End-of-Life Admission to the Emergency Department: Experience of Mexico's National Cancer Institute of a Developing Country.
CONCLUSIONS: Palliative care approach in oncological patients admitted to ED is important to avoid unnecesary suffering at the EoL. PMID: 32101019 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 26, 2020 Category: Palliative Care Authors: Allende-Pérez S, González P, Peña-Nieves A, Herrera-Gómez Á, Verástegui E Tags: Am J Hosp Palliat Care Source Type: research

Systematic Review of the Prevalence, Predictors, and Treatment of Insomnia in Palliative Care.
CONCLUSIONS: The systematic review showed that the prevalence of insomnia is high, with at least one in 3 patients affected in most studies. Insomnia's risk factors and treatment in palliative care are both associated to physical, psychological, social, and spiritual factors, reflecting its true holistic nature. PMID: 32101021 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 26, 2020 Category: Palliative Care Authors: Nzwalo I, Aboim MA, Joaquim N, Marreiros A, Nzwalo H Tags: Am J Hosp Palliat Care Source Type: research

Understanding Distress Among Patients With Cancer Receiving Specialized, Supportive Care Services.
CONCLUSIONS: Patient and illness factors were not associated with needs among those who attended appointments with support providers. Study results suggest that a biopsychosocial approach from interdisciplinary providers is warranted to manage the needs of patients referred for additional supportive care. PMID: 32066250 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 18, 2020 Category: Palliative Care Authors: Funk-Lawler R, Mundey KR Tags: Am J Hosp Palliat Care Source Type: research

"We Are Here for You All the Way"-Patients' and Relatives' Experiences of Receiving Advanced Home Care.
CONCLUSION: The results of this study show that patients and close relatives perceived that advanced home care was a safe and secure form of caring during advanced as well as end-of-life care. PMID: 32052637 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 13, 2020 Category: Palliative Care Authors: Wennman I, Ringheim A, Wijk H Tags: Am J Hosp Palliat Care Source Type: research

Awareness and Attitudes Toward Advance Care Planning Among Community-Dwelling Older Adults in China: A Mixed-Methods Study.
CONCLUSIONS: This study indicated that the awareness and participation of ACP of community-dwelling older adults in mainland China are not enough. The influence of national conditions and culture should be fully considered during the process of ACP development. PMID: 32052643 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 13, 2020 Category: Palliative Care Authors: Zhu T, Zhang J, Shi Y, Yi J, Zhang Q, Zhao Y, Gao Q, Wang Z, Li J, Liu X, Liu D Tags: Am J Hosp Palliat Care Source Type: research

The Impacts of Prognostic Awareness on Mood and Quality of Life Among Patients With Advanced Cancer.
CONCLUSION: Accurate prognostic awareness may pose harm and may provide no additional benefits in terms of QoL and mood among patients with advanced cancer for a short period of time. PMID: 32052654 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 13, 2020 Category: Palliative Care Authors: Kang E, Kang JH, Koh SJ, Song EK, Shim HJ, Keam B, Maeng CH, Kim YJ, Yun HJ, Jung KH, Kwon JH, Lee SN, Lee JL, Do YR, Min J, Lee J, Choo J, Yun YH Tags: Am J Hosp Palliat Care Source Type: research

Hospice Care: Hope and Meaning in Life Mediate Subjective Well-Being of Staff.
Abstract OBJECTIVES: Subjective well-being has been associated with decreased work burnout and elevated work engagement. We investigated the impact of hope and meaning in life on subjective well-being among workers in a hospice care setting. Comparison was made to health-care workers in a rehabilitation unit. METHODS: Thirty-five hospice care workers were surveyed and their responses compared with those of 36 rehabilitation workers. Survey instruments measuring hope, meaning in life, work engagement, and satisfaction with life were utilized. RESULTS: Individuals working in a hospice care center have sign...
Source: The American Journal of Hospice and Palliative Care - February 13, 2020 Category: Palliative Care Authors: Shiri S, Wexler I, Marmor A, Meiner Z, Schwartz I, Levzion Korach O, Azoulay D Tags: Am J Hosp Palliat Care Source Type: research

Advanced Stage of Disease and Systemic Inflammation as Factors Associated With Referral of Patients With Colorectal Cancer to a Palliative Care Unit.
CONCLUSION: Advanced disease stage and NLR were associated with referral of patients with CCR to a PCU. PMID: 32031005 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 7, 2020 Category: Palliative Care Authors: Silva TH, Peres WAF, Rosa KSDC, Schilithz AOC, de Oliveira LC, Murad LB Tags: Am J Hosp Palliat Care Source Type: research

