Volume 22, Issue 1, Page 43-50, January 2017. Purpose The purpose of this paper is to compare data from national social care statistics on the living situations of people with learning disabilities across England, Scotland, Wales and Northern Ireland. Design/methodology/approach National social care statistics (England, Scotland, Wales, Northern Ireland) reporting the living situations of adults with learning disabilities (residential and nursing care, living with family, other forms of accommodation) were accessed, with data extracted on trends over time and rate of service use. Findin...
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
Commissioning an ordinary life
Tizard Learning Disability Review,Volume 22, Issue 1, Page 38-42, January 2017. Purpose The purpose of this paper is to review the role and ability of commissioners to implement policy and be transformational leaders. Design/methodology/approach The role and ability of commissioners to implement policy is reviewed against the Institute of Public Care ’s Commissioning Cycle and experience of working with commissioners across the UK over the past 29 years. Findings Empowering commissioners to be transformational leaders and enabling them to secure good outcomes for people with learning disabilities will require broadeni...
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
Implementing policy and good practice in services for people with learning disabilities: factors influencing commissioning and service provision
Tizard Learning Disability Review,Volume 22, Issue 1, Page 28-37, January 2017. Purpose The purpose of this paper is to explore the implementation of learning disability (LD) policy among LD commissioners and managers in Kent (South East England) and a neighbouring area. Design/methodology/approach Participants ’ views were elicited by semi-structured interviews focussed on two key national policy documents: Valuing People (DH, 2001) and the Mansell report (DH, 1993; 2007a). Findings Valuing People had a significant impact at the time of publication but initial enthusiasm and impetus faded over time. T he Mansell repo...
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
Intimate relationships and persons with learning disability
Tizard Learning Disability Review,Volume 22, Issue 1, Page 24-27, January 2017. Purpose The purpose of this paper is to provide a commentary on the paper “Supporting people with learning disabilities to make and maintain intimate relationships”. Design/methodology/approach Comparison of the sexual rights of persons with disability, as outlined in the 2006 Convention on the Rights of Persons with Disability, with research on actual policy and pr actice. Findings The sexual expression of persons with learning disability remains suppressed by those in positions of power, such as parents and service providers. Original...
Source: Tizard Learning Disability Review - January 3, 2017 Category: Disability Source Type: research
