Selumetinib Reduces Tumor Volume in Neurofibromatosis Selumetinib Reduces Tumor Volume in Neurofibromatosis
Results of a phase 1 study show this molecular therapy shrinks inoperable plexiform neurofibroma, benign tumors on peripheral nerves related to neurofibromatosis type 1, with an acceptable toxicity profile.Medscape Medical News (Source: Medscape Pathology Headlines)
Source: Medscape Pathology Headlines - December 29, 2016 Category: Pathology Tags: Neurology & Neurosurgery News Source Type: news

Experimental Drug Shows Promise for Disfiguring Tumor Condition
17 of 24 children with neurofibromatosis type 1 saw improvement, but more study neededSource: HealthDay Related MedlinePlus Pages: Children's Health, Medicines, Neurofibromatosis (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - December 29, 2016 Category: Consumer Health News Source Type: news

Pediatric Neural Tumor Shrinkage Shown in Selumetinib Clinical Trial
Early-phase clinical trial of selumetinib in children with common genetic disorder neurofibromatosis type 1 (NF1) and plexiform neurofibromas (Source: Disabled World)
Source: Disabled World - December 29, 2016 Category: Disability Tags: Clinical Trials Source Type: news

Early-phase trial demonstrates shrinkage in pediatric neural tumors
(NIH/National Cancer Institute) In an early-phase clinical trial of a new oral drug, selumetinib, children with the common genetic disorder neurofibromatosis type 1 (NF1) and plexiform neurofibromas, tumors of the peripheral nerves, tolerated selumetinib and, in most cases, responded to it with tumor shrinkage. (Source: EurekAlert! - Cancer)
Source: EurekAlert! - Cancer - December 28, 2016 Category: Cancer & Oncology Source Type: news

Huddersfield boy diagnosed with neurofibromatosis type 1 that his father has
Nathan Lewis, 30, and three-year-old Thiago, from Huddersfield, were both born with neurofibromatosis type 1. It has caused the pair to develop rare tumours. (Source: the Mail online | Health)
Source: the Mail online | Health - November 16, 2016 Category: Consumer Health News Source Type: news

Student, 20, undergoes her 12th operation to remove the tumours on her face
Tina Sayavic, 20, from Llubjana, Slovenia, suffers from a rare condition known as neurofibromatosis type 1 - which started showing its first signs when she was a youngster. (Source: the Mail online | Health)
Source: the Mail online | Health - November 9, 2016 Category: Consumer Health News Source Type: news

Heartbreaking story of the brothers battling a cruel genetic disorder
Adam and Neil Pearson, 31, from Croydon, suffer from neurofibromatosis, which affects them very differently. Adam has huge tumours all over his face, while Neil battles memory loss and epilepsy. (Source: the Mail online | Health)
Source: the Mail online | Health - August 25, 2016 Category: Consumer Health News Source Type: news

India boy with tumour which makes his face droop says he is too scared to leave his village
Bhupinder Singh, 16, from India, suffers from neurofibromatosis. He was born with a small tumour on his eyelid, but as he grew older it engulfed his face, leaving him unable to see properly. (Source: the Mail online | Health)
Source: the Mail online | Health - August 4, 2016 Category: Consumer Health News Source Type: news

The teenage 'elephant man': Boy with tumour which makes his face droop like it is melting says he is too scared to leave his village
Bhupinder Singh, 16, from India, suffers from neurofibromatosis. He was born with a small tumour on his eyelid, but as he grew older it engulfed his face, leaving him unable to see properly. (Source: the Mail online | Health)
Source: the Mail online | Health - August 4, 2016 Category: Consumer Health News Source Type: news

Children 'going blind and risk dying from cancer' as doctors overlook crucial NF1 signs
Despite being more common than cystic fibrosis and being linked to a number of serious complications, the incurable condition neurofibromatosis (NF1) is not checked for in infancy. (Source: the Mail online | Health)
Source: the Mail online | Health - July 24, 2016 Category: Consumer Health News Source Type: news

Morocco mother disowned by husband after facial tumours ravaged her looks
Samira Benhar, 39, from Casablanca, Morocco, has neurofibromatosis, a genetic condition which causes uncontrollable growths along the nerves. She said surgery had given her a new life. (Source: the Mail online | Health)
Source: the Mail online | Health - June 3, 2016 Category: Consumer Health News Source Type: news

Mother disowned by her husband after facial tumours ravaged her looks has life-changing surgery to re-build her face
Samira Benhar, 39, from Casablanca, Morocco, has neurofibromatosis, a genetic condition which causes uncontrollable growths along the nerves. She said surgery had given her a new life. (Source: the Mail online | Health)
Source: the Mail online | Health - June 3, 2016 Category: Consumer Health News Source Type: news

Children’s Tumor Foundation Recognizes Neurofibromatosis Awareness...
Raising Awareness for Genetic Disorder that affects 1 in 3,000(PRWeb May 04, 2016)Read the full story at http://www.prweb.com/releases/2016/05/prweb13387888.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - May 4, 2016 Category: Pharmaceuticals Source Type: news

Medical News Today: Precision treatment for NF1 steps closer with mutation clues
A new study suggests the particular symptoms likely to arise in a person with neurofibromatosis type 1 may be determined by the particular mutation they have in their NF1 gene. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - March 31, 2016 Category: Consumer Health News Tags: Neurology / Neuroscience Source Type: news

Anticancer drug restores hearing in some patients with neurofibromatosis
(Johns Hopkins Medicine) In a small clinical study with an anticancer drug that halts blood vessel growth, a handful of people with neurofibromatosis type 2 (NF2) and hearing loss had restoration of hearing. (Source: EurekAlert! - Cancer)
Source: EurekAlert! - Cancer - March 14, 2016 Category: Cancer & Oncology Source Type: news