Investigation and Analysis of Undergraduate Nursing Students' Attitudes Toward Advanced Care Planning and Their Willingness to Implement.
CONCLUSIONS: The attitude of undergraduate nursing students toward ACP tended to be positive, but their cognition of ACP was misunderstood, and their willingness to implement ACP needed to be improved. To improve the awareness and implementating willingness of undergraduate nursing students to ACP, it was recommended that colleges and universities carried out systematic standardized life and death education courses and ACP-related training. PMID: 32022578 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - February 5, 2020 Category: Palliative Care Authors: Shi ZY, Li XL, Tang MY, Peng YY Tags: Am J Hosp Palliat Care Source Type: research

Geopersonality of Preventable Death in the United States: Anger-Prone States and Opioid Deaths.
This study tested the hypothesis that state-level anger proneness would be associated with a greater increase in rates of opioid overdose death. METHODS: This was a secondary analysis of state-level data on FFM traits, opioid overdose deaths, and other classes of preventable death. Robust mixed models tested whether change in rates of opioid overdose death from 2008 to 2016 was moderated by state-level anger proneness. RESULTS: State-level anger proneness was significantly associated with greater increases in rates of opioid overdose deaths (B = 1.01, standard error = 0.19, P
Source: The American Journal of Hospice and Palliative Care - February 3, 2020 Category: Palliative Care Authors: Gerhart J, Duberstein P, Paull D, O'Mahony S, Burns J, DeNicolo M, Hoerger M Tags: Am J Hosp Palliat Care Source Type: research

Examination and Analysis of After-Hours Calls in Hospice.
Abstract To ensure safe and effective care at home, most hospice agencies provide 24-hour call services to patients and their families. However, responding to such calls can be very extensive since so many calls occur after hours when staff are fewer. The purpose of the current study was to better understand the types of after-hours calls and differences across patient teams. By understanding why these calls are made, we might be able to reduce the number of avoidable after-hours calls. This descriptive retrospective chart review study was conducted using data from 9 patient care teams within a single hospice agen...
Source: The American Journal of Hospice and Palliative Care - January 30, 2020 Category: Palliative Care Authors: Mayahara M, Fogg L Tags: Am J Hosp Palliat Care Source Type: research

Characteristics, Mortality Rates, and Treatments Received in Last Few Days of Life for Patients Dying in Intensive Care Units: A Multicenter Study.
CONCLUSIONS: Aggressive treatment modalities were usually pursued for critically ill patients at the end of their lives. There is a need to explore further the current end-of-life care needs and practices in ICUs in Jordan and to tailor end-of-life care and management suitably to meet the needs of Islamic and Arabic cultures. PMID: 31994897 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - January 29, 2020 Category: Palliative Care Authors: Almansour IM, Ahmad MM, Alnaeem MM Tags: Am J Hosp Palliat Care Source Type: research

Tetrahydrocannabinol and Cannabidiol Use in an Outpatient Palliative Medicine Population.
CONCLUSIONS: Approximately a quarter of outpatient palliative care patients use THC or CBD, often on a daily basis. Palliative care providers should be aware of the frequency, diverse usage, and beliefs behind cannabis product use in this patient population. PMID: 31986898 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - January 27, 2020 Category: Palliative Care Authors: Highet BH, Lesser ER, Johnson PW, Kaur JS Tags: Am J Hosp Palliat Care Source Type: research

Renal Replacement Therapy in Patients With Stage IV Cancer Admitted to the Intensive Care Unit With Acute Kidney Injury at a Comprehensive Cancer Center Was Not Associated With Survival.
CONCLUSIONS: Our study found that receiving RRT in the ICU was not significantly associated with inpatient mortality, survival times from the landmark time points, and long-term survival after discharge for patients with stage IV cancer with AKI. PMID: 31986903 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - January 27, 2020 Category: Palliative Care Authors: Abudayyeh A, Song J, Abdelrahim M, Dahbour I, Page VD, Zhou S, Shen C, Zhao B, Pai RN, Amaram-Davila J, Manzano JG, George MC, Yennu S, Mandayam SA, Nates JL, Moss AH Tags: Am J Hosp Palliat Care Source Type: research

