The Patient - Patient-Centered Outcomes Research This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments
AbstractHealth-related discrete choice experiments (DCEs) information can be used to inform decision-making on the development, authorisation, reimbursement and marketing of drugs and devices as well as treatments in clinical practice. Discrete choice experiment is a stated preference method based on random utility theory (RUT), which imposes strong assumptions on respondent choice behaviour. However, respondents may use choice processes that do not adhere to the normative rationality assumptions implied by RUT, applying simplifying decision rules that are more selective in the amount and type of processed information (i.e...
Source: The Patient - Patient-Centered Outcomes Research - May 2, 2023 Category: International Medicine & Public Health Source Type: research

Patient-Centered Clinical Trial Design for Heart Failure Devices via Bayesian Decision Analysis
ConclusionsA Bayesian decision analysis is a systematic, transparent, and repeatable process for combining clinical and statistical significance, explicitly incorporating burden of disease and patient preferences into the regulatory decision-making process. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - April 19, 2023 Category: International Medicine & Public Health Source Type: research

Decision Making About Disease-Modifying Treatments for Relapsing-Remitting Multiple Sclerosis: Stated Preferences and Real-World Choices
ConclusionsThere was variation in which discrete choice experiment attributes correlated with participants ’ real-world DMT choices. This may indicate patient preferences for treatment efficacy/risk are not adequately taken account of in prescribing. Treatment guidelines must ensure they take into consideration patients’ preferences and improve communication around treatment efficacy/risk. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - April 18, 2023 Category: International Medicine & Public Health Source Type: research

The Pogo-ization of Post-Pandemic Vaccine Policy
(Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - April 12, 2023 Category: International Medicine & Public Health Source Type: research

Do Cash-For-Care Schemes Increase Care Users ’ Experience of Empowerment? A Systematic Review
ConclusionThis review confirms that multiple factors can affect care users ’ experience of empowerment. However, active cooperation and communication between care user and care provider are essential if policy makers wish to increase care users’ experience of empowerment. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - April 8, 2023 Category: International Medicine & Public Health Source Type: research

Individual Differences in the Patient Experience of Relapsing Multiple Sclerosis (RMS): A Multi-Country Qualitative Exploration of Drivers of Treatment Preferences Among People Living with RMS
ConclusionsBuilding upon previous stated preference research, this study highlighted the importance of qualitative research in understanding what drives patient preferences. Characterized by the heterogeneity of the RMS patient experience, findings indicate the nature of treatment decisions in RMS to be highly individualized, and the subjective relative importance placed on different treatment factors by PLwRMS to vary. Such qualitative patient preference evidence could offer valuable and supplementary insights, alongside quantitative data, to inform decision making related to RMS treatment. (Source: The Patient - Patient-...
Source: The Patient - Patient-Centered Outcomes Research - April 5, 2023 Category: International Medicine & Public Health Source Type: research

Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study
ConclusionsWhen combined with a reframing of factors affecting dementia clinical research enrollment within the context of ability and willingness to participate, these findings may be useful for elucidating factors and developing strategies to enhance participation in clinical research and advance efforts dedicated to finding effective treatments for dementia. (Source: The Patient - Patient-Centered Outcomes Research)
Source: The Patient - Patient-Centered Outcomes Research - March 29, 2023 Category: International Medicine & Public Health Source Type: research

So You Want to Build Your Disease ’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience
AbstractPatient registries fulfill a number of key roles for clinicians, researchers, non-profit organizations, payers, and policy makers. They can help the field understand the natural history of a condition, determine the effectiveness of interventions, measure safety, and audit the quality of care provided. Successful registries in cystic fibrosis, Duchenne ’s muscular dystrophy, and other rare diseases have become a model for accelerating progress. However, the complex tasks required to develop a modern registry can seem overwhelming, particularly for those who are not from a technical background. In this Education a...
Source: The Patient - Patient-Centered Outcomes Research - March 22, 2023 Category: International Medicine & Public Health Source Type: research