Supporting Latino families: The power of relationships

Cecilia and Sara Navigating a child’s medical journey can be difficult on any parent. But for a mother or father not familiar with the U.S. healthcare system or whose first language isn’t English, the journey is much more complex. Just ask one of the attendees at Fuente de Luz (“Fountain of Light”), the monthly informational group for Spanish-speaking families at Boston Children’s Hospital. On the first Tuesday of every month, around eight to ten Latino mothers — and occasionally fathers — get together to share their experiences and receive support from each other. There are hands to pass tissues and hold onto others; una familia formed from shared experiences. Educating and empowering parents Knowing first-hand that foreign-born parents have to work harder to understand the U.S. health care system, program coordinator Cecilia Matos and parent Sara Diaz — both originally from Latin America — came up with the idea to host a monthly group for Spanish-speaking families. “When a parent knows how to navigate the system, the child benefits,” says Sara, whose 22-year old son, Nicolas, has Down syndrome and has been cared for at Boston Children’s for 18 years. “The key is to educate and empower parents so they can advocate for their kids.” With funding from Milagros para Niños, Fuente de Luz began meeting at the Hale Family Center for Families in June of 2016. A thoughtful agenda Cecilia,...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Parenting Source Type: news

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Abstract Visual scene displays (VSDs) are one type of augmentative and alternative communication (AAC) display in which an integrated scene (typically a photograph) presents people engaged in shared activities, with "hotspots" for the concepts embedded within. Most AAC displays are more complex than a single VSD, and also contain a navigation bar. This preliminary study examined visual attention to these more complex AAC displays by participants with autism spectrum disorder (ASD) (n = 13), Down syndrome (n = 13), intellectual and developmental disabilities other than Down syn...
Source: Augmentative and Alternative Communication - Category: Speech-Language Pathology Authors: Tags: Augment Altern Commun Source Type: research
In conclusion, we demonstrate that PGZ is able to improve mitochondrial phenotype even at low concentrations (0.5 μM). We also speculate that combination of drugs that target mitochondrial function might be advantageous, offering potentially higher efficacy and lower individual drug dosage.
Source: Frontiers in Genetics - Category: Genetics & Stem Cells Source Type: research
Conclusions and implicationsAlthough professionals have a lot of knowledge about the specific neurodevelopmental disorders, further evidence-based training would allow more effective support for children with neurodevelopmental disorders in the classroom but also equip professionals better and raise their confidence in meeting these children’s needs.
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
Abstract Estimates of the prevalence of speech and motor speech disorders in persons with complex neurodevelopmental disorders (CND) can inform research in the biobehavioural origins and treatment of CND. The goal of this research was to use measures and analytics in a diagnostic classification system to estimate the prevalence of speech and motor speech disorders in convenience samples of speakers with one of eight types of CND. Audio-recorded conversational speech samples from 346 participants with one of eight types of CND were obtained from a database of participants recruited for genetic and behavioural studi...
Source: Clinical Linguistics and Phonetics - Category: Speech-Language Pathology Authors: Tags: Clin Linguist Phon Source Type: research
Abstract Genes and environmental stimuli cooperate in the regulation of brain development and formation of the adult neuronal architecture. Genetic alterations or exposure to perturbing environmental conditions, therefore, can lead to altered neural processes associated with neurodevelopmental disorders and brain disabilities. In this context, environmental enrichment emerged as a promising and noninvasive experimental treatment for favoring recovery of cognitive and sensory functions in different neurodevelopmental disorders. The aim of this review is to depict, mainly through the much explicative examples of amb...
Source: Neural Plasticity - Category: Neurology Authors: Tags: Neural Plast Source Type: research
American Journal on Intellectual and Developmental Disabilities,Volume 124, Issue 4, Page 293-308, July 2019.
Source: American Journal on Intellectual and Developmental Disabilities - Category: Disability Authors: Source Type: research
American Journal on Intellectual and Developmental Disabilities,Volume 124, Issue 4, Page 324-338, July 2019.
Source: American Journal on Intellectual and Developmental Disabilities - Category: Disability Authors: Source Type: research
American Journal on Intellectual and Developmental Disabilities,Volume 124, Issue 4, Page 354-373, July 2019.
Source: American Journal on Intellectual and Developmental Disabilities - Category: Disability Authors: Source Type: research
American Journal on Intellectual and Developmental Disabilities,Volume 124, Issue 4, Page 293-308, July 2019.
Source: American Journal on Intellectual and Developmental Disabilities - Category: Disability Authors: Source Type: research
American Journal on Intellectual and Developmental Disabilities,Volume 124, Issue 4, Page 324-338, July 2019.
Source: American Journal on Intellectual and Developmental Disabilities - Category: Disability Authors: Source Type: research
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