Virtual Reality for Therapeutic Recreation in Dementia Hospice Care: A Feasibility Study.
CONCLUSION: Virtual reality use was generally safe and enjoyable in hPLWD. Virtual reality can provide meaningful activity and enhance quality of life for hPLWD at the end of life. In the future, VR may be a useful intervention for BPSD in hPLWD. PMID: 31975609 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - January 24, 2020 Category: Palliative Care Authors: Ferguson C, Shade MY, Blaskewicz Boron J, Lyden E, Manley NA Tags: Am J Hosp Palliat Care Source Type: research

Knowledge and Perceptions Regarding Palliative Care Among Religious Leaders in Uasin Gishu County, Kenya: Survey and Focus Group Analysis.
Abstract Spirituality and religion are at the core of Kenyan life. Pastoral leaders play a key role in shaping the individual and community's response to living with chronic and life-threatening illnesses. Involvement of religious leaders would therefore be critical in advocacy and education efforts in palliative care (PC) to address the needs of this population. The goal of this study was to evaluate the knowledge and perceptions of religious leaders in Western Kenya regarding PC. This was a mixed-methods study with 86 religious leaders utilizing a 25-question survey followed by 5-person focus group discussions. ...
Source: The American Journal of Hospice and Palliative Care - January 24, 2020 Category: Palliative Care Authors: Rialem F, Gu JP, Naanyu V, Ali Z, Chege P, Chelagat D, Korir M, Waweru-Siika W, Kussin PS Tags: Am J Hosp Palliat Care Source Type: research

Chemotherapy Near the End of Life in Onco-Hematological Adult Patients.
acute;pez C, Bermejo-Vicedo T Abstract OBJECTIVE: The use of chemotherapy near the end of life is not advisable. There are scarce data in Europe but shows signs of aggressiveness. We designed this study to analyze the proportion of onco-hematological patients receiving chemotherapy within their last 2 weeks of life as well as starting a new chemotherapy regimen in the 30 days prior to death. METHODS: A retrospective observational study was conducted in a tertiary hospital. Adults who died of an onco-hematological neoplasia while hospitalized between April 2017 and March 2018 were included. We assessed the use...
Source: The American Journal of Hospice and Palliative Care - January 23, 2020 Category: Palliative Care Authors: Sánchez-Cuervo M, García-Basas L, Gómez de Salazar-López de Silanes E, Pueyo-López C, Bermejo-Vicedo T Tags: Am J Hosp Palliat Care Source Type: research

Does Palliative Care Utilization Facilitate Conversion to Hospice Care? A Qualitative Study of the "Soft No".
CONCLUSIONS: Despite assumptions to the contrary, benefits associated with utilization of outpatient palliative care services have the potential to incentivize the delay of hospice in some cases. Clinical interactions with outpatient palliative care patients should consider the influence of these broad social support systems when discussing hospice options. PMID: 31968990 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - January 23, 2020 Category: Palliative Care Authors: Spencer KL, Mrig EH, Talaie AK Tags: Am J Hosp Palliat Care Source Type: research

Factors Affecting Decisions Regarding Terminal Care Locations of Patients With Metastatic Breast Cancer.
CONCLUSIONS: Young patients and those with short RFS struggled with making decisions regarding where to receive end-of-life care. Such patients might benefit from prompt introduction of advanced care planning. PMID: 31970994 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - January 23, 2020 Category: Palliative Care Authors: Nogami N, Nakai K, Horimoto Y, Mizushima A, Saito M Tags: Am J Hosp Palliat Care Source Type: research

Accelerated Resolution Therapy: Randomized Controlled Trial of a Complicated Grief Intervention.
We report on a randomized clinical trial (RCT) which examined whether accelerated resolution therapy (ART), a novel mind-body therapy, is effective in treating CG, post-traumatic stress disorder (PTSD), and depression among hospice informal caregivers. RESEARCH DESIGN AND METHODS: Prospective 2 group, wait-listed RCT. All participants were scheduled to receive 4 ART sessions. INCLUSION: ≥60 years, inventory of CG>25, and PTSD checklist for Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition>33 or Psychiatric Diagnostic Screen Questionnaire PTSD subscale>5. EXCLUSION: Major psychi...
Source: The American Journal of Hospice and Palliative Care - January 21, 2020 Category: Palliative Care Authors: Buck HG, Cairns P, BPharm NE, Hernandez DF, Mason TM, Bell J, Kip KE, Barrison P, Tofthagen C Tags: Am J Hosp Palliat Care Source Type: research

