Communicating visit information to family caregivers: How does method matter? A national survey
This study sought to determine whether mode of receiving clinic visit information (speaking with the patient, attending the visit, or using an after-visit summary [AVS]) was associated with changes in caregiver burden, caregiver preparedness, and the positive aspects of caregiving.METHODS: Cross-sectional web-based survey of a national sample of adult family caregivers. Multiple linear regression models determined associations between communication modes and caregivers' burden, preparedness, and positive aspects of caregiving, adjusting for sociodemographic covariates.RESULTS: Respondents (N = 340) were mostly male (58%), ...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Reed W R Bratches Noah Z Freundlich J Nicholas Odom A James O'Malley Paul J Barr Source Type: research
Meta-synthesis of ethnic minority families' experiences of children's palliative care across developed countries
Palliat Support Care. 2024 Apr 24:1-14. doi: 10.1017/S1478951524000609. Online ahead of print.ABSTRACTOBJECTIVES: Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers' ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children's palliative care (CPC) by answering the question, "What are the experiences of EM families of children's palliative care across developed countries?"METHODS: A systematic...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Adaobi C Iluno Michael J Tatterton Melanie Haith-Cooper Source Type: research
Oncology social workers' involvement in palliative care: Secondary data analysis from nationwide oncology social workers survey
This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States.METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers. The participants were social workers who were directly involved in providing care to cancer patients and delivering palliative care services. They completed an online survey in which they indicated the relevance of 91 tasks related to their practice. The survey also collected individual demographic and work-relate...
Source: Palliative and Supportive Care - April 24, 2024 Category: Palliative Care Authors: Ting Guan Karlynn BrintzenhofeSzoc Alyssa Middleton Shirley Otis-Green Tara Schapmire Makeeta Rayton Krista Nelson Michael L Grignon Brad Zebrack Source Type: research
Can We Adopt Pediatric Palliative Care that is Indivisible with Equity for all?
In this volume of The Journal, two retrospective cohort studies, both based in Ohio, provide insightful data about the deployment of dedicated pediatric palliative care teams. While home-based visits have been a longtime core principle of pediatric hospice care, their value has not been well defined or justified. Thus, Smith et al analyzed healthcare utilization outcomes in a sample of children who received home visits across two well-established pediatric home-based palliative care and hospice programs over 6 years among 195 children, half of whom had neurologic impairment. (Source: The Journal of Pediatrics)
Source: The Journal of Pediatrics - April 24, 2024 Category: Pediatrics Authors: Paul Graham Fisher Tags: The Editors' Perspectives Source Type: research
REaL and SOGI Data Collection: Results from a Palliative Care Quality Collaborative Survey
To the Editor: (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 24, 2024 Category: Palliative Care Authors: Sarah Nouri, Steven Z. Pantilat, Diane E. Meier, Jonathan M. Nicolla, Fred A.P. Friedman, Robin Y. Chan, Carey Candrian Tags: Letter Source Type: research
Palliative care integration and end-of-life care intensity for patients with NSCLC
Lung cancer is the leading cause of cancer incidence and mortality worldwide, accounting for about 2 million diagnoses and 1.8 million deaths [1]. After an increase up to the 1990 s, its incidence and mortality are tending to decrease, with 5-year survival estimated around 20 % at all stages [2]. Metastatic non-small cell lung cancer (NSCLC) accounts for 40–55 % of cases where medical management is based on systemic treatment. In a recent meta-analysis, it was found that combining PD-1/PD-L1 inhibitors with conventional chemotherapy can dramatically improve the prognosis of NSCLC patients, clearly enhancing the re...
Source: Lung Cancer - April 24, 2024 Category: Cancer & Oncology Authors: A. Martin, M. Carton, L. Thery, A. Burnod, C. Daniel, P. Du Rusquec, N. Girard, C. Bouleuc Source Type: research
Cingulotomy for Intractable Pain: A Systematic Review of an Underutilized Procedure
Cureus. 2024 Mar 22;16(3):e56746. doi: 10.7759/cureus.56746. eCollection 2024 Mar.ABSTRACTPain management is a critical aspect of cancer treatment and palliative care, where pain can significantly impact quality of life. Chronic pain, which affects a significant number of people worldwide, remains a prevalent and challenging symptom for patients. While medications and psychosocial support systems play a role in pain management, surgical and radiological interventions, including cingulotomy, may be necessary for refractory cases. Cingulotomy, a neurosurgical procedure targeting the cingulate gyrus, aims to disrupt neural pa...
