Patient-reported experience with Fabry disease and its management in the real-world setting: results from a double-blind, cross-sectional survey of 280 respondents

CONCLUSIONS: Our analysis highlights the gap between current standard-of-care in disease monitoring and patient perception of disease progression among patients with FD. This information may be helpful for healthcare providers and drug developers seeking to improve the care of patients with FD by addressing unmet needs of high relevance.PMID:38605390 | DOI:10.1186/s13023-024-03090-4

Source: Pain Physician - April 11, 2024 Category: Anesthesiology Authors: Lisa Berry Jerry Walter Jack Johnson Julia Alton Janet Powers Xavier Ll òria Irene Koulinska Meghan McGee Dawn Laney Source Type: research