Reducing Discrepancy Between Code Status Orders and Physician Orders for Life-Sustaining Therapies: Results of a Quality Improvement Initiative.
This study measured the effectiveness of those steps in reducing POLST code status discrepancy. METHODS: Pre-post implementation chart review of randomly chosen medical admissions to determine the rate of discordance between POLST orders (when present) and admission code status orders. Physician Order For Life-Sustaining Therapies were classified as either "full" or "limited" based on orders for life-sustaining therapies on the form. Chi-square tests or Fisher exact tests were performed on binary data to identify statistically significant differences at the 95% confidence level between pre- and pos...
Source: The American Journal of Hospice and Palliative Care - January 9, 2020 Category: Palliative Care Authors: Lake RE, Franks L, Meisenberg B Tags: Am J Hosp Palliat Care Source Type: research

Caregiver-Reported Barriers to Quality End-of-Life Care in Dementia With Lewy Bodies: A Qualitative Analysis.
CONCLUSION: Many identified themes were consistent with published barriers to quality EOL care in dementia. However, DLB-specific EOL considerations included diagnostic challenges, lack of knowledge regarding DLB and resultant prescribing errors, difficulty accessing resources due to behavioral changes in DLB, and waiting to meet Medicare dementia hospice guidelines. Improving EOL experiences in DLB will require a multifaceted approach, starting with improving DLB recognition and provider knowledge. More research is needed to improve recognition of EOL in DLB and factors that drive quality EOL experiences. PMID: 31902...
Source: The American Journal of Hospice and Palliative Care - January 6, 2020 Category: Palliative Care Authors: Armstrong MJ, Alliance S, Corsentino P, Maixner SM, Paulson HL, Taylor A Tags: Am J Hosp Palliat Care Source Type: research

Hypodermoclysis as a Strategy for Patients With End-of-Life Cancer in Home Care Settings.
CONCLUSION: Receiving home care assistance with palliative intention may decrease the need for dying patients with cancer to visit emergency units, as their symptoms were well controlled. Hypodermoclysis was a safe and effective alternative for hydration and drug delivery when provided and supervised by an experienced team. The place of death is a reliable indicator of the quality of death, and, in this study, the HPCP allowed patients to die at home with their families. It is essential for PC professionals to understand the impact of HDC use at home care setting for patients with end-of-life cancer allowing the increase o...
Source: The American Journal of Hospice and Palliative Care - January 6, 2020 Category: Palliative Care Authors: Coelho TA, Wainstein AJA, Drummond-Lage AP Tags: Am J Hosp Palliat Care Source Type: research

"It's Like a Death Sentence but It Really Isn't" What Patients and Families Want to Know About Hospice Care When Making End-of-Life Decisions.
DISCUSSION: Hospice may not be the right treatment choice for all with terminal illness. Our study highlights where patients' and families' understanding could be enhanced to assure that they have the opportunity to benefit from hospice, if they so desire. PMID: 31888342 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 31, 2019 Category: Palliative Care Authors: Tate CE, Venechuk G, Brereton EJ, Ingle P, Allen LA, Morris MA, Matlock DD Tags: Am J Hosp Palliat Care Source Type: research

Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study.
CONCLUSION: Interventions that support the complex needs of a family during end-of-life care are needed, especially with regard to coordination of care. PMID: 31884806 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 30, 2019 Category: Palliative Care Authors: Sedig LK, Spruit JL, Paul TK, Cousino MK, Pituch K, Hutchinson R Tags: Am J Hosp Palliat Care Source Type: research

Opioid Prescribing Patterns Before and After an Inpatient Palliative Care Consultation.
This study aimed to explore the change in the pattern of opioid prescription and the pain scores before and after referring inpatients to a PCT. METHODS: We conducted a retrospective review of patients' records including all inpatients ≥15 years newly referred to the PCT over a period of 21 months at King Faisal Specialist Hospital and Research Center, Riyadh. RESULTS: Of 631 patients, 52.3% were females, the median age was 54 years, and 96.7% had cancer. The proportion of patients on opioids before referral (83.4%) increased to 93.3% in the postreferral period, P
Source: The American Journal of Hospice and Palliative Care - December 26, 2019 Category: Palliative Care Authors: Al-Shahri MZ, Abdullah A, Alansari A, Sroor M Tags: Am J Hosp Palliat Care Source Type: research

