Kristin’s story: From open heart surgery patient to child life specialist

There’s a saying: “Life’s roughest storms prove the strength in our anchors.” I have faced many storms in my life, and my anchors have grounded me with hope and strength. I was born with complex congenital heart disease. By the time I was 36 hours old, I had been diagnosed with an atrial septal defect (ASD), ventricular septal defect (VSD), double outlet right ventricle, left and right ventricles reversed, dextracardia, mitral valve regurgitation and pulmonary stenosis. For many, this sounds like a long laundry list of defects, but for me and my family it became everyday life. At 10 days old, I underwent my first cardiac catheterization at Boston Children’s Hospital. One week later John Mayer, MD, performed a modified Blalock-Thomas-Taussig (BT) shunt procedure. This provided a temporary fix to increase the oxygen to my blood. At 16 months old, I had my first open heart surgery, once again performed by Mayer. This was considered my “big corrective surgery.” It was a Rastelli procedure, which surgically corrected the ASD, the VSD and the flow of blood to my heart and lungs. After that procedure, I returned to life as a typical toddler. As a child, I knew that my heart was different. I had a scar on my chest, and I went to visit my cardiologist once a year, but this never stopped me. My parents always encouraged me to try something new. I took dance classes, swimming lessons, tried gymnastics and soccer, joined Girl Scouts an...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Heart conditions Our patients’ stories congenital heart disease Heart Center Source Type: news

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Publication date: Available online 20 July 2018Source: The LancetAuthor(s): Fatima Marinho, Valéria Maria de Azeredo Passos, Deborah Carvalho Malta, Elizabeth Barboza França, Daisy M X Abreu, Valdelaine E M Araújo, Maria Teresa Bustamante-Teixeira, Paulo A M Camargos, Carolina Cândida da Cunha, Bruce Bartholow Duncan, Mariana Santos Felisbino-Mendes, Maximiliano Ribeiro Guerra, Mark D C Guimaraes, Paulo A Lotufo, Wagner Marcenes, Patricia Pereira Vasconcelos Oliveira, Marcel de Moares Pedroso, Antonio L Ribeiro, Maria Inês Schmidt, Renato Azeredo TeixeiraSummaryBackgroundPolitical, economic...
Source: The Lancet - Category: General Medicine Source Type: research
Publication date: Available online 20 July 2018Source: American Heart JournalAuthor(s): Nuccia Morici, Fabrizio Oliva, Silvia Ajello, Miriam Stucchi, Alice Sacco, Manlio Gianni Cipriani, Michele De Bonis, Andrea Garascia, Maria Pia Gagliardone, Giulio Melisurgo, Claudio Francesco Russo, Carlo La Vecchia, Maria Frigerio, Federico PappalardoManagement of acute decompensated heart failure (ADHF) patients presenting with cardiogenic shock (CS) is not straightforward, as few data are available from clinical trials. Stabilization before left ventricle assist device (LVAD) or heart transplantation (HTx) is strongly advocated, as ...
Source: American Heart Journal - Category: Cardiology Source Type: research
Yet another company is throwing its hat into the transcatheter aortic valve replacement system (TAVR) market. However, Meril Lifesciences is going a different route than other established firms in the space and is initially targeting emerging markets. Meril has been around for 10 years and has been developing its MyVal TAVR technology for about six of those. The company’s success in TAVR lies around the fact that larger organizations don’t consider emerging markets as the first option. The company said it would seek out approval in India first and eventually make its way to developed markets. “We are posi...
Source: MDDI - Category: Medical Devices Authors: Tags: Cardiovascular Business Source Type: news
Ruud H. Knols, Nicolas Fischer, Dario Kohlbrenner, Anastasios Manettas, Eling D. de Bruin
Source: Frontiers in Physiology - Category: Physiology Source Type: research
See something of interest? Please share our postings with colleagues in your institutions! Spotlight The MAReport: Check out the Spring 2018 issue of the MAReport newsletter! This quarter, Academic Coordinator Elaina Vitale talked about using evidence-based resources to improve citations on Wikipedia, and her experience with NNLM’s first virtual Wikipedia Edit-a-thon. National Network of Libraries of Medicine News Dementia and Alzheimer’s Services @ Your Library – Midwest Matters, from GMR The next round of PubMed for Librarians begins August 29. Register for any (or all) of the PML classes to learn ...
Source: NN/LM Middle Atlantic Region Blog - Category: Databases & Libraries Authors: Tags: Weekly Postings Source Type: news
FRIDAY, July 20, 2018 (American Heart Association) -- Emergency room visits for atrial fibrillation are soaring. Added to the number of people admitted to the hospital for the condition, it's contributing to " an alarming growth " in its economic...
Source: Drugs.com - Daily MedNews - Category: General Medicine Source Type: news
Investors in Tendyne Holdings yesterday sued Abbott (NYSE:ABT) over a $50 million milestone payment, alleging that the healthcare giant dragged its heels on obtaining a regulatory approval that would have triggered a $50 million milestone payment. Abbott in September 2015 paid $225 million up front for the stake it didn’t already own in Roseville, Minn.-based Tendyne, which was developing a transcatheter replacement mitral valve. The deal also included a $50 million milestone provision contingent on the device winning CE Mark approval in the European Union before Dec. 31, 2017, and that ...
Source: Mass Device - Category: Medical Devices Authors: Tags: Legal News Mergers & Acquisitions Replacement Heart Valves Abbott Tendyne Holdings Source Type: news
Conditions:   Atrial Fibrillation;   Catheter Ablation;   Autonomic Imbalance Interventions:   Device: Low-level Pulsed EMF;   Device: Sham Stimulation Sponsor:   Daniel Sohinki Not yet recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
CONCLUSION: Congenital heart diseases in adults seem underestimated in our countries. Surgical repair is rare. It is necessary to ensure a good management of the transition between pediatric and adult age. PMID: 28506578 [PubMed - as supplied by publisher]
Source: Annales de Cardiologie et d'Angeiologie - Category: Cardiology Authors: Tags: Ann Cardiol Angeiol (Paris) Source Type: research
Time limit: 0 Quiz-summary 0 of 30 questions completed Questions: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 Information This new test series requires ...
Source: Cardiophile MD - Category: Cardiology Authors: Tags: Cardiology Cardiology MCQ DM / DNB Cardiology Entrance Featured Source Type: blogs
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