Trial By Error: Action For ME Report on NICE Guidelines; Brian Hughes on Myths About the Guidelines; Michael Sharpe ’ s San Francisco Speech
By David Tuller, DrPH I often feel so far behind in keeping up with developments in this field. Here are a few recent items I wanted to highlight. **********Action For ME’s report on NHS adoption of the new NICE guidelines In October, 2021, after a protracted and highly contentious process, the UK’s National Institute for … Trial By Error: Action For ME Report on NICE Guidelines; Brian Hughes on Myths About the Guidelines; Michael Sharpe’s San Francisco Speech Read More » (Source: virology blog)
Source: virology blog - June 16, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized Action for ME Brian Hughes Michael Sharpe Source Type: blogs
Trial By Error: Claim that CBT Is Safe Is “ Misleading, ” Says Dutch Ad Group
By David Tuller, DrPH In a recent decision, the Advertising Code Foundation in the Netherlands has criticized as “misleading” a statement on the website of the Knowledge Center for Chronic Fatigue (NKCV) touting its treatment approach as “not harmful.” The decision is something of a slap at the NKCV and its co-leader, Professor Hans Knoop, … Trial By Error: Claim that CBT Is Safe Is “Misleading,” Says Dutch Ad Group Read More » (Source: virology blog)
Source: virology blog - June 9, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized CBT Hans Knoop Netherlands Source Type: blogs
Trial By Error: Author Michael Alenyikov on ME and the Writing Life
By David Tuller, DrPH Michael Alenyikov was the first person I knew with ME, or what was then being called CFIDS—chronic fatigue immune disorder syndrome. We met in the mid-1980s in NY—we were younger then!—and we both moved to San Francisco in the 1990s. Michael trained as a clinical psychologist but switched his professional focus … Trial By Error: Author Michael Alenyikov on ME and the Writing Life Read More » (Source: virology blog)
Source: virology blog - June 8, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized Michael Alenyikov writers Source Type: blogs
Trial By Error: A Letter Regarding Inflated Prevalence Rates for Functional Neurological Disorder
By David Tuller, DrPH I have posted previously about how papers on functional neurological disorder (FND) have routinely mis-cited a seminal 2010 study in asserting that the diagnosis is the second-most-common presentation at neurology clinics, with a rate of 16%. In fact, the 2010 study found that only 5.5% had FND, the new name for … Trial By Error: A Letter Regarding Inflated Prevalence Rates for Functional Neurological Disorder Read More » (Source: virology blog)
Source: virology blog - June 5, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized Carson FND functional neurological disorder neurology Stone Source Type: blogs
A Long-Awaited Vaccine
by Gertrud U. Rey Almost sixty years have passed since the initial formalin-inactivated respiratory syncytial virus (RSV) vaccine caused enhanced disease in children when they were subsequently infected with the virus. Since then, RSV has continued to be a substantial public health threat to infants, young children, and older people. Although progress in developing a … A Long-Awaited Vaccine Read More » (Source: virology blog)
Source: virology blog - June 1, 2023 Category: Virology Authors: Gertrud U. Rey Tags: Basic virology Gertrud Rey adjuvant F protein FDA fusion protein GlaxoSmithKline gsk Jason McLellan Pfizer phase III trial pre-fusion F protein pre-fusion spike protein public health respiratory syncytial virus rsv vaccine Source Type: blogs
Trial By Error: Dr Binita Kane on Kids with Long Covid
By David Tuller, DrPH Physician Binita Kane, a lung specialist in Manchester, England, and an Honorary Senior Lecturer at the University of Manchester’s School of Biological Sciences, has been outspoken on the subject of long Covid in children. Her passion about the issue has been fueled by her own daughter’s struggle with prolonged symptoms after … Trial By Error: Dr Binita Kane on Kids with Long Covid Read More » (Source: virology blog)
Source: virology blog - May 31, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized Binita Kane children with long covid Source Type: blogs
Trial By Error: Psychologist Brian Hughes Discusses His New Book, “ A Conceptual History of Psychology ”
By David Tuller, DrPH My friend and colleague Brian Hughes, a professor of psychology at the University of Galway in Ireland, recently published his latest book—“A Conceptual History of Psychology: The Mind Through Time.” Rather than dating the field of psychology to the creation and growth of university departments of psychology in the late 19th … Trial By Error: Psychologist Brian Hughes Discusses His New Book, “A Conceptual History of Psychology” Read More » (Source: virology blog)
Source: virology blog - May 28, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized Source Type: blogs
Trial By Error: Dutch CBT Study for Long Covid Proves that Unblinded Studies with Subjective Outcomes Generate Positive Reports
By David Tuller, DrPH Three years ago, I wrote a blog post about a problematic Dutch study that had been funded by a major health agency and was being led by Hans Knoop, a professor of medical psychology at Amsterdam University Medical Centers. The study sought to test whether a course of cognitive behavior therapy … Trial By Error: Dutch CBT Study for Long Covid Proves that Unblinded Studies with Subjective Outcomes Generate Positive Reports Read More » (Source: virology blog)
