Over-Awareness, Focus, Hype and Expectations
The media did a damn good job about making sure we all knew about Angelina Jolie's double mastectomy. She went public, if I recall correctly, to raise awareness about the BRCA gene. I respect this decision and congratulate her on a brave decision to take something very personal and make it public.In a recent survey, three quarters of us did know about her surgery and decision. Considering that it happened less than a year ago and and was much less significant than a war, earthquake, typhoon, etc 75% is a pretty good number.I would also like to point out that all those years of breast cancer awareness and pinkification have...
Source: Caroline's Breast Cancer Blog - December 28, 2013 Category: Cancer Tags: awareness genetics healthy living Source Type: blogs
Over-Awareness, Focus, hype and expectataions
The media did a damn good job about making sure we all knew about Angelina Jolie's double mastectomy. She went public, if I recall correctly, to raise awareness about the BRCA gene. I respect this decision and congratulate her on a brave decision to take something very personal and make it public.In a recent survey, three quarters of us did know about her surgery and decision. Considering that it happened less than a year ago and and was much less significant than a war, earthquake, typhoon, etc 75% is a pretty good number.I would also like to point out that all those years of breast cancer awareness and pinkification have...
Source: Caroline's Breast Cancer Blog - December 28, 2013 Category: Cancer Tags: awareness genetics healthy living Source Type: blogs
How Alzheimer's and Dementia Impact Memory and the Brain
How are the brain and memory impacted by Alzheimer's disease and dementia.The different memory systems -- episodic, semantic, procedural, and working -- involve multiple areas of the brain.How are they impacted by Alzheimer's disease and demenita?+Alzheimer's Reading Room Subscribe to the Alzheimer's Reading RoomEmail: How Memory Is Impacted in Alzheimer's DiseaseNormal aging leads to changes in the brain, especially in areas involved in learning and memory. Some neurons shrink; others are disabled by damaging molecules called free radicals. Daily "insults," such as high blood pressure or elevated low-density lipoprotei...
Source: Alzheimer's Reading Room, The - December 5, 2013 Category: Dementia Authors: Bob DeMarco Source Type: blogs
Mom: "Down Syndrome Research, Hope for My Daughter"
This year scientists announced a major breakthrough and a possible gene therapy for Down Syndrome. In cells taken from a person with Downs, they were able to silence the extra 21st chromosome. This may mean a targeted therapy to help fix the health and cognitive problems caused by have that extra bit of genetic material. Reactions were mixed. Some thought that people with Down Syndrome are perfect as God made them and we should do nothing to change them. I understand this reaction very well. We live in a society that kills 90% of people with Down Syndrome before they make it out of the womb. It is entirely natural to want ...
Source: Mary Meets Dolly - October 14, 2013 Category: Geneticists and Genetics Commentators Tags: Genetic Engineering Source Type: blogs
An Alzheimer's Cure? Not So Fast.
The British press (and to a lesser extent, the US one) was full of reports the other day about some startling breakthrough in Alzheimer's research. We could certainly use one, but is this it? What would an Alzheimer's breakthrough look like, anyway?
Given the complexity of the disease, and the difficulty of extrapolating from its putative animal models, I think that the only way you can be sure that there's been a breakthrough in Alzheimer's is when you see things happening in human clinical trials. Until then, things are interesting, or suggestive, or opening up new possibilities, what have you. But in this disease, brea...
Source: In the Pipeline - October 11, 2013 Category: Chemists Tags: The Central Nervous System Source Type: blogs
Senate Committee Hearing on Disability Fraud
Tad DeHaven
On Sunday, CBS’s 60 Minutes profiled Sen. Tom Coburn’s (R-OK) on-going investigation of fraud and abuse in the federal government’s two main disability programs: Social Security Disability Insurance and Supplemental Security Income (see Chris Edwards’ discussion here). Yesterday, the Senate Committee on Homeland Security & Governmental Affairs (Coburn is the ranking member) held a hearing on a particularly egregious example centered on the Social Security Administration’s Huntington, WV office.
The case is a perfect example of what is quickly becoming known as the “disability-industrial c...
Source: Cato-at-liberty - October 8, 2013 Category: Health Medicine and Bioethics Commentators Authors: Tad DeHaven Source Type: blogs
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Source: Carin' For Karen - August 25, 2013 Category: Cancer Authors: rwouoillk Tags: Life in general Source Type: blogs
Happy Independence Day America July 4, 2013
Signing of the Declaration of Independence, painting by John Trumbull in U.S. Capitol
IN CONGRESS, JULY 4, 1776.
THE UNANIMOUS DECLARATION OF THE THIRTEEN UNITED STATES OF AMERICA.
WHEN, in the Course of human Events, it becomes necessary for one People to dissolve the Political Bands which have connected them with another, and to assume, among the Powers of the Earth, the separate and equal Station to which the Laws of Nature and of Nature’s GOD entitle them, a decent Respect to the Opinions of Mankind requires that they should declare the Causes which impel them to the Separation.
We hold these Truths to be self-e...