End-of-Life Trajectories of Patients With Hematological Malignancies and Patients With Advanced Solid Tumors Visiting the Emergency Department: The Need for a Proactive Integrated Care Approach.
Abstract PURPOSE: Patients with hematological malignancies (HM) have more unpredictable disease trajectories compared to patients with advanced solid tumors (STs) and miss opportunities for a palliative care approach. They often undergo intensive disease-directed treatments until the end of life with frequent emergency department (ED) visits and in-hospital deaths. Insight into end-of-life trajectories and quality of end-of-life care can support arranging appropriate care according to patients' wishes. METHOD: Mortality follow-back study to compare of end-of-life trajectories of HM and ST patients who died
Source: The American Journal of Hospice and Palliative Care - December 23, 2019 Category: Palliative Care Authors: Verhoef MJ, de Nijs EJM, Ootjers CS, Fiocco M, Fogteloo AJ, Heringhaus C, Marijnen CAM, Horeweg N, der Linden YMV Tags: Am J Hosp Palliat Care Source Type: research

The Effectiveness of Artificial Hydration Therapy for Patients With Terminal Cancer Having Overhydration Symptoms Based on the Japanese Clinical Guidelines A Pilot Study.
Abstract BACKGROUND: Recently, there has been a growing interest in the use of artificial hydration therapy (AHT) for patients with terminal cancer. The Japanese Society for Palliative Medicine published the guideline for AHT in 2007, and it was revised in 2013 based on the concept of cancer cachexia. OBJECTIVES: The purpose of this study was to evaluate the effects of AHT for patients with terminal cancer having overhydration symptoms based on this revised guideline. METHODS: This is a before-and-after study. We retrospectively analyzed 121 patients, of the 523 patients with terminal cancer who were adm...
Source: The American Journal of Hospice and Palliative Care - December 23, 2019 Category: Palliative Care Authors: Nakajima N Tags: Am J Hosp Palliat Care Source Type: research

A Palliative Care Program for Volunteers in a Community Setting: A Mixed-Methods Pilot Study.
CONCLUSIONS: A palliative care program was found to be useful for volunteers in finding meaning in life, motivating continued volunteering. Moreover, caregivers were satisfied with the palliative care service of volunteers. PMID: 31859524 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 20, 2019 Category: Palliative Care Authors: Lee J, Lee JE Tags: Am J Hosp Palliat Care Source Type: research

The Effect of 20-Minute Mindful Breathing on the Perception of Suffering and Changes in Bispectral Index Score (BIS) in Palliative Care Informal Caregivers: A Randomized Controlled Study.
Abstract Informal caregivers are at risk of being overwhelmed by various sources of suffering while caring for their significant others. It is, therefore, important for caregivers to take care of themselves. In the self-care context, mindfulness has the potential to reduce caregiver suffering. We studied the effect of a single session of 20-minute mindful breathing on the perceived level of suffering, together with the changes in bispectral index score (BIS) among palliative care informal caregivers. This was a randomized controlled study conducted at the University of Malaya Medical Centre, Malaysia. Forty adult ...
Source: The American Journal of Hospice and Palliative Care - December 19, 2019 Category: Palliative Care Authors: Tan SB, Ching HC, Chia YL, Yee A, Ng CG, Hasan MSB, Lim KS, Ahmad SB, Capelle DP, Loh EC, Lam CL Tags: Am J Hosp Palliat Care Source Type: research

Prognostic Awareness, Disease and Palliative Understanding Among Caregivers of Patients With Dementia.
CONCLUSIONS: Prognostic discussions between caregivers of PwD and the PwD's physicians may be occurring more often; however, a high percentage of caregivers report a poor understanding about the terminal nature of dementia and the role of PC. PMID: 31854201 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 19, 2019 Category: Palliative Care Authors: Gabbard J, Johnson D, Russell G, Spencer S, Williamson JD, McLouth LE, Ferris KG, Sink K, Brenes G, Yang M Tags: Am J Hosp Palliat Care Source Type: research

Who Are Hospice Patients and What Care Is Provided in Hospices? A Pilot Study.
Abstract BACKGROUND: Hospices provide multidimensional care. In the Netherlands, patients with
Source: The American Journal of Hospice and Palliative Care - December 13, 2019 Category: Palliative Care Authors: Koorn RM, van Klinken M, de Graaf E, Bressers REGW, Jobse AP, van der Baan F, Teunissen SCCM Tags: Am J Hosp Palliat Care Source Type: research

