Correction to: A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature
(Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - February 28, 2024 Category: International Medicine & Public Health Source Type: research

Exploring Consumers ’ Motivations and Experiences of Engaging as Partners in Cancer Research
ConclusionsAustralian policy has made important steps towards consumer engagement in research. This study showed that demonstrating an appreciation for consumers and effective communication are key areas to consider when designing implementation strategies of these policies in the cancer research space in the future. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - February 24, 2024 Category: International Medicine & Public Health Source Type: research

From Qualitative Research to Quantitative Preference Elicitation: An Example in Invasive Meningococcal Disease
ConclusionWillingness to be vaccinated against IMD was affected by vaccine attributes but largely insensitive to IMD incidence and severity. This article provides an example of how to apply the recent reporting guidelines for qualitative developmental work in preference studies, with 21 out of 22 items in the guidelines being considered. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - February 23, 2024 Category: International Medicine & Public Health Source Type: research

Pretesting Discrete-Choice Experiments: A Guide for Researchers
AbstractDiscrete-choice experiments (DCEs) are a frequently used method to explore the preferences of patients and other decision-makers in health. Pretesting is an essential stage in the design of a high-quality choice experiment and involves engaging with representatives of the target population to improve the readability, presentation, and structure of the preference instrument. The goal of pretesting in DCEs is to improve the validity, reliability, and relevance of the survey, while decreasing sources of bias, burden, and error associated with preference elicitation, data collection, and interpretation of the data. Des...
Source: The Patient - Patient-Centered Outcomes Research - February 16, 2024 Category: International Medicine & Public Health Source Type: research

Key Insights into Developing Qualitative Concept Elicitation Work for Outcome Measures with Children and Young People
AbstractQualitative concept elicitation can develop meaningful patient-reported outcome measures for children and young people; however, the methods used for concept elicitation are often underreported for this population. This paper provides in-depth insight into the methods used for concept elicitation with children and young people, with a focus on key stages of concept elicitation that are challenging or unique to doing this research with children. Drawing on our experiences of developing wellbeing measures for children and young people aged 6 –15 years, we detail the processes followed in our qualitative concept eli...
Source: The Patient - Patient-Centered Outcomes Research - February 14, 2024 Category: International Medicine & Public Health Source Type: research

How to Present a Decision Object in Health Preference Research: Attributes and Levels, the Decision Model, and the Descriptive Framework
AbstractIn health preference research (HPR) studies, data are generated by participants ’/subjects’ decisions. When developing an HPR study, it is therefore important to have a clear understanding of the components of a decision and how those components stimulate participant behavior. To obtain valid and reliable results, study designers must sufficiently describe the decision mode l and its components. HPR studies require a detailed examination of the decision criteria, detailed documentation of the descriptive framework, and specification of hypotheses. The objects that stimulate subjects’ decisions in HPR studies ...
Source: The Patient - Patient-Centered Outcomes Research - February 10, 2024 Category: International Medicine & Public Health Source Type: research

Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm
ConclusionsThe actions taken by the health service after a PSI, and people ’s perceptions about the probability of success and the size of potential reward, can influence whether a claim is made. Results show the importance of giving an appropriate apology and conducting a satisfactory investigation. This stresses the importance around how patients are treated after a PS I in influencing the clinical negligence claims that are made. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - February 1, 2024 Category: International Medicine & Public Health Source Type: research

Stated-Preference Survey Design and Testing in Health Applications
AbstractFollowing the conceptualization of a well-formulated and relevant research question, selection of an appropriate stated-preference method, and related methodological issues, researchers are tasked with developing a survey instrument. A major goal of designing a stated-preference survey for health applications is to elicit high-quality data that reflect thoughtful responses from well-informed respondents. Achieving this goal requires researchers to design engaging surveys that maximize response rates, minimize hypothetical bias, and collect all the necessary information needed to answer the research question. Design...
Source: The Patient - Patient-Centered Outcomes Research - January 31, 2024 Category: International Medicine & Public Health Source Type: research