Commentary on “The experiences of older carers of people with learning disabilities: ‘I just carry on with it’”
Jan Sunman
Tizard Learning Disability Review, Vol. 26, No. 1, pp.58-62
The purpose of this paper is to provide a commentary on the article by Rachel Forrester-Jones on the experiences of older carers of people with learning disabilities.
The commentary reflects on the themes identified in the original article, comparing its findings to the lived experiences of those taking part in older carers’ projects in Oxfordshire, England.
Similar broad themes were identified in both samples. Given these findings, the extent to which matters have changed, since the Valuing People work on older ...
Source: Tizard Learning Disability Review - February 22, 2021 Category: Disability Authors: Jan Sunman Source Type: research
The experiences of older carers of people with learning disabilities: “I just carry on with it”
This study aims to explore the experiences of older carers of people with LD.
In total, 16 interviews with older carers were carried out and analysed qualitatively.
Three main themes emerged from the data: “transition to retirement is a misnomer”; “impact of caring role”; and “fears for the future”.
Previous studies have not focussed on the specific experiences of “older” carers and their situation risks going unnoticed. Their experiences should be acknowledged by services and society and meaningful support provided. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - February 22, 2021 Category: Disability Authors: Rachel Forrester-Jones Source Type: research
Commentary on “What are the experiences of professionals working with parents with learning disabilities? A meta-ethnography”
Gillian MacIntyre, Ailsa Stewart
Tizard Learning Disability Review, Vol. 26, No. 1, pp.28-33
The purpose of this paper is to provide a commentary on Pytlowana and Stenfert Kroese’s article on the experiences of professionals working with parents with learning disabilities by exploring challenges and good practice in this area.
Key areas of practice were identified for further exploration by drawing on research studies with parents with learning disabilities.
While there is growing evidence of good practice around working with parents with learning disabilities, a number of challenge...
Source: Tizard Learning Disability Review - February 22, 2021 Category: Disability Authors: Gillian MacIntyre Ailsa Stewart Source Type: research
Building capable environments using practice leadership
Linda Hume, Nadia Khan, Martin Reilly
Tizard Learning Disability Review, Vol. 26, No. 1, pp.1-8
The purpose of this paper is to outline the development and piloting of a training intervention for social care staff that uses a capable environments framework to improve the quality of staff support.
A single case study was used to evaluate changes in the quality of staff support and in levels of engagement and challenging behaviour for one of the individuals supported.
The case study demonstrates the usefulness of the capable environments framework as a model for training and development...
Source: Tizard Learning Disability Review - February 22, 2021 Category: Disability Authors: Linda Hume Nadia Khan Martin Reilly Source Type: research
Commentary on “De-fusing and re-fusing face-to-face encounters involving autistic persons in Hong Kong”
Karl Nunkoosing
Tizard Learning Disability Review, Vol. 26, No. 1, pp.43-47
The purpose of this paper is to provide a commentary on Alex Cockain’s article “De-fusing and re-fusing face-to-face encounters involving autistic persons in Hong Kong”.
The commentary considers the issues raised in Cockain’s article primarily from a focus on Goffman’s concept of “stigma”. Cognitive, emotional and behavioural components of stigma are examined and its wider relevance considered.
There has been less research on the stigma of learning disability than on that of mental health, despit...
Source: Tizard Learning Disability Review - February 2, 2021 Category: Disability Authors: Karl Nunkoosing Source Type: research
De-fusing and re-fusing face-to-face encounters involving autistic persons in Hong Kong
This article documents accounts of the tactics parents and siblings of autistic persons in Hong Kong deploy to manage social encounters. This article aims to consider the impact of such tactics and their enmeshment with factors that combine to limit satisfactory outcomes and outlines a project intent upon contriving dialogue between persons.
This qualitative project elicited stories and accounts (or narratives) produced by persons involved in encounters involving autistic persons. This project also intervened in these encounters.
Persons involved in social encounters are de-fused, in the sense of being disconnect...
Source: Tizard Learning Disability Review - February 2, 2021 Category: Disability Authors: Alex Cockain Source Type: research
Commentary on “Building capable environments using practice leadership”
Edwin Jones
Tizard Learning Disability Review, Vol. 26, No. 1, pp.9-13
This paper aims to present a conceptual viewpoint highlighting the utility of active support in implementing capable environments and to extend this by presenting a three-tiered preventative model of positive behavioural support (PBS) in UK health and social care.
Provision of a commentary on “Building capable environments using practice leadership” by Linda Hume, Nadia Khan and Martin Reilly.
