Providing Patient-Centered Care in Interstitial Lung Disease
There have been growing interest in and emphasis on health systems adopting a patient-centered care (PCC) approach, which focuses on providing care that is respectful and responsive to patient preferences, needs, and values. The features of PCC can fall into 3 domains: structure, process, and outcomes. These domains encompass the necessary infrastructure and culture required to facilitate respectful and compassionate care and patient engagement. This review discusses the features that characterize each of these PCC domains and how they can be applied specifically to clinical care and research within the field of interstiti...
Source: Clinics in Chest Medicine - May 21, 2021 Category: Respiratory Medicine Authors: Alyson W. Wong, Sonye K. Danoff Source Type: research
Management of Idiopathic Pulmonary Fibrosis
Progress in the past 2 decades has led to widespread use of 2 medications to slow loss of lung function in patients with pulmonary fibrosis. Treatment of individual patients with currently available pharmacotherapies can be limited by side effects, and neither drug has a consistent effect on patient symptoms or function . Several promising new pharmacotherapies are under development. Comprehensive management of pulmonary fibrosis hinges on shared decision making. Patient and caregiver education, and early identification and management of symptoms and comorbidities, can help improve quality of life. (Source: Clinics in Chest Medicine)
Source: Clinics in Chest Medicine - May 21, 2021 Category: Respiratory Medicine Authors: Margaret L. Salisbury, Marlies S. Wijsenbeek Source Type: research
Rethinking Idiopathic Pulmonary Fibrosis
Idiopathic pulmonary fibrosis (IPF) is a devastating disease for patients and their loved ones. Since initial efforts to characterize this disease in the 1960s, understanding of IPF has evolved considerably. Such evolution has continually challenged prior diagnostic and treatment paradigms, ushering in an era of higher confidence diagnoses with less invasive procedures and more effective treatments. This review details how research and clinical experience over the past half century have led to a rethinking of IPF. Here, the evolution in understanding of IPF pathogenesis, diagnostic evaluation and treatment approach is disc...
Source: Clinics in Chest Medicine - May 21, 2021 Category: Respiratory Medicine Authors: Justin M. Oldham, Carlo Vancheri Source Type: research
Clinical Trials for Idiopathic Pulmonary Fibrosis and the Role of Health Systems
We are in the midst of transformative innovation in health care delivery and clinical trials in idiopathic pulmonary fibrosis (IPF). Health systems are uniquely positioned at the crossroad of these shifting paradigms, equipped with the resources to expand the research pipeline in IPF through visionary leadership and targeted investments. The authors hope that by prioritizing development of health information technology, supporting a broader range of clinical trial designs, and cultivating broad stakeholder engagement, health systems will generate data to address knowledge-evidence-practice gaps in IPF. This will continue t...
Source: Clinics in Chest Medicine - May 21, 2021 Category: Respiratory Medicine Authors: Erica Farrand, Andrew H. Limper Source Type: research
Management of Fibrotic Hypersensitivity Pneumonitis
Fibrotic hypersensitivity pneumonitis (fHP) is a chronic, often progressive fibrosing form of interstitial lung disease caused by inhaled antigenic exposures. fHP can lead to impaired respiratory function, reduced disease-related quality of life, and early mortality. Management of fHP should start with exposure remediation where possible, with systemic immunosuppression and antifibrotic therapy considered in patients with symptomatic or progressive disease. Nonpharmacologic and supportive management should be offered and, in cases of treatment-resistant, progressive illness, lung transplant should be considered. (Source: C...
Source: Clinics in Chest Medicine - May 21, 2021 Category: Respiratory Medicine Authors: Hayley Barnes, Kerri A. Johannson Source Type: research
