Making the world a better place: achieving impact through innovation and an entrepreneurial ethos
John Pepin
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to describe and evaluate the programme of philanthropy arising from the work of the Shirley Foundation, with particular reference to its impact in addressing issues related to autism.
The paper is based on the 2017 evaluation of The Shirley Foundation 1996–2016 by Aperio Group (Europe) Limited entitled 20 Years of Grant Making Autism and Information Technology: An Overview of The Foundation’s Impact (Pepin, 2017). The evaluation included interviews with Dame Stephani...
Source: Tizard Learning Disability Review - August 20, 2021 Category: Disability Authors: John Pepin Source Type: research
The informal culture of a direct care staff team supporting people with intellectual disabilities who present with behaviours that challenge: commentary
Julie Beadle-Brown
Tizard Learning Disability Review, Vol. 26, No. 3, pp.169-173
The purpose of this paper is to provide a commentary on Banks et al. and sets the wider context.
It provides a brief narrative review of the literature on the factors that determine the quality of life of people with intellectual disabilities, including the impact of culture.
Key to ensuring good quality of life outcomes is support that is facilitative, enabling and empowering which can compensate for severity of disability and improve people’s experiences. This approach is called Active Support. Improv...
Source: Tizard Learning Disability Review - August 17, 2021 Category: Disability Authors: Julie Beadle-Brown Source Type: research
The experience of COVID-19 “lockdown” for people with a learning disability: results from surveys in Jersey and Guernsey
Sinead Peacock-Brennan, Kitty Stewart, Rosalind Jayne Angier, Julian Morris, Rachel Rud, Thomas Byrom
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to outline a service evaluation that gathered feedback from people with a learning disability on their experience of lockdown in Jersey and Guernsey. This feedback was intended to guide planning for service provision during any future lockdown and for life as we exit lockdown.
An accessible survey was sent to everyone accessing learning disability services across the two islands an...
Source: Tizard Learning Disability Review - August 9, 2021 Category: Disability Authors: Sinead Peacock-Brennan
Kitty Stewart
Rosalind Jayne Angier
Julian Morris
Rachel Rud
Thomas Byrom Source Type: research
Commentary on: a comparison of dementia assessment service provision across three English county intellectual disability services
Karen Dodd
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to consider the issue of types of assessment offered by services for people with learning disabilities from the research study “A Comparison of Dementia Assessment Services for People with Intellectual Disabilities”.
The commentary is based on a review of the associated literature.
Assessment for possible dementia is a complex activity. The gold standard is to ensure that the assessment process is comprehensive including both direct assessments with the person a...
Source: Tizard Learning Disability Review - August 9, 2021 Category: Disability Authors: Karen Dodd Source Type: research
Commentary on “The experiences of Covid-19 ‘lockdown’ for people with a learning disability: results from surveys in Jersey and Guernsey”
Gemma Rogers
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
This paper aims to consider the experiences of people with intellectual disabilities in relation to the COVID-19 pandemic and subsequent lockdown restrictions.
This commentary reflects on the issues raised by Morris et al., and in the wider literature.
Although there have been some benefits to lockdown for people with intellectual disabilities, mainly they have experienced isolation, increased mental health and well-being challenges, difficulty in accessing services, support and adequate adap...
Source: Tizard Learning Disability Review - August 6, 2021 Category: Disability Authors: Gemma Rogers Source Type: research
Commentary on “Making the world a better place: achieving impact through innovation and an entrepreneurial ethos”
Peter McGill
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to provide a commentary on “Making the world a better place: achieving impact through innovation and an entrepreneurial ethos” written by John Pepin.
The commentary considers the broader role of philanthropy especially with respect to learning disability and autism.
The work of the Shirley Foundation is a good example of the contribution that can be made by philanthropy. Although philanthropy has many critics, it remains one way in which significant change can...
Source: Tizard Learning Disability Review - July 29, 2021 Category: Disability Authors: Peter McGill Source Type: research
Participation of learning disabled people in the parliamentary election of 2019 in the United Kingdom
Elaine James, Chris Hatton, Rob Mitchell
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
Participation of people with learning disabilities in the United Kingdom (UK) Parliamentary Elections has previously been found to be lower than that of non-learning disabled peers. This paper aims to consider whether an intervention to support the right to take part in democratic and political life may result in increased participation rates.
