Liquid, tablet or effervescent Zantac for kids?
We use liquid but for various reasons I'm looking to switch and wanted to know thoughts on tablet versus effervescent pills so for Zantac? Anybody's kids use? Are they as effective? Thoughts? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 28, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums
The vest clearance system for sale
I have a system for sale was used for a couple months and is still like new. Comes with unit, charger, hoses, meduim vest, and storage bag. Asking $1500 obo please email me at pntlyn@aol.com if interested. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - August 28, 2015 Category: Respiratory Medicine Authors: Mlcroft Tags: Airway Clearance Techniques Source Type: forums
Not absorbing pills
I've noticed that some of my pills are not getting absorbed at all and ending up in my stools even though I'm taking 6 enzymes. Has anyone else had this issue? Were you able to fix it? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 27, 2015 Category: Nutrition Authors: kenna2 Tags: Nutrition Source Type: forums
Overanalyzing Buggers
So DS is 6 and until about 6 months ago, never had a bugger. What I'm trying to figure out is does this say anything about his CF sinus functioning...He hasn't seemed to have any sinus issues, but I want to make sure what to look for. He smells very easily; never complains of headaches; his nose runs when he throws a fit/cries or during treatment. The buggers are "normal" as far as I can tell (I say as far as I can tell as I think the carriers stuff hits me, as I have very and frequent thick mucus and GI issues, so who knows if my "normal" is really "normal" in that compartment.
So any t...
Source: Cystic Fibrosis Adults Forum - August 27, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums
How to
Does anyone make their own saline solution for nebulizing? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 26, 2015 Category: Respiratory Medicine Authors: Jo-anne Tags: Adults Source Type: forums
Styrofoam Rx boxes
So I searched the old threads, but was wondering if anyone has found a place to "donate" or recycle the styrofoam boxes that pulmozyme is shipped in. I have given away to friends and family, but we get 3 of these suckers a month and my garage in being over run by them! I hate to just throw them in the trash. Any suggestions besides building an igloo with them? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 25, 2015 Category: Respiratory Medicine Authors: 2005CFmom Tags: Adults Source Type: forums
Hill Rom Vest 105 for sale
I have a hill rom vest for sale for $2500.00 It was barely used. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - August 25, 2015 Category: Respiratory Medicine Authors: Lacey Long Tags: Airway Clearance Techniques Source Type: forums
Very sad/strange story here in San Antonio
http://www.ksat.com/news/corpse-taken-from-funeral-home
Julie (25) passed away from complications with cystic fibrosis. Her body was stolen from the funeral home after her service on August 15th. Her poor parents are beside themselves. :( Hoping and praying they find her soon.
Autumn (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 24, 2015 Category: Respiratory Medicine Authors: triples15 Tags: Adults Source Type: forums
Orkambi Journey with 19 y/o Allan Diagnosed at 4 months
I really wasn't sure how to do this. I am the father of Allan. He is a bit shy to post his own thread and definitely not a YouTube video. So here I come. Hope its Ok to start my own thread. You may post in here and ask questions if you wish, if you have CF, a parent of a child with CF or just curious about CF. I am an open book. I can only put in this thread of what my son tells me. He knows this is being done and I do have his consent.
So just a tad bit of background on Allan. He is 19 y/o and he was diagnosed at 4 months old by a Doctor here in Texas.
His Normal FEV1 is usually around 85% on a good day. Had a b...
Source: Cystic Fibrosis Adults Forum - August 24, 2015 Category: Respiratory Medicine Authors: Allansarmy Tags: Adults Source Type: forums
tri verus quad flu shot
Flu shots are available now. I discovered a couple years ago you can get one that covers 3 or 4 strains, but you need to ask for the 4-strain one. Probably a "marketing" gimmick, but figured the broader protection the better.
The "Quadivalent vaccines protect against 4 strains of the flu, A/H3N2, A/H1N1, and 2 strains of influenza B."
The trivalent ones only cover 1 strain of influenza B.
I always call ahead to see if the pharamacy has the quadivalent one.
fwiw (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 23, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums
For people my age
My name is Brandon Justice and I'm from Texas, I'm delF508 homozygous and I'm 20 years old with an Fev1 of 89%. If any of you need someone to talk to, please visit my blog brandoncysticfibrosis.wordpress.com
I give updates on my life, how I stay in shape, and how I went from a downward spiral to the healthiest I've ever been.
If if any of you have blogs I'd love for you to post your URLs here if not please visit mine and feel free to comment.
Thanks y'all. (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - August 23, 2015 Category: Respiratory Medicine Authors: Brandon Justice Tags: Teenagers and Young People Source Type: forums
Good Probiotic?
I use Plexus Pro Bio. It's the best probiotic for combatting thrush and keeping my gut healthy that I've found. Anyone have suggestions? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 22, 2015 Category: Respiratory Medicine Authors: Brandon Justice Tags: Adults Source Type: forums
CrossFit
I'm pretty new to the forums and I know a lot of you don't know me, but take this from someone who has done just about everything airway clearance wise, crossfit is the best method by far. Starting is one of the best decisions I've ever made. Let me know if you have a method you're a strong believer in and take a look at my blog. brandoncysticfibrosis.wordpress.com (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 22, 2015 Category: Respiratory Medicine Authors: Brandon Justice Tags: Adults Source Type: forums
Orkambi Success
I'm delta F508 homozygous, I'm 20 years old with an FEV1 of 89% and it's all thanks to Orkambi. I've been on the drug for 2 years through its clinical trial phase. Trust me everyone, it's a miracle. Diet and exercise and certain health and wellness products along with Orkambi is key to your success. Take a second to run past my blog brandoncysticfibrosis.wordpress.com I started it yesterday so folks who are interested can track my journey and know that Orkambi not only works, it blew away all of my expectations. My lung function has shot up 14 points in 2 years and this is after a steep down trend. The benefits are there a...
Source: Cystic Fibrosis Adults Forum - August 22, 2015 Category: Respiratory Medicine Authors: Brandon Justice Tags: Adults Source Type: forums
Chest pain when breathing deep and coughing
Has anyone experienced sharp chest pain when breathing deep or coughing (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 22, 2015 Category: Respiratory Medicine Authors: Teri Di Biase Mundt Tags: Adults Source Type: forums