Source: virology blog - May 25, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized CBT Knoop Long Covid Netherlands Source Type: blogs
Trial By Error: Questions About the Prevalence of Functional Neurological Disorder and the Research on Hoover ’ s Sign for Functional Leg Weakness
By David Tuller, DrPH(This is a long-ish post. Sorry! It covers two complicated issues. I want to thank an intrepid source for help with this.) I have great sympathy for patients diagnosed with functional neurological disorder (FND). Their symptoms can be seriously disabling and their plight has long been neglected and dismissed by the medical … Trial By Error: Questions About the Prevalence of Functional Neurological Disorder and the Research on Hoover’s Sign for Functional Leg Weakness Read More » (Source: virology blog)
Source: virology blog - May 22, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized FND functional neurological disorder Perez Stone Source Type: blogs
Trial By Error: A Day in the Life of Anil van der Zee
By David Tuller, DrPH It is May 12th–ME International Awareness Day. (Or ME/CFS International Awareness Day if you’re the US Centers for Disease Control and Prevention. In Washington, DC, #MEAction and Body Politic have organized a protest and press conference “to demand bold, urgent governmental action for the millions of people living with myalgic encephalomyelitis … Trial By Error: A Day in the Life of Anil van der Zee Read More » (Source: virology blog)
Source: virology blog - May 12, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized anil van der zee ME Awareness Day Source Type: blogs
Trial By Error: Mt Sinai ’ s David Putrino on Long Covid and Functional Neurological Disorder
By David Tuller, DrPH David Putrino is a neuroscientist and physical therapist at New York’s Mt Sinai Health System, where he is director of rehabilitation innovation. Over the last three years, he has worked extensively with patients experiencing prolonged symptoms after an acute bout of Covid-19, or what has become known as long Covid (LC). … Trial By Error: Mt Sinai’s David Putrino on Long Covid and Functional Neurological Disorder Read More » (Source: virology blog)
Source: virology blog - May 4, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized FND Mt Sinai Putrino Source Type: blogs
There Is Something to Be Gained From Gain of Function Experiments
by Gertrud U. Rey In recent years, the phrase “gain of function” and its abbreviation “GoF” have attained a sinister connotation that is coupled with a general mistrust toward scientists who engage in this type of experimentation. This public perception is grounded in a basic misunderstanding of what constitutes GoF and a lack of appreciation … There Is Something to Be Gained From Gain of Function Experiments Read More » (Source: virology blog)
Source: virology blog - May 4, 2023 Category: Virology Authors: Gertrud U. Rey Tags: Basic virology Gertrud Rey gain of function GOF host range loss of function mutation pandemic passaging pathogenicity risky spillover transmission virulence Source Type: blogs
Trial By Error: “ Long Haul ” Author Ryan Prior on Why Long Covid Is a “ Political ” Term and Related Stuff
By David Tuller, DrPH Last month, The Nation published a wide-ranging overview of the impact of long Covid on the United States by Fiona Lowenstein and Ryan Prior. Called The Long Covid Revolution, the article proposed a number of steps for addressing the fallout and highlighted the critical role of grass-roots patient movements in pushing … Trial By Error: “Long Haul” Author Ryan Prior on Why Long Covid Is a “Political” Term and Related Stuff Read More » (Source: virology blog)
Source: virology blog - May 1, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized ryan prior Source Type: blogs
Trial By Error: Dutch Agency Awards Big Biomedical ME/CFS Grant to Judith Rosmalen, Professor of Psychosomatic Medicine
By David Tuller, DrPH*April is crowdfunding month at UC Berkeley. If you like my work, consider making a tax-deductible donation to Berkeley’s School of Public Health to support the Trial By Error project: https://crowdfund.berkeley.edu/project/37217 On Tuesday, ZonMw announced the first grant recipients in its program of “biomedical research on ME/CFS”—the initial round of awards from the … Trial By Error: Dutch Agency Awards Big Biomedical ME/CFS Grant to Judith Rosmalen, Professor of Psychosomatic Medicine Read More » (Source: virology blog)
Source: virology blog - April 26, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized corsius Netherlands rosmalen ZonMw Source Type: blogs
Trial By Error: Dutch Agency to Announce ME/CFS Research Awards After Committee Resignation of Key Patient Advocate
By David Tuller, DrPH ZonMw is an independent Dutch organization that receives significant government funding for a variety of healthcare-related research projects. On April 25th—tomorrow—it is expected to announce the recipients of €11.6 million in grants for ME/CFS research. This announcement regarding ZonMw’s ME/CFS program is the result of a lengthy process that began ten … Trial By Error: Dutch Agency to Announce ME/CFS Research Awards After Committee Resignation of Key Patient Advocate Read More » (Source: virology blog)
Source: virology blog - April 24, 2023 Category: Virology Authors: David Tuller Tags: Uncategorized Netherlands ZonMw Source Type: blogs