Capable environments and active support should be key, universal and essential PBS tier one supports in UK health and s...
Source: Tizard Learning Disability Review - February 2, 2021 Category: Disability Authors: Edwin Jones Source Type: research
Social care for adults with learning disabilities in England: trends over time
Tizard Learning Disability Review,Volume 24, Issue 2, Page 94-100, April 2019. Purpose The purpose of this paper is to examine trends over time in social care usage and expenditure for adults with learning disabilities in England. Design/methodology/approach Returns from councils with social services responsibilities in England concerning social care usage and expenditure were analysed to examine the national picture and trends over time for adults with learning disabilities. Findings In 2017/2018, 147,915 adults with learning disabilities were receiving long-term social care, an increase of 5.7 per cent from 2014/2015....
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
Commentary on “A critical reflection on the development of the Participatory Autism Research Collective (PARC)”
Tizard Learning Disability Review,Volume 24, Issue 2, Page 90-93, April 2019. Purpose The purpose of this paper is to explore the wider impact of participatory research (PR) on the autistic academic, families and caregivers, and the researcher. Design/methodology/approach This commentary considers participatory methods from the perspective of an autistic female with experience on both sides of PR. Findings The positive aspects of PR outweigh the potential challenges faced, both by the researchers and the participants. Participatory methods are likely to increase the attractiveness of the research to participants. Origi...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
A critical reflection on the development of the Participatory Autism Research Collective (PARC)
Tizard Learning Disability Review,Volume 24, Issue 2, Page 82-89, April 2019. Purpose The Participatory Autism Research Collective (PARC) was initially set up with the purpose of bringing autistic people, including scholars and activists (but not exclusively), together with early career researchers and practitioners who work with autistic people, with the aim being to build a community where those who wished to see more significant involvement of autistic people in autism research could share knowledge and expertise. This paper aims to discuss this issue. Design/methodology/approach This paper explores the development of...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
Commentary on “Thinking differently? Autism and quality of life”
Tizard Learning Disability Review,Volume 24, Issue 2, Page 77-81, April 2019. Purpose The purpose of this paper is to describe the possible impact of normalisation on the perceptions of quality of life (QoL) and the impact of this association on the research to date. This commentary reflects on the implications of limiting QoL research to autistic people who are perceived to be “more able”. Design/methodology/approach This commentary discusses the implications of undertaking QoL research in the field of autism. Findings This commentary argues for further consideration of the autistic voice in QoL research. Researche...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
Thinking differently? Autism and quality of life
This study demonstrated that it is possible to access views from this group and that these views are nuanced. It suggests differences between reported QoL in people with learning disabilities who are and who are not autistic. Service design and individual approaches could be improved by a better understanding of these differences. (Source: Tizard Learning Disability Review)
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
Commentary on “The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on”
Tizard Learning Disability Review,Volume 24, Issue 2, Page 64-67, April 2019. Purpose The purpose of this paper is to consider the needs of children and young people with an intellectual disability and behaviours described as challenging in light of the article “The Ealing Intensive Therapeutic and Short Breaks service: An Update Five Years On”. Design/methodology/approach Contemporary literature associated with the provision of support to children and young people with an intellectual disability and behaviours described as challenging is considered. Some of the recent challenges associated with the provision of effe...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on
Tizard Learning Disability Review,Volume 24, Issue 2, Page 56-63, April 2019. Purpose The purpose of this paper is to present an update on the Ealing Intensive Therapeutic and Short Breaks Service (ITSBS). Design/methodology/approach The challenges the service has faced are reviewed, including the service ’s response to those challenges. Also provided is a more detailed analysis of the outcomes of the service. Findings The ITSBS continues to succeed in supporting young people with intellectual disabilities and challenging behaviour to stay at home with their families. Originality/value Despite considerable challenges...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
Specialist community teams for adults with learning disabilities: referrals to a countywide service in England
Tizard Learning Disability Review,Volume 24, Issue 2, Page 41-49, April 2019. Purpose While “generic” community teams for adults with learning disabilities (CTs) are well-established in the UK, very little recent evidence is available about any aspect of their work. As part of a larger project about the role, structure and functioning of CTs, the purpose of this paper is to provide dat a about referrals. Design/methodology/approach Over three months, the authors obtained data about 270 consecutive new referrals to five CTs in a countywide integrated health (NHS) and care management (local authority) service. Finding...
Source: Tizard Learning Disability Review - May 16, 2019 Category: Disability Source Type: research
