"Somewhere to turn to with my questions": A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy

CONCLUSION: Our study shows that GenE Compass is feasible with the appropriate allocation of resources and highly acceptable to caregivers who have a child with a DEE.PMID:37832466 | DOI:10.1016/j.ejpn.2023.09.010

Source: European Journal of Paediatric Neurology - October 13, 2023 Category: Neurology Authors: Eden G Robertson Natalie J Roberts Fleur Le Marne Erin Beavis Rebecca Macintosh Lauren Kelada Stephanie Best Ilias Goranitis Kristine Pierce Deepak Gill Rani Sachdev Ann Bye Elizabeth E Palmer Source Type: research