Social care for adults with learning disabilities in England: trends over time
Tizard Learning Disability Review,Volume 24, Issue 2, Page 94-100, April 2019. Purpose The purpose of this paper is to examine trends over time in social care usage and expenditure for adults with learning disabilities in England. Design/methodology/approach Returns from councils with social services responsibilities in England concerning social care usage and expenditure were analysed to examine the national picture and trends over time for adults with learning disabilities. Findings In 2017/2018, 147,915 adults with learning disabilities were receiving long-term social care, an increase of 5.7 per cent from 2014/2015....
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

Commentary on “A critical reflection on the development of the Participatory Autism Research Collective (PARC)”
Tizard Learning Disability Review,Volume 24, Issue 2, Page 90-93, April 2019. Purpose The purpose of this paper is to explore the wider impact of participatory research (PR) on the autistic academic, families and caregivers, and the researcher. Design/methodology/approach This commentary considers participatory methods from the perspective of an autistic female with experience on both sides of PR. Findings The positive aspects of PR outweigh the potential challenges faced, both by the researchers and the participants. Participatory methods are likely to increase the attractiveness of the research to participants. Origi...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

A critical reflection on the development of the Participatory Autism Research Collective (PARC)
Tizard Learning Disability Review,Volume 24, Issue 2, Page 82-89, April 2019. Purpose The Participatory Autism Research Collective (PARC) was initially set up with the purpose of bringing autistic people, including scholars and activists (but not exclusively), together with early career researchers and practitioners who work with autistic people, with the aim being to build a community where those who wished to see more significant involvement of autistic people in autism research could share knowledge and expertise. This paper aims to discuss this issue. Design/methodology/approach This paper explores the development of...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

Commentary on “Thinking differently? Autism and quality of life”
Tizard Learning Disability Review,Volume 24, Issue 2, Page 77-81, April 2019. Purpose The purpose of this paper is to describe the possible impact of normalisation on the perceptions of quality of life (QoL) and the impact of this association on the research to date. This commentary reflects on the implications of limiting QoL research to autistic people who are perceived to be “more able”. Design/methodology/approach This commentary discusses the implications of undertaking QoL research in the field of autism. Findings This commentary argues for further consideration of the autistic voice in QoL research. Researche...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

Thinking differently? Autism and quality of life
This study demonstrated that it is possible to access views from this group and that these views are nuanced. It suggests differences between reported QoL in people with learning disabilities who are and who are not autistic. Service design and individual approaches could be improved by a better understanding of these differences. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

Commentary on “The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on”
Tizard Learning Disability Review,Volume 24, Issue 2, Page 64-67, April 2019. Purpose The purpose of this paper is to consider the needs of children and young people with an intellectual disability and behaviours described as challenging in light of the article “The Ealing Intensive Therapeutic and Short Breaks service: An Update Five Years On”. Design/methodology/approach Contemporary literature associated with the provision of support to children and young people with an intellectual disability and behaviours described as challenging is considered. Some of the recent challenges associated with the provision of effe...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on
Tizard Learning Disability Review,Volume 24, Issue 2, Page 56-63, April 2019. Purpose The purpose of this paper is to present an update on the Ealing Intensive Therapeutic and Short Breaks Service (ITSBS). Design/methodology/approach The challenges the service has faced are reviewed, including the service ’s response to those challenges. Also provided is a more detailed analysis of the outcomes of the service. Findings The ITSBS continues to succeed in supporting young people with intellectual disabilities and challenging behaviour to stay at home with their families. Originality/value Despite considerable challenges...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

Specialist community teams for adults with learning disabilities: referrals to a countywide service in England
Tizard Learning Disability Review,Volume 24, Issue 2, Page 41-49, April 2019. Purpose While “generic” community teams for adults with learning disabilities (CTs) are well-established in the UK, very little recent evidence is available about any aspect of their work. As part of a larger project about the role, structure and functioning of CTs, the purpose of this paper is to provide dat a about referrals. Design/methodology/approach Over three months, the authors obtained data about 270 consecutive new referrals to five CTs in a countywide integrated health (NHS) and care management (local authority) service. Finding...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research

Longcare Survivors: The Biography of a Care Scandal
Tizard Learning Disability Review,Volume 24, Issue 1, Page 38-39, March 2019. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - March 4, 2019 Category: Disability Source Type: research

Community services and transforming care: reflections and considerations
Tizard Learning Disability Review,Volume 24, Issue 1, Page 33-37, March 2019. Purpose The purpose of this paper is to consider the existing evidence base regarding community services for people with learning disabilities in the context of transforming care (TC). Design/methodology/approach Reflections and commentary on the provision of community services for people with learning disabilities following Washington et al. ’s article on admissions and discharges from assessment and treatment units in England. Findings The existing evidence base pertaining to community learning disability teams in the UK is dated, sparse a...
Source: Tizard Learning Disability Review - March 4, 2019 Category: Disability Source Type: research

Longcare Survivors: The Biography of a Care Scandal
Tizard Learning Disability Review,Volume 24, Issue 1, Page 38-39, March 2019. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - March 4, 2019 Category: Disability Source Type: research

Community services and transforming care: reflections and considerations
Tizard Learning Disability Review,Volume 24, Issue 1, Page 33-37, March 2019. Purpose The purpose of this paper is to consider the existing evidence base regarding community services for people with learning disabilities in the context of transforming care (TC). Design/methodology/approach Reflections and commentary on the provision of community services for people with learning disabilities following Washington et al. ’s article on admissions and discharges from assessment and treatment units in England. Findings The existing evidence base pertaining to community learning disability teams in the UK is dated, sparse a...
Source: Tizard Learning Disability Review - March 4, 2019 Category: Disability Source Type: research

Commentary: the internet, social media, relationships and sex
Tizard Learning Disability Review, Ahead of Print. Purpose The purpose of this paper is to use Bates ’ paper as a springboard to consider the potential impact of the internet on the personal and intimate lives of people with learning disabilities including opportunities to gain support. Design/methodology/approach Key literature is reviewed alongside the author’s experiences in working with p eople with learning disabilities on sexual issues. Findings The literature prioritises internet safety for people with learning disabilities. There is limited attention to how people can be supported to use social media to enha...
Source: Tizard Learning Disability Review - February 20, 2019 Category: Disability Source Type: research

Supported Loving – developing a national network to support positive intimate relationships for people with learning disabilities
Tizard Learning Disability Review, Ahead of Print. Purpose The purpose of this paper is to outline the work of the Supported Loving Network from its origin in academic research to the practical development of a national Network supporting relationships for people with learning disabilities. Design/methodology/approach First, the need for the Network is established through a review of the research literature. The paper goes on to critically discuss the Network ’s progress to date including its limitations and difficulties encountered, concluding by considering plans for future growth and development. Findings There is ...
Source: Tizard Learning Disability Review - January 17, 2019 Category: Disability Source Type: research