Patients With Advanced Cancer Choose Less Aggressive Medical Treatment on Vignettes After Using a Computer-Based Decision Aid.
Abstract BACKGROUND: Although patients often prefer less rather than more treatment at the end of life, in the absence of contrary instructions, the medical profession's de facto position is to treat aggressively. It is unknown whether a computer-based decision aid can affect treatment choices. METHODS: Secondary analysis of a single-center, single-blind randomized controlled trial of an advance care planning (ACP) intervention among 200 patients with stage IV cancer. Participants were randomized to intervention (Making Your Wishes Known, a values-neutral, educational, computer-based decision aid) or control ...
Source: The American Journal of Hospice and Palliative Care - December 13, 2019 Category: Palliative Care Authors: Green MJ, Van Scoy LJ, Foy AJ, Dimmock AEF, Lehman E, Levi BH Tags: Am J Hosp Palliat Care Source Type: research

Resilience in Caregivers: A Systematic Review.
CONCLUSION: Promoting a resilient coping style in caregivers reduces the distress that normally results from illness-related changes in the biopsychosocial and spiritual dimensions. A resilient coping style can diminish the risk of stress and burden, and promote adaptation in the caregiver. PMID: 31830813 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 13, 2019 Category: Palliative Care Authors: Palacio G C, Krikorian A, Gómez-Romero MJ, Limonero JT Tags: Am J Hosp Palliat Care Source Type: research

An Analysis of the Decision-Making Process After "Decision not to Operate" in Acutely Unwell, High-Risk General Surgery Patients.
An Analysis of the Decision-Making Process After "Decision not to Operate" in Acutely Unwell, High-Risk General Surgery Patients. Am J Hosp Palliat Care. 2019 Dec 09;:1049909119893598 Authors: Pinto-Lopes R, Thahir A, Halahakoon VC Abstract OBJECTIVES: The purpose of this study was to analyze the decision-making process in emergency general surgery in an attempt to ascertain whether surgeons make the correct decision when decisions not to operate in high-risk acutely unwell surgical patients are taken. BACKGROUND: A decision not to operate is sometimes associated with a certain degree o...
Source: The American Journal of Hospice and Palliative Care - December 9, 2019 Category: Palliative Care Authors: Pinto-Lopes R, Thahir A, Halahakoon VC Tags: Am J Hosp Palliat Care Source Type: research

What do Future Hospice Patients Expect of Hospice Care: Expectations of Patients in the Palliative Phase Who Might be in Need of Hospice Care in the Future: A Qualitative Exploration.
Abstract INTRODUCTION: Hospice care (HC) in the Netherlands is available for patients with life expectancies
Source: The American Journal of Hospice and Palliative Care - December 9, 2019 Category: Palliative Care Authors: van Klinken M, de Graaf E, Bressers R, Koorn R, van der Baan F, Teunissen S Tags: Am J Hosp Palliat Care Source Type: research

Patterns of Religiosity, Death Anxiety, and Hope in a Population of Community-Dwelling Palliative Care Patients in New Zealand-What Gives Hope If Religion Can't?
This study examines the prevalence of religiosity, death anxiety, and hope in a sample of New Zealand community hospice patients in the last 6 months of life. It explores the factors triggering distress or hope and examines whether religiosity is protective against death anxiety for this population. Early studies showed religious faith helps relieve death anxiety, but later work suggests this may only be the case in societies which are generally religious. Very little research has been conducted on this topic in New Zealand, from which recent censuses indicate is an increasingly secular country. If religion is not an impor...
Source: The American Journal of Hospice and Palliative Care - December 9, 2019 Category: Palliative Care Authors: Byrne CM, Morgan DD Tags: Am J Hosp Palliat Care Source Type: research

Eliminating the Surprise Question Leaves Home Care Providers With Few Options for Identifying Mortality Risk.
CONCLUSION: The OASIS-SQ and "ADL total score" are almost equally likely to predict 24-month mortality; therefore, it was reasonable to use the "ADL total score" as a substitute for the OASIS-SQ. Removal of the OASIS-SQ leaves home care providers with few clear options for risk screening resulting in missed opportunities to refer to palliative or hospice services. PMID: 31808348 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 6, 2019 Category: Palliative Care Authors: Sullivan SS, Casucci S, Li CS Tags: Am J Hosp Palliat Care Source Type: research

Characteristics of Hospice and Palliative Care Programs in US Prisons: An Update and 5-Year Reflection.
Abstract Individuals with terminal illness are dying behind bars and many state prison administrators have incorporated on-site hospice and palliative care services. Little is known, however, about these programs since a 2010 study of prison hospice characteristics. We provide an updated description and reflection of current hospice and palliative care programs in state prisons serving incarcerated persons with terminal illness. A cross-sectional survey was sent to representatives of all known prisons offering hospice and palliative care programs and services (N = 113). Questions were drawn from an earlier iterati...
Source: The American Journal of Hospice and Palliative Care - December 6, 2019 Category: Palliative Care Authors: Prost SG, Holland MM, Hoffmann HC, Dickinson GE Tags: Am J Hosp Palliat Care Source Type: research

