Attitudes and beliefs regarding Pain Medicine: results of a national palliative physician survey
Pain is a prevalent symptom in patients with serious illness and often requires interventional approaches for adequate treatment. Little is known about referral patterns and collaborative attitudes of palliative physicians regarding pain management specialists. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 25, 2024 Category: Palliative Care Authors: Daniel K. Partain, Wil L. Santivasi, Mihir M. Kamdar, Susan M. Moeschler, Jon C. Tilburt, Karen M. Fischer, Jacob J. Strand Tags: Original Article Source Type: research

Randomised controlled trial of population screening for atrial fibrillation in people aged 70 years and over to reduce stroke: protocol for the SAFER trial
Introduction There is a lack of evidence that the benefits of screening for atrial fibrillation (AF) outweigh the harms. Following the completion of the Screening for Atrial Fibrillation with ECG to Reduce stroke (SAFER) pilot trial, the aim of the main SAFER trial is to establish whether population screening for AF reduces incidence of stroke risk. Methods and analysis Approximately 82 000 people aged 70 years and over and not on oral anticoagulation are being recruited from general practices in England. Patients on the palliative care register or residents in a nursing home are excluded. Eligible people are identified u...
Source: BMJ Open - April 25, 2024 Category: General Medicine Authors: Mant, J., Modi, R. N., Dymond, A., Armstrong, N., Burt, J., Calvert, P., Cowie, M., Ding, W. Y., Edwards, D., Freedman, B., Griffin, S. J., Hoare, S., Hobbs, F. D. R., Johnson, R., Kaptoge, S., Lip, G. Y. H., Lobban, T., Lown, M., Lund, J., McManus, R. J. Tags: Open access, Cardiovascular medicine Source Type: research

Public Awareness of Palliative Care: A Nationally Representative Sample of Jordanian Adults
Internationally, studies suggest that inadequate comprehension of the concept of palliative care and misconceptions about it hinder the effective use of palliative care, especially in developing nations. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 25, 2024 Category: Palliative Care Authors: Nijmeh AL-Atiyyat, Ahmed Al Ibraheemi, Majdi Rababa, Wafa'a Mousa Othman, Abdallah Abu Khait, Dima Ali Salem Jaradat Source Type: research

Inequities in access to palliative and end-of-life care in the black population in Canada: a scoping review
Improving equity and early access to palliative care for underserved populations in Canada is a priority. Little is known regarding access to palliative and end-of-life care in the Black population. (Source: International Journal for Equity in Health)
Source: International Journal for Equity in Health - April 25, 2024 Category: International Medicine & Public Health Authors: Nahyeni Bassah, Julia Beranek, Megan Kennedy, Juliet Onabadejo and Anna Santos Salas Tags: Comment Source Type: research

Rural healthcare professionals ’ participation in Medical Assistance in Dying (MAiD): beyond a binary decision
Medical Assistance in Dying (MAiD) was legalized in Canada in 2016 and amended in 2021. At the time that this study was conducted, the federal government was considering expanding the eligibility criteria to i... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 25, 2024 Category: Palliative Care Authors: Monique Sedgwick, Julia Brassolotto and Alessandro Manduca-Barone Tags: Research Source Type: research

Communicating visit information to family caregivers: How does method matter? A national survey
This study sought to determine whether mode of receiving clinic visit information (speaking with the patient, attending the visit, or using an after-visit summary [AVS]) was associated with changes in caregiver burden, caregiver preparedness, and the positive aspects of caregiving.METHODS: Cross-sectional web-based survey of a national sample of adult family caregivers. Multiple linear regression models determined associations between communication modes and caregivers' burden, preparedness, and positive aspects of caregiving, adjusting for sociodemographic covariates.RESULTS: Respondents (N = 340) were mostly male (58%), ...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Reed W R Bratches Noah Z Freundlich J Nicholas Odom A James O'Malley Paul J Barr Source Type: research

Meta-synthesis of ethnic minority families' experiences of children's palliative care across developed countries
Palliat Support Care. 2024 Apr 24:1-14. doi: 10.1017/S1478951524000609. Online ahead of print.ABSTRACTOBJECTIVES: Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers' ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children's palliative care (CPC) by answering the question, "What are the experiences of EM families of children's palliative care across developed countries?"METHODS: A systematic...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Adaobi C Iluno Michael J Tatterton Melanie Haith-Cooper Source Type: research

