Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and needs

CONCLUSION: The responses of caregivers of children with Dravet syndrome highlight the need for supports from diagnosis for both epilepsy and neurodevelopmental problems. Good examples of provision were identified but parents often felt they lacked support and support often came from providers who lacked knowledge of the syndrome. Collaboration between medical, disability and school services was often lacking.PMID:38168600 | DOI:10.1016/j.yebeh.2023.109603

Source: Epilepsy and Behaviour - January 3, 2024 Category: Neurology Authors: Josefin Soto Jansson Bj örn Bjurulf Michaela Dellenmark Blom Tove Hallb öök Colin Reilly Source Type: research