Data were gathered by social workers from 135 learning disabled people about their voter registration and voting in the May 2019...
Source: Tizard Learning Disability Review - June 8, 2021 Category: Disability Authors: Elaine James Chris Hatton Rob Mitchell Source Type: research
Commentary on “Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital”
Mitzi Waltz
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to provide a commentary on the article “Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital”.
This paper considers the wider issue of political participation by persons with disabilities, especially those whose freedom is restricted.
Access to voting rights remains problematic for many disabled people. It is crucial that this basic form of political participation is ensured...
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Mitzi Waltz Source Type: research
Exploring new ways of thinking about and developing staff practice: the role of modes of thinking
Roy Deveau, John Ockenden, Petra Björne
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
Nobel Prize winner Daniel Kahneman’s work on modes of “thinking” provides a comprehensive text which is little explored in respect of work with people who have an intellectual or developmental disability. This paper aims to explore the potential of this work to change staff development and practice.
Key themes from Thinking Fast, and Slow (Kahneman, 2011) are described and applied to current staff practice.
Modes of thinking are relevant and important to unde...
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Roy Deveau John Ockenden Petra Bj örne Source Type: research
Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel
Rachel Forrester-Jones
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
Amongst other actions the Care Act 2014 emphasised the duties of local authorities (LA) to assess the needs of carers, as well as those they care for and to meet all eligible needs for support. This paper aims to report the findings of a study which explored the experiences of older carers of people with learning disabilities as they navigated LA assessment processes and personnel.
Using an explorative design, 21 older carers were interviewed about their experiences. Interview transcript...
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Rachel Forrester-Jones Source Type: research
Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital
This study demonstrates that it is possible to support significant numbers of autistic and learning disabled patients in a psychiatric hospital to register for and vote in a parliamentary election. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Richard Armstrong Source Type: research
Commentary on “Exploring new ways of thinking about and developing staff practice: the role of modes of thinking”
Lex Wijnroks
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to provide a commentary on “Exploring new ways of thinking about and developing staff practice: the role of modes of thinking” written by Roy Deveau, John Ockenden and Petra Bjorne.
The commentary considers the consistency of Kahneman’s model of thinking fast and slow with brain research.
The thinking styles of staff undoubtedly influence their responses to people with learning disabilities. Although Kahneman’s model provides a heuristic approach to tackli...
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Lex Wijnroks Source Type: research
Commentary on “Participation of learning disabled people in the parliamentary election of 2019 in the United Kingdom”
Matthew Potocnik
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to provide a commentary on the article ‘‘Participation of Learning Disabled People in the Parliamentary Election of 2019 in the United Kingdom’’.
Personal experience of advocating in Australia for the rights of people with learning disabilities to vote and to receive the necessary support to do so.
People with learning disabilities have persistently been excluded from political participation. This is an abuse of their human rights.
There are many ...
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Matthew Potocnik Source Type: research
Commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel”
Valerie Gant
Tizard Learning Disability Review, Vol. ahead-of-print, No. ahead-of-print, pp.-
The purpose of this paper is to provide a commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel” written by Rachel Forrester-Jones.
This commentary considers the experiences of older carers in the context of research, legislative and policy changes over the past 30+ years.
The needs of older carers of adults with learning disabilities are well recognised within the (limited) literature. Less attention ha...
Source: Tizard Learning Disability Review - June 1, 2021 Category: Disability Authors: Valerie Gant Source Type: research
What are the experiences of professionals working with parents with learning disabilities? A meta-ethnography
Agnieszka Pytlowana, Biza Stenfert Kroese
Tizard Learning Disability Review, Vol. 26, No. 1, pp.14-27
It has been recommended that social, health and other relevant professionals work collaboratively to support parents with learning disabilities (LD) and their children. A number of qualitative studies have investigated the experiences of professionals who work with parents with LD. A synthesis of these experiences has not as yet been produced, and therefore, the purpose of this paper is to review how professionals experience working with parents with LD to inform practice guidelines on how pare...
Source: Tizard Learning Disability Review - March 1, 2021 Category: Disability Authors: Agnieszka Pytlowana Biza Stenfert Kroese Source Type: research