A Public Health Approach to Palliative Care in the Canadian Context.
Abstract Palliative care helps improve the quality of life of individuals facing life-limiting illness throughout the course of their disease. In Canada, delivery and access to palliative care has been fraught with challenges including differential availability of services based on geography, funding, language, and socioeconomic status. Many groups, including the World Health Organization, have advocated for a public health approach to palliative care as an antidote to fragmented service delivery. Multiple scholars, academics, and public health advocates have suggested that a public health approach to palliative c...
Source: The American Journal of Hospice and Palliative Care - December 4, 2019 Category: Palliative Care Authors: Sirianni G Tags: Am J Hosp Palliat Care Source Type: research

Preventing Readmissions Through Effective Partnerships-Communication and Palliative Care (PREP-CPC): A Multisite Intervention for Encouraging Goals of Care Conversations for Hospitalized Patients Facing Serious Illness.
CONCLUSIONS: The PREP-CPC pilot successfully engaged a diverse set of hospitals to participate in quality improvement collaborative promoting primary palliative care and more frequent GOC conversations. This initiative revealed several lessons that should guide future interventions. PMID: 31795732 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - December 4, 2019 Category: Palliative Care Authors: Gradwohl K, Wood GJ, Clepp RK, Rivnay L, Szmuilowicz E Tags: Am J Hosp Palliat Care Source Type: research

Trends of Hospital Palliative Care Utilization and Its Associated Factors Among Patients With Systemic Lupus Erythematosus in the United States From 2005 to 2014.
Abstract OBJECTIVE: To investigate trends and associated factors of utilization of hospital palliative care among patients with systemic lupus erythematosus (SLE) and analyze its impact on length of hospital stay, hospital charges, and in-hospital mortality. METHODS: Using the 2005-2014 National Inpatient Sample in the United States, the compound annual growth rate was used to investigate the temporal trend of utilization of hospital palliative care. Multivariate multilevel logistic regression analyses were performed to analyze the association with patient-related factors, hospital factors, length of stay, in...
Source: The American Journal of Hospice and Palliative Care - December 3, 2019 Category: Palliative Care Authors: Yu KG, Shen JJ, Kim PC, Kim SJ, Lee SW, Byun D, Yoo JW, Hwang J Tags: Am J Hosp Palliat Care Source Type: research

Exploring Quality of Life in End-of-Life Discussions.
Discussions. Am J Hosp Palliat Care. 2019 Nov 28;:1049909119890606 Authors: Eggenberger T, Howard H, Prescott D, Luck G Abstract Advance directives (ADs) allow individuals to legally determine their preferences for end-of-life (EOL) medical treatment and designate a health-care proxy to act on their behalf prior to losing the cognitive ability to make informed decisions for themselves. An interprofessional group of researchers (law, nursing, medicine, and social work) conducted an exploratory study to identify the differences in quality-of-life (QOL) language found within the AD state statutes from 50...
Source: The American Journal of Hospice and Palliative Care - November 28, 2019 Category: Palliative Care Authors: Eggenberger T, Howard H, Prescott D, Luck G Tags: Am J Hosp Palliat Care Source Type: research

Applying M-Health to Palliative Care: A Systematic Review on the Use of M-Health in Monitoring Patients With Chronic Diseases and its Transposition in Palliative Care.
CONCLUSIONS: The development of an m-Health application could become a complementary monitoring tool during palliative care. However, it seems important to question the impact of technique in the professional-patient relationship and avoid the pitfalls of standardizing palliative care and reducing the patient to a "sick" health technician. A future step would then be to define which health-care professional would be in charge of this "m-monitoring." PMID: 31773969 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - November 27, 2019 Category: Palliative Care Authors: Bienfait F, Petit M, Pardenaud R, Guineberteau C, Pignon A Tags: Am J Hosp Palliat Care Source Type: research

