Kristin’s story: From open heart surgery patient to child life specialist

There’s a saying: “Life’s roughest storms prove the strength in our anchors.” I have faced many storms in my life, and my anchors have grounded me with hope and strength. I was born with complex congenital heart disease. By the time I was 36 hours old, I had been diagnosed with an atrial septal defect (ASD), ventricular septal defect (VSD), double outlet right ventricle, left and right ventricles reversed, dextracardia, mitral valve regurgitation and pulmonary stenosis. For many, this sounds like a long laundry list of defects, but for me and my family it became everyday life. At 10 days old, I underwent my first cardiac catheterization at Boston Children’s Hospital. One week later John Mayer, MD, performed a modified Blalock-Thomas-Taussig (BT) shunt procedure. This provided a temporary fix to increase the oxygen to my blood. At 16 months old, I had my first open heart surgery, once again performed by Mayer. This was considered my “big corrective surgery.” It was a Rastelli procedure, which surgically corrected the ASD, the VSD and the flow of blood to my heart and lungs. After that procedure, I returned to life as a typical toddler. As a child, I knew that my heart was different. I had a scar on my chest, and I went to visit my cardiologist once a year, but this never stopped me. My parents always encouraged me to try something new. I took dance classes, swimming lessons, tried gymnastics and soccer, joined Girl Scouts an...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Heart conditions Our patients’ stories congenital heart disease Heart Center Source Type: news

Related Links:

VISCERAL fat is a type of body fat that surrounds your organs and can lead to serious health problems such as heart disease. So how can you get rid of it?
Source: Daily Express - Health - Category: Consumer Health News Source Type: news
OBJECTIVE: Native Americans (NAs) have worse healthcare outcomes over some measures than non-Native Americans (non-NAs) (i.e., lower life expectancy, higher heart disease and psychiatric disease rates). Little data exists to show if there are differences i...
Source: SafetyLit - Category: International Medicine & Public Health Tags: Burns, Electricity, Explosions, Fire, Scalds Source Type: news
When I was a kid, grasshoppers were everywhere. I walked through a field every day to get to school and grasshoppers were everywhere, jumping back and forth across my path, frequently banging off my legs. At night in summer, the backyard was filled with fireflies that we’d chase and capture in jars to watch up close. And there were butterflies of many colors and varieties everywhere, flitting from flower to flower. Today, I don’t see any grasshoppers. In fact, I haven’t seen one in over 40 years. I saw one—just one—firefly this past summer in my backyard. And I can count the number of butterie...
Source: Wheat Belly Blog - Category: Cardiology Authors: Tags: Agribusiness bowel flora Inflammation microbiota prebiotic probiotic wheat belly Source Type: blogs
Conditions:   Atrial Fibrillation;   Overweight and Obesity Interventions:   Other: Meal Replacement Programme;   Other: Usual Care (nurse-counselling and weight loss booklet) Sponsor:   University of Oxford Not yet recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
Researchers from the University of Alberta found that being active three times an hour with seven minute bursts of light-intensity exercise helps a person burn 770 calories a day.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news
HEART attack symptoms can include chest pain, shortness of breath, and excessive sweating. You could also be at risk of myocardial infarction and heart disease signs if your eyes look like this. These are the “unusual” signs and symptoms of a heart attack to watch out for.
Source: Daily Express - Health - Category: Consumer Health News Source Type: news
MONDAY, Oct. 22, 2018 (American Heart Association) -- When Tom Broussard came out of quadruple heart bypass surgery, the then-59-year-old was just glad to have avoided a heart attack. So he didn't give much thought to the heart valve that surgeons...
Source: Drugs.com - Daily MedNews - Category: General Medicine Source Type: news
Research, published in theInternational Journal of Molecular Sciences, suggests that metformin can improve the body’s ability to repair damaged blood vessels, by lowering miR-222, miR-195 and miR-21a levels in type-1 diabetes patients.MedicalXpress
Source: Society for Endocrinology - Category: Endocrinology Source Type: news
CONCLUSION: Congenital heart diseases in adults seem underestimated in our countries. Surgical repair is rare. It is necessary to ensure a good management of the transition between pediatric and adult age. PMID: 28506578 [PubMed - as supplied by publisher]
Source: Annales de Cardiologie et d'Angeiologie - Category: Cardiology Authors: Tags: Ann Cardiol Angeiol (Paris) Source Type: research
Time limit: 0 Quiz-summary 0 of 30 questions completed Questions: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 Information This new test series requires ...
Source: Cardiophile MD - Category: Cardiology Authors: Tags: Cardiology Cardiology MCQ DM / DNB Cardiology Entrance Featured Source Type: blogs
More News: Atrial Fibrillation | Atrial Septal Defect | Blogging | Cardiac Catheterization | Cardiology | Children | Education | Emergency Medicine | Girls | Graduation | Heart | Heart Disease | Heart Transplant | Heart Valve Surgery | Hole in the Heart | Hospitals | Learning | Lessons | Lung Transplant | Nurses | Nursing | Pediatrics | Psychology | Science | Universities & Medical Training | Ventricular Septal Defect