Management and treatment of musculoskeletal problems in adults with cerebral palsy: Experience gained from two lifespan clinics
J Pediatr Rehabil Med. 2024;17(1):19-33. doi: 10.3233/PRM-240018.NO ABSTRACTPMID:38552124 | DOI:10.3233/PRM-240018 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Mark Katsma Haiqing Liu Xiaoyu Pan Kyle J Ryan David P Roye Henry G Chambers Source Type: research

Erratum to: 2023 updates to the spina bifida transition to adult care guidelines
J Pediatr Rehabil Med. 2024;17(1):143. doi: 10.3233/PRM-249001.NO ABSTRACTPMID:38552125 | DOI:10.3233/PRM-249001 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Source Type: research

JPRM vol. 17 issue 1 Opening Editorial
J Pediatr Rehabil Med. 2024;17(1):1. doi: 10.3233/PRM-249002.NO ABSTRACTPMID:38552126 | DOI:10.3233/PRM-249002 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Heakyung Kim Christopher Raffi Najarian Justin W Ramsey Sruthi Pandipati Thomas Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024;17(1):35-45. doi: 10.3233/PRM-240006.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with CP, ages 18 to 65,...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024;17(1):3-7. doi: 10.3233/PRM-240013.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical fields are explored...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024 Mar 22. doi: 10.3233/PRM-240006. Online ahead of print.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with ...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024 Mar 23. doi: 10.3233/PRM-240013. Online ahead of print.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024 Mar 22. doi: 10.3233/PRM-240006. Online ahead of print.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with ...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024 Mar 23. doi: 10.3233/PRM-240013. Online ahead of print.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024 Mar 22. doi: 10.3233/PRM-240006. Online ahead of print.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with ...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024 Mar 23. doi: 10.3233/PRM-240013. Online ahead of print.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024 Mar 22. doi: 10.3233/PRM-240006. Online ahead of print.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with ...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024 Mar 23. doi: 10.3233/PRM-240013. Online ahead of print.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024 Mar 22. doi: 10.3233/PRM-240006. Online ahead of print.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with ...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024 Mar 23. doi: 10.3233/PRM-240013. Online ahead of print.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research