Oncology social workers' involvement in palliative care: Secondary data analysis from nationwide oncology social workers survey
This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States.METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers. The participants were social workers who were directly involved in providing care to cancer patients and delivering palliative care services. They completed an online survey in which they indicated the relevance of 91 tasks related to their practice. The survey also collected individual demographic and work-relate...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Ting Guan Karlynn BrintzenhofeSzoc Alyssa Middleton Shirley Otis-Green Tara Schapmire Makeeta Rayton Krista Nelson Michael L Grignon Brad Zebrack Source Type: research

Perception of Good Death and Level of Perceived Stress in Relatives of Palliative Care Patients
This study aimed to examine the perception of a good death and the level of perceived stress in relatives of palliative care patients. Relatives of 110 patients hospitalized in a palliative care center constituted the research sample. A personal information form, the "Good Death Scale," and the "Perceived Stress Scale" were used for data collection. The patients' relatives defined good death as being with family members and living this process without suffering. The mean total Good Death Scale score of the relatives of palliative care patients was 54.86 ± 7.78, and their mean total Perceived Stress Scale score was 31.11 Â...
Source: Omega - April 24, 2024 Category: Palliative Care Authors: Sevil Pamuk Cebeci Şebnem Bilgiç Source Type: research

'How long do you think?' Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study
CONCLUSION: This study provides valuable new knowledge to support clinicians' confidence when responding to the 'how long' question and can inform decision-making at end-of-life. Further research using the AKPS could provide greater certainty for answering 'how long' questions across the illness trajectory.PMID:38654605 | DOI:10.1177/02692163241238903 (Source: Palliative Medicine)
Source: Palliative Medicine - April 24, 2024 Category: Palliative Care Authors: Tricia O'Connor Wai-Man Liu Juliane Samara Joanne Lewis Catherine Paterson Source Type: research

Communicating visit information to family caregivers: How does method matter? A national survey
This study sought to determine whether mode of receiving clinic visit information (speaking with the patient, attending the visit, or using an after-visit summary [AVS]) was associated with changes in caregiver burden, caregiver preparedness, and the positive aspects of caregiving.METHODS: Cross-sectional web-based survey of a national sample of adult family caregivers. Multiple linear regression models determined associations between communication modes and caregivers' burden, preparedness, and positive aspects of caregiving, adjusting for sociodemographic covariates.RESULTS: Respondents (N = 340) were mostly male (58%), ...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Reed W R Bratches Noah Z Freundlich J Nicholas Odom A James O'Malley Paul J Barr Source Type: research

Meta-synthesis of ethnic minority families' experiences of children's palliative care across developed countries
Palliat Support Care. 2024 Apr 24:1-14. doi: 10.1017/S1478951524000609. Online ahead of print.ABSTRACTOBJECTIVES: Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers' ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children's palliative care (CPC) by answering the question, "What are the experiences of EM families of children's palliative care across developed countries?"METHODS: A systematic...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Adaobi C Iluno Michael J Tatterton Melanie Haith-Cooper Source Type: research

Oncology social workers' involvement in palliative care: Secondary data analysis from nationwide oncology social workers survey
This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States.METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers. The participants were social workers who were directly involved in providing care to cancer patients and delivering palliative care services. They completed an online survey in which they indicated the relevance of 91 tasks related to their practice. The survey also collected individual demographic and work-relate...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Ting Guan Karlynn BrintzenhofeSzoc Alyssa Middleton Shirley Otis-Green Tara Schapmire Makeeta Rayton Krista Nelson Michael L Grignon Brad Zebrack Source Type: research

Identifying the Unmet Needs of People Living With Amyotrophic Lateral Sclerosis: A National Survey to Inform Interdisciplinary Palliative Care
Discussion: Interdisciplinary palliative care teams may enhance ALS care by promoting advance care planning behaviors (particularly discussing one's wishes with healthcare providers), providing interventions to improve quality of life, and supporting pALS in navigating challenges related to physical intimacy.PMID:38657132 | DOI:10.1177/10499091241248653 (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - April 24, 2024 Category: Palliative Care Authors: Karla T Washington Charlton A Mechling Kyle A Pitzer Samuel Maiser Ambereen K Mehta Source Type: research

Perception of Good Death and Level of Perceived Stress in Relatives of Palliative Care Patients
This study aimed to examine the perception of a good death and the level of perceived stress in relatives of palliative care patients. Relatives of 110 patients hospitalized in a palliative care center constituted the research sample. A personal information form, the "Good Death Scale," and the "Perceived Stress Scale" were used for data collection. The patients' relatives defined good death as being with family members and living this process without suffering. The mean total Good Death Scale score of the relatives of palliative care patients was 54.86 ± 7.78, and their mean total Perceived Stress Scale score was 31.11 Â...
Source: Omega - April 24, 2024 Category: Palliative Care Authors: Sevil Pamuk Cebeci Şebnem Bilgiç Source Type: research