Commentary on the NICE guidelines and quality standards on learning disabilities and behaviour that challenges: these are children too

Tizard Learning Disability Review,Volume 22, Issue 2, April 2017. Purpose This paper provides a commentary, from a parent carer perspective, on Murphy ’s overview of the NICE guidelines and quality standards on learning disabilities and behaviour that challenges. Design/methodology/approach The paper discusses the NICE approach, the content of these specific guidelines and quality standards and considers their practical relevance, with a parti cular focus on families of children and young people with learning disabilities and behaviour that challenges. Findings Gaps in research affect recommendations in some key areas including around transition and early intervention. Risk factors are not linked to clear recommendations for early ident ification and prevention. For families, additional work is needed to highlight where these guidelines fit with related national law and policies. Families also need to see how the guidelines can positively influence commissioners to improve life outcomes and avoid crises and deterioration in behavio ur. Although NICE guidelines are often condition-specific, many of our children and young people have co-existing conditions and so do not fit neatly into just one set of guidelines. That is why data collection is very important to understanding needs and to effective commissioning. There is a need to urgently identify and address the research gaps so that essential interventions are included in future NICE guidelines and standards. Original...
Source: Tizard Learning Disability Review - Category: Disability Source Type: research