Does Family Caregiver Burden Differ Between Elderly and Younger Caregivers in Supporting Dying Patients With Cancer? An Italian Study.
Abstract CONTEXT: The aging of the world's population increasingly calls on older people to care for their cancer relatives. This scenario confronts clinicians involved with end-of-life care with an imposing challenge: elderly family caregivers could have a different perception of the burdens associated with assistance compared to their younger counterparts. Palliativists need to know what limits and resources of these new age categories of caregivers could be for a global management of dying patients with cancer and their family. OBJECTIVES: To evaluate the caregiver burden in family caregivers supporting dy...
Source: The American Journal of Hospice and Palliative Care - November 25, 2019 Category: Palliative Care Authors: Spatuzzi R, Giulietti MV, Ricciuti M, Merico F, Romito F, Reggiardo G, Birgolotti L, Fabbietti P, Raucci L, Rosati G, Bilancia D, Vespa A Tags: Am J Hosp Palliat Care Source Type: research

Managing Opioids, Including Misuse and Addiction, in Patients With Serious Illness in Ambulatory Palliative Care: A Qualitative Study.
CONCLUSION: This study highlights the challenge of opioid management in patients with serious illness, particularly when misuse or substance use disorder is present, and suggests areas for future research focus. Our next step will be to establish consensus on approaches to opioid prescribing decision-making and policy in seriously ill patients presenting to ambulatory palliative care. PMID: 31763926 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - November 25, 2019 Category: Palliative Care Authors: Merlin JS, Young SR, Arnold R, Bulls HW, Childers J, Gauthier L, Giannitrapani KF, Kavalieratos D, Schenker Y, Wilson JD, Liebschutz JM Tags: Am J Hosp Palliat Care Source Type: research

Resource Utilization in Hospitalized Patients With Cancer From Hospice Decision to Discharge and Provider-Type Differences.
Abstract Aggressive resource utilization for patients with cancer at the end of life has been associated with poor outcomes for patients and their families. To our knowledge, no previous studies have characterized resource utilization as a proxy for quality end-of-life care in hospitalized patients awaiting discharge to hospice by physician and advanced practice providers (APPs). We conducted a retrospective cohort study to examine resource utilization and the quality metrics for end-of-life care in patients at Memorial Sloan Kettering Cancer Center from the date of hospice decision to discharge. Patients under th...
Source: The American Journal of Hospice and Palliative Care - November 21, 2019 Category: Palliative Care Authors: Shah RJ, Korenstein D, Flynn JR, Koo DJ Tags: Am J Hosp Palliat Care Source Type: research

A Worldwide Bibliometric Analysis of Publications on Advance Care Planning in the Past 3 Decades.
CONCLUSIONS: The current study revealed that research in terms of publications on ACP has rapidly increased over the past 3 decades. Developed countries, especially the United States, were more concerned with the ACP research field than developing countries were. PMID: 31749385 [PubMed - as supplied by publisher] (Source: The American Journal of Hospice and Palliative Care)
Source: The American Journal of Hospice and Palliative Care - November 21, 2019 Category: Palliative Care Authors: Liu CJ, Yeh TC, Hsieh MH, Woung LC, Huang SJ, Chen MC, Liu CK Tags: Am J Hosp Palliat Care Source Type: research

Autism and Advance Directives: Determining Capability and the Use of Health-Care Tools to Aid in Effective Communication and Decision-Making.
Abstract With the growing number of individuals with Autism Spectrum Disorder (ASD) reaching the age of consent, health-care providers must be prepared to bridge gaps in their knowledge of ASD. This is especially true for clinicians who may have to determine if a person with ASD has the capacity to engage in end-of-life decision making, complete advance directives, or act as a surrogate decision maker for someone else. This paper provides an overview of the unique characteristics of autism as related to the communication, cognitive processing, and the capability to participate in advance care planning and, when ac...
Source: The American Journal of Hospice and Palliative Care - November 21, 2019 Category: Palliative Care Authors: Satkoske V, Migyanka JM, Kappel D Tags: Am J Hosp Palliat Care Source Type: research

Use of the Core Bereavement Items in Adults Aged 50 and Older: A Psychometric Evaluation.
Abstract The Core Bereavement Items (CBI) is a commonly used measure that assesses core grief and bereavement experiences. Although previous psychometric testing has been conducted, no studies have assessed its use specifically aimed at adults aged 50 and older or for those who lost a loved one who was hospice care. This is critical, as losses and additional obstacles in bereavement compound throughout the aging process. The present study investigated reliability, content validity, and internal structure of the CBI in bereaved adults aged 50 and older whose loved one died while in hospice care (N = 205). Associati...
Source: The American Journal of Hospice and Palliative Care - November 18, 2019 Category: Palliative Care Authors: Levy K Tags: Am J Hosp Palliat Care Source Type: research