Human-centered design study to inform traceback cascade genetic testing programs at three integrated health systems

Conclusion: Participants were open to receiving information about traceback genetic testing and recognized its value. Participants preferred discussing genetic testing with a trusted clinician. Directed communication was preferable to passive communication. Other valued information included how genetic tests help their family and the cost of genetic testing. These findings are informing traceback cascad e genetic testing programs at all three sites.
Source: Public Health Genomics - Category: Genetics & Stem Cells Source Type: research