Recently diagnosed at 31
Hi! My name is Krystin, I'm 31 with two kids and here's my story.
December 2012, I was at the beach enjoying myself in a hot tub. Two days later, I started coughing. Productive coughing. I assumed it was bronchitis and went along with my life for 6 weeks assuming it would go away on its own and not wanting unnecessary antibiotics. I broke a rib coughing, so it forced me to the doctor. Diagnosed with bacterial bronchitis and sent home with antibiotics. Nothing. Called the doctor telling them the cough was still present. Stronger antibiotics. Nothing. New doctor, new visit and given 2 antibiotic injections in my booty, stero...
Source: Cystic Fibrosis Newly Diagnosed Forum - July 13, 2015 Category: Respiratory Medicine Authors: Krysm3 Tags: Newly Diagnosed Source Type: forums
CFTR modulation for those with TWO copy's of DDF508?
OK me and my doc has talked about it and he said that i would be good for the new drug for the new gene therapy for the f508 dose anyone on here know anything about it if so please help me i cant find much online about it it kinda scars(VEST) me i have a wife and a 4 year old step son and i know what i was told was i could add years to my life witch is good but i am just scared a little bit so please help thanks so much and if you want to send it to me privet message to thanks again (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 12, 2015 Category: Respiratory Medicine Authors: Kris Salmons Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums
twins
Hi ladies. Just wondering is there any females with cf that had twins. How was the pregnancy for you? Feedback would be really appreciated. I'm so excited but also so anxious and worried about a lot a things.
Thank you in advance :-) (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - July 9, 2015 Category: Respiratory Medicine Authors: alfie Tags: Pregnancy Source Type: forums
Exercise or Albuteral - Similar Effects
Interesting article on the benefits of exercise for CFers. It contains links to recent research comparing moderate exercise to the effects of albuteral. One of the things I found most interesting though was the researchers recommendations for moderate exercise compared to light exercise or intense workouts. Bottom line seems to point to improved longevity, increased lung function and increase quality of life when your lifestyle includes sustained moderate exercise. Be sure to click on the research links for interesting info.
http://cysticfibrosisnewstoday.com/2...enjoying-life/ (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - July 6, 2015 Category: Respiratory Medicine Authors: Gammaw Tags: Exercise & Fitness Source Type: forums
CF workout/running clothing
Our very own CFer Emily Schaller runs the Rock CF foundation and has some pretty cool "workout" shirts and pants for sale! Along with other novelty items like hats, mugs and water bottles. Check it out http://rockcf.storenvy.com
I love this one!
h/
Check the website for more colors. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - July 5, 2015 Category: Respiratory Medicine Authors: beautifulsoul Tags: Exercise & Fitness Source Type: forums