Source: FullosseousFlap's Dental Blog - July 4, 2013 Category: Dentists Authors: Flap Tags: Independence Day Source Type: blogs
"Nueroscience and the Child Welfare System"
Recently posted to SSRN (and published at 21 Journal of Law and Policy 37 (2012)): "Neuroscience and the Child Welfare System" Clare Huntington, Fordham Law School A growing body of research by neuroscientists demonstrates that a child’s early life experiences... (Source: Neuroethics and Law Blog)
Source: Neuroethics and Law Blog - May 24, 2013 Category: Psychiatrists and Psychologists Authors: NELB Staff Source Type: blogs
RP-VITA telemedicine robot may be coming to your hospital
The next time you go to the hospital, you may run into a telemedicine robot like the RP-VITA. At ATA 2013, InTouch Health & iRobot announced the first hospitals and medical centers that will be using the RP-VITA telemedicine robot. Here's a snippet from their press release:
Austin, TX (May 6, 2013) -- Top academic medical centers and leading healthcare systems across North America are now introducing their patients to RP-VITATM, the first FDA-cleared telemedicine robot that combines state-of-the-art telecommunications and AutoDrive technology. InTouch Health, the leader in acute care telemedicine, to...
Source: Medicine and Technology by Dr. Joseph Kim - May 7, 2013 Category: Technology Consultants Tags: ATA2013 telehealth robotics iRobot telemedicine Source Type: blogs
FDA: Enhancing Benefit-Risk Assessment in Regulatory Decision Making
Last summer, Congress enacted the Food and Drug Administration Safety and Innovation Act (FDASIA), which included the fifth authorization of the Prescription Drug User Fee Act (PDUFA V). Title I of FDASIA reauthorizes the Prescription Drug User Fee Act (PDUFA), which provides FDA with the necessary user fee resources to maintain an efficient review process for human drug and biologic products. The reauthorization of PDUFA includes performance goals and procedures that represent FDA’s commitments during FY 2013-2017. These commitments are referred to in section 101 of FDASIA.
Section X of these commitments relates ...
Source: Policy and Medicine - April 25, 2013 Category: Health Medicine and Bioethics Commentators Authors: Thomas Sullivan Source Type: blogs
Not Zelda, But ...
... Links? :) We're prepping for a third birthday party up in this piece (no one says that - I realize that) and so brain power is limited. This limited brain power is not a new thing, but at least I have an excuse today.Onward! Things of note this week that are diabetes-related, not-diabetes related, and everything in between:Ida Skivenes is from Oslo, Norway, and her Instagram account brings me unadulterated joy. I wish she made breakfast every day at my house, because starting the day with a bowl of adorable pig yogurt would be a bonus.I can barely handle how horrible this is. But I also ...
Source: Six Until Me. - April 12, 2013 Category: Diabetes Source Type: blogs
Twitch: My life in a Huntington’s Disease family
Here at DW, we encounter Disruptive Women of all ages and levels of experience. They are all unique in personality and interests, but they all have one thing in common: a desire to create change. Our youngest disruptors are eager to make their mark on the world – and some of them already have. Every month, we’ll be featuring an up-and-coming Disruptive Woman who is making a difference through her energy, ideas, actions, leadership and enthusiasm.
Kristen Powers has always refused to believe that a person needs a car, money, or a job to make a difference in this world. In 2003, when Kristen was just nine years o...
Source: Disruptive Women in Health Care - April 11, 2013 Category: Health Medicine and Bioethics Commentators Authors: dw at disruptivewomen.net Tags: Up-and-coming Disruptive Women Huntington's Disease Source Type: blogs
Pharmalot... Pharmalittle... Good Morning
Hello, everyone, and nice to see you again. Once again, we apologize for the recent inability to access the site. As you might imagine, we have not been happy either with the way the redesign was handled, but we are moving forward, as always, and quaffing another cup of stimulation to help us along. Please join us. After all, there is much to do. With that said, here are some tidbits to get you started. Meanwhile, thanks for your patience and please do stay in touch, especially if you hear something interesting...
China Reports Its Eight Bird Flu Death (Reuters)
Pfizer R&D Building Demolition May Be Delayed (The Day...
Source: Pharmalot - April 9, 2013 Category: Pharma Commentators Authors: esilverman Source Type: blogs
Another Sign of Resistance? - Doctors Sue Hospital Systems Alleged to Put Money Ahead of Mission
This article also described how money allegedly came before patient care:The court papers include email exchanges between Henderson and the other doctors in the ER group. In a November 2010 email, he discusses ways to punish doctors who do fewer patient transfers and reward those who tally more transfers:'(T)op quarter $1,000, next quarter $500. Bottom quarter up or out talk at annual evaluation.' In other words, according to doctors who received the email, Henderson proposed that doctors would be divided into strata based on who recommended the most transfers, with the top group winning bonus money while those who ...
Source: Health Care Renewal - April 4, 2013 Category: Health Medicine and Bioethics Commentators Tags: Prime Healthcare organized resistance Dignity Health lawsuit mission-hostile management Catholic Healthcare West Source Type: blogs
