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How to Present a Decision Object in Health Preference Research: Attributes and Levels, the Decision Model, and the Descriptive Framework
AbstractIn health preference research (HPR) studies, data are generated by participants ’/subjects’ decisions. When developing an HPR study, it is therefore important to have a clear understanding of the components of a decision and how those components stimulate participant behavior. To obtain valid and reliable results, study designers must sufficiently describe the decision mode l and its components. HPR studies require a detailed examination of the decision criteria, detailed documentation of the descriptive framework, and specification of hypotheses. The objects that stimulate subjects’ decisions in HPR studies ...
Source: The Patient - Patient-Centered Outcomes Research - February 10, 2024 Category: International Medicine & Public Health Source Type: research

Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm
ConclusionsThe actions taken by the health service after a PSI, and people ’s perceptions about the probability of success and the size of potential reward, can influence whether a claim is made. Results show the importance of giving an appropriate apology and conducting a satisfactory investigation. This stresses the importance around how patients are treated after a PS I in influencing the clinical negligence claims that are made. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - February 1, 2024 Category: International Medicine & Public Health Source Type: research

Stated-Preference Survey Design and Testing in Health Applications
AbstractFollowing the conceptualization of a well-formulated and relevant research question, selection of an appropriate stated-preference method, and related methodological issues, researchers are tasked with developing a survey instrument. A major goal of designing a stated-preference survey for health applications is to elicit high-quality data that reflect thoughtful responses from well-informed respondents. Achieving this goal requires researchers to design engaging surveys that maximize response rates, minimize hypothetical bias, and collect all the necessary information needed to answer the research question. Design...
Source: The Patient - Patient-Centered Outcomes Research - January 31, 2024 Category: International Medicine & Public Health Source Type: research

Patients ’ Preferences for Systemic Lupus Erythematosus Treatments—A Discrete Choice Experiment
ConclusionsSLE patients fall into two groups with distinct preferences: benefit-seekers, who prioritize reducing the impact of disease symptoms, and risk-avoiders, who prioritize avoiding treatment risks. The implication of this finding will depend on the reasons for these differences, which warrant further research. Our study suggests that these differences arise due to the impact of disease and treatment experience on preferences. If so, well-informed patients may not be willing to tolerate the risks associated with oral corticosteroids in exchange for their benefits. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - January 25, 2024 Category: International Medicine & Public Health Source Type: research

Impact of Difelikefalin on the Health-Related Quality of Life of Haemodialysis Patients with Moderate-To-Severe Chronic Kidney Disease-Associated Pruritus: A Single-Arm Intervention Trial
ConclusionsPatients undergoing haemodialysis with moderate-to-severe CKD-aP receiving difelikefalin reported experiencing clinically meaningful improvements in both their pruritus symptoms and itch-related QoL.ClinicalTrials.gov registration number, NCT03998163; first submitted, 7 May 2019. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - January 9, 2024 Category: International Medicine & Public Health Source Type: research

Attitudes Toward the Adoption of Remote Patient Monitoring and Artificial Intelligence in Parkinson ’s Disease Management: Perspectives of Patients and Neurologists
ConclusionThis study offers insights into the potential drivers and barriers for adopting AI-assisted RMS in PD care. Recognizing these factors is pivotal for the successful integration of these digital health tools in PD management. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - January 5, 2024 Category: International Medicine & Public Health Source Type: research

Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox
ConclusionsA disease-agnostic patient-engagement Toolbox was developed and tested to capture patient experience data. These materials can be customized based on study objectives and leveraged by various stakeholders to identify opportunities to enhance the patient centricity of healthcare delivery and research. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - January 3, 2024 Category: International Medicine & Public Health Source Type: research

Acknowledgement to Referees
(Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - December 21, 2023 Category: International Medicine & Public Health Source Type: research