Freebies.........
I have LOTS (100?) of disposable, sealed in the package, nebulizers for inhalation treatments.
All have the 7 foot hose, and mouthpiece.
They are mostly the acorn, generic kinds but there are some larger 10 cc nebs for things like Colistin that has a larger volume and foams some.
They are the green HUDSON II (2) Updraft nebs..for free.
Also, 10 boxes of 100 One Touch Ultrasoft WHITE color LANCETS for pricking your finger for a blood glucose reading.
100 sterile lancets per box.
The box says:
For use with all OneTouch Penlet & OneTouch UltraSoft brand automatic blood samplers from LifeScan, and most other blood sampli...
Source: Cystic Fibrosis Adults Forum - September 29, 2015 Category: Respiratory Medicine Authors: GoryLori Tags: Adults Source Type: forums
CF or asthama?
So, DS for a couple weeks kept clearing his throat but not really coughing more and not sick...then had a nasty coughing spell after exercising (and also I realized the house was horribly dusty). Dust, vacuumed, and upped his Xopenex to 3x a day, but that's it. Cough had gone away and after the extra dose he hasn't coughed (other than a random passing one and not harsh at all), and the throat clearing has gone almost entirely too. Is that an asthama thing? Or with CF would a cough and throat clearing go away like that with nothing but just adding a Xopenex (no vest, no antibotics, etc?) (It could just be the dust whic...
Source: Cystic Fibrosis Adults Forum - September 28, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums
daily activities for folks that have PFTs in 30's and 40's?
I was just wondering what you all do in your daily lives when your PFTs start hitting the 30-40 percentile? Mine have dropped in this area and have finally had to step away from work because I am just to exhausted, so would love to hear what daily activities you guys do if you could share. (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 27, 2015 Category: Respiratory Medicine Authors: Markus Tags: Adults Source Type: forums
Obamacare and Orkambi
Hi everyone! I am turning 26 in february (I'm off parents insurance) and wanted to know if anyone is on Obamacare and can still get Orkambi? I am having a lot of success with it. Additionally, is anyone on Obamacare and getting covered for pulmozyme, enzymes, TOBI podhaler? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 25, 2015 Category: Respiratory Medicine Authors: Megw212 Tags: Adults Source Type: forums
Obamacare and Orkambi
Hi everyone! I am turning 26 in february (I'm off parents insurance) and wanted to know if anyone is on Obamacare and can still get Orkambi? I am having a lot of success with it. Additionally, is anyone on Obamacare and getting covered for pulmozyme, enzymes, TOBI podhaler? (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - September 25, 2015 Category: Respiratory Medicine Authors: Megw212 Tags: Payment Assistance Resources Source Type: forums
CF Bowel Obstruction Study
This study focuses on cystic fibrosis patients who have complaints of bowel obstruction and constipation. The goal of this study is to see if and how osteopathic manipulative medicine will affect these patientsÂ’ bowel functions. The study is being performed through Touro University. Treatments will take place in Vallejo, CA and in Portola Valley, CA.
What is osteopathic manipulative medicine?
Osteopathic manipulative medicine (OMM) is a hands-on technique of moving and mobilizing tissues of the body to be able to function optimally. In this project, the techniques that will be utilized are gen...
Source: Cystic Fibrosis Alternative Medicine Forum - September 25, 2015 Category: Respiratory Medicine Authors: Sara Modlin Tags: Alternative Medicine Source Type: forums
First step for EU access for Orcambi; 2-5 for gating for Kalydeco
http://investors.vrtx.com/releasedet...leaseID=933178
For our friends across the ocean. Only a first step, I know, but Godspeed in getting the drugs soon. (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 25, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums
So confused....no diagnosis...stop looking?
Looking for confirmation my 8 year old daughter doesn't have cf. Wondering what is going on. Has environmental allergies (as shown on skin tests 2x). Diagnosed with asthma 2 yrs ago due to cough...no wheeze ever. Last school year had bacterial pneumonia in Sept (x-ray at er) and bacterial pneumonia in May (2 night hosp stay). Possible pneumonia in mid June...treated but no x-ray. In past has seen GI for possible reflux and genetics b/c she didn't sweat. Sweating has slowly started and they think possible connective tissue disorder.
Recurrent pneumonias have lead to numerous tests. She's been doing really well sinc...
Source: Cystic Fibrosis Newly Diagnosed Forum - September 24, 2015 Category: Respiratory Medicine Authors: mom2girls Tags: Newly Diagnosed Source Type: forums
cleaning tips
http://www.ivsolutions.com/2015/09/c...cleaning-tips/ (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 24, 2015 Category: Respiratory Medicine Authors: Imogene Tags: Adults Source Type: forums
United health care grant (helps with expenses)
I hear this on the radio today. So I thought I'ld post this. I have no affiliation with them. Thought if it could help someone it would be useful.
http://www.uhccf.org/apply/learn-mor...tion-criteria/ (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - September 23, 2015 Category: Respiratory Medicine Authors: Rebjane Tags: Payment Assistance Resources Source Type: forums
Insurance for Orkambi (GA)
Any Georgia residents on Orkambi via insurance? I am looking to sign up for Obamacare in a few months, so any experiences (bad/good) with GA carriers would be super helpful. Thanks! (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 23, 2015 Category: Respiratory Medicine Authors: cmorgan Tags: Adults Source Type: forums
Achromobacter denitrificans
Hello Group
I was just in the hospital for the first time in 5 years. I use to culture Pseudo but it has been gone for about 5 years. I have also cultured Achromobacter Xylosoxidans since 1992 or so. This time i cultured Achromobacter denitrificans. After some research it seems this is not a nice bug and that it is rare. I know that when I first cultured Xylosoxidans I was also told that is was very very rare.
Has anybody cultured this other bug? I am wondering if it was a mistake or if maybe it has always been misidentified. I do not know but, it is weird that I did not culture Xylosoxidans at all. only the new bug and ...
Source: Cystic Fibrosis Adults Forum - September 23, 2015 Category: Respiratory Medicine Authors: aslong Tags: Adults Source Type: forums
A conversation with my non CF'er
My son is preparing to apply for college soon. He is sorting out what to write for his college essay. He has decided this year that he wants to focus on science; likely start as a Biology major.
He said for his essay he wanted to write about his sister with CF; brainstorming last night. He said he is very interested in genetics because of her. He used the term "Precision Medicine".. I wanted to encourage him to write not just about his sister but about himself..That he has a level of empathy; because of her situation. I actually don't even think he has absorbed all the "emotional" stuff but is ...
Source: Cystic Fibrosis Families Forum - September 22, 2015 Category: Respiratory Medicine Authors: Rebjane Tags: Families Source Type: forums
Please Take A Moment To Read
Hi everyone,
I have a big request for all of you! If you could please take a couple minutes to read this thread I would greatly appreciate it.
I am currently a senior in high school and in order to graduate I have to create a senior project that relates to something powerful in my life. I think most of us can agree on that fact that CF is one of the most impacting/ powerful things in our lives. I want to create a book filled with writings from you guys. I want us to be able to share our story, our CF journey. I'm reaching out to all of you, asking you to do one thing for me. Please write to me. I want to know how CF has i...
Source: Cystic Fibrosis Teenagers and Young People Forum - September 22, 2015 Category: Respiratory Medicine Authors: sheilaaa14191 Tags: Teenagers and Young People Source Type: forums
Welcome to my New Granddaughter
My daughter had a BABY GIRL!! Her name is Sydney Ann she was a couple weeks early but mom and baby doing great!! She was 6lbs and 9 oz she seems so little!! Been a while since we have had a newborn! I feel so blessed she is perfect! Connor is my grandson he is 7 years old he has CF and he could not be happier!! He loves to hold her, rock her and sings to her. But he does not want us to hear so he sings very softly it just melts my heart! (L) pics on my profile!
Connor had a very rough year last year but now he is doing great!! Back to school in 2nd grade and very happy, smart little guy!
because of the rough year Conn...
Source: Cystic Fibrosis Families Forum - September 22, 2015 Category: Respiratory Medicine Authors: Carol H Tags: Families Source Type: forums