Source: Cancer Control - April 23, 2024 Category: Cancer & Oncology Authors: Billy McBenedict Wilhelmina N Hauwanga Mariana P Pires Jos é Geraldo M Netto Dulci Petrus Jumana A Kanchwala Rhea Joshi Shaista Rizwan Ahamed Alurkar Otari Chankseliani Zaeemah Mansoor Sona Subash Berley Alphonse Ana Abrah ão Bruno Lima Pess ôa Source Type: research
Metabolomic Analysis of Human Cirrhosis and Hepatocellular Carcinoma: A Pilot Study
ConclusionOur findings give promising insides into the metabolic changes during HCC carcinogenesis and provide candidate biomarkers for future studies. Campesterol and furoylglycine in particular were identified as possible biomarkers for HCC progression. Moreover, eight metabolites were detected as predictors for poor overall survival.Graphical Abstract (Source: Digestive Diseases and Sciences)
Source: Digestive Diseases and Sciences - April 23, 2024 Category: Gastroenterology Source Type: research
Palliative Interventions and Best Supportive Care in Biliary Malignancy
Biliary malignancy is rare, often carries poor prognosis, and most patients are not resection candidates at diagnosis. There are a variety of endoscopic, percutaneous, and systemic treatments that are used to address the symptoms and complications of biliary malignancy. Additionally, best supportive care and palliative care should be incorporated into care plans early on in a patient ’s course. It is important for all physicians to be equipped to have conversations regarding overall prognosis, general expectations, and goals of care to determine a care plan individualized for each patient. (Source: Surgical Clinics of North America)
Source: Surgical Clinics of North America - April 23, 2024 Category: Surgery Authors: Christine Chung, Lauren Wancata Source Type: research
Chinese and Belgian pediatricians ’ perspectives toward pediatric palliative care: an online survey
As pediatricians play a vital role in pediatric palliative care (PPC), understanding their perspectives toward PPC is important. PPC is established for a long time in Belgium, but has a shorter tradition in Ch... (Source: BMC Palliative Care)
Source: BMC Palliative Care - April 23, 2024 Category: Palliative Care Authors: Yajing Zhong, Alice Cavolo, Veerle Labarque, Bernadette Dierckx de Casterl é and Chris Gastmans Tags: Research Source Type: research
Differences in discharge letter content: oncologists ’ vs. home care physicians’ needs
ConclusionTransitioning to home-based palliative care may necessitate accurate information and consideration of patients ’ and families’ perceptions and emotions regarding medical conditions in discharge letters for continuous provision of high-quality care. (Source: Supportive Care in Cancer)
Source: Supportive Care in Cancer - April 22, 2024 Category: Cancer & Oncology Source Type: research
Variation in Hospice Aide Care by Residential Setting
Journal of Palliative Medicine, Ahead of Print. (Source: Journal of Palliative Medicine)
Source: Journal of Palliative Medicine - April 22, 2024 Category: Palliative Care Authors: Jennifer M. Reckrey Karen McKendrick R. Sean Morrison Zainab Toteh Osakwe Katherine A. Ornstein Melissa Aldridge Source Type: research
Update on Percutaneous Ablation for Sarcoma
AbstractPurpose of ReviewTo provide an update on the current state of percutaneous thermal ablation in the treatment of sarcoma.Recent FindingsData continue to accrue in support of ablation for local control and palliation of specific sarcoma subtypes such as extra-abdominal desmoid fibromatosis and for broader indications such as the treatment of oligometastatic disease. The synergistic possibilities of various combination therapies such as cryoablation and immunotherapy represent intriguing areas of active investigation. Histotripsy is an emerging non-invasive, non-thermal ablative modality that may further expand the th...
Source: Current Oncology Reports - April 22, 2024 Category: Cancer & Oncology Source Type: research
Cancers, Vol. 16, Pages 1612: How Do Quality of Life (QoL) and Symptom Burden Evolve in Inpatient Palliative Care (PC) Patients Following One Week of Care in a Specialized Palliative Care Unit (PCU)? A Comparison of Two Groups, with One Receiving Specialized Outpatient Palliative Care Prior to Admission
Conclusion: The findings of our study demonstrate that QoL and several symptoms prevalent in cancer patients cared for in the PCU experienced significant enhancement over the span of just one week. Both groups, patients receiving specialized outpatient PC prior to admission and those without, equally benefited from inpatient PC. All mentioned changes from T0 to T1 are considered not only significant but clinically relevant. (Source: Cancers)
Source: Cancers - April 22, 2024 Category: Cancer & Oncology Authors: Hanna Salm Florian Dobersch ütz Franziska Hallmann Philipp Munzert Johannes Rahm Sarah Uhlig Daniel Pink Tags: Article Source Type: research
An initial examination of ChatGPT responses to questions about decision making in advanced cancer
ChatGPT is an online chat application supported by a large language model (LLM) that has garnered widespread attention in scientific research.1 It is well understood that patients with cancer use the internet as a source of information to support medical decision making (DM),2 and recent research suggests that ChatGPT often provides accurate medical information in response to questions about cancer.3 Given ChatGPT's accessibility, it is likely to be used by individuals seeking DM support related to cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 22, 2024 Category: Palliative Care Authors: Meghan McDarby, Emily L. Mroz, Amanda Kastrinos, Gleneara Bates-Pappas, Smita Banerjee, Patricia A. Parker Tags: Letter